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Cassey Blumenthal has Neurofibromatosis Type 1 as well as dyslexia which is common with NF. She was diagnosed at age 7 and currently there is no cure for neurofibromatosis.
Neurofibromatosis is a genetic disorder that disturbs cell growth in the nervous system, causing tumors to form on nerve tissue. These tumors may develop anywhere in your nervous system, including in your brain, spinal cord and nerves. Neurofibromatosis is usually diagnosed in childhood or early adulthood. Dr Frederick Covington will join us to discuss therapies and assistive technology that he is creating. www.askdrcovington.com
The tumors are usually (benign), but in some cases these tumors become cancerous. Effects of neurofibromatosis can range from hearing loss, learning impairment, and heart and blood vessel (cardiovascular) complications to severe disability due to nerve compression by tumors, loss of vision and severe pain. Learn more about this disease that inflicts about 1 in 3000 people.
This show is a gathering place for anyone seeking recovery from the challenges of life on life's terms. We discuss useful tools that have helped us lighten the load, of our journey through recovery. This is a "we" recovery program, because it is in the "we," that we find the new "me."
We focus on the four A's of Recovery: Awareness, Acceptance, Action and Adaptation. This is a place for survivor's striving to become thrivers.
The front half of show is a featured guest. to join us in the discussion. The second part of the show is Open Mic and some great Indy Music, sure to inspire! Host is Kim Justus, author of In a Flash: Miracles Here and Beyond found at www.inaflash.org & "Like" at www.facebook.com/inaflash.org and www.facebook.com/braininjuryradionetwork
Marie Lazzara, host of "Community," will interview Kim Bischoff, Executive Director of the Neurofibromatosis Network in Wheaton. Neurofibromatosis is a genetic disorder that causes tumor growth. The network is the leading national organization advocating for federal funding for NF research and the development of local NF organizations.
To ask questions or give comments, call (323) 580-5755.
Visit www.nfnetwork.org more information.
For more information about our Radio, visit www.linkedlocalnetwork.com.
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The Elephant man was more than a freak...he was a human being who had a name, and his name was Joseph Carey Merrick. Here is a little bit about him:Joseph Merrick was born on August 5, 1862 in Leicester to Mary Jane and Joseph Rockley Merrick. He had a younger brother and sister and was completely normal until the age of three.In an autobiographical note which appeared on the reverse side of his freak show pamphlet,
It was later discovered that Merrick's disorder was caused by what we today call Neurofibromatosis; Merrick's was NF1.
·NF has been classified into three distinct types; NF1, NF2 and schwannomatosis. They are caused by different genes, located on different chromosomes.
·NF1 is the most common neurological disorder caused by a single gene; occurring in one in every 3,000 children born.
·NF2 is a rarer type, occurring in 1:25,000 people worldwide.
·While today there is no consensus, studies indicate that schwannomatosis occurs in 1:40,000 people.
·The Neurofibromatoses are genetically-determined disorders which affect more than 2 million people worldwide; this makes NF more prevalent than cystic fibrosis.
Hiking just over 1000 miles since the beginning of March, Brian has made many new friends and discoveries. The outward journey is obvious, the inward is not. The stigma of Neurofibromatosis (NF) has played a part in his life that few understand. Today we talk with Brian Caskey of Hiking for Wellness about both of the journey's.
Neurofibromatoses 2 is a rare disorder affects about 1 in 25,000 people. Approximately 50 percent of affected people inherit the disorder; in others the disorder is caused by a spontaneous genetic mutation of unknown cause. While it is not contagious people still see the small tumorous growths and are afraid that they can "catch" this disease.
Dealing with the stigma of looking different and having people shy away from you because you don't look like they do is nothing new. However, as a result of the limited exposure to individuals dealing with NF, understanding why they look different and the effects of NF is.
Join us as we look deeper into the inner journay taken by Brain and many AT Hikers.
in Self Help
Rich believes in living an 'Anyway Lifestyle' - Laughing Anyway, Loving Anyway, Living Anyway - ultimately, Winning Anyway.
Speaking to inspire and empower audiences using his Perflexativity formula: Persistence, Flexibility, and Creativity – he teaches through his extensive personal and professional experiences as a Sales & Marketing Expert, Presentations Consultant & Coach, and patriarch of a household of six kids.
In 2006, he became elective amputee after a lifetime of working to stay on his feet against his doctor's orders - , ultimately discovering there's nothing like that New Foot Smell! - and no matter what obstacles we face in life, we can find a way to find our personal victory, even if it's one we never expected, a way to Win Anyway.
PS: Rich spoke passionately about Neurofibromatosis and how it's affected his family. To learn more please visit: www.thrivingwithnf.com
In this episode, Jets Kicker, Nick Folk talks about his life as an NFL Kicker. Nick will also talk about his 10-year-old cousin, Blake Robinson, who has neurofibromatosis, a genetic disorder that causes tumors to grow in the nervous system. Along with off-season workouts and much more! A must listen for all levels of kickers!
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