SORT BY Relevancy
I have done several shows about Lymphedema and the grassroots efforts to get the Lymphedema Treatment Bill passed. This one came from an original airing of 5/1/10.
"Back in March, we had a show introducting you to the HR 4662 which involves the improvement for health care costs for lymphedema patients. Please join us again today to learn what has been done, what you can do, and what this means to you if you (or someone you know) has lymphedema. We need to get this bill passed in this year's legislation session. We will have Jennifer and Jenny on our show, as well as some other pertinent people that can add more to enlighten about this very important bill." http://www.blogtalkradio.com/oralhistory/2010/05/01/beyond-words-live--understanding-hb-4662
BEYOND WORDS LIVE is designed as a platform for survivors to tell their own stories in their own words.
For more information see http://facebook.com/LymphedemaInTheNews or http://lymphedematreatmentact.org/.
Joyce & Aaron interview Tryn Rose Seley on her new book, "15 Minutes of Fame/Empowering Caregivers of Those with Alzheimer's" and discussing strategies that can give family and professional caregivers ways to connect and bring life back to those they care for.
Joyce Joneschiet (Jonah-shite) Principal interior designer of Encore Living Interiors and Publisher of Encore Life Magazine hosts Encore Living Radio with her co-host Aaron D. Murphy, a licensed Architect, President of ADM Architecture and Managing Editor of EmpoweringTheMatureMind.com.
Nell Lake, author of "The Caregivers: A Support Group's Stories of Slow Loss, Courage, and Love," joins Denise to share about the inspiration for her book and her lessons learned. Nell spent two years attending a caregivers support group and following the caregivers and their family members in their daily lives. Before working on the book, Nell was a freelance magazine writer and the founding editor of the Nieman Narrative Digest at Harvard. She has also taught writing at Boston University and reported for public radio. She lives in Massachusetts with her husband and two sons.
Dr. Stanley Rockson (of Stanford University Medical School) states that: "Lymphedema is a common disease. Approximately 10 million Americans, for example, have lymphedema secondary to breast and pelvic cancer therapy, recurrent infections, injuries, or vascular surgery." (2010) Imagine, if there were approximately 10 million Americans then, how many more there are now in 2014 (knowing that there is no cure for it as it stands to date)?
For many years, I had key advocates come on my show to discuss various cases and, especially, the aspects of advocating in the legislature. On January 27th, Heather Ferguson (one of those advocates) will come on my show to discuss some updates on those legislative issues being presented.
Today, though, I will open the mic up to patients, advocates, and caregivers especially to tell their stories on how Lymphedema has affected them. We will then share this with legislators to personally hear the many stories typical to illustrate the pervasiveness of this condition.
Please mark your calendars and join us on March 6th at 10a CST to share and/or be better informed about these issues.
eCareDiary will speak to Carol Levine, Director at the United Hospital Fund’s Families and Health Care Project and author of "Living in the Land of Limbo", about new hospital discharge models, information and training for caregivers to help loved ones once they return home.
Maria is: Fun, Creative, Inspiring, Passionate, Innovative, Honest, Sincere, Joyful, Engaging, Calming, Welcoming, Down to Earth, Playful, Interesting, Knowledgeable, & Motivational. Constantly combining all of her experience and intuition, she started creating inspirational classes to help people learn about themselves and live a life that brings them joy. She is very excited to be helping the 21 authors of the book she is putting together (Living Passionately: 21 People who Found their Purpose and How You Can Too) to publish their story's, that would otherwise not be told. These stories have the potential to inspire people around the world, since they are stories of overcoming homelessness, addiction, poverty, caregiving responsibilities, trauma, grief, cancer, opression, illness and uncertainty. Maria was the Keynote Speaker for the Spring Caregiver Conference in Kingston, NY earlier this year, an all day event created to provide family caregivers with inspiration and helpful resources.
Join Dave Nassaney, The Caregiver's Caregiver, author of numerous articles and books, speaker, life coach, and radio talk-show host for caregivers who are burned out, but his most important role is being a caregiver to his lovely wife, Charlene. His latest book that he is now working on is entitled: "The Caregiver's Caregiver, A Guide to Avoiding Burnout." It is designed to teach caregivers who are taking care of their loved ones (due to an illness or disability) how to take care of themselves FIRST. If they don't learn this, they will likely suffer burnout and become as helpless as the person they are caring for. Tune in every WEDNESDAY at NOON PST (Re-broadcasts Saturday at 3:30pm PST,) for interviews with experts in the caregiving field, as they discuss topics of great interest to caregivers, which will help them avoid burnout.
Dr. Carmen D. Ortiz presents the vision and mission of Dog LGBT Caregivers , the first online community of LGBT dog owners and professionals that keep our dogs healthy, well behaved, groomed, safe, healthy and happy.
THE DOCTOR'S INN
Join co-hosts Suzanne Strisower and Kathleen O'Keefe Kanavos for cutting edge interviews!
This segment was originally aired in 2013.
