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Fran Mott has been the Chapter Leader in Michigan for the VHL Family Alliance since 1994. What that means is that she is in charge of taking care of people with von Hippel-Lindau throughout Michigan.
Von Hippel-Lindau (VHL) is a genetic cancer syndrome, caused by one tiny misspelling in one gene, the VHL gene. People who carry this alteration are at increased risk of having one or more tumors in a variety of places in the body. There is currently no magical cure, it's all about watching out for issues, finding them early, and getting the right treatment at the right time.
Fran has worked with physicians at University of Michigan Medical Center and other hospitals throughout the state to become more aware of VHL, diagnose it earlier and more accurately, and help people manage their health. The University of Michigan has created a Clinical Care Center for VHL, part of the CCC program of the VHL Alliance.
Fran is retiring this year after nearly 20 years of volunteer service to her neighbors throughout the state. Joyce speaks with Fran about her experience as a patient herself, a mother, and a volunteer in service to others with this rare disease.
The VHL Alliance will hold its Annual Meeting September 21, 2013, in Ann Arbor, with a dinner September 20 honoring Fran and Dr. James Montie of the U of M.
For information or to register for the meeting, see http://vhl.org/meetings
In the United States we are privileged to have some of the best medical care facilities in the world, and some of the most talented physicians. But not everyone in the United States is able to access these services. What we are working to improve through the Affordable Care Act (ACA, sometimes referred to as Obamacare) is access to that care, and moving from a system that focuses on fixing medical problems, to a system and a mindset that focuses on PREVENTING medical problems.
Memphis, Tennessee, is an interesting case in point. In Memphis, some 20% of the population has incomes below the poverty line, and a very high percentage among the "working poor." Some qualify for Medicaid, but many do not. People who are uninsured or "under-insured" often find themselves in need of medical care that they cannot afford. One serious illness or automobile accident can easily bankrupt the household.
Church Health Center has worked for many years to help fill the gaps in health care in Memphis. Robin and Joyce speak with Jeff Hulett of Church Health Center about their work. With the ACA their role is changing, but their work is by no means done. See more at <a href="http://churchhealthcenter.org">http://churchhealthcenter.org</a>
Patient Innovations and OnTime Care® is designed to focus on the needs and goals of both the patient and the facility they are in.
Aiming for a higher level of efficiency and care is always a goal. You can have any business and apply that thought. Ken Greenberg and Akram Boutros, MD FACHE have designed a system that can you take that thought and make it into an actionable idea.
Ken Greenberg, 516-983-4050, email@example.comAkram Boutros, MD FACHE, 516-815-8118, | firstname.lastname@example.org
Ken Greenberg explains Patient Innivations on the Daily Blu with ask Mr. Long Island.
Strategies of Success
Brian A Cohen Host
Multi-Disciplinary Care for the Pediatric Patient with OI - Dr. Cathleen Raggio
In this episode, we talk with Dr. Zackary Berger (Primary care physician, epidemiologist, and bioethicist at Johns Hopkins) and Regina Holliday (Bereaved young adult spouse, patients rights advocate and Founder, The Walking Gallery of Healthcare) about the role of primary care provider in cancer survivorship, doctor-patient communication and shared decision making for patient-centered care. Survivor Spotlight on Get Busy Living Day with Alli Ward (VP, Programs, Stupid Cancer and 8-year ovarian cancer survivor)
David Houle and Jonathan Fleece are co-authors of the book The New Health Age: The Future of Health Care in America. Three years ago they co-authored a provocative short blog post in KevinMD, predicting that by 2020 one-third of American hospitals would close. http://www.kevinmd.com/blog/2012/03/onethird-hospitals-close-2020.html
They pointed to four factors for this:
First, America must bring down its crippling healthcare costs, and hospitals are one of the most expensive components of the system.
Second, statistically speaking hospitals are just about the most dangerous places to be in the United States. Three times as many people die every year due to medical errors in hospitals as die on our highways.
Third, hospital customer service is abysmal. Where else do you have to wait four hours for service?
Fourth, health care reform will make connectivity, electronic medical records, and transparency commonplace in health care, and customers will be able to do some comparison shopping for the first time.
We have invited them to speak with us about how we are doing along that path. Have hospitals taken notice and changed their ways? or are we still on a timeline toward closure of one-third of American hospitals? And if that is true, how will we receive our care in the new age?
David Houle is a futurist, advisor and speaker and Jonathan Fleece is a health care attorney, advisor, and speaker.
Mike and Joyce speak with Dr. Julia Hallisy about The Empowered Patient Coalition: providing healthcare improvement and patient safety tools directly to consumers.
About Dr. Hallisy:
Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since that time, she has been a full-time practicing San Francisco dentist.
Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
Dr. Hallisy began to research the topic of patient safety in 1998. She has lobbied for health care reform in Washington, DC with Consumer’s Union.
Dr. Hallisy is committed to and passionate about the subjects of patient safety, health care reform and medical error reduction. She is the founder and president of The Empowered Patient Coalition.
Dr. Hallisy was born and raised in San Francisco, where she lives with her husband, John Hallisy, and their two sons, Daniel and Kevin. The Hallisy’s ten-year old daughter, Kate, lost her life-long battle with cancer in February 2000.
in Self Help
Nurse next door is able to care for your loved ones with care levels ranging from companionship right up to Nursing and end of life care.
David and Luci Shaw are excited to be able to bring senior and their families the peace of mind they nedd through focused, personalized home care services. Our talent is caring and as such, our goal is to make lives better one visit at a time.
Father Donald E. Mowery is the retired leader of Youth Services globally. He has had a radio show, Talk it Out with Father Don, on WHBQ radio in Memphis, Tennessee, for the past 45 years. This month Joyce Graff appeared on his show. Joyce and Father Don have a great conversation about Powerful Patient and its mission, and also about Youth Services and its mission, highlighting many parallels. In both cases, they work to empower people to work through the issues they cannot change and tackle constructively the things they can change.
Learn more about Father Don. A new book, Spiritual Networking, by Darrell B. Uselton and David Yawn, recounts the history of Youth Services in Memphis and worldwide.
This seven minute recording introduces your host, Dr. Christian Hageseth III. A 74 year old retired physician who has Parkinson's Disease, he has worked with medical cannabis for three years. In that time he discovered that persons with little prior experience with cannabis frequently fail to continue because of ineffectiveness or negative side effects. Starting medical cannabis is not as simple as just lighting up a joint.
Howard Block and I will be discussing how to talk about end of life care with a loved one, patient or friend. It can be difficult to know how to approach the topic and exactly what to say. We will discuss why it shouldn't be a conversation with only your doctor but also your family. Why is it important? It is a topic no one wants to have but it can be so helpful knowing what a loved onewants when death is near. We both have had the experience of working with people who knew what they wanted and others who didn't. We have learned the importance of this conversation and how it helps families. We are talking about people saying exactly how much care they want whether full code or not. We hope to remove some of the fear and uncertainty that people experience. It is our goal for listeners to know it is their choice.