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Karen Mercereau is a nationally recognized visionary leader in healthcare, known for her ability to transcend challenges, and create opportunity from complexity. This was the quality behind her founding of RN Patient Advocates in 2002, for which she received a Purpose Prize Fellowship. A clinical RN for 45 years in diverse intensive care as well as community health settings, Karen was also integral in developing the first hospice in Tucson, AZ. Recognizing the dearth of public health programs available in the AIDS community in the late 1980’s, she chaired a countywide consortium to develop AIDs relief programs in Tampa Bay. Karen has also been instrumental in the design and implementation of hospital and health care systems, lecturing nationally on their wider applications. Currently, Karen heads the RN Patient Advocate Learning Intensive in association with the University of Arizona College of Nursing. This immersion learning program for qualified clinical RNs prepares them for the development of their own practices as independent RN Patient Advocates (iRNPAs).
Karen is also the leader of the RN Patient Advocate Group Practice in Southern Arizona comprised of independent RN Patient Advocates who provide both individual RN Patient Advocate services as well as community health literacy programs. She is the President of Health Education and Advocacy Leaders, Inc., a foundation she started to support community health literacy programs.
Patient Advocacy is an important area of specialization concerned with a patient’s knowledge regarding the use of health plans, insurance, understanding medication that has been prescribed to you as well as your diagnosis and treatment. With the Institute of Medicine reporting that anywhere between 44,000 and 98,000 hospital patients die every year due to medical mistakes, it is increasingly vital that patients have someone to help guide them.
In this episode of iNurse Radio, our host Jeff Allen chats with Ava Sammarco, LPN, regarding the importance of patient advocacy, how patients can avoid succumbing to the problems in our healthcare system and the questions you should be asking as a patient to ensure you receive above standard medical care.
Ava Sammarco, LPN
Ava Sammarco is a Licensed Practical Nurse at Park Creek, a residential care center located in Park Creek, Buffalo.
With more than 35 years in the field Ava is an expert in geriatric and acute care as well as patient advocacy, one of her favorite topics! She is also the host of a radio show called "Nurses Notes" and television show entitled "Health Focus".
CareGiverStory.com is honored to have as our special guest Mary Aime’-Juedes RN, BSN, iRNPA.
Mary graduated from the University of Wisconsin-Madison with a Bachelor’s of Science in Nursing. She moved to Arizona in 1997 after freezing in Wisconsin just long enough. Her experience includes Medical/Surgical nursing, Oncology, Physical Medicine and Rehabilitation, Clinical Research, Workers Compensation Case Management, Managed Care Sales & Marketing, Utilization review, and Integrative and Functional Medicine.
The 20+ years of widely-varied experience and advanced training in RN Patient Advocacy has prepared her for her most recent endeavor as a Personal RN Patient Advocate.
Mary is happily married for more than 20 years to the ‘boy across the street’. She is the self-proclaimed “favorite” aunt to 10 nieces and nephews. Mary’s hobbies include traveling, acrylic painting, interior design and music. Her claim to fame is playing her flute in Carnegie Hall.
Exhibiting artist, entrepreneur of a leading design firm in Australia, patient advocate for pelvic pain, creator of her own line of French greeting cards and coming soon working on a film documentary with Peter Lamont, Soula Mantalvanos is amazing in her own right. Add in the love story with her husband Theo who stands by her side as partner in the firm to ongoing supportive caregiver since her accident causing the ongoing disability.
Since Soula lives in constant pain, did they close up shop and call it quits? No, instead their design studio at home is now an international example by media including on The Design Files and designers of universal design at its best: hidden, unaware, completely the couple's own style, and a beehive of creativity and design solutions.
While an accident left her in constant chronic pelvic pain, she adapted by creating her design station at different levels so she could be in different positions. Then recently she took another step and went public, creating the largest pelvic pain library online.
Many stories in one- from being one of today's creative leaders, to patient advocacy with real solutions, to an old fashion love story- meet Soula and Theo live.
MONDAY, December 17, 2012
Tonight our incredible special guest is patient advocate, Jenni Davis. She is the Oncology Counselor and Patient Advocate for Mission Hope Cancer Center in Santa Maria, California. With 20 years experience in the Worker's Compensation field as a vocational rehabilitation counselor she has a great knowledge of community resources and has coordinated and facilitated support groups, educational programs and financial resources for cancer patients, their families and caregivers.
We welcome Jenni as a vetted caregiver support group leader and call on her experience and knowledge to help our Huntington's community. The philosophy is that all caregivers whether for cancer or HD have the same issues of stress and face many challenges in caring for their patients.
Thank you Jenni for caring to share your lifes' work and experience with us.