Our Guest in the first hour: Rob Harris
Author, speaker, expert panelist, blogger and advocate Rob Harris had never encountered the word “caregiver” until, he and his wife learned she had cancer – twice. His story is a #1 best-selling book on Amazon. We’re In This Together: A Caregiver’s Story has received endorsements and rave reviews from celebrities, medical experts, caregivers, patients, and countless others.
His caregiver and patient support organization, RobCares, provides information and encouragement to a community of followers worldwide. http://www.robcares.com
Rob is also the Co-Host of Because Hope Matters Talk Radio on Blogtalk Radio.
Our Guest in the second hour: Yolanda Kennedy
Yolanda Kennedy became a committed foodie after she lost her mother to breast cancer. She now educates women on how food along with green living is directly connected to their health and wellness.
You can find great resources at any one of her online platforms:
Call in to speak with our guests by calling 646-652-2336, or, log into their blogtalk radio account and join us in the chatroom.
Judy Aguino, caregiver to her husband who had severe diabetes and kidney failure talks about her experiences with caregiving, burnout and the grief process, along with her sister, Suzy Golden, who offers emotional support to her disabled husband due to severe and constant hip and thigh pain from a fall.
Join Dave Nassaney, The Caregiver's Caregiver, author of numerous articles and books, speaker, life coach, and radio talk-show host for caregivers who are burned out, but his most important role is being a caregiver to his lovely wife, Charlene. His latest book that he is now working on is entitled: The Caregiver's Caregiver, A Guide to Avoiding Burnout. It is designed to teach caregivers who are taking care of their loved ones (due to an illness or disability) how to take care of themselves FIRST. If they don't learn this, they will likely suffer burnout and become as helpless as the person they are caring for. Tune in every Wednesday at noon, PST, (Re-Broadcast Saturdays at 3:30pm PST) for interviews with experts in the caregiving field, as they discuss topics of great interest to caregivers, which will help them avoid burnout. www.DaveTheCaregiversCaregiver.com
Dr. Carmen D. Ortiz, co-founder of Healthy Dog Depot, LLC and Lesbian Business Project, LLC; and Dennis Berardi, co-founder of Life's Abundance, talk about the opportunity that LGBT dog caregivers have to increase their current income and grow their retirement assets by promoting nutritional products that improve the quality of life and life span of our loving companions.
Healthy Dog Depot has created a powerful collaboration with Life's Abundance with the dual mission of promoting dog health and empowering Lesbians to grow their businesses, their income and their assets.
For more information visit www.healthydogdepot.com.
Tiffany Howe was born with Primary Congenital Lymphedema (Milroy’s Disease). After 27 years of struggling with this ailment, she was given a choice of losing her left leg or undergoing the Charles Debulking procedure. The choice was difficult and very challenging to make. She chose the Charles Debulking procedure and could not have guessed the life-changing experiences which would result. Full recovery took a year and included her learning to walk again. For the next five years, Tiffany used her training as a Registered Nurse to research and study any available information about Lymphedema. Research ultimately led me to the conclusion that Lymphedema patients are in need of support for this currently incurable disease. Support includes education and advocacy. I represent Virginia as part of the Lymphedema Advocacy Group, which is a patient-centered group, raising awareness. Our mission is to get passage in Congress for the Lymphedema Treatment Act.
Come hear her story and more!
For more information, too, please refer to the Lymphedema In The News fb page (http://facebook.com/LymphedemaInTheNews).
What do you do when your parent needs care, but doesn't deserve it? Christopher was a caregiver to his mom before she died of cancer. He really didn't WANT to take care of her, but he felt that he HAD to take care of her, even though she didn't really take care of him as a child and teenager very well. With his father nowhere in sight, his mother nearly gave him up for adoption. Instead, she struggled to provide a life for him while battling multiple psychiatric disorders. Because of her struggle to keep a job, he went from being an average 13-year-old kid living in a 4-bedroom house to being a homeless 7th-grade-dropout, living in the family station wagon — and, if that wasn’t enough, he had to share it with 18 cats and 2 dogs! As a result of his mother’s limitations, Christopher constantly endured mental and physical abuse throughout most of his young life. For the next four agonizing years, Christopher suffered through — and survived — many painful experiences, which ultimately made him the man he is today! After deciding he wasn’t going to be a victim of his circumstances anymore,Christopher changed the course of his life. He overhauled his belief system and seriously got down to business. As a result, he proudly earned a Master’s Degree in Organizational Management, purchased two houses, married his love, and started his professional speaking and training career (Kickass Guiide to Life). Join Dave Nassaney, The Caregiver's Caregiver, author of numerous articles and books, speaker, life coach, and radio talk-show host for caregivers who are burned out, but his most important role is being a caregiver to his lovely wife, Charlene. Tune in every WEDNESDAY at NOON PST (Re-broadcasts Saturday at 3:30pm PST,) for interviews with experts in the caregiving field, as they discuss topics of great interest to caregivers, which will help them avoid burnout.
Join Host Live Chats
There are no live chats in progress