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Tonight our incredible special guest is none other than the famous and super powerful Kristen Powers, creator of “Twitch” the documentary about her journey with Huntington’s disease, the possibility that she has inherited the same fate as her mother and the struggle about whether or not to test.
Kristen is junior at Stanford University, created her first documentary, Twitch, following her genetic testing for Huntington’s disease (HD). Kristen hopes that this film will spark international conversations about genetic testing, the implications of making the choice to test, as well as remove the stigma surrounding neurological diseases. She raised over $45,000 using crowd-funding platforms to fund the creation of this film, and is currently circuiting the film on a global tour. She has appeared in major news outlets like USA Today and previously spoke at TEDxTeen.
Tonight we welcome back to the show, Dr. Lorna Speid who works in the pharmaceutical industry as a regulatory affairs and drug development consultant. We will be talking about the role of the PI (Principal Investigator) in clinical trials.
After working in the pharmaceutical industry for many years, Dr. Speid saw a need to provide information to patients about clinical trials that would allow them to be empowered enough to ask the right questions before and after entering clinical trials. She wrote the book Clinical Trials: What Patients and Healthy Volunteers Need to Know, to accomplish this. It was published by Oxford University Press in 2010.
Oxford University, the publisher of the book has agreed to provide Help 4 HD with a donation every time anyone using the Code HELP4HD154 in purchasing a copy of the book. The link for purchasing the book is http://global.oup.com/academic/promo/32990/?cc=gb&lang=en PROMO CODE: 32990. This is a book that will provide information on the development of new treatments. Education about this process is critical for anyone that is interacting with the process, whether as care giver or as patient.
She is the founder of a non-profit called Rare Diseases Patients First! This organization is planning to provide education to patients with rare diseases about the clinical trial process. This education will be provided free of charge. We will provide more information about these educational internet-based meetings, as soon as they are ready to be rolled out later this year. Dr. Speid advises companies on the development of new treatments for rare diseases.
Join us weekly to share how living with any Thyroid Disease alters the way of life for all of us. Hosted by Graves Disease patient and Thyroid Storm survivor Dan Collins, Dan interviews Medical Professionals, Health & Wellness Professionals, Thyroid Patients and People that help spread the word about Thyroid Disease. Feel free to join the discussion every Sunday @ 2:00 pm am Central time.
This week Dan welcomes Danna Bowman, Founder of Thyroid Nation. Join Danna & Dan as they discuss Thyroid Nation and what Danna sees for the future of the fight with Thyroid Disease.
Sunday, May 29 - Our incredible special guests are James Valvano (WeHaveAFace.org) and his A Team comprised of an incredible team of individuals within the Huntington's disease community. These individuals have joined the project to promote the film documentary, and to continue to provide valuable support to others within the JHD/HD community. Advocacy for Huntington's disease is a key part of our daily lives.
WeHaveAFace.org was founded to increase international awareness of Huntington's disease through a creative, cinematic form - The film: "The Faces of Huntington's Disease: I am No Longer a Faceless Face"
The idea for a full-length documentary followed the overwhelming support of the release of the film: "The Faceless Faces of Huntington's Disease" into the NeuroFilmFestival.
Join us for a very enlightening and interesting program.
Call us and join in the discussion! (718) 508-9419 + option #1
Episode 54 – 10/01/2014 – Ebola Update and How We React to Major and Minor Events
Ebola and the first U.S. case in Dallas where the man was sent home and returned in an ambulance;
Basic prevention of the transfer of contagious disease and sanitation generally;
Immunity and boosters found in natural food and vitamin sources;
Hong Kong riots over election ballot certification policy, the arms crossed and impact on national day in China;
Secret Service Director Julia Pierson resigns following evidence of chronic Secret Service failures;
Social media security, Facebook to require birth names and professional or business pages for other purposes;
Passing Personages: Jerrie Mock, age 88 dies, and was the first woman to complete a solo flight around the Earth;
Space Week is October 4 through 10, teaching students about space and the solar system in schools and at home in supplemental home schooling.
