SORT BY Relevancy
Hosted by Marti Oakley & Debbie Dahmer
My father, Keith Blair, went into the hospital in July of 2009 for diagnosis of back pain. Without our knowledge or consent, he was given a cocktail of Risperdal, Haldol, Ativan, Tylenol with codeine, and Morphine. When I asked the doctor about this, he said it was just "hospital delirium," Sent to a nursing home, my father was given more antipsychotic drugs, along with double doses of AmbienCR, the long acting version of the drug. He ended up with the bad side effects of these black box drugs such as heart trouble, severe dehydration and kidney trouble, and sudden diabetes. He also contracted a MRSA eye infection which spread to his lungs, fell 7 times in 12 days and developed a bedsore. (He was only in the nursing home 18 days.) He ended up a second hospital due to heart and kidney problems, where the same nursing home doctor treated him.) At the second hospital, he was given daily Risperdal, and we were told to prepare for his death. When I went through the records later, I discovered that a cardiologist said he was improving and that he could be released to the nursing home in a few days.
2. How to get ALL the records.
3. Your rights in a hospital or nursing home as a patient or family member. Know the codes in your state so you can use them. if needed, if facilities try to violate these rights.
3. Dealing with the health department for complaints. Your rights in a complaint. The complaint in my father's case resulted in a new policy from the health department, AFL 1108. It mandates that nursing homes must verify that patients on antipsychotic drugs being transferred from hospitals have informed consent forms in their records, and if not, that informed consent must be obtained before the drugs can be given.
4. Dealing with the medical board for complaints.
Living with Epilepsy on a day to day basis can best be explained by one type of person. Someone diagnosed with it, who is now a patient advocate, a public speaker and is very open about his challenges and successes.
I am forty- year old man who who enjoys life and engaging with people!
As a person with epilepsy and trained Toastmaster, I am offering myself to speak about this mysterious disorder from a personal perspective.
I am trained by the Epilepsy Foundation Eastern PA as a Patient Advocate. This training and my personal experience qualify me to speak about epilepsy with authority. I believe epilepsy should be brought out of the shadows of the past and into the light of the present.
My Story published in Neurology Now:
Strategy of Success
Brian A Cohen DTM Host
Karen Mercereau is a nationally recognized visionary leader in healthcare, known for her ability to transcend challenges, and create opportunity from complexity. This was the quality behind her founding of RN Patient Advocates in 2002, for which she received a Purpose Prize Fellowship. A clinical RN for 45 years in diverse intensive care as well as community health settings, Karen was also integral in developing the first hospice in Tucson, AZ. Recognizing the dearth of public health programs available in the AIDS community in the late 1980’s, she chaired a countywide consortium to develop AIDs relief programs in Tampa Bay. Karen has also been instrumental in the design and implementation of hospital and health care systems, lecturing nationally on their wider applications. Currently, Karen heads the RN Patient Advocate Learning Intensive in association with the University of Arizona College of Nursing. This immersion learning program for qualified clinical RNs prepares them for the development of their own practices as independent RN Patient Advocates (iRNPAs).
Karen is also the leader of the RN Patient Advocate Group Practice in Southern Arizona comprised of independent RN Patient Advocates who provide both individual RN Patient Advocate services as well as community health literacy programs. She is the President of Health Education and Advocacy Leaders, Inc., a foundation she started to support community health literacy programs.
CareGiverStory.com is honored to have as our special guest Mary Aime’-Juedes RN, BSN, iRNPA.
Mary graduated from the University of Wisconsin-Madison with a Bachelor’s of Science in Nursing. She moved to Arizona in 1997 after freezing in Wisconsin just long enough. Her experience includes Medical/Surgical nursing, Oncology, Physical Medicine and Rehabilitation, Clinical Research, Workers Compensation Case Management, Managed Care Sales & Marketing, Utilization review, and Integrative and Functional Medicine.
The 20+ years of widely-varied experience and advanced training in RN Patient Advocacy has prepared her for her most recent endeavor as a Personal RN Patient Advocate.
Mary is happily married for more than 20 years to the ‘boy across the street’. She is the self-proclaimed “favorite” aunt to 10 nieces and nephews. Mary’s hobbies include traveling, acrylic painting, interior design and music. Her claim to fame is playing her flute in Carnegie Hall.
Patient Advocacy is an important area of specialization concerned with a patient’s knowledge regarding the use of health plans, insurance, understanding medication that has been prescribed to you as well as your diagnosis and treatment. With the Institute of Medicine reporting that anywhere between 44,000 and 98,000 hospital patients die every year due to medical mistakes, it is increasingly vital that patients have someone to help guide them.
In this episode of iNurse Radio, our host Jeff Allen chats with Ava Sammarco, LPN, regarding the importance of patient advocacy, how patients can avoid succumbing to the problems in our healthcare system and the questions you should be asking as a patient to ensure you receive above standard medical care.
Ava Sammarco, LPN
Ava Sammarco is a Licensed Practical Nurse at Park Creek, a residential care center located in Park Creek, Buffalo.
