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  • 00:51

    Lymphedema Voices: Sheryl #Project1000000Voices Lymphedema Is No Joke

    in Health

    First time I talked to Sherly, she told me that she had once been a teacher but hasn't been able to work FT in decades.  She has had Lymphedema since in the early 90s.  She has difficulty fulfilling her life, difficulty in transportation.  She has no way of getting a compression garment (which can cost $500) without having to choose between a garment or paying rent because her income is just that stressed already.  Complicated by tumors (one removed and another that needs to removed).  She has written her Represenative but hasn't had a response just yet.  Hopefully, he'll get on board with the Lymphedema Treatment Act which will authorize Medicare to pay for the garment that helps to keep the lymphedema from getting worse, which causes so many other dominoing issues (like mobility, possible MS, and other diseases that stem from the damaged lymphatic systerm.  


    In Texas, we have 3 co-sponsors for the Lymphedema Treatment Act, and we have many more to go.  There are 4 bipartisan leads and 99 co-sponsors of the Lymphedemat Treatment Act across the United States.  We really need about 200 co-sponsors for this bill to be passed in the House.  We need your support to help the many Sheryl's out there with similar stories.  Please go to the http://lymphedematreatmentact.org website to sign up being a Team Member in your State and go to the "How You Can Help" and send your legislators personalize letters.


    Listen to the show that we had on November 20th as well for some other call to actions that you can do to help.


     


    #LymphedemaTreatmentAct #LymphedemaStory #Project1000000Voice

  • 00:31

    Lymphedema Voices: Sheryl #Project10000000Voices Lymphedema Is No Joke (Part 2)

    in Family

    The system hiccupped a bit and we didn't get to talk for the full time; however, we are back on this day with the rest of the story.


    First time I talked to Sherly, she told me that she had once been a teacher but hasn't been able to work FT in decades.  She has had Lymphedema since in the early 90s.  She has difficulty fulfilling her life, difficulty in transportation.  She has no way of getting a compression garment (which can cost $500) without having to choose between a garment or paying rent because her income is just that stressed already.  Complicated by tumors (one removed and another that needs to removed).  She has written her Represenative but hasn't had a response just yet.  Hopefully, he'll get on board with the Lymphedema Treatment Act which will authorize Medicare to pay for the garment that helps to keep the lymphedema from getting worse, which causes so many other dominoing issues (like mobility, possible MS, and other diseases that stem from the damaged lymphatic systerm.  


    In Texas, we have 4 co-sponsors for the Lymphedema Treatment Act in Texas, and we have many more to go.  There are 4 bipartisan leads and 104 co-sponsors of the Lymphedemat Treatment Act across the United States.  We really need about 200 co-sponsors for this bill to be passed in the House.  We need your support to help the many Sheryl's out there with similar stories.  Please go to the http://lymphedematreatmentact.org website to sign up being a Team Member in your State and go to the "How You Can Help" and send your legislators personalize letters.


    Listen to the show that we had on November 20th as well for some other call to actions that you can do to help.


     


    #LymphedemaTreatmentAct #LymphedemaStory #Project1000000Voice

  • 01:06

    Lympedema Voices #Project1000000Voices Lymphedema Treatment Act 2014 Reflection

    in US Government

    In September 2014, a group of lymphedema advocates converged upon the Capitol Hill to talk to the US House of Represenatives and Senators about the Lymphedema Treatment Act, as well as had a Congressional Hearing to empasize the importance that it means to many lymphedema patients, caregivers, physicians, and more.  As a result, we ended up with 4 bipartisan lead sponsors from the House of Represenatives, and 91 cosponsors from many of the States.  We really need about 200 cosponsors to help ensure that this Bill passes the House.  


    Guidance was provided by the Lymphedema Advocacy Group, National Lymphedema Network, and many other supporters of the Bill.


    Join us on our Lymphedema Journey and Advocacy for a discussion on a reflection of those this year's journey at Capitol Hill (DC) and a call of action that we would like for you to do as soon as possible.


    For many more details about the Lymphedema Treatment Act, please check out the website http://lymphedematreatmentact.org.


    Also check out the Lymphedema In The News fb page http://facebook.com/lymphedemainthenews for additonaly information about Lymphedema, as well as other events/call to actions happening, especially in Texas.


    If you wish to share your story, please submit your request at http://goo.gl/forms/rqo8jg28j1


    Sponsors and Co-Sponsors of the Lymphedema Treatment Bill --- 
    https://www.congress.gov/bill/113th-congress/house-bill/3877/cosponsors

  • 01:02

    PWN 2015.4.3: 30 Days of Advocacy Against Witch-Hunts w/ Damon Leff

    in News

    Damon Leff of the Pagan Rights Alliance (South Africa) and Touchstone Advocacy joins RevKess and KaliSara during the 8th annual 30 Days of Advocacy Against Witch Hunts. The persecution of "witches" in South Africa and elsewhere around the world is real. The majority of the victims of these witch hunts are old women and young children. Damon will talk about the history of this program and the impact that it has had in South Africa as well as what the persecutions are about.


