Our Terms of Use and Privacy Policy have changed. We think you'll like them better this way.

  • 01:08

    Lymphedema Voice & Activist: Leigh Elke

    in Health

    Leigh comes forth today talking about what brought her into the passion for the activism for lymphedema rights, what she has done with that time frame, and what her hopes are for the future.


    Leigh was diagnosed at 21 years old with lymphedema/lipedema, PCOS, fibromaylgia, Chronic fatigue syndrome high blood pressure, hypothyroidsm all on the same day. She had gained 230 pounds in one year. After reaching 500 pounds she had gastric bypass surgery, successfully losing 340 pounds in one year. After consulting with Dr Herbst in June 2014 for a "formal" diagnosis of stage 3 lipoedema she has undergone 3 surgeries for lipedema, all reimbursed by BCBS PPO. Additionally she has authorization for 6 total surgeries and 1 tummy apron removal. She is a disabled stay at home mother of 3, hoping to help others in the same situation with a non profit organization and insurance questions/answers.


    To learn more about the activism and lymphedema issues:


    http://facebook.com/lymphedemainthenews


    Lymphedema Treatment Act http://lymphedematreatmentact.org


    http://facebook.com/beyondwordslive 


    http://blogtalkradio.com/oralhistory 


    and remember to keep #SharingYourVoice

  • 00:51

    Lymphedema Voices: Sheryl #Project1000000Voices Lymphedema Is No Joke

    in Health

    First time I talked to Sherly, she told me that she had once been a teacher but hasn't been able to work FT in decades.  She has had Lymphedema since in the early 90s.  She has difficulty fulfilling her life, difficulty in transportation.  She has no way of getting a compression garment (which can cost $500) without having to choose between a garment or paying rent because her income is just that stressed already.  Complicated by tumors (one removed and another that needs to removed).  She has written her Represenative but hasn't had a response just yet.  Hopefully, he'll get on board with the Lymphedema Treatment Act which will authorize Medicare to pay for the garment that helps to keep the lymphedema from getting worse, which causes so many other dominoing issues (like mobility, possible MS, and other diseases that stem from the damaged lymphatic systerm.  


    In Texas, we have 3 co-sponsors for the Lymphedema Treatment Act, and we have many more to go.  There are 4 bipartisan leads and 99 co-sponsors of the Lymphedemat Treatment Act across the United States.  We really need about 200 co-sponsors for this bill to be passed in the House.  We need your support to help the many Sheryl's out there with similar stories.  Please go to the http://lymphedematreatmentact.org website to sign up being a Team Member in your State and go to the "How You Can Help" and send your legislators personalize letters.


    Listen to the show that we had on November 20th as well for some other call to actions that you can do to help.


     


    #LymphedemaTreatmentAct #LymphedemaStory #Project1000000Voice

  • 00:31

    Lymphedema Voices: Sheryl #Project10000000Voices Lymphedema Is No Joke (Part 2)

    in Family

    The system hiccupped a bit and we didn't get to talk for the full time; however, we are back on this day with the rest of the story.


    First time I talked to Sherly, she told me that she had once been a teacher but hasn't been able to work FT in decades.  She has had Lymphedema since in the early 90s.  She has difficulty fulfilling her life, difficulty in transportation.  She has no way of getting a compression garment (which can cost $500) without having to choose between a garment or paying rent because her income is just that stressed already.  Complicated by tumors (one removed and another that needs to removed).  She has written her Represenative but hasn't had a response just yet.  Hopefully, he'll get on board with the Lymphedema Treatment Act which will authorize Medicare to pay for the garment that helps to keep the lymphedema from getting worse, which causes so many other dominoing issues (like mobility, possible MS, and other diseases that stem from the damaged lymphatic systerm.  


    In Texas, we have 4 co-sponsors for the Lymphedema Treatment Act in Texas, and we have many more to go.  There are 4 bipartisan leads and 104 co-sponsors of the Lymphedemat Treatment Act across the United States.  We really need about 200 co-sponsors for this bill to be passed in the House.  We need your support to help the many Sheryl's out there with similar stories.  Please go to the http://lymphedematreatmentact.org website to sign up being a Team Member in your State and go to the "How You Can Help" and send your legislators personalize letters.


    Listen to the show that we had on November 20th as well for some other call to actions that you can do to help.


     


    #LymphedemaTreatmentAct #LymphedemaStory #Project1000000Voice

  • 01:06

    Lympedema Voices #Project1000000Voices Lymphedema Treatment Act 2014 Reflection

    in US Government

    In September 2014, a group of lymphedema advocates converged upon the Capitol Hill to talk to the US House of Represenatives and Senators about the Lymphedema Treatment Act, as well as had a Congressional Hearing to empasize the importance that it means to many lymphedema patients, caregivers, physicians, and more.  As a result, we ended up with 4 bipartisan lead sponsors from the House of Represenatives, and 91 cosponsors from many of the States.  We really need about 200 cosponsors to help ensure that this Bill passes the House.  


