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I have done several shows about Lymphedema and the grassroots efforts to get the Lymphedema Treatment Bill passed. This one came from an original airing of 5/1/10.
"Back in March, we had a show introducting you to the HR 4662 which involves the improvement for health care costs for lymphedema patients. Please join us again today to learn what has been done, what you can do, and what this means to you if you (or someone you know) has lymphedema. We need to get this bill passed in this year's legislation session. We will have Jennifer and Jenny on our show, as well as some other pertinent people that can add more to enlighten about this very important bill." http://www.blogtalkradio.com/oralhistory/2010/05/01/beyond-words-live--understanding-hb-4662
BEYOND WORDS LIVE is designed as a platform for survivors to tell their own stories in their own words.
For more information see http://facebook.com/LymphedemaInTheNews or http://lymphedematreatmentact.org/.
Dr. Stanley Rockson (of Stanford University Medical School) states that: "Lymphedema is a common disease. Approximately 10 million Americans, for example, have lymphedema secondary to breast and pelvic cancer therapy, recurrent infections, injuries, or vascular surgery." (2010) Imagine, if there were approximately 10 million Americans then, how many more there are now in 2014 (knowing that there is no cure for it as it stands to date)?
For many years, I had key advocates come on my show to discuss various cases and, especially, the aspects of advocating in the legislature. On January 27th, Heather Ferguson (one of those advocates) will come on my show to discuss some updates on those legislative issues being presented.
Today, though, I will open the mic up to patients, advocates, and caregivers especially to tell their stories on how Lymphedema has affected them. We will then share this with legislators to personally hear the many stories typical to illustrate the pervasiveness of this condition.
Please mark your calendars and join us on March 6th at 10a CST to share and/or be better informed about these issues.
Our August On-Air Myeloma Support Group is discussing ways that patients and caregivers can help boost myeloma research. We have Pat Killingsworth lead the meeting with our guest for the month, Jenny Ahlstrom.
Jenny Ahlstrom was diagnosed with multiple myeloma in 2010. After treatment, she wanted to be prepared with a plan of action in case of relapse. She learned how few patients participate in clinical trials and started mPatient Myeloma Radio as a tool to help her and others learn about the latest in myeloma research. She is also the founder of the Myeloma Crowd site and the CrowdCare Foundation. She is a wife to a busy entrepreneur and investor and is the mother of 6 children. Prior to her favorite job as a mom, she worked for IBM as a systems engineer and marketing representative.
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In this episode of Epilepsy.com's Hallway Conversations, Dr. Joseph Sirven, Professor of Neurology at Mayo Clinic Arizona and Editor-in-Chief of Epilepsy.com, interviews Lara Jehi, MD from the Cleveland Clinic Epilepsy Center. They will be discussing an algorithm on the treatment of epilepsy in patients with a normal MRI. This was also the subject of a 2013 AES Annual Course.
Tiffany Howe was born with Primary Congenital Lymphedema (Milroy’s Disease). After 27 years of struggling with this ailment, she was given a choice of losing her left leg or undergoing the Charles Debulking procedure. The choice was difficult and very challenging to make. She chose the Charles Debulking procedure and could not have guessed the life-changing experiences which would result. Full recovery took a year and included her learning to walk again. For the next five years, Tiffany used her training as a Registered Nurse to research and study any available information about Lymphedema. Research ultimately led me to the conclusion that Lymphedema patients are in need of support for this currently incurable disease. Support includes education and advocacy. I represent Virginia as part of the Lymphedema Advocacy Group, which is a patient-centered group, raising awareness. Our mission is to get passage in Congress for the Lymphedema Treatment Act.
Come hear her story and more!
For more information, too, please refer to the Lymphedema In The News fb page (http://facebook.com/LymphedemaInTheNews).
Planet Green Trees Radio Tonight 8-10pm www.planetgreentrees.com or call in 347-326-9626
Hosted by attorney Michael Komorn from Komorn Law and Chad from Birmingham Compassion-
Contributions from Rick Thompson from The Compassion Chronicles and Jamie Lowell from The 3rd Coast Compassion Center-
Tonight- Legal issues for patients (and their caregivers) getting doctor recommendations at hotels, expos, and trade shows, continue. Even after warnings and expert advice from amongst the most credible legal analysts on the issue in the state, some event coordinators refuse to stop the practice. Making matters worse, some of the doctors writing these recommendations at the hotel conferences and other non- traditional forums, will not offer adequate support in court for their patients, when in need.
Checking in and joining us tonight, will be-Owner operator of Arbor Side, a dispensary in Ann Arbor, MI, Rhory Gould. Activist Ci Ci Taylor, and member of the Michigan Human Solution chapter. Cary Justice, longtime activist, former candidate for State House Representative. Weed warrior and staff member of City Councilman Cushingberry, Richard Clemente Sr. And- Bruce Leach, criminal defense attorney specializing in medical marijuana issues and who served as legal counsel for the recent High Times event in Clio.
