• 00:51

    Lymphedema Voices: Sheryl #Project1000000Voices Lymphedema Is No Joke

    in Health

    First time I talked to Sherly, she told me that she had once been a teacher but hasn't been able to work FT in decades.  She has had Lymphedema since in the early 90s.  She has difficulty fulfilling her life, difficulty in transportation.  She has no way of getting a compression garment (which can cost $500) without having to choose between a garment or paying rent because her income is just that stressed already.  Complicated by tumors (one removed and another that needs to removed).  She has written her Represenative but hasn't had a response just yet.  Hopefully, he'll get on board with the Lymphedema Treatment Act which will authorize Medicare to pay for the garment that helps to keep the lymphedema from getting worse, which causes so many other dominoing issues (like mobility, possible MS, and other diseases that stem from the damaged lymphatic systerm.  


    In Texas, we have 3 co-sponsors for the Lymphedema Treatment Act, and we have many more to go.  There are 4 bipartisan leads and 99 co-sponsors of the Lymphedemat Treatment Act across the United States.  We really need about 200 co-sponsors for this bill to be passed in the House.  We need your support to help the many Sheryl's out there with similar stories.  Please go to the http://lymphedematreatmentact.org website to sign up being a Team Member in your State and go to the "How You Can Help" and send your legislators personalize letters.


    Listen to the show that we had on November 20th as well for some other call to actions that you can do to help.


     


    #LymphedemaTreatmentAct #LymphedemaStory #Project1000000Voice

  • 00:31

    Lymphedema Voices: Sheryl #Project10000000Voices Lymphedema Is No Joke (Part 2)

    in Family

    The system hiccupped a bit and we didn't get to talk for the full time; however, we are back on this day with the rest of the story.


    First time I talked to Sherly, she told me that she had once been a teacher but hasn't been able to work FT in decades.  She has had Lymphedema since in the early 90s.  She has difficulty fulfilling her life, difficulty in transportation.  She has no way of getting a compression garment (which can cost $500) without having to choose between a garment or paying rent because her income is just that stressed already.  Complicated by tumors (one removed and another that needs to removed).  She has written her Represenative but hasn't had a response just yet.  Hopefully, he'll get on board with the Lymphedema Treatment Act which will authorize Medicare to pay for the garment that helps to keep the lymphedema from getting worse, which causes so many other dominoing issues (like mobility, possible MS, and other diseases that stem from the damaged lymphatic systerm.  


    In Texas, we have 4 co-sponsors for the Lymphedema Treatment Act in Texas, and we have many more to go.  There are 4 bipartisan leads and 104 co-sponsors of the Lymphedemat Treatment Act across the United States.  We really need about 200 co-sponsors for this bill to be passed in the House.  We need your support to help the many Sheryl's out there with similar stories.  Please go to the http://lymphedematreatmentact.org website to sign up being a Team Member in your State and go to the "How You Can Help" and send your legislators personalize letters.


    Listen to the show that we had on November 20th as well for some other call to actions that you can do to help.


     


    #LymphedemaTreatmentAct #LymphedemaStory #Project1000000Voice

  • 01:06

    Lympedema Voices #Project1000000Voices Lymphedema Treatment Act 2014 Reflection

    in US Government

    In September 2014, a group of lymphedema advocates converged upon the Capitol Hill to talk to the US House of Represenatives and Senators about the Lymphedema Treatment Act, as well as had a Congressional Hearing to empasize the importance that it means to many lymphedema patients, caregivers, physicians, and more.  As a result, we ended up with 4 bipartisan lead sponsors from the House of Represenatives, and 91 cosponsors from many of the States.  We really need about 200 cosponsors to help ensure that this Bill passes the House.  


    Guidance was provided by the Lymphedema Advocacy Group, National Lymphedema Network, and many other supporters of the Bill.


    Join us on our Lymphedema Journey and Advocacy for a discussion on a reflection of those this year's journey at Capitol Hill (DC) and a call of action that we would like for you to do as soon as possible.


    For many more details about the Lymphedema Treatment Act, please check out the website http://lymphedematreatmentact.org.


    Also check out the Lymphedema In The News fb page http://facebook.com/lymphedemainthenews for additonaly information about Lymphedema, as well as other events/call to actions happening, especially in Texas.


    If you wish to share your story, please submit your request at http://goo.gl/forms/rqo8jg28j1


    Sponsors and Co-Sponsors of the Lymphedema Treatment Bill --- 
    https://www.congress.gov/bill/113th-congress/house-bill/3877/cosponsors

  • 03:20

    Dream Catcher's - With Les Paul - Effective Advocacy

    in Lifestyle

    Tonight's show is on Effective TBI Advocacy. I am starting to feel under the weather but hopefuly will feel better and be able to come on and do a live show. Togetheher as a community of survivors we can change the World around us and as I sit here nearly 30 Years after my first injuries ocurred I want to see major positive changes start happening NOW!!!!


