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Tuesday, June 30, 2015 3:30 pm PST/6:30 pm EST
HDSA's Senior Director, Mission and Scientific Affairs, Dr. George Yohrling will be with us to share information about HDSA's newly launched HDTrialFinder.org site. Together with HD Drug Works, HD Buzz, HSG, Huntington Society of Canada, and CHDI, Help 4 HD International is proud to partner in this effort to bring education about clinical trials together in one place. It provides precise and strategic information to our HD community about clinical trials that they may qualify for in their area.
This collaborative effort is a first to bring all the clinical trial information together on one site, a database where information may be called up according to the inquirer's specific location and criteria. Go to: http://hdtrialfinder.org/ and register.
Other topics of discussion:
HDSA's 30th Convention
FDA PDUFA Meeting in September
Tune in for a very special show with Dr. George Yohrling!
Tuesday, April 14 - 3:30 pm
The amazing, incredible, fantastic Jimmy Pollard is going to be with us tonight. Jimmy has quite a speaking schedule these days and is on a mission to educate about clinical trials, namely Enroll HD (http://www.enroll-hd.org/), which is a worldwide observational study for Huntington’s disease families. This study will monitor how the disease appears and changes over time in different people, and is open to people who either have HD or are at-risk. Monitoring people over time in a real-world setting contributes to scientific knowledge. The study is designed to accelerate the discovery and development of new therapeutics for HD.
Jimmy says, "No volunteers for studies, no more advances in the quest for a cure!" Enroll-HD
Also find Jimmy's book on Lulu: "Hurry Up and Wait: A Cognitive Care Companion" (http://bit.ly/1DCUJmO)
This book will give you a set of exercises to simulate the cognitive difficulties faced by those with HD, a collection of tips to accommodate them in your home or care home, a strategy to develop new approaches to solving care problems and commentary on common problems faced by family carers and those they love.
Tune in and let's catch up with our most favorite man on the stand, Jimmy Pollard!
What is Laqunimod? Laquinimod is an experimental drug from TEVA Pharmaceuticals that has already been tested in previous clinical trials in several diseases including Multiple Sclerosis (MS). This drug is thought to affect (or modulate) immune activity by shifting an injurious inflammatory situation to one that is more protective and anti-inflammatory. There is also evidence from various clinical trials that laquinimod may delay progression of disability in MS, and that it reduces brain atrophy as measured by MRI brain scans. By reducing brain atrophy, this drug may have neuroprotective effects [Varrin-Doyer 2014]. This drug can trigger protective neuron factors like BDNF (as measured in blood of MS clinical trial participants) that supports the health of neurons.
We will be talking about LEGATO-HD clinical research trial that will test the safety of Laquinimod.
Billy Gordon, originally from Silver Spring Maryland, is a motorcycle enthusiast, musician, and Executive Director of Motorcycle Charity Associates Inc. (MCA). He has just released a book called, Fun Cycle which focuses on the 75th Anniversary of the Sturgis Motorcycle Rally, in conjunction with the history, culture, and memoirs from the 50'th Anniversary Sturgis Rally.
We'll also take an online road trip to Maxine Milner’s “Mama Max's Diner” in Prescott, Arkansas, home of her world famous chocolate turtles and homemade pies.
Preorder Garrison’s new book, Postcards from the Highway of Life coming September 1st to Amazon, B&N.com and bookstores with a Foreword by Doobie Brothers founder and guitarist Pat Simmons. Check out the Facebook Postcards page and if you’re riding through Connecticut have Classic Diners of Connecticut in your saddlebags!
Since 1965, Stan Gordon has been conducting on scene investigations of mysterious encounters in Pennsylvania. He has been involved with the examination of thousands of UFO and other strange reports from across the Keystone State. During the late 1960's, Stan acted as a telephone report sighting coordinator for the UFO Research Institute of Pittsburgh. Stan has been internationally recognized as an authority on the subject of the UFO and Bigfoot phenomena.
He gained prominence from his first hand investigation into the well remembered 1973 UFO/Bigfoot series of sightings and encounters which occurred in Pennsylvania. He founded the Westmoreland County UFO Study Group in 1970, which expanded to the Pennsylvania Center For UFO Research in 1975. In 1981 he founded the Pennsylvania Association For the Study Of The Unexplained.
Stan Gordon served as the Pennsy1vania State Director of the Mutual UFO Network for many years and was the first recipient (1978) of the annual MUFON "Meritorious Achievement in A UFO Investigation Award." Stan also continues to investigate information concerning the controversial UFO crash/retrieval case which occurred on December 9, 1965 near Kecksburg in Pennsylvania and has been the primary investigator of the event for many years
ON HELP4HD RADIO Tuesday, March 3, 3:30 pm PST/6:30 pm EST
Dr. Goodman writes about the Pride-HD (Pridopidine) study in her recent article...
"PRIDE-HD: Why We Should Bother"
Recruitment is not going well for PRIDE-HD, an important clinical trial now enrolling for Huntington's disease (HD). Why is this? Some think "why bother", particularly when testing a drug they may perceive as a failure in earlier trials. For some others, the trials may seem to too hard, too long, or not permit other drugs they are taking. Still others are waiting for the gene therapy magic bullet they believe is just around the corner...
Help4HD says, "Because we don't know until we try."
Tune in to the show and let's talk about it!
TUESDAY JUNE 2, 2015 - 3:30 pm PST
Tonight we have a special show with two of Dr. Goodman’s incredible friends who are working directly with the homeless community in Washington State. As many of you know Huntington’s disease sufferers sometimes end up in homeless situations. Well, tonight we are going to meet Rev. Jim Bridges who does amazing work to help the homeless and we also get to hear from our super incredible Elizabeth Valenzuela again. You may remember when she was on the show a year and a half ago when we talked about how she found a man struggling with HD and living in very sad conditions. We have lots to talk about tonight! Let's get your questions ready for the experts on the state of homlessness.
Larry interviews author and IDF solder Dan Gordon about his latest book, Day of the Dead: Book 1: Gaza, a frighteningly realistic thriller. A page-turner which paints a compelling portrait of Mid-East combat and espionage in the age of ISIS and Hamas.
Richard Shaw calls in during the second hour.
Dan Gordon's Amazon author page: http://www.amazon.com/Dan-Gordon/e/B00MC5ZU9C/ref=sr_tc_2_0?qid=1435175671&sr=1-2-ent&pebp=1435175658896&perid=1RXSS9RS3NX07Y0XGE1P
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