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I have done several shows about Lymphedema and the grassroots efforts to get the Lymphedema Treatment Bill passed. This one came from an original airing of 5/1/10.
"Back in March, we had a show introducting you to the HR 4662 which involves the improvement for health care costs for lymphedema patients. Please join us again today to learn what has been done, what you can do, and what this means to you if you (or someone you know) has lymphedema. We need to get this bill passed in this year's legislation session. We will have Jennifer and Jenny on our show, as well as some other pertinent people that can add more to enlighten about this very important bill." http://www.blogtalkradio.com/oralhistory/2010/05/01/beyond-words-live--understanding-hb-4662
BEYOND WORDS LIVE is designed as a platform for survivors to tell their own stories in their own words.
For more information see http://facebook.com/LymphedemaInTheNews or http://lymphedematreatmentact.org/.
Dr. Stanley Rockson (of Stanford University Medical School) states that: "Lymphedema is a common disease. Approximately 10 million Americans, for example, have lymphedema secondary to breast and pelvic cancer therapy, recurrent infections, injuries, or vascular surgery." (2010) Imagine, if there were approximately 10 million Americans then, how many more there are now in 2014 (knowing that there is no cure for it as it stands to date)?
For many years, I had key advocates come on my show to discuss various cases and, especially, the aspects of advocating in the legislature. On January 27th, Heather Ferguson (one of those advocates) will come on my show to discuss some updates on those legislative issues being presented.
Today, though, I will open the mic up to patients, advocates, and caregivers especially to tell their stories on how Lymphedema has affected them. We will then share this with legislators to personally hear the many stories typical to illustrate the pervasiveness of this condition.
Please mark your calendars and join us on March 6th at 10a CST to share and/or be better informed about these issues.
September 18, 2014: Choosing Wisely is a national campaign to promote conversations between health care providers and patients about utilizing the most appropriate tests and treatments, and avoiding care whose harm may outweigh the benefits.
The American Physical Therapy Association (APTA) joined the campaign, initiated by the American Board of Internal Medicine Foundation, and created a list of "5 Things Physical Therapists and Patients Should Question." In this episode, two physical therapists examine this list and discuss how this effort aims to educate consumers on health care procedures that tend to be done frequently, yet whose usefulness is called into question by evidence.
Read more about the Choosing Wisely campaign at MoveForwardPT.com
Subscribe to Move Forward Radio podcasts on iTunes.
A frank discussion with family members of departed Dialysis Patients about the level of care provided to their loved one. Additionally the feeling of a lack of basic information on the care of the family member and how they felt out of the loop during the Dialysis process and care for their loved one will be covered.
The current problem with overworked and under trained technician’s which has led to patient injury and in some cases patient deaths needs to be addressed and changes legislated.
There are too many cases of patients being terminated from care for unjust causes; then blackballed from care by other clinics within the same company.
Listen on line at: http://www.blogtalkradio.com/dialysisadvocates/2014/09/05/dialysis-talk
To listen by phone or participate call (347) 857-3961
Thursday evening September 4, 2014
9:00 Eastern, 8:00 Central, 6:00 Pacific
Brought to you by Dialysis Advocates: http://www.dialysisadvocates.com
Our August On-Air Myeloma Support Group is discussing ways that patients and caregivers can help boost myeloma research. We have Pat Killingsworth lead the meeting with our guest for the month, Jenny Ahlstrom.
Jenny Ahlstrom was diagnosed with multiple myeloma in 2010. After treatment, she wanted to be prepared with a plan of action in case of relapse. She learned how few patients participate in clinical trials and started mPatient Myeloma Radio as a tool to help her and others learn about the latest in myeloma research. She is also the founder of the Myeloma Crowd site and the CrowdCare Foundation. She is a wife to a busy entrepreneur and investor and is the mother of 6 children. Prior to her favorite job as a mom, she worked for IBM as a systems engineer and marketing representative.
REGISTER HERE! (or) mail firstname.lastname@example.org
Tiffany Howe was born with Primary Congenital Lymphedema (Milroy’s Disease). After 27 years of struggling with this ailment, she was given a choice of losing her left leg or undergoing the Charles Debulking procedure. The choice was difficult and very challenging to make. She chose the Charles Debulking procedure and could not have guessed the life-changing experiences which would result. Full recovery took a year and included her learning to walk again. For the next five years, Tiffany used her training as a Registered Nurse to research and study any available information about Lymphedema. Research ultimately led me to the conclusion that Lymphedema patients are in need of support for this currently incurable disease. Support includes education and advocacy. I represent Virginia as part of the Lymphedema Advocacy Group, which is a patient-centered group, raising awareness. Our mission is to get passage in Congress for the Lymphedema Treatment Act.