With more than 35 years in the field Ava is an expert in geriatric and acute care as well as patient advocacy, one of her favorite topics! She is also the host of a radio show called "Nurses Notes" and television show entitled "Health Focus".
MONDAY, December 17, 2012
Tonight our incredible special guest is patient advocate, Jenni Davis. She is the Oncology Counselor and Patient Advocate for Mission Hope Cancer Center in Santa Maria, California. With 20 years experience in the Worker's Compensation field as a vocational rehabilitation counselor she has a great knowledge of community resources and has coordinated and facilitated support groups, educational programs and financial resources for cancer patients, their families and caregivers.
We welcome Jenni as a vetted caregiver support group leader and call on her experience and knowledge to help our Huntington's community. The philosophy is that all caregivers whether for cancer or HD have the same issues of stress and face many challenges in caring for their patients.
Thank you Jenni for caring to share your lifes' work and experience with us.
Exhibiting artist, entrepreneur of a leading design firm in Australia, patient advocate for pelvic pain, creator of her own line of French greeting cards and coming soon working on a film documentary with Peter Lamont, Soula Mantalvanos is amazing in her own right. Add in the love story with her husband Theo who stands by her side as partner in the firm to ongoing supportive caregiver since her accident causing the ongoing disability.
Since Soula lives in constant pain, did they close up shop and call it quits? No, instead their design studio at home is now an international example by media including on The Design Files and designers of universal design at its best: hidden, unaware, completely the couple's own style, and a beehive of creativity and design solutions.
While an accident left her in constant chronic pelvic pain, she adapted by creating her design station at different levels so she could be in different positions. Then recently she took another step and went public, creating the largest pelvic pain library online.
Many stories in one- from being one of today's creative leaders, to patient advocacy with real solutions, to an old fashion love story- meet Soula and Theo live.
Tom Doyle-U.S. Patience strategy against ISIS. What is really happening to underground Christians in the Middle East? How did that foreshadow the Paris attack.
Jack Fowler-National Review Publisher discusses a Confrontation With The Red Guard At Yale and the conservative magazines' past 60 years.
Jeff Kemp-Time to Face Your Blitz with the former NFL QB & Family Life VP as he talks about the effective prayer of a son, and Steve Largent's son and sharing the burden.
Steve "The Movie Guy" Evans-Live from the movie capital of the world, Hollywood, CA, The Movie Guy reports on the weekend's big winners at the box office and the best of the coming attractions.
Julia Schopick-The Patient advocate & best-selling author discusses Honest Medicine: Remedies For Chronic Illnesses. She's paying her experiences forward.
Joe Hicks-Project 21 black leadership network member, & the vice president of Community Advocates, Inc takes on the topic of Syrian refugees, do Governors have the right to not let them in?
John McTernan-Is This Flood of Muslim Immigrants spelling the End of Europe? Is This God's Judgment? McTernan is the founder of Defend and Proclaim the Faith Ministries.
Phil Hotsenpiller-Influence Church of Anaheim Hills, CA Senior pastor explains Finding Direction In The Middle of Chaos & America's Heritage of the Rule of Law.
eCareDiary will speak to Karyn Rizzo, author of "Aging in America Navigating Our Healthcare System" and patient advocate, about resources to help caregivers through varied health-related decisions such as choosing the right doctor, advanced directives, to name a few.
Christa became actively involved in wolf and wolfdog rescue, transport, and education. Christa currently shares her life with her husband, seven wolfdogs, three northern breed mixes, two teacup doggies, and two young children. She will celebrate five years of marriage in February 2016. - A woman who has it all! Please join Wolfdog Radio as we speak with Christa on the many aspects of her life that keep her on a 26 hour a day schedule.
The annual Kidney Cancer Symposium was held this year in Miami, Florida. It was chaired by Dr. Toni Choueiri of Dana-Farber/Harvard Cancer Institute in Boston, and contained a wealth of information for physicians, both urologists and oncologists dealing with kidney cancer.
This year for the first time in many years more patients and patient advocates were included in the mix. In the past Joyce has been one of 4-5 patients invited to help report the meeting, under the general editorship of Mike Lawing. This year, in part to celebrate the 25th anniversary oCaleb f the founding of KCA by a kidney cancer patient, more patients were invited to attend, including two from outside the United States: Caleb from Nigeria and Juanita Ruiz from Peru.
Billy Foster, a long-time KCA supporter and jazz musician, was on hand to provide wonderful music for the reception. He has given us permission to broadcast an interview he recorded with Caleb Egwuenu, founder and president of Stand Up to Cancer Naija, http://www.su2c9ja.org In Nigeria many people still believe that cancer is "juju" or some harmful magical power inflicted by someone else, or as a result of something you did wrong. The biggest challenge to managing any cancer is that diagnoses are usually after the cancer is already advanced to a late stage. For Nigeria as for most developing countries, the management of late stage cancer is beyond the skills and budgets of the health care systems. Their only hope of managing cancer is to find it at early stages.
Billy's jazz music show can be found at http://billfosterjazzzone.com
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