• 00:31

    Lymphedema Voices: Sheryl #Project10000000Voices Lymphedema Is No Joke (Part 2)

    in Family

    The system hiccupped a bit and we didn't get to talk for the full time; however, we are back on this day with the rest of the story.


    First time I talked to Sherly, she told me that she had once been a teacher but hasn't been able to work FT in decades.  She has had Lymphedema since in the early 90s.  She has difficulty fulfilling her life, difficulty in transportation.  She has no way of getting a compression garment (which can cost $500) without having to choose between a garment or paying rent because her income is just that stressed already.  Complicated by tumors (one removed and another that needs to removed).  She has written her Represenative but hasn't had a response just yet.  Hopefully, he'll get on board with the Lymphedema Treatment Act which will authorize Medicare to pay for the garment that helps to keep the lymphedema from getting worse, which causes so many other dominoing issues (like mobility, possible MS, and other diseases that stem from the damaged lymphatic systerm.  


    In Texas, we have 4 co-sponsors for the Lymphedema Treatment Act in Texas, and we have many more to go.  There are 4 bipartisan leads and 104 co-sponsors of the Lymphedemat Treatment Act across the United States.  We really need about 200 co-sponsors for this bill to be passed in the House.  We need your support to help the many Sheryl's out there with similar stories.  Please go to the http://lymphedematreatmentact.org website to sign up being a Team Member in your State and go to the "How You Can Help" and send your legislators personalize letters.


    Listen to the show that we had on November 20th as well for some other call to actions that you can do to help.


     


    #LymphedemaTreatmentAct #LymphedemaStory #Project1000000Voice

  • 01:06

    Lympedema Voices #Project1000000Voices Lymphedema Treatment Act 2014 Reflection

    in US Government

    In September 2014, a group of lymphedema advocates converged upon the Capitol Hill to talk to the US House of Represenatives and Senators about the Lymphedema Treatment Act, as well as had a Congressional Hearing to empasize the importance that it means to many lymphedema patients, caregivers, physicians, and more.  As a result, we ended up with 4 bipartisan lead sponsors from the House of Represenatives, and 91 cosponsors from many of the States.  We really need about 200 cosponsors to help ensure that this Bill passes the House.  


    Guidance was provided by the Lymphedema Advocacy Group, National Lymphedema Network, and many other supporters of the Bill.


    Join us on our Lymphedema Journey and Advocacy for a discussion on a reflection of those this year's journey at Capitol Hill (DC) and a call of action that we would like for you to do as soon as possible.


    For many more details about the Lymphedema Treatment Act, please check out the website http://lymphedematreatmentact.org.


    Also check out the Lymphedema In The News fb page http://facebook.com/lymphedemainthenews for additonaly information about Lymphedema, as well as other events/call to actions happening, especially in Texas.


    If you wish to share your story, please submit your request at http://goo.gl/forms/rqo8jg28j1


    Sponsors and Co-Sponsors of the Lymphedema Treatment Bill --- 
    https://www.congress.gov/bill/113th-congress/house-bill/3877/cosponsors

  • 00:45

    R4Alliance introduces the first Military Family Caregivers Program

    in Military

    Listen Dec 11, 2014 or anytime later to this program by www.r4alliance.org - an Alliance of 44 Military Support Groups.


    Listen to Military Family Caregivers:


    Jeannette Davidson-Mayer. Her Husband DeWayne following his 5th accident, returned home in Oct 2005. He was diagnosed with TBI, PTSD, spinal injuries, along with a few other medical issues. As a family, they have learned to live together again.


    Juliet C. Madsen was severely injured during Operation Iraqi Freedom and was medically retired from the Army in 2006 after more than seventeen years of service. Juliet makes quilts to raise awareness of, and raise money for veteran’s charities through www.strokeofluckquilting.com


    Peter Madsen is a former Marine and Army Aviator and Juliet's Husband.


    Jeannette and Juliet serve on the Board of R4Alliance. Please SHARE!!


    Details at: http://thankyouforyourservice.us/issue/december-2014/article/listen-to-the-first-r4alliance-wounded-warriors-caregiver-program  

  • 00:24

    Stress Reduction Strategies for Cancer Caregivers

    in Health

    eCareDiary will interview Dr. Richard Taylor, psychologist and author of "Alzheimer's from the Inside Out" about the real roots of stress among cancer caregivers and strategies to avoid them.

  • 00:28

    Teach Back: Examples of a Critical Tool for Caregivers

    in Health

    eCareDiary's caregiving expert, Margery Pabst will speak to Dr. Kesavan Kutty from the American College of Physicians about the Teach Back resource for patients and physicians.

  • 00:56

    REPEAT SHOW - Lymphedema Awareness HR4662

    in Legal

    I have done several shows about Lymphedema and the grassroots efforts to get the Lymphedema Treatment Bill passed.  This one came from an original airing of 5/1/10.  


