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  • 01:58

    Marian Hollingsworth: Medical Abuse of My Father & becoming a patient advocate

    in Parents

    Hosted by Marti Oakley & Debbie Dahmer

    My father, Keith Blair, went into the hospital in July of 2009 for diagnosis of back pain. Without our knowledge or consent, he was given a cocktail of Risperdal, Haldol, Ativan, Tylenol with codeine, and Morphine. When I asked the doctor about this, he said it was just "hospital delirium,"  Sent to a  nursing home, my father was given more antipsychotic drugs, along with double doses of AmbienCR, the long acting version of the drug. He ended up with the bad side effects of these black box drugs such as heart trouble, severe dehydration and kidney trouble, and sudden diabetes. He also contracted a MRSA eye infection which spread to his lungs, fell 7 times in 12 days and developed a bedsore. (He was only in the nursing home 18 days.) He ended up a second hospital due to heart and kidney problems, where the same nursing home doctor treated him.) At the second hospital, he was given daily Risperdal, and we were told to prepare for his death. When I went through the records later, I discovered that a cardiologist said he was improving and that he could be released to the nursing home in a few days.

    2. How to get ALL the records.

    3. Your rights in a hospital or nursing home as a patient or family member. Know the codes in your state so you can use them. if needed, if facilities try to violate these rights.

    3. Dealing with the health department for complaints. Your rights in a complaint. The complaint in my father's case resulted in a new policy from the health department, AFL 1108. It mandates that nursing homes must verify that patients on antipsychotic drugs being transferred from hospitals have informed consent forms in their records, and if not, that informed consent must be obtained before the drugs can be given.

    4. Dealing with the medical board for complaints.


  • 00:46

    VACCINES & VETERANS ~ Anita Stewart on "Public Advocate", Host Sallie O. Elkordy

    in News

    Anita Stewart has her own radio program, "Wise Women" http://www.wisewomenmediaradio.com

    "Public Advocate" Host, Sallie O. Elkordy for Mayor, Vaccine Free NYC

    Blog with 11/11 Event http://BillionToddlerMarchForSurvival.blogspot.com
    Legislation for a Vaccine Free 2015 http://tinyurl.com/VaccineFree2015


  • 00:43

    Ask the Advocate: How to Qualify for an IEP and/or 504 Plan for Kids with ADHD

    in K-12

    Parents often complain that their child with ADHD is struggling in school.   A common complaint is that public schools are not meeting the needs of students with ADHD.     In this edition, IEP Advocate Jamison Jessup will talk about how to help your child with ADHD become eligible for an IEP and/or 504 Plan and which one is better?

    Andrea Frank, founder of the ADHD Kids Care Facebook group and a parent who Jamison Jessup is helping, will be a special guest on this show.

    Join us this Sunday, October 18, 2015 at 8:00 p.m. (Eastern Standard Time).

    Jamison Jessup is a professional IEP advocate with MyChildWins.com.   He has participated in more than 600 IEP meetings and has represented parents in more than 225 due process hearings asserting the rights of student's with disabilities, including ADHD.


  • 00:31

    Dan Dougherty Living life to its fullest as a patient advocate with Epilepsy

    in Motivation

    Living with Epilepsy on a day to day basis can best be explained by one type of person. Someone diagnosed with it, who is now a patient advocate, a public speaker and is very open about his challenges and successes.

    Dan Dougherty.

    I am forty- year old man who who enjoys life and engaging with people!

    As a person with epilepsy and trained Toastmaster, I am offering myself to speak about this mysterious disorder from a personal perspective.

    I am trained by the Epilepsy Foundation Eastern PA as a Patient Advocate. This training and my personal experience qualify me to speak about epilepsy with authority. I believe epilepsy should be brought out of the shadows of the past and into the light of the present.

    My Story published in Neurology Now:


    Dan Dougherty

    Strategy of Success
    Brian A Cohen DTM Host

  • 00:17
  • 00:31

    Empowered Patient Coalition

    in Health

    Mike and Joyce speak with Dr. Julia Hallisy about The Empowered Patient Coalition: providing healthcare improvement and patient safety tools directly to consumers.


    About Dr. Hallisy:

    Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since that time, she has been a full-time practicing San Francisco dentist.

    Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
    Dr. Hallisy began to research the topic of patient safety in 1998. She has lobbied for health care reform in Washington, DC with Consumer’s Union.

    Dr. Hallisy is committed to and passionate about the subjects of patient safety, health care reform and medical error reduction. She is the founder and president of The Empowered Patient Coalition.

