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In this episode of Epilepsy.com's Hallway Conversations, Dr. Joseph Sirven, Professor of Neurology at Mayo Clinic Arizona and Editor-in-Chief of Epilepsy.com, interviews Lara Jehi, MD from the Cleveland Clinic Epilepsy Center. They will be discussing an algorithm on the treatment of epilepsy in patients with a normal MRI. This was also the subject of a 2013 AES Annual Course.
We all know how music can evoke memories of a past love or a special moment in our lives. Can music really impact patients and their caregivers?
Join host Tami Neumann as she sits down in conversation with Ron Gregory, CEO of Alzheimer's Music Connect, as they talk about the importance of music in the care of patients with Alzheimer's and their caregivers.
Learn how Alzheimer's Music Connect uses the unique process of Altus Oscillation, to increase the therapeutic benefits of music to provide comfort to the patient and respite for the caregiver.
Learn more about Ron Gregory and Alzheimer's Music Connect.
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The Powerful Patient has recently been granted full membership in the International Alliance of Patients' Organizations (IAPO), an organization of organizations worldwide,
IAPO is a unique global alliance representing patients of all nationalities across all disease areas and promoting patient-centred healthcare around the world.
IAPO members are patients' organizations working at the international, regional, national and local levels to represent and support patients, their families and carers. A patient is a person with any chronic disease, illness, syndrome, impairment or disability.
Joyce and Mike speak with Rachel Seal-Jones,Senior Policy Officer of IAPO, about the organization's activities. IAPO has recently been granted special consultative status with the United Nations Economic and Social Council (ECOSOC).
IAPO will now actively engage with ECOSOC and its subsidiary bodies, the United Nations Secretariat, programmes, funds and agencies in a number of ways. This includes:
Attendance at meetings and access to the United Nations
Submission of formal statements and oral presentations to the Council and other UN bodies on relevant topics
Taking part in consultations with ECOSOC and other UN bodies
For additional informaion, please see http://www.patientsorganizations.org
Please join "Dialysis Talk" in welcoming James Scott, a dialysis patient, who agreed to help lead in the discussion on how important it is for patients to be assertive when it comes to their care.
Frank discussions with Dialysis patient's, healthcare workers, doctors and clinics about care issues in Dialysis.
An open forum to help patients and caregivers work together to improve training and the overall health of patients.
Hosted by: Dialysis Advocates LLC
15 years advocating, and consulting within dialysis care.
For more information go to dialysisadvocates.com
In 2013 Pfizer launched the Pfizer Blue Button Project, a first-of-it’s-kind initiative enabling patients who have participated in clinical trials the opportunity to download their individual clinical data. Using the Blue Button standard launched by the White House, patients will be empowered to use the data to improve their overall health and wellness, from sharing with healthcare providers to powering clinical risk assessments. In this show, our host Craig Lipset, Head of Clinical Innovation, R&D, Pfizer speaks to the leaders behind these initiatives to find out why they launched, initial learnings, and where the projects may go if successful. Also joining Craig is Thomas Krohn, Business Lead for the Lilly Clinical Open Innovation Team.
Craig Lipset, Head of Clinical Innovation, R&D, Pfizer
Adam Dole, Presidential Innovation Fellow, The White House
Thomas Krohn, Business Lead for the Lilly Clinical Open Innovation Team
Jennifer Wulff, Director, Clinical Innovation, Pfizer
#RxChat: Overcoming Barriers & Effective Communications with your Patients
1) How often are you faced with any type of barrier when communicating with your patients?
2) What steps have you taken to overcome language barriers?
3) What steps have you taken to help those who are hearing or vision impaired?
4) What other barriers have you faced and what have you done to overcome these barriers?
5) How can you help patients with limited health literacy?
#RxChat is co-founded by Pharmacy Podcast and RxWiki
Dave deBronkart has a well-earned reputation as an e-Patient. An internationally recognized speaker, author, and health policy advisor, he has words of strength for patients for sure.
In addition, he works with physicians, hospitals, and pharmaceutical companies to help them Let Patients Help!
When most manufacturers decide to create a new product, they do market research and conduct focus groups to determine in advance what the consumers want.
In medicine, it's mostly about what the doctors want.
But the doctors are not the end-user consumers in medicine, they are talented and experienced personnel, but the end-user consumers are the patients.
Come hear what Dave believes are the many ways that Patients can help improve healthcare.
See also Dave's new book, Let Patients Help! A patient engagement handbook - how doctors, nurses, patients and caregivers can partner for better health care. http://www.epatientdave.com/let-patients-help/
Audio clip credits:
Gimme My DaM Data – Maastricht, 2011
Posted by WellApps, https://www.youtube.com/watch?v=0b4li7N_7Ck
Music Video by the Collaborative Agency Group, 2013
Alabama The Beautiful but Not Free. Medical Marijuana Patients Persecuted by the government. THe government is putting up a sham and calling it medical marijuanas. Time to unite and win the fight. Faye Medlock will be our guest.
Join host, Craig H. Lipset, Head of Clinical Innovation, R&D, Pfizer lead a discussion on what it really means to partner with patients in clinical trials.
Jeri Burtchell, Founder, Partners in Research
Regina Holliday, Artist and Medical Advocate
For more information on Jeri's new launch, visit: Healthivibe.com and for Regina walking gallary, google Regina Holliday, walking gallary.
For more information on the topic of Patients as Partners, visit www.theconferenceforum.org. The Conference Forum presented a program in March 2014 fully dedicated to understanding the journey a patient takes in clinical trials. Also take a look at Disruptive Innovations to Advance Clinical Trials scheduled for September 11-12, 2014 in Boston. This event addresses significant innovation to help improve a patients experience in a clinical trial.
How to Balance Learning Objectives & Gameplay Without All the Stress
Pharmaguy interviews Andy Yeoman, co-founder of Focus Active Learning, about making games that work for patients. The only way to get it right is to understand exactly what you're trying to achieve within the target audience and know how to communicate with them in a way that persuades them to think and behave differently. We will discuss the obstacles that Pharma faces when designing games for patients and how the industry can avoid creating stressful games that imitate Angry Birds or Space Invaders.