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A representative from Ruby's Rainbow will be with us to talk about their program designed to "grant scholarships to adults with Down syndrome who are seeking post-secondary education, enrichment or vocational classes." They'll be presenting at the National Down Syndrome Congress convention in Indianapolis and we'll get a "sneak peak" at what they have to offer! Find out more about Liz and Tim Plachta, their beautiful daughters, and why they created this wonderful opportunity for adults! Check out their website to see some of the past recipients!
You can also find them on Facebook and Twitter!
Attorney and bioethisist Mark Leach will be talking to us about his upcoming presentation at the National Down Syndrome Congress Convention: "The New Era of Prenatal Testing: Answering Questions About the New Age of Genetics." If anyone knows the most current information on this topic it's Mark! Join us as we talk about his important work within the Down syndrome community and hear his thoughts about what we, as parents of adults who have Down syndrome, can do to help.
From an article by Maureen Wallace in AllParenting:
"Mark is dogged in his passion not only for his own daughter but for all people with Down syndrome," says Dr. Brian Skotko, co-director of the Down Syndrome Program at Massachusetts General Hospital.
You can also find Mark on Twitter and LinkedIn
We're excited to have Sujata Bardhan, Ph.D and Melissa Parisi, M.D., Ph.D. from the Eunice Shriver Kennedy National Institute for Child Health and Human Development (NICHD), National Institute of Health (NIH) visit us to talk about DS-Connect the online research and data portal that launched in September of last year. We'll find out where you can connect with them at the NDSC conference and talk a little bit about their work so far. Drs. Bardhan and Parisi are very open to hearing your questions and concerns as parents/guardians and have already started a dialogue with us on The Road about how it can help the adult population. Join us to get a preview of what's coming up in Indianapolis and feel free to call in with questions or post them on our chat board while we're live on the air.
You can check out the registry site here.
Getting ready for the NDSC conference in Indianapolis? We're talking to some of the presenters and exhibitors who will be focused on adult issues. Our first scheduled guest is Marianne Marts from Joey's Ups with Downs. Marianne is co-guardian of Joey, her older brother who has Down syndrome. She'll be talking about her presentation scheduled for Saturday called "Calm to Crisis at the Flip of a Switch! How to Prepare for a Family Emergency Even if They "Don't" Want to Talk About It!" Marianne will also be in the exhibit hall with her book "Will You Be My Friend" that features his brother Joey.
Join us for a preview from this highly involved sibling who knows her way around the advocacy world and can help us understand the perspective of sibling guardianship.
We'll continue Saturday's conversation about what we're looking forward to learning from the National Down Syndrome Congress convention and what we need from our new community focused on caring for adults who have Down syndorme. This is your turn to give us input on what features you'd like to see, topics you'd like to discuss, or resources you'd like us to try to get. We'll also talk about all of the great guests we have lined up for the week leading up to the conference!
We hope you'll join us !
On The Curepanel Talk Show this week, we launched a new talk series on rare cancers/diseases, discussing Lynch syndrome and its Emotional implications with Megan Myers, a genetic counselor at UCSF, and Georgia Hurst and David Dubin who are Lynch syndrome survivors and advocates.
Lynch Syndrome is characterized by the inheritance of genetic defects in the MLH1, MSH2, MSH6 and PMS2 genes, and predisposes families to developing colorectal cancer and endometrial cancer in women.
The panel discussion educated the audience about the genes linked to Lynch Syndrome and their association to other diseases, including the diagnosis, treatment and management of Lynch syndrome. In addition the panelists emphasized the importance of seeing a genetic counselor before and after testing, who can help deal with the emotionally taxing diagnosis of the disease, explain about its implications and screening measures, provide information about support groups, and also encourage other family members to get tested.
The Cure Panel Talk Show Team thanks the panelists and the audience for a very informative discussion.
For details of our upcoming shows please mail firstname.lastname@example.org.
The Emmy Award-winning actress has played Traci Abbott on the #1 daytime Drama, The Young and the Restless for 31 years. She is an avid equestrian and animal lover. In addition that that, she is heavily involved in programs to keep the arts in schools. She has written a book about quilting and teaches people that anyone can be creative. Join Rob as he chats with the multi-talented Beth Maitland.
JEFFERY C. OLSEN is a best selling author and inspires audiences across the country with his intriguing personal story of perseverance and inner strength. In 1997, Jeff experienced a horrific automobile accident which inflicted multiple life threatening injuries, including crushing both his legs. His left leg was amputated above the knee. The most devastating outcome of the accident was the loss of his wife and youngest son, both killed instantly. At that time, Jeff had profound experiences, which deepened his spirituality and gave him insights and gifts not common in today's world. He found the courage to carry on, heal, care for his living son and eventually thrive in his career and community contributions. Jeff has since remarried and adopted two more boys.
Professionally Olsen is a conceptual thinker, a proven team leader, and a die-hard brand enthusiast. He brings vision and passion to everything he does. With accolades from the New York One Show, the Clio Awards and Communication Arts, Jeff takes his place among the lynch pins of his industry. Couple his creative recognition with appearances in Forbes Magazine, the Inc. 500 and an Ernst & Young Entrepreneur of the Year Finalist Award and you have a winning combination of talent and tenacity.
Tune in on Tuesday June 3, at 8 PM CDT (What is Central Daylight Time?)
This week we will be discussing the debate surrounding Shaken Baby Syndrome (SBS), with our guests Audrey Edmunds and Attorney Jen Fitzgerald. New scientific evidence has come to light in recent years challenging the validity of SBS, calling into question thousands of convictions that may have been secured on flawed science.
Audrey Edmunds was wrongfully convicted in 1996 of reckless homicide for the shaking death of Natalie Beard, a 7-month-old infant she was watching while doing home daycare. Audrey was sentenced to 18 years in prison.
In 2006 the Wisconsin Innocence Project, took on Audrey’s case. New scientific evidence was emerging that was not available at the time of Audrey’s trial that supported her innocence.
In January of 2008, the Wisconsin Court of Appeals ruled that "a shift in mainstream medical opinion" had cast doubt on whether shaking could have caused the brain injury that caused Natalie Beard's death, leading the court to order a new trial. The District Attorney's office dropped the case, freeing Audrey after serving 11 years in prison for a crime she did not commit.
We will be discussing why women may be suffering from what's known as Rushing Woman's Syndrome. It is something that has effected women that are overworked, under paid, and under valued. This article says that this is based upon women juggling many hats. These hats include, raising children, working outside the home, running a business, driving your kids to their activities and being addicted to social media. The second topic is about the story regarding the Stockton California criminal that has women swooning over him.
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