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  • 00:30

    Neurofibromatosis Network is the next guest on “Community”

    in Business

    Marie Lazzara, host of "Community," will interview Kim Bischoff, Executive Director of the Neurofibromatosis Network in Wheaton. Neurofibromatosis is a genetic disorder that causes tumor growth. The network is the leading national organization advocating for federal funding for NF research and the development of local NF organizations.

    To ask questions or give comments, call (323) 580-5755.

    Visit www.nfnetwork.org  more information.

    For more information about our Radio, visit www.linkedlocalnetwork.com.

    Link Locally, Connect Globally

  • 03:01


    in Entertainment

    The Elephant man was more than a freak...he was a human being who had a name, and his name was Joseph Carey Merrick. Here is a little bit about him:Joseph Merrick was born on August 5, 1862 in Leicester to Mary Jane and Joseph Rockley Merrick. He had a younger brother and sister and was completely normal until the age of three.In an autobiographical note which appeared on the reverse side of his freak show pamphlet, 

    It was later discovered that Merrick's disorder was caused by what we today call Neurofibromatosis; Merrick's was NF1.

    ·NF has been classified into three distinct types; NF1, NF2 and schwannomatosis. They are caused by different genes, located on different chromosomes.

    ·NF1 is the most common neurological disorder caused by a single gene; occurring in one in every 3,000 children born.

    ·NF2 is a rarer type, occurring in 1:25,000 people worldwide.

    ·While today there is no consensus, studies indicate that schwannomatosis occurs in 1:40,000 people.

    ·The Neurofibromatoses are genetically-determined disorders which affect more than 2 million people worldwide; this makes NF more prevalent than cystic fibrosis.



  • 00:48

    Never Judge A Book By It's Cover or Why Hike The Appalachian Trail

    in Business

    Hiking just over 1000 miles since the beginning of March, Brian has made many new friends and discoveries. The outward journey is obvious, the inward is not. The stigma of Neurofibromatosis (NF) has played a part in his life that few understand. Today we talk with Brian Caskey of Hiking for Wellness about both of the journey's. 

    Neurofibromatoses 2 is a rare disorder affects about 1 in 25,000 people. Approximately 50 percent of affected people inherit the disorder; in others the disorder is caused by a spontaneous genetic mutation of unknown cause. While it is not contagious people still see the small tumorous growths and are afraid that they can "catch" this disease. 

    Dealing with the stigma of looking different and having people shy away from you because you don't look like they do is nothing new. However, as a result of the limited exposure to individuals dealing with NF, understanding why they look different and the effects of NF is.

    Join us as we look deeper into the inner journay taken by Brain and many AT Hikers.


  • 01:00

    Rich Hopkins - How to Live YOUR "Anyway Lifestyle"

    in Self Help

    Rich believes in living an 'Anyway Lifestyle' - Laughing Anyway, Loving Anyway, Living Anyway - ultimately, Winning Anyway.

    Speaking to inspire and empower audiences using his Perflexativity formula: Persistence, Flexibility, and Creativity – he teaches through his extensive personal and professional experiences as a Sales & Marketing Expert, Presentations Consultant & Coach, and patriarch of a household of six kids.

    In 2006, he became elective amputee after a lifetime of working to stay on his feet against his doctor's orders - , ultimately discovering there's nothing like that New Foot Smell! - and no matter what obstacles we face in life, we can find a way to find our personal victory, even if it's one we never expected, a way to Win Anyway.



    PS: Rich spoke passionately about Neurofibromatosis and how it's affected his family. To learn more please visit: www.thrivingwithnf.com



  • 00:24

    Regarding Jay & Nick

    in Family

    One mother struggles with not one but two critically ill children.

  • 00:31

    Nick Folk, New York Jets Kicker

    in Sports

    In this episode, Jets Kicker, Nick Folk talks about his life as an NFL Kicker. Nick will also talk about  his 10-year-old cousin, Blake Robinson, who has neurofibromatosis, a genetic disorder that causes tumors to grow in the nervous system. Along with off-season workouts and much more! A must listen for all levels of kickers!

  • 00:15

    Special Children - Special Parents

    in Family

    This show is about the struggles in the lifestyle of having a child with special needs.

  • 00:15

    Special Children ~ Special Parents

    in Family

    This show is about children with special needs and their very special parents. It can be very hard to have a child that is sick all the time and we will talk about the struggles, problems and joys that come along with being such a parent.