    Guidance was provided by the Lymphedema Advocacy Group, National Lymphedema Network, and many other supporters of the Bill.


    Join us on our Lymphedema Journey and Advocacy for a discussion on a reflection of those this year's journey at Capitol Hill (DC) and a call of action that we would like for you to do as soon as possible.


    For many more details about the Lymphedema Treatment Act, please check out the website http://lymphedematreatmentact.org.


    Also check out the Lymphedema In The News fb page http://facebook.com/lymphedemainthenews for additonaly information about Lymphedema, as well as other events/call to actions happening, especially in Texas.


    If you wish to share your story, please submit your request at http://goo.gl/forms/rqo8jg28j1


    Sponsors and Co-Sponsors of the Lymphedema Treatment Bill --- 
    https://www.congress.gov/bill/113th-congress/house-bill/3877/cosponsors

  • 00:29

    Germs can be Life Threatening to Patients in Hospitals

    in Current Events

    At hospitals around the country, patients are being saved and treated from various injuries. Some of these injuries are life threatening while others are not. But, the injuries aren't the only life threatening concern to a patient; germs are another.


         Nancy Donegan, managing director of the infection control department at Washington Hospital, is going to discuss the threats of these germs to hospitalized patients and the importance of combating the spread of these microscopic organism in these various facilities.

  • 01:33

    Trials & Triumphs Treating AIDS Patients w/ Dr. Susan C. Ball

    in Culture

    Amy Beth welcomes Dr. Susan C. Ball, author of Voices in the Band, a book chronicling her twenty plus year career treating AIDS patients. She discusses the way treatment and attitudes towards the disease have changed, from a death sentence and stigma to a treatable chronic condition.  She shares stories from her patients and her own evolution as a physician.


    And the usual hoopla: Free flow Pop Culture convo, Inspiration to Action shout-outs, humor, music and more!


    Tweet before/during show @abwrites Call during show only 347-857-4505


    Listen LIVE or anytime on demand! 

  • 00:29

    Patients and Nurses: A Powerful Force

    in Health

    On this week's episode we discuss, Patients and Nurses: A Powerful Force an article that focuses on the Patient/Nurse relationship, and the quality of the partnership as well as how it has developed over time. This article specifically focuses on the similarities and differences between practices in the United Kingdom and the United States and suggests that we may expect further development between Nurse/Patient interaction to achieve competency, compassionate care, strategic development, and a further developed operation within doctor offices and emergency rooms.


    Roswyn Hakesley-Brown, MPhil, BA, RN, RM, RNT, Cert.Ed is a British nurse and former president of the Royal College of Nursing.She has published several articles and is Trustee to the Patients Association.

  • 01:03

    Episode 1077: Firemedically Speaking: EMS Response to Hospice Patients

    in Training

    Fire Engineering EMS editor Mike McEvoy talks with John Sponholtz, RN, CHPN, AEMT (Tisch Mills FD, Wisconsin) who is a hospice case manager and author of an upcoming article on EMS response to hospice patients.  This prerecorded episode will enlighten you on the various kinds of hospice and palliative care, hospice meds, POSLT and Do Not Resuscitate orders as well as why you should be communicating with hospice any time you respond to one of their patients.

  • 00:30

    Cultural Diversity Nursing (Blog 4)

    in Education

    Welcome to the 4th class for CDN (Cultural Diversity Nursing). In order to be best in this class you will need you required text book and materials. Understanding how to work with patients of all nationalities will truly improve how the patient is compliant with their health.

    Be sure upon completing each class you send your Instructor your attendance flag word to attendance@smbtechschool.com.

    Enjoy your learning journey!

  • 00:03

    4 Reasons Chronic Pain Patients Should Own a Crock Pot

    in Health

    The last thing you want to think about at the end of a long day is what you’ll be making for dinner, and your family doesn’t need another meal from a bag or a box.


    In this episode, you will learn 4 ways a crockpot can be your very best friend.


    For more, check out - https://paindoctor.com/every-chronic-pain-patient-crockpot/

  • 01:19

    Myeloma Crowd Radio/MCRI: Dr. Frits van Rhee, UAMS and Dr. Stephen Russell, Mayo

    in Health

    The measles virus used successfully for a patient with relapsed myeloma is now a well known and exciting story shared on maintstream media. Dr. Frits van Rhee MD PhD MRCP,  FRCPath and Dr. Stephen Russell, MD PhD FRCP, FRCPath take the success one step further with a Phase II trial of the measles virus with further engineering in patients with relapsed/refractory, high-risk multiple myeloma. Their work will help determine which patients will respond to the treatment and which ones will not and will also determine how to make the therapy more effective.