Presented below is a Transformative Health interview with Patrick Coonan, dean of the College of Nursing and Public Health at Adelphi University. Patrick talks about the changing nature of nursing, the role technology plays and the biggest changes he sees coming soon to the delivery of care.
Martine Ehrenclou is an award-winning author, patient advocate and speaker. Her latest book, The Take-Charge Patient: How You Can Get the Best Medical Care empowers people to become proactive, assertive and well-informed participants in their own health care. With advice and personal stories from over 200 doctors, nurses, pharmacists, and other health professionals and patients, The Take-Charge Patient reveals insider information inn how to cut through the red tape and navigate today's complex health care system with confidence.
She has been interviewed on NBC Nightly News, KCAL 9/CBS News, Good Day Dallas, NPR and many more shows. We will talk about valuable information on are how to find the best doctor for you, how to prepare for a doctor's appointment to maximize the 7-15 precious minutes, The Patient's Toolkit, how to prevent medical errors, how to prevent medication errors, how to communicate effectively with your medical provider, why the relationship between doctor and patient is so important, how to find discount medical care, and much more.
She can outline strategies to enable patients to take charge of what they can. With health care on everyone's minds, how to navigate it is of utmost importance. Being an advocate for oneself and for others is also an important component of getting the best medical care.
Healthcare Whisperer welcomes Trisha Torrey to the show to discuss why having a patient advocate on your team is an essential ingredient when navigating the healthcare system.
Trisha Torrey is Every Patient’s Advocate, a name she gave herself after a heinous misdiagnosis in 2004 which prompted her career change to patient empowerment and advocacy.
Today she is About.com’s patient empowerment guide. She speaks across the country to both patients and providers, and she has written three books. Her first, written for patients, is called You Bet Your Life! The 10 Mistakes Every Patient Makes (How to Fix Them to Get the Healthcare You Deserve). She has also written two business books for independent patient advocates. In 2009, she founded AdvoConnection.com, an organization that helps patients and caregivers find a private, professional patient advocate to help them navigate the healthcare system. It is supported by the professional organization Trisha started, The Alliance of Professional Health Advocates, which provides business support to help private health advocates start and grow their practices. Trisha has appeared on, or been quoted by CNN, NPR,MSNBC, USA Today, the Wall Street Journal, O Magazine, Redbook, Health Magazine, Fox News, and other media. She can be found at http://www.advoconnection.com http://www.APHAAdvocates.org http://www.everypatientsadvocate.com Be sure to listen in to get valuable information on patient advocacy and why you may need one!
The Powerful Patient has recently been granted full membership in the International Alliance of Patients' Organizations (IAPO), an organization of organizations worldwide,
IAPO is a unique global alliance representing patients of all nationalities across all disease areas and promoting patient-centred healthcare around the world.
IAPO members are patients' organizations working at the international, regional, national and local levels to represent and support patients, their families and carers. A patient is a person with any chronic disease, illness, syndrome, impairment or disability.
Joyce and Mike speak with Rachel Seal-Jones,Senior Policy Officer of IAPO, about the organization's activities. IAPO has recently been granted special consultative status with the United Nations Economic and Social Council (ECOSOC).
IAPO will now actively engage with ECOSOC and its subsidiary bodies, the United Nations Secretariat, programmes, funds and agencies in a number of ways. This includes:
Attendance at meetings and access to the United Nations
Submission of formal statements and oral presentations to the Council and other UN bodies on relevant topics
Taking part in consultations with ECOSOC and other UN bodies
For additional informaion, please see http://www.patientsorganizations.org
Tonight is Patient Spotlight Night- to spotlight youth in pain stories of the @powerofpain youth fundraisers -
Tune in to hear about 4 different diseases and how the kids and the families are working to overcome the challenges
Barby Ingle, Chariman of the Power of Pain Foundation will be co-hosting with me tonight.
We bring you our second episode on Multiple Sclerosis this July. Our guest on the show is Dr. Barry Singer. Barry Singer, M.D., a native of St. Louis, practices neurology at Missouri Baptist Medical Center in St. Louis and is the director of The MS Center for Innovations in Care. He remains in the BJC Medical Group and on staff at Barnes-Jewish Hospital in St. Louis where he practiced full-time from 1999 to 2008. Dr. Singer graduated college from Duke University in 1988 and medical school from Columbia University in 1992. His neurology residency was at Cornell-New York Hospital and his two-year multiple sclerosis fellowship was at the National Institutes of Health. He has been an investigator in more than 20 clinical trials focused on new multiple sclerosis treatment options since 1994. He continues to publish in the field of multiple sclerosis and has served as course director for national continuing education programs. As a leader in multiple sclerosis and patient advocate, he has given lectures on MS throughout the U.S. and internationally.
On the panel are MS survivors and advocates, Bradley Mann, Melissa Cook, Suzanne Robins.