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Saying "I Do" to RSD
Today you are going to meet a wonderful couple. Jane has RSD and met her now husband, Gus, after she had been struggling with it for some time.
They fell in love and decided to get married; knowing full well what may lie ahead for them.
They just celebrated their one year anniversary recently.
Join us for an inspiring show. Meet both Jane and Gus. Find out how they manage to keep love alive, despite the challenges of daily living with this disabling condition called CRPS or aka as RSD (Reflex Sympathetic Dystrophy).
Twinkle VanFleet of RSD(S)-CRPS Advisory www.CRPSAdvisory.com will discuss Functional Restoration for the pain patient.
Diagnosed with CRPS type 2 (Causalgia) in 2003 after a January of 2001 fall where the tendons where torn from the bones in her right foot in a work related injury.
Discussing both the physical and psychological aspects of pain and what we can do to help ourselves forward into learning and maintaining a better quality of life.
She attended the Compass Center for Functional Restoration in Sacramento CA, a 6 week long, 5 day a week, 7 hour a day, outpatient multi-disciplinary program focusing on new direction's. The Center believes this is a life approach not just treating the pain but the whole person.
Years ago it became her passion and purpose to promote guidance, awareness,
resources and information to those who have been diagnosed with Reflex
Sympathetic Dystrophy Syndrome/Complex Regional Pain Syndrome as well as to
those who wish to learn and understand it.
A Group Leader for MDJunction's Reflex Sympathetic Dystrophy's support Forum
As an Advocate for RSD/CRPS she's active in promoting several websites via
her own and networking.
We don't have to be a sufferer, but instead, work toward being a survivor.
There's always hope!
Our guest today will be Sherri White, a 38-year-old registered nurse currently on disability, was diagnosed with multiple sclerosis in 2006.
She spent three years on conventional medications including Avonex, Copaxone, and Tysabri. The first two drugs failed to stop the progression of the disease. Tysabri worked, but it left Sherri feeling ill for a week after each month's IV infusion. Tysabri also carries with it the risk of a deadly brain infection called PML.
Since May 2009, Sherri has been on low-dose naltrexone (LDN). She has regained feeling throughout most of her body, has more energy, can walk greater distances, and doesn't suffer from the nasty side effects of the drugs she was on previously.
Although Sherri still has many MS symptoms that are the result of earlier damage to her brain, she believes that low-dose naltrexone has given her a better quality of life than she could ever have hoped for on the mainstream medications.
Low Dose Naltrexone is also being used for RSD (Reflex Sympathetic Dystrophy) and so far is having some success. More studies need to be done and the drug company's have a reluctance to fund those studies because it is a generic medicine and they cannot make huge profits.
For more information on LDN: http://www.ldnaware.org/
For 7 yrs, Marsha Tyszler has been living with widespread Reflex Sympathetic Dystrophy (RSD), a Traumatic Brain Injury (TBI), and Fibromyalgia. Her journey with chronic pain began in August 2003, when Marsha was a camp counselor. While trying to jump over a locked fence during a relay race, she fell onto her back and immediately felt severe burning and coldness in her left leg and foot. Dazed, she continued to run not realizing that she had deeply sliced her left leg from mid-calf to mid-thigh as well as having a five-inch gash on her right inner knee.
she is always cold, while her upper body overheats and sweats profusely. Marsha's muscle weakness now affects her hands in addition to her legs, and her nails and hair do not grow normally in all four extremities. She also discovered she has an arrhythmia since the nerve signals being sent to her heart are misfiring.
Marsha has undergone a multitude of treatments and medications to little or no avail.
“Most people would have long given up on their dreams between the physical struggles I endure, dealing with Worker's Compensation's lack of cooperation, and not being able to move on with my life's ambitions, among other things.
Very special guest today. My guest is Haley Wood, a 13 yr old and her Mom has Reflex Sympathetic Dystrophy.
What is it like to live with a parent with a chronic illness? We will find out today.
Haley volunteers for the Power of Pain Foundation
Her dream is to become Olympic soccer player.
From Haley: One quote that I live by is that "Sometimes you have to realize what is important to you, what you can live with, but most importantly what you can't live without."