    "Back in March, we had a show introducting you to the HR 4662 which involves the improvement for health care costs for lymphedema patients. Please join us again today to learn what has been done, what you can do, and what this means to you if you (or someone you know) has lymphedema. We need to get this bill passed in this year's legislation session. We will have Jennifer and Jenny on our show, as well as some other pertinent people that can add more to enlighten about this very important bill."   http://www.blogtalkradio.com/oralhistory/2010/05/01/beyond-words-live--understanding-hb-4662


    BEYOND WORDS LIVE is designed as a platform for survivors to tell their own stories in their own words.


    For more information see http://facebook.com/LymphedemaInTheNews or http://lymphedematreatmentact.org/.  


     

  • 01:02

    Mindfulness Practice for Caregivers

    in Caregiving

    In this weeks episode, Mindfulness Practice for Caregivers we are excited to be joined by Kari Snowberg, currently directing the LEAF (Life Enhancing Activities for Family  Careivers) Study at UCSF; and Marguerite Manteau-Rao, CEO and founder of the Presence Care Project. 


    What is mindfulness? It is a way to improve your mood or simply stop your thoughts, right? WRONG! These mindfulness trailblaizers, Kari & Marguerite help us dispel some of the misconceptions we've been taught about meditation - opening the doors to less stress and greater well-being for you. It is possible! 


    Tune in this Thursday, October 30th at 5 pm (PT) or 8 pm (ET) and listen to previous episodes here


     


     


     


     

  • 01:01

    7 Healthier Lifestyle Diet Tips for Caregivers from Dr. Jay Shetlin

    in Caregiving

    It’s not just a diet. It’s a healthier lifestyle.


    Join Dave, The Caregiver’s Caregiver, as he interviews Dr. Jay Shetlin about being a healthier caregiver.


    You’ll learn …


    • The keys to a healthy diet & weight loss
    • How to raise your energy level
    • How to make your immune system function better
    • Ways to lower your stress
    • and more!


    DATE: Saturday 12/27/14
    TIME: 3:30pm Pacific / 6:30pm Eastern


    ONLINE: http://www.DaveTheCaregiversCaregiver.com/Uplifting-Interviews/
    DIAL-IN: (213) 943 3630


    PODCAST: Available anytime after the live interview!


    #‎HealthyDiet #‎ImmuneSystem #‎EnergyLevel #‎ProBionics #‎DaveCaregiversCaregiver #‎Health

  • 00:32

    The Caregivers

    in Caregiving

    Nell Lake, author of "The Caregivers: A Support Group's Stories of Slow Loss, Courage, and Love," joins Denise to share about the inspiration for her book and her lessons learned. Nell spent two years attending a caregivers support group and following the caregivers and their family members in their daily lives. Before working on the book, Nell was a freelance magazine writer and the founding editor of the Nieman Narrative Digest at Harvard. She has also taught writing at Boston University and reported for public radio. She lives in Massachusetts with her husband and two sons.


     


     

  • 00:47

    Support & Service for Caregivers of Alzheimer's & Dementia: Tryn Rose Seley

    in Caregiving

    October is Alzheimer's Awareness Month.


    Tryn Rose Seley has had many titles, maybe just like you:  a wife with a career as a professional musician and photographer.  But her most unexpected and challenging role has been that of a caregiver for a love one with Alzheimer's and related dementias.


    Sharing her lessons learned and passion to help those dealing with the same, Tryn empowers others facing the same challenge with Alzheimers and dementia, in her speaking, writing and coaching.  She even  created a phone App for caregivers!


    "I have spent many years caring for people who are lost who become found again when a photo, song, or story is shared, re-visited, brought back to today’s moment. We laugh, we cry, we feel like ourselves again. Life is better with good stories to tell."  Tryn


    Visit  http://caregiverheart.com/


    Connect with Deb at:  http://www.DebScott.com


     

  • 01:00

    Dr. Jay Shetlin Interview; Speaks on Healthy Diet, Immune System, Pro-Biotics...

    in Caregiving

    It's not just a diet. It's a healthier lifestyle.
    Join Dave, The Caregiver's Caregiver, as he interviews Author, Dr. Jay Shetlin tomorrow, Christmas Eve, Wednesday, 12/24/14 at noon, PST (Podcast is available anytime after live interview at same link) as he talks about: What is a healthy diet, Weight loss, How to raise your energy level, The immune system and what makes it function better, Ways to lower your stress, Acidic and alcoline PH, The connection between the brain and the body, Making the right choices each day, and The importance of taking a good Pro-Biotic.


    Call in 213 943 3630 to listen to it, or you can connect at this link:
    DaveTheCaregiversCaregiver.com/Uplifting-Interviews/
    ?#‎HealthyDiet? ?#‎ImmuneSystem? ?#‎EnergyLevel? ?#‎ProBionics? ?#‎DaveCaregiversCaregiver? ?#‎Health?

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