SORT BY Relevancy
I have done several shows about Lymphedema and the grassroots efforts to get the Lymphedema Treatment Bill passed. This one came from an original airing of 5/1/10.
"Back in March, we had a show introducting you to the HR 4662 which involves the improvement for health care costs for lymphedema patients. Please join us again today to learn what has been done, what you can do, and what this means to you if you (or someone you know) has lymphedema. We need to get this bill passed in this year's legislation session. We will have Jennifer and Jenny on our show, as well as some other pertinent people that can add more to enlighten about this very important bill." http://www.blogtalkradio.com/oralhistory/2010/05/01/beyond-words-live--understanding-hb-4662
BEYOND WORDS LIVE is designed as a platform for survivors to tell their own stories in their own words.
For more information see http://facebook.com/LymphedemaInTheNews or http://lymphedematreatmentact.org/.
Dr. Stanley Rockson (of Stanford University Medical School) states that: "Lymphedema is a common disease. Approximately 10 million Americans, for example, have lymphedema secondary to breast and pelvic cancer therapy, recurrent infections, injuries, or vascular surgery." (2010) Imagine, if there were approximately 10 million Americans then, how many more there are now in 2014 (knowing that there is no cure for it as it stands to date)?
For many years, I had key advocates come on my show to discuss various cases and, especially, the aspects of advocating in the legislature. On January 27th, Heather Ferguson (one of those advocates) will come on my show to discuss some updates on those legislative issues being presented.
Today, though, I will open the mic up to patients, advocates, and caregivers especially to tell their stories on how Lymphedema has affected them. We will then share this with legislators to personally hear the many stories typical to illustrate the pervasiveness of this condition.
Please mark your calendars and join us on March 6th at 10a CST to share and/or be better informed about these issues.
In this episode of Epilepsy.com's Hallway Conversations, Dr. Joseph Sirven, Professor of Neurology at Mayo Clinic Arizona and Editor-in-Chief of Epilepsy.com, interviews Lara Jehi, MD from the Cleveland Clinic Epilepsy Center. They will be discussing an algorithm on the treatment of epilepsy in patients with a normal MRI. This was also the subject of a 2013 AES Annual Course.
Tiffany Howe was born with Primary Congenital Lymphedema (Milroy’s Disease). After 27 years of struggling with this ailment, she was given a choice of losing her left leg or undergoing the Charles Debulking procedure. The choice was difficult and very challenging to make. She chose the Charles Debulking procedure and could not have guessed the life-changing experiences which would result. Full recovery took a year and included her learning to walk again. For the next five years, Tiffany used her training as a Registered Nurse to research and study any available information about Lymphedema. Research ultimately led me to the conclusion that Lymphedema patients are in need of support for this currently incurable disease. Support includes education and advocacy. I represent Virginia as part of the Lymphedema Advocacy Group, which is a patient-centered group, raising awareness. Our mission is to get passage in Congress for the Lymphedema Treatment Act.
Come hear her story and more!
For more information, too, please refer to the Lymphedema In The News fb page (http://facebook.com/LymphedemaInTheNews).
The Powerful Patient has recently been granted full membership in the International Alliance of Patients' Organizations (IAPO), an organization of organizations worldwide,
IAPO is a unique global alliance representing patients of all nationalities across all disease areas and promoting patient-centred healthcare around the world.
IAPO members are patients' organizations working at the international, regional, national and local levels to represent and support patients, their families and carers. A patient is a person with any chronic disease, illness, syndrome, impairment or disability.
Joyce and Mike speak with Rachel Seal-Jones,Senior Policy Officer of IAPO, about the organization's activities. IAPO has recently been granted special consultative status with the United Nations Economic and Social Council (ECOSOC).
IAPO will now actively engage with ECOSOC and its subsidiary bodies, the United Nations Secretariat, programmes, funds and agencies in a number of ways. This includes:
Attendance at meetings and access to the United Nations
Submission of formal statements and oral presentations to the Council and other UN bodies on relevant topics
Taking part in consultations with ECOSOC and other UN bodies
For additional informaion, please see http://www.patientsorganizations.org
Allen Wilson of the Pheo Paratroopers joins Joyce and Mike to talk about the organization, its mission, and the recent International Conference on Pheochromocytoma and Paraganglioma.
Pheochromocytomas ("pheos" for short) are hormone-secreting tumors that can provoke that "fight or flight" response that has been protecting us from danger since the saber-toothed tiger. While it is an important response, if there is in fact no danger, the artificial response can cause changes in blood pressure and digestion. If not corrected quickly, this continual jagging of the system can lead to cardiovascular damage.
Pheochromocytomas in the chest or neck are usually called paragangliomas. They occur on the ganglia (bunches of nerves) along the sympathetic nervous sytem.