    I want my next few weeks of shows to be a cellibration of survival for 30 years and about the hopes and promise of the future!

  • 01:30

    Quantum Leap: IPAS- State Advocacy and Protection Agencies

    in Education

    Please join me in welcoming Karen Pedevilla from IPAS. Karen is the Education and Trainer Director from Indiana's protection and advocacy center. Tune in and together we can make a difference!

  • 02:01

    Who U Rock Wit? with Fathers Advocacy and NO Hip Hop Archive

    in Entertainment

    Tonight we welcome community leaders from the powerful movement of action, Fathers Advocacy, and bloggers from RaTedReaLTV.COM. 


    Who You Rock Wit?


    As life in America becomes more and more perilous, we have to be sure that our village is functioning, and secure. Who You Rock With will set standards against faking. Cosign or cut off; no fence riding. Don't let our only narratives be from the lips of those that hate us. Upset the setup. You are who you rock with.

  • 01:00

    Transition Age Youth and Parental Advocacy with Rachel Mann Esq.

    in Culture

    Join us for a conversation on the change from transition age youth to adult and parental advocacy, with Rachel Mann, Esq., Staff Attorney at Disability Rights Network of Pennsylvania. 


    We'll discuss the differences in waivers available to children and those that start at age 18, aging out of the child welfare system, and other changes that occur in the milestone years of adulthood for individuals with disabilities. 


    PA Independent Living Radio Show is brought to you every Friday at 12:00 pm EDT/EST by The Arc of Luzerne County. Please consider a donation in support of our work to help improve the quality of life for people with Intellectual and Developmental Disabilities and their families.


    For more news and events of interest to the PA disability community, visit PA Disability News.


    Thanks for listening!


     

  • 01:29

    Donating To Pit Bull Advocacy? It Could Be A Fraud

    in News

    Attorney Fred Kray and the PBLNR crew will discuss examples of requests for funding that ended up not going for the purposes donated, Regular show episodes include:



    Recap of last week's show
    Weekly news update
    BSL updates with Kris Diaz from StopBSL
    Chat with Denise 
    Dog Training with Yvette Van Veen


    Don't miss our newly designed network website PBLNN.com where you can see all the latest updates from Pit Bulletin Legal News, Pit Bulletin Legal News Radio, StopBSL, K.C. Dog Blog, Canine Agression with Jim Crosby, the Doglawreporter and Dangerous Dog Law. New content every day. Bookmark it!


     

  • 00:56

    REPEAT SHOW - Lymphedema Awareness HR4662

    in Legal

    I have done several shows about Lymphedema and the grassroots efforts to get the Lymphedema Treatment Bill passed.  This one came from an original airing of 5/1/10.  


    "Back in March, we had a show introducting you to the HR 4662 which involves the improvement for health care costs for lymphedema patients. Please join us again today to learn what has been done, what you can do, and what this means to you if you (or someone you know) has lymphedema. We need to get this bill passed in this year's legislation session. We will have Jennifer and Jenny on our show, as well as some other pertinent people that can add more to enlighten about this very important bill."   http://www.blogtalkradio.com/oralhistory/2010/05/01/beyond-words-live--understanding-hb-4662


    BEYOND WORDS LIVE is designed as a platform for survivors to tell their own stories in their own words.


    For more information see http://facebook.com/LymphedemaInTheNews or http://lymphedematreatmentact.org/.  


     

  • 00:44

    NASSP ON PRINCIPALS AND EDUCATIONAL ADVOCACY

    in Education

    NASSP: SCHOOL PRINCIPALS


    YOUR INVOLVEMENT IN GRASS ROOTS POLICY ADVOCACY


    As a principal, how involved should you be in educational advocacy. Jacki Ball, NASSP Associate Director for Advocacy is our guest


     


    Presented by TRIUMPH LEARNING


    www.triumphlearning.com   @triumphlearning

  • 00:37

    The Harvest Series: Awareness and Advocacy

    in Radio

    Join #TeamChaplain (Host) Chaplain E. Jean Jones and (co-Hosts) LaShanda Lewis, Patrinal Smalls, Nancy Smith and Crystal Bates as they share what they have accomplished or beome more aware of since the beginning of the Fall Season (i.e. health, new goals, craeer, education...)


    Each person will also share how they plan to improve in their area(s) of weakness.


    Special Guest:Mioshi Johnson (founder of Pretty Smart Girl)

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