    Dr. Hallisy was born and raised in San Francisco, where she lives with her husband, John Hallisy, and their two sons, Daniel and Kevin. The Hallisy’s ten-year old daughter, Kate, lost her life-long battle with cancer in February 2000.

  • 01:01

    Powerful Patient meets Youth Services

    in Health

    Father Donald E. Mowery is the retired leader of Youth Services globally.  He has had a radio show, Talk it Out with Father Don, on WHBQ radio in Memphis, Tennessee, for the past 45 years.  This month Joyce Graff appeared on his show.  Joyce and Father Don have a great conversation about Powerful Patient and its mission, and also about Youth Services and its mission, highlighting many parallels.  In both cases, they work to empower people to work through the issues they cannot change and tackle constructively the things they can change.

    Learn more about Father Don.  A new book, Spiritual Networking, by Darrell B. Uselton and David Yawn, recounts the history of Youth Services in Memphis and worldwide.

  • 00:08

    Hello and Welcome to Medical Marijuana Patient Education

    in Education

    This seven minute recording introduces your host, Dr. Christian Hageseth III.  A 74 year old retired physician who has Parkinson's Disease, he has worked with medical cannabis for three years.  In that time he discovered that persons with little prior experience with cannabis frequently fail to continue because of ineffectiveness or negative side effects. Starting medical cannabis is not as simple as just lighting up a joint.

  • 00:31

    Why One-Third of Hospitals will Close by 2020

    in Health

    David Houle and Jonathan Fleece are co-authors of the book The New Health Age: The Future of Health Care in America.  Three years ago they co-authored a provocative short blog post in KevinMD, predicting that by 2020 one-third of American hospitals would close.  http://www.kevinmd.com/blog/2012/03/onethird-hospitals-close-2020.html

    They pointed to four factors for this:

    First, America must bring down its crippling healthcare costs, and hospitals are one of the most expensive components of the system.
    Second, statistically speaking hospitals are just about the most dangerous places to be in the United States. Three times as many people die every year due to medical errors in hospitals as die on our highways.
    Third, hospital customer service is abysmal. Where else do you have to wait four hours for service?
    Fourth, health care reform will make connectivity, electronic medical records, and transparency commonplace in health care, and customers will be able to do some comparison shopping for the first time.

    We have invited them to speak with us about how we are doing along that path.  Have hospitals taken notice and changed their ways? or are we still on a timeline toward closure of one-third of American hospitals?  And if that is true, how will we receive our care in the new age?

    David Houle is a futurist, advisor and speaker and Jonathan Fleece is a health care attorney, advisor, and speaker.



  • 00:29

    Patients and Physicians Network about Kidney Cancer

    in Health

    The annual Kidney Cancer Symposium was held this year in Miami, Florida.  It was chaired by Dr. Toni Choueiri of Dana-Farber/Harvard Cancer Institute in Boston, and contained a wealth of information for physicians, both urologists and oncologists dealing with kidney cancer.

    This year for the first time in many years more patients and patient advocates were included in the mix.  In the past Joyce has been one of 4-5 patients invited to help report the meeting, under the general editorship of Mike Lawing.  This year, in part to celebrate the 25th anniversary oCaleb f the founding of KCA by a kidney cancer patient, more patients were invited to attend, including two from outside the United States: Caleb from Nigeria and Juanita Ruiz from Peru.

    Billy Foster, a long-time KCA supporter and jazz musician, was on hand to provide wonderful music for the reception.  He has given us permission to broadcast an interview he recorded with Caleb Egwuenu, founder and president of Stand Up to Cancer Naija, http://www.su2c9ja.org  In Nigeria many people still believe that cancer is "juju" or some harmful magical power inflicted by someone else, or as a result of something you did wrong.  The biggest challenge to managing any cancer is that diagnoses are usually after the cancer is already advanced to a late stage.  For Nigeria as for most developing countries, the management of late stage cancer is beyond the skills and budgets of the health care systems.  Their only hope of managing cancer is to find it at early stages.

    Billy's jazz music show can be found at http://billfosterjazzzone.com


  • 01:00

    MyNDTALK - The Patient Experience - Brian Boyle

    in Psychology

    The Patient Experience - Brian Boyle

    "My dreams were shattered like the bones in my body. I lost 60% of my blood, heart was ripped across my chest, lungs collapsed, major organs were damaged, pelvis and ribs were pulverized, and I was resuscitated eight times. While in a two-month long medically-induced coma, I was unable to move or talk to anyone around me, yet I was able to hear, see, and feel pain for a majority of my time in the Intensive Care Unit" Join Dr. Brewer for this conversation with Brian

    Boyle - who survived, for many, what could have been insurmountable...

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