There are many genetic flaws that can increased the odds of getting a pheo. Families who know they are at risk can do periodic screening to find pheos and paras early, so that they can be treated before cardiovascular damage occurs.
For more information about pheochromocytomas, paragangliomas, research and diagnostic information, see http://www.pheoparatroopers.org/
Join us for an expose into a local chain of frightening assisted living / hospice centers, SILVERADO SENIOR LIVING! HOUSTON, SUGARLAND, KINGWOOD, CHAMPION FOREST, you need to know this before you sign that contract and begin paying a whoppoing $7000-11,000 per month to end up in a drug induced stupor bedridden 20 hours per day as you lay in your own excrement with illegal double diapers courtesy of the lazy staff who simply can't bear to smell you--or the unfortunate souls that work 12 hour shifts in overstaffed conditions with shortages of help so severe that residents get used to missing dinner in favor of V8 juice and yogurt if they're lucky.
But whatever you do, don't complain, lest they increase your drugs, isolate you from your friends and family, take away your means of communications, divert your mail and violate your remaining civil and constitutional rights. We have live witnesses, so tune in!
Come hear Heather Ferguson provide us with some updates about THE LYMPHEDEMA TREATEMENT ACT via my radio show called BEYOND WORDS LIVE. She'll provide the latest and greatest on what is happening with the Hill on our Bill. Invite all your State Advocates to attend, all Lymphedema patients to attend, your LE physical therapist to attend, as well. We need all the voices that we can get!
For a little insight, Heather passed an email out on January 15th which included this announcement -- LYMPHEDEMA TREATEMENT BILL is now up! She writes "All our hard work and preparation over this past year has come to fruition today! This morning the Lymphedema Treatment Act was introduced into the 113th Congress (bill number HR 3877) by our lead sponsor, Rep. Reichert (R-WA), and co-leads Rep. Lance (R-NJ), Rep. Blumenauer (D-OR), and Rep. Braley (D-IA)."
For more discussions about these issues go to Lympedema In the News on facebook - http://facebook.com/LymphedemaInTheNews - or, see the website - http://www.capwiz.com/lymphedematreatmentact/home/. See also this article - http://reichert.house.gov/press-release/reichert-introduces-critical-legislation-improve-healthcare-lymphedema-patients
We all know how music can evoke memories of a past love or a special moment in our lives. Can music really impact patients and their caregivers?
Join host Tami Neumann as she sits down in conversation with Ron Gregory, CEO of Alzheimer's Music Connect, as they talk about the importance of music in the care of patients with Alzheimer's and their caregivers.
Learn how Alzheimer's Music Connect uses the unique process of Altus Oscillation, to increase the therapeutic benefits of music to provide comfort to the patient and respite for the caregiver.
Learn more about Ron Gregory and Alzheimer's Music Connect.
Stay on top of all upcoming shows on Conversations In Care by signing up for our newsletter TODAY!
James W. Forsythe, M.D., H.M.D., has long been considered one of the most respected physicians in the United States, particularly for his treatment of cancer and the legal use of human growth hormone. In the early 1960s, Dr. Forsythe graduated with honors from University California at Berkeley and earned his Medical Degree from University of California, San Francisco, before spending two years residency in Pathology at Tripler Army Hospital, Honolulu. After a tour of duty in Vietnam, he returned to San Francisco and completed an internal medicine residency and an oncology fellowship. He is also a world renowned speaker and author. He has co-authored and written chapters in best sellers. - See more at: http://centurywellness.com/about-us/drforsythe.html#sthash.DWrEZ0iS.dpuf
#RxChat: Overcoming Barriers & Effective Communications with your Patients
1) How often are you faced with any type of barrier when communicating with your patients?
2) What steps have you taken to overcome language barriers?
3) What steps have you taken to help those who are hearing or vision impaired?
4) What other barriers have you faced and what have you done to overcome these barriers?
5) How can you help patients with limited health literacy?
#RxChat is co-founded by Pharmacy Podcast and RxWiki
Join Host Live Chats
- Clay Douglas (8 chatters)
- High Frequency Radio Network (4 chatters)
- Angelically Inspired (4 chatters)
- Tracey and Friends (4 chatters)
- Joyce BarrieFriends (3 chatters)
- TXHXOXRX MINISTRY RADIO NETWORK (2 chatters)
- The SPIRIT IN YOU with Kelly McQ (2 chatters)
- Jay King Network (2 chatters)
- Coach Cafe (1 chatters)
- BlackHebrewIsraeliteRadioShow (1 chatters)
- 2 Regular Guys Talking Decoration (1 chatters)
- AboveTheFray (1 chatters)
- Michael Vondracek (1 chatters)
- Purposed for Godliness (1 chatters)