About our program:
Hell No! the radio show is a socially conscious water cooler talk show about what’s going on in the world as we feature guests and callers who express their thoughts. Hell No! is friendly, funny, real and focused on empowering the truth. We give a voice to people left in the dust. This program is not democratic, fascist, politically correct or a place for sacred cows. We do advocate peace, critical thought, education, reading and social awareness.
Email us! HellNoTheRadioShow@gmail.com and to find other episodes you can play on demand anytime, please Like us on Facebook.com/HellNoTheRadioShow.
Welcome to the latest episode of our Mid Week in Review show currently under the auspices of Afronerd Radio. Don't forget to set your calendars and clocks for this Wednesday at 7:30pm when your hosts, Dburt and Captain Kirk unravel the following current event laden mysteries (no "Scooby snacks required): in the ultimate case of reefer madness- we attempt to compare the intelligence quotients of an Alaskan news reporter versus a UPS worker losing their jobs over their love for the Wacky Tobacky; British Afropunk/Urb-Alt artist, FKA Twigs receives racist tweets from "Twilighters" who dislike her dating actor, Robert Pattinson; an unquestionable case of police misconduct gets caught on dash cam and an officer goes to jail; more revelations relating to last week's breach in White House security; as if the NFL didn't need have enough PR woes, a new report from the Department of Veterans Affairs’ brain repository, 76 out of the 79 deceased NFL players examined were found to have suffered from CTE (chronic traumatic encephalopathy) brain disease; Dburt notes that his casual obervance of the foibles of the millennial generation are proving to be truer and more quantifiable than ever; NYC's first lady, Chirlane McCray is in the middle of a PR nightmare because of her assistant's personal life and lastly, a podcast highlighting the Dr. John McWhorter penned New Yorker magazine piece on jazz great, Louis Armstrong reminds us of the immortal adage, "the more things change, the more things stay the same." Call the show live at 646-915-9620.
I am more than amused by the prospect of a battle of wits ... though I fear that with you as an opponent... the struggle might well be brief-Victor Von Doom
Join us tonight at 9pm est for another powerful discussion. Are we prepared for a disaster if it should strike? Do we have the means to extract loved ones out of a volatile situation? Are we equipped as a people to handle an epidemic or outbreak of a deadly disease? We will discuss this on tonights broadcast of Moorish Science Radio.
in Self Help
Healing begins only when we are ready to recognize the need for a shift to happen in our lives. "Shift Happens™", hosted by world-renowned intuitive healer, San Dan Yi, provides you with the insight and the necessary tools to bring about positive changes in your life. Each week, San will take calls from the audience and answer one question per caller. Bio: San is a globally recognized intuitive and energy healer. San's clientele has included: Louise Hay, Doreen Virtue, corporate leaders and political figures.
Today’s show is brought to you by LiquidWeb.com the most reliable hosting provider with 24/7 heroic support! Listeners of today’s show will receive $100 credit towards Storm Servers (VPS & Dedicated hosting) or can get 1 free month of shared hosting by using the coupon code: “orgview”.
Shift Happens, the host and producers provide no guarantees, implied warranties, or assurances of any kind and will be held harmless for any interpretation made by the audience choosing to independently take advantage of information presented on this program or made available on this web site. The information provided during this program is presented for entertainment purposes only and is not intended to diagnose, treat, or cure any disease or to substitute the advice provided by your own physician and / or other medical or mental health professional.
In the Old Testament, when Israel was required to sacrifice unto the LORD, such an offering was expected to be honourably prepared and placed at the entrance of the Tabernacle of GOD prior to their entry. It hence can be imputed that christian believers too are today confronted with this monumental requirement of first presenting a holy sacrifice unto the LORD, before entering into HIS holy kingdom. This has become the greatest yardstick of our time for access into the rapture of the church.
The Holy Spirit is saying that a holy worship sacrifice that the present-day christian believer offers unto the LORD, is expected to yield a lasting reconciliation between the church and GOD ALMIGHTY (Lev 3:1; Num.6:14). While offering sacrifices in the old testament, only undefiled animals were worthy of being proffered unto the LORD, and owing to that benchmark of sacrifice, the offering of a blemished animal was considered a serious violation of biblical law. It was also regarded as the most heinous act of an audacious disrespect unto GOD. When you [priests] offer blind [animals] for sacrifice, is it not evil? And when you offer the lame and the sick, is it not evil? Present such a thing [a blind or lame or sick animal] now to your governor [in payment of your taxes, and see what will happen]. Will he be pleased with you? Or will he receive you graciously? says the LORD of hosts (Malachi 1:8).