    The Inquisition and the Salem Witch Craze are far behind us in Europe and North America, but the danger of their legacy exist to this day. Find out what these modern day witch hunts are and how they are having dangerous effects on the people persecuted.


    This is Damon's third visit with the Pagan Weekly News. He joined Zaracon and RevKess in 2012 and 2013. Zaracon may join in the discussion.

  • 00:37

    Breastfeeding Advocacy anytime, any place?

    in Women

    Why do we have so much contraversy around Breastfeeding?  One of the reasons is the way women's bosies have been objectified and subjectified.  Showing women's nipples in public has such shame attached to it - as Janet Jackson found out at the Super bowl when her nipple slipped out of her top.  Women are covering their babies in a quest to cover themselves while breastfeeding in public - almost seems like a step backwards in liberating ourselves.  Advocacy plays an important role in liberating us from taboos that no longer serve us.  Today we talk breastfeeding & advocacy with Derek Forgie, a Canadian comedian and active advocate for breastfeeding and a whole lot more!  He posted a very passionate rant entitled "Superbowl vs My Wifes Breasts" that went viral.  You will hear it here but it's a must to watch https://www.facebook.com/video.php?v=10153051548929836

  • 00:49

    Cynthia Maclusky - Parent Advocacy Success Story

    in Family

    Cynthia is an active member of the autism community. She has a son who, through biomedical and therapeutic means, lost his diagnosis of autism and is a typical 16 years old.  Cynthia was one of the seven mom’s who lobbied successfully for Steven’s Law that requires insurance companies to cover autism in the state of Arizona. She has written articles for Autism File, spoken nationally, produced a documentary on co morbid medical conditions, been interviewed by local news, Lifetime TV, Good Morning America and appeared with her son in The New York Times Magazine this last summer. She is the Vice President of Autism Society of Greater Phoenix. Currently, she is helping to run legislation on restrain and seclusion in this legislative session.  She is also working with a group of lawyers to help parents with children with autism access good medical care with private insurance companies and using EPSDT to access appropriate care through Medicaid.


    All Autism Talk (allautismtalk.com) is sponsored by Autism Spectrum Therapies (autismtherapies.com) and Trellis Services (trellisservices.com) and Learn It Systems (learnitsystems.com)

  • 02:00

    Choose your weapon: Social Advocacy vs Economic Empowerment

    in Lifestyle

    On this episode of Life Full Circle Radio, we will discuss the overall methods of change. Is it best to use social advocacy, economic empowerment or both.


    We've have just came out of Black History Month and the commmeration of #Selma50. At the same time we have the issues of the #SAE racist rants, another #Ferguson shooting and The killing of #TonyRobinson in Madison, WI. Our country seems to be a powder keg right now, with a short fuse. All this is going on while our economy is rebounding. Most of America is simply watching this unrest like a movie on TV, instead of it being many peoples lives.


    We will talk about this convergance of Social Advocacy and Economic Empowerment with Anthony Butler from the E3 Business Group. 

  • 01:01
  • 00:31

    child sex exploitation can be prevented

    in Moms and Family

    Child safety advocacy, child sex exploitation, child sex abuse are the issues being discussed

  • 00:40

    Advocacy: Moving Forward, What Now?

    in Women

    After immigrating to Queens, New York, Marisol has suffered alone and in silence at the hands of her abusive and cheating husband for years. Now pregnant with her second child, her desperation to save her young son and soon-expected daughter from this hell has reached its breaking point. The catalysts that finally make Marisol muster up the courage to escape are the words from her son, “Mom, get us out of here”, and the encouragement of her neighbor, Gladys. One night, she wakes her son while her husband is asleep. They escape with nothing but the clothes on their backs. Marisol is all alone in a new country with no means of support, but she knows she must find the strength to make a better future for her children.


    Domestic Violence disrupts lives on so many levels.  This story is just one of many.  Awareness needs to increase.  What can you do to change folks lives?  Check out Domestic Violence Voices on fb and G+.  


    Creating change begins with you.  Always share your voice!


     


    #DVWarriors


    #SharingYourVoice

  • 01:29

    Sylvia Hooper & Dorin Matthews: Foster Parents Advocacy Foundation

    in Family

    Guests: Sylvia Hooper & Dorin Matthews


    Co-founders of Foster Parents Advocacy  http://www.fpafoundation.org/ 


    FPA Foundation is taking on the system in an effort to stop the forced drugging of foster children.  It works to change the U.S. child welfare system (child protective services, family courts, and foster care ) from one of abuse and neglect to one of protection and support.


    ?Among the topics we will discuss is the involuntary drugging of foster children, Foster Care Corruption-Misconduct, false documentation.


    Violating parents rights and due process.??


    Foster care agencies fail to follow poli?cy & procedure??


    Abuse of power over the clients


    Over site Monitor is needed to take complaints and investigate complaints made about  ACS and foster care agencies.
    Family court needs to monitor the treatment of parents by agency personel, attorneys and the courts??.


    Attorney's assigned are not helping the parents


    FPA-Foundation The people’s movement works to advance the civil and human rights of people through advocacy, training, education, and public policy and legislative development.
    ?