Come hear her story and more!
For more information, too, please refer to the Lymphedema In The News fb page (http://facebook.com/LymphedemaInTheNews).
In this episode of Epilepsy.com's Hallway Conversations, Dr. Joseph Sirven, Professor of Neurology at Mayo Clinic Arizona and Editor-in-Chief of Epilepsy.com, interviews Lara Jehi, MD from the Cleveland Clinic Epilepsy Center. They will be discussing an algorithm on the treatment of epilepsy in patients with a normal MRI. This was also the subject of a 2013 AES Annual Course.
Planet Green Trees Radio Tonight 8-10pm www.planetgreentrees.com or call in 347-326-9626
Hosted by attorney Michael Komorn from Komorn Law and Chad from Birmingham Compassion-
Contributions from Rick Thompson from The Compassion Chronicles and Jamie Lowell from The 3rd Coast Compassion Center-
Tonight- Legal issues for patients (and their caregivers) getting doctor recommendations at hotels, expos, and trade shows, continue. Even after warnings and expert advice from amongst the most credible legal analysts on the issue in the state, some event coordinators refuse to stop the practice. Making matters worse, some of the doctors writing these recommendations at the hotel conferences and other non- traditional forums, will not offer adequate support in court for their patients, when in need.
Checking in and joining us tonight, will be-Owner operator of Arbor Side, a dispensary in Ann Arbor, MI, Rhory Gould. Activist Ci Ci Taylor, and member of the Michigan Human Solution chapter. Cary Justice, longtime activist, former candidate for State House Representative. Weed warrior and staff member of City Councilman Cushingberry, Richard Clemente Sr. And- Bruce Leach, criminal defense attorney specializing in medical marijuana issues and who served as legal counsel for the recent High Times event in Clio.
Michael's rant, news, current events and more!
LETS TALK ABOUT IT
Dr. Ben Adkins went from a struggling new chiropractor, praying for new patients to walk through his door – to within six months, having to hire more help because patients were busting through his door.
Dr. Ben shares his story with Jack, in this interview, about how this success evolved into his current business. He’s been helping business owners for years to be more successful and have a better personal lifestyle.
As his chiropractic business grew so quickly, other business owners took note and wanted help duplicating this success for themselves. Ben found himself working less with his own patients and more with business owners. Eventually, he made the tough decision to sell his practice and devote himself to helping business owners and entrepreneurs grow their businesses.
In this interview, he shares what he’s currently doing with Fearless Social, the company he’s grown over the years to help others.
Great inspiring story with eye-opening strategies.
To Learn More:
Here at Because Hope Matters Radio, we often talk about the integral part nurses play in helping patients heal and connecting with their caregivers. CURE Magazine takes the time to recognize exemplary oncology nurses through an "Extraordinary Healer Award." The annual recognition attracts hundreds of essay submissions from patients, survivors, and caregivers across the nation.
We're thrilled to provide another spotlight for CURE's recent award winner, Cindi Cantril. Essayist, Ann Tallman, wrote about her journey as a breast cancer survivor. Her portrayal of Cantril's care through diagnosis, surgery and treatment caught the attention of Kathy LaTour, editor-at-large at CURE Magazine. The giving, nurturing, and inspiring nature embedded in Cantril's fiber goes above and beyond. She created peer-to-peer support for patients; the "WINGS" Program helps women with all types of cancer, and a secondary WINGMEN group helps men. Cantril's drive to provide healing programs doesn't stop there; she also operates women's cancer retreats and Equine therapy.
Among more than 750 of her peers and guest speaker, actor, producer, director and best-selling author Rob Lowe, and the cancer care community, Cantril received the distinguished award. She has provided more than 40 years of research, clinical care, program development and leadership in oncology nursing care. She has published over a dozen articles and authored several chapters of Building Legacy - Voices of Oncology Nurses. Cantril also received the Oncology Nursing Society's Distinguished Service Award in 2010, among other honors on her career path.
Join us for our quarterly feature with Kathy LaTour, as we delve into the heart of oncology nursing and go above and beyond an ordinary care-watch.