My guest today is Alice Langholt, Reiki Master teacher.
Alice is a parent and teacher with Master level training in several Reiki modalities. She teaches Reiki and gives Reiki healing treatments in person and by distance. Clients have reported great improvement after one or more Reiki sessions with Alice. Alice has treated and taught Reiki to hundreds of people in the past year. Her 4 kids and husband, Evan, know & use Reiki.
As a teacher, Alice believes that close guidance and mentoring
September is Pain Awareness month. Join us to learn about all the events across the country and see how you can get involved. Creating awareness is the first step to getting research funds, support and eventually cures for the many illness suffered by millions.
Our guest this week is Col. Doug Strand. He suffers from RSD and nearly losing his life to a pulmonary embolism in Dec 2009. The PE (pulmonary embolism's) was caused from the frequent swelling of his leg from the RSD.
Colonel Doug Strand is an Air Force reservist with 33 years of combined active duty and reserve service in the military. He is the senior reserve Air Traffic Control Officer in the Air Force.
He served on active duty for 11 years prior to becoming a reservist in 1995, but since then he has accumulated an additional 8 years of active duty time in deployments all over the world, the latest being to Iraq.
While traveling to perform his reserve duty in 2008, he dropped his motorcycle on his leg causing crushing bone injuries. His medical treatment by the military was delayed for seven months due to glitches in receiving active duty orders.
During this period, a complication of RSD/CRPS-II set in which wasn't diagnosed for 9 months. The frequent swelling in his leg from RSD/CRPS resulted in pulmonary embolisms (PEs) and he nearly lost his life over the 2009 Christmas holiday.
Col Strand is now focused on educating RSD patients on the dangers of PE's and general RSD awareness. He is also an advocate for reservists who frequently return from war zones with injuries and are discharged upon returning home without continued medical care or evaluated for disabling conditions including RSD, which is neither considered a disability by the Department of Defense nor the Department of Veteran's Affairs.
My guest today is Jeff Skeeter Hartzog. Many of you know him from Facebook. He suffers from RSD as well as other health problems.
I met Jeff when I first diagnosed with RSD in 2005. He was a tremendous help. From teaching me about the different medications, to just being there when I needed a friend.
Jeff was also a patient of Dr. Hooshmand's before he retired. He will be sharing his experience's of the treatments he received there.
I am bring back author and motivational speak, Nicole Hemmenway. Due to time restrictions, many people did not get to speak with her about her book, "No, It's Not In My Head:The Journey of a Chronic Survivor". She has committed her life to becoming a leading voice in chronic pain awareness and an advocate of patients rights.
Guest, Nicole Hemmenway, author, and Motivational speaker.
Nicole Hemmenway understands chronic pain, living half her life with the neurological and chronic pain disorder, Complex Regional Pain Syndrome.
Although the disease went into remission for nearly four years, it returned with vengeance during the beginning of her senior year of high school. A fluke incident causing her to pull two tendons in her right hand resulted in a long and painful nine-year journey through the medical system.
By no longer allowing the pain to define her identity, Nicole empowered herself to become proactive. Taking control of her own life was the reason she found treatments that fit her lifestyle and body. She overcame her disability to prove miracles happen.
By experiencing firsthand the great strides and pitfalls of the medical profession, Nicole gained valuable life lessons of expectations and rejections. She has lived through the pain, the struggle, the hell. She overcame what doctors told her was a hopeless situation and became a survivor.
She has worked in conjunction with the National Pain Foundation, a non-profit organization dedicated to advancing functional recovery of persons in pain through information, education and support, for seven years. Writing articles for their website and speaking at various medical conferences around the country on their behalf has been a joy for her.
UK Healthcare: Part II. Jayne and Gus will be back. This time with information about the UK healthcare system. How private insurance works there; how the Nationalized system works.
This should be a warning to anyone who thinks nationalizing the healthcare system in this country is a good thing. It sounds like a wonderful thing; everyone gets free healthcare. Nothing in life is free and when you hear Jayne tell you the truth behind this type of system, you will be shocked at the bureaucracy, the long waits and the lack of options.
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