Michael's rant, news, current events and more!
The Powerful Patient has recently been granted full membership in the International Alliance of Patients' Organizations (IAPO), an organization of organizations worldwide,
IAPO is a unique global alliance representing patients of all nationalities across all disease areas and promoting patient-centred healthcare around the world.
IAPO members are patients' organizations working at the international, regional, national and local levels to represent and support patients, their families and carers. A patient is a person with any chronic disease, illness, syndrome, impairment or disability.
Joyce and Mike speak with Rachel Seal-Jones,Senior Policy Officer of IAPO, about the organization's activities. IAPO has recently been granted special consultative status with the United Nations Economic and Social Council (ECOSOC).
IAPO will now actively engage with ECOSOC and its subsidiary bodies, the United Nations Secretariat, programmes, funds and agencies in a number of ways. This includes:
Attendance at meetings and access to the United Nations
Submission of formal statements and oral presentations to the Council and other UN bodies on relevant topics
Taking part in consultations with ECOSOC and other UN bodies
For additional informaion, please see http://www.patientsorganizations.org
in Self Help
HEALTH IS MORE THAN JUST PHYSICAL AND INVOLVES ALSO THE EMOTIONAL, MENTAL AND SPIRITUAL LEVELS OF OUR BEING. My guest today, Dr. Mannon Bollinger, N.D, has developed protocols that allow her to diagnose what is going on with patients and how to heal them. She is a master classical Homeopathy practitioner. Dr. Bollinger has learned when patients take a more active role in their health, they will be healthier on all levels in their life. She has developed protocols that DECREASE STRESS IN YOUR MORNING ROUTINE! Her latest book is, "WHAT PATIENTS DON'T SAY IF DOCTORS DON'T ASK! Besides being a master Homeopathic practitioner, Dr. Bollinger is a BOWEN FIRST PRACTITIONER! Call into 347 838 9070 to ask questions of Dr. Bollinger!
Allen Wilson of the Pheo Paratroopers joins Joyce and Mike to talk about the organization, its mission, and the recent International Conference on Pheochromocytoma and Paraganglioma.
Pheochromocytomas ("pheos" for short) are hormone-secreting tumors that can provoke that "fight or flight" response that has been protecting us from danger since the saber-toothed tiger. While it is an important response, if there is in fact no danger, the artificial response can cause changes in blood pressure and digestion. If not corrected quickly, this continual jagging of the system can lead to cardiovascular damage.
Pheochromocytomas in the chest or neck are usually called paragangliomas. They occur on the ganglia (bunches of nerves) along the sympathetic nervous sytem.
There are many genetic flaws that can increased the odds of getting a pheo. Families who know they are at risk can do periodic screening to find pheos and paras early, so that they can be treated before cardiovascular damage occurs.
For more information about pheochromocytomas, paragangliomas, research and diagnostic information, see http://www.pheoparatroopers.org/
Join Dr. Weizer in this re-airing of this great show as he discusses Occupational Therapy in oncology with Amy Kay. Amy is an Occupational Therapist that has been serving cancer patients for 13 years. Amy explains the role of occupational therapy in oncology is “to facilitate and enable an individual patient to achieve maximum functional performance, both physically and psychologically, in everyday living skills”. Dr. Weizer and Amy also discuss the role an OT plays in the mind, body and heart along with the needs of the physical body.
Turlock, CA – Every cell in the heart has the ability to initiate an impulse. Donna Hendershot began her life living in a railroad box car with no running water or plumbing. Growing up, she always dreamed of one day working in the medical field, but her family couldn’t afford to send her to nursing school.
At the age of 28, Donna Hendershot defied the odds, finally attending to be a medical assistant. With her foot in the door, finally, Donna resolved to learn every aspect of cardiology.
That was over 36 years ago. Today, Donna is a retired cardiovascular sonographer. Over the course of her career, supervised all diagnostic testing at San Leandro Hospital and served as an educator, teaching hundreds of nursing students, as well as volunteers, senior citizens and nonmedical professionals, on all aspects related to the anatomy and function of the heart.
“I don’t like to use the word retired,” says Donna. “I’m not done working. I have so much knowledge to share.”
The heart works both electrically and mechanically. If an EKG is abnormal they will supplement that test with a sonogram. In cardiac sonography, a transducer penetrates sound into the chest, allowing physicians to look at the individual chambers of the heart and determine how well each is functioning. When you correlate a sonogram with a patient’s EKG, you have a really clear picture of what’s going on with someone’s heart.
“It was my job to help the doctor help the patient,” says Donna. “The sonogram allows patients to know what’s going on in their bodies before it’s too late, so I loved working with patients and encouraging patients when they were going to have surgery.”
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