More and always free at www.repentandpreparetheway.org www.jesusislordradio.info, USA Facebook
Our guest for this Wednesday’s show is, Elaine R. Ferguson, MD, a practicing physician, author, coach, blogger, and, a pioneer in the field of holistic medicine. She is an Ivy League educated physician, a graduate of Brown University and Duke University School of Medicine, and completed her residency training at the University of Chicago. She has practiced holistic medicine for over two decades, and her consulting/health coaching practice, One Health, LLC is dedicated to empowering people through educating them about the latest medical research breakthroughs that support a holistic approach to care, and has created numerous coaching programs to help people achieve their goals.
You can learn more about Dr. Ferguson by visiting her blog, www.drelaine.com, following her on Twitter @doctorelaine - Dr. Ferguson is the author of several books, most recently, the internationally best seller, Superhealing: Engaging Your Mind, Body, and Spirit to Create Optimal Health and Well-Being. She passionately advocates an evidence based approach to health enhancement and disease treatment that encompasses the mind, body, and spirit. Helping people to improve their health is her life’s calling.
For interesting things you need to know. Visit the KNOW show. Wednesday evening at 7 p.m. CST or CDT to be in the KNOW. With Host Rev. Robert J. V. McMilan and a ton of interesting guests and topics to keep you in the KNOW.
Most mainstream dietary advice recommends low-fat or non-fat dairy, but do they understand what real non process dairy is? It is far healthier to eat and drink whole non-processed dairy products, with all Mother Nature's fat left in.
Who would have thought shopping for food could be so hard? Wander around any supermarket and you’ll be bombarded with packaging plastered with nutrition labels and ‘helpful’ logos to help you assess the healthiness, or otherwise, of their contents. Almost all packages state that it helps to reduce cholesterol. That alone will inform the intelligent to stay away from that food.
When reading all of the labels, your head could be spinning with the conflicting messages you recall from health experts and watchdogs. One minute, the experts are telling you to avoid eggs because of cholesterol, the next, we’re told eggs are fine after all as the cholesterol found in food does not lead to heart disease. Tune in for the Rest Of The Story at 7:PM est right here on Blogtalkradio
in Self Help
Sickle cell anemia (uh-NEE-me-uh) is the most common form of sickle cell disease (SCD). SCD is a serious disorder in which the body makes sickle-shaped red blood cells-shaped like a crescent. Normal red blood cells are disc-shaped and look like doughnuts without the holes. They move easily and the red blood cells contain an iron-rich protein called hemoglobin (HEE-muh-glow-bin). This protein carries oxygen from the lungs to the rest of the body. Sickle cells contain abnormal hemoglobin called sickle hemoglobin or hemoglobin S. Sickle cells are stiff and sticky. They tend to block blood flow in the blood vessels of the limbs and organs. Blocked blood flow can cause pain, organ damage, and raise the risk for infection.
This condition also can occur if your red blood cells don't contain enough hemoglobin. Red blood cells are made in the spongy marrow inside the larger bones of the body. Bone marrow is always making new red blood cells to replace old one and they live about 120 days. They carry oxygen and remove carbon dioxide (a waste product) from your body. In sickle cell anemia, the abnormal sickle cells usually die after only about 10 to 20 days. The bone marrow can't make new red blood cells fast enough to replace the dying ones. Sickle cell anemia is an inherited, lifelong disease. People who have the disease are born with it. They inherit two genes for sickle hemoglobin—one from each parent. People who inherit a sickle hemoglobin gene from one parent and a normal gene from the other parent have a condition called sickle cell trait. The two are different. People who have sickle cell trait don't have the disease. Like people who have sickle cell anemia, people who have sickle cell trait can pass the sickle hemoglobin gene to their children.
Sickle cell anemia has no widely available cure. However, with proper care and treatment, you can have improved quality of life and reasonable health much of the time.
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