• 00:53

    The HD View with Dr. Victor Sung

    in Health

    Tuesday, January 12, 2015 - 1:30 pm PST/3:30 pm CST/4:30 pm EST


    Dr. Victor Sung is Assistant Professor, Department of Neurology, Division of Movement Disorders at the University of Alabama at Birmingham. This afternoon we will talk about his HD clinic at UAB and the work he is doing with clinical trials.  Tune in to a very interesting and educational show.

  • 00:08

    Testing of HD

    in Baseball

    This is a test of the HD system

  • 00:58

    The HD View Ask Dr. Goodman Show

    in Science

    TUESDAY, NOVEMBER 4, 2014


    Dr. Goodman writes, “Bummed" was what this author felt after the recent announcement of (HD).  We can put some positive spins on recent trial failures; we have learned how to run large clinical trials, we can learn from negative outcomes, and best of all hundreds of HD individuals are freed up to participate in other (potentially better) trials.  But the reality is that this is one more disappointing failure in an increasingly long string of negative trials. The community is bummed.  Saying it straight is better, helps us to get over it, get up and go on to what comes next.…


    We will be talking about the recent closure of the HSG clinical trial CREST-E. Send your questions and comments to melissa@help4hd.org 

  • 01:32

    THE JOY OF TRIALS

    in Religion

    Bro. Alfonzo Neal teaches how Christians can experience true joy even in the midst of trials. Selected Scriptures: Jms 1:2-5; 12

  • 01:16

    The HD View with Dr. Peg Nopoulos Kids-HD/Kids-JHD

    in Science

    TUESDAY, MARCH 17, 2015 3:30 pm PST/5:30 pm CST


    Tonight our incredible special guests are Dr. Peg Nopoulos, Sonia Slevinski and Jane Kerr from the University of Iowa.  We will be talking about the clinical study called Kids-HD/Kids-JHD.  This study is sponsored by CHDI and is an ongoing study to help determine what is the best care protocol for the care and assessment of JHD children.  Tune in and bring your questions. Call into the show on these two numbers: 310-982-4227 or 877-497-4103.


    Talk to you soon!


    For more informationn about Kids-HD/Kids- JHD visit their website:
    http://kids-hd.psychiatry.uiowa.edu/faqs 

  • 00:55

    The HD View Ask Dr. Goodman Show

    in Health

    Tuesday, December 2, 2014 - 3:30 pm PST/6:30 pm EST


    Tonight we will be discussing Dr. Goodman's latest article "2014: A Yin-Yang year for HD".


    She writes: "Particularly during this past year, living with Huntington's disease (HD) has been full of its ups and downs. First there was the hope in ongoing clinical trials of both coenzyme-Q-10 and creatine. Then there was sadness and fear that came with their failures.  And now hope is springing again for new drugs coming to clinical trials now that will take a few years to complete.  No doubt this Yin-Yang cycle will continue for HD, just as it does for other diseases."


    "However, there may be reason to believe in the chance of greater success this next time around."


    Read her article: www.HDDrugworks.org
    Tune in at 3:30 pm PST/6:30 pm EST

  • 00:52

    Multiple Myeloma Update & Clinical Trials

    in Health

    This show is part of the Leukemia & Lymphoma Society Patient Education Series. 


    Our special guest is Dr. Christopher Yasenchak from Compass Oncology in Portland, Oregon. Dr. Yasenchak received his M.D. from Pennsylvania State University. He continued his training at the Mayo Clinic College of Medicine and is board certified in hematology, medical oncology and internal medicine.  His clinical focus is multiple myeloma, lymphoma, stem cell transplantation, gastrointestinal malignancies and clinical trials.

  • 00:49

    The HD View Ask Dr. Goodman Show

    in Health

    TUESDAY, FEBRUARY 3, 2015 - 3:30 PM PST/6:30 PM EST


    Tonight Dr. Goodman will be talking about aggression in Huntington’s disease. A recent article reports that aggression is common in individuals with Huntington's disease. Authors report rates of aggressive behaviors between 22% (for clinic patients) and 66% (for hospitalized patients) among individuals with HD. What do they mean by aggression, and how should we interpret these numbers? It is important to remember that aggression (as defined in this article) and violence are NOT the same thing.


    However, the most important thing to learn is not how often it occurs, but how we can understand, cope with and treat aggressive behaviors in HD.


    Article direct link: http://hddrugworks.org/index.php?option=com_content&task=view&id=349&Itemid=30


    Read Dr. Goodman’s articles at: www.HDDrugWorks.org

  • 00:42

    The HD View with Trey Gray & Doug Michael

    in Motivation

    Tonight, we have two very incredible special guests here with us to share their story and mission to raise research dollars to find the cure for Huntington’ disease. Trey Gray (touring drummer in Nashville) and Doug Michael (recording engineer), best friends since their teenage years; compadres in music, and now connected forever in the life battle that Trey must endure with Huntington’s disease. Both are determined to fund research and dedicated to raising awareness about Huntington’s disease. They are raising $55,000 that will be donated directly to "The Trey Gray Fund for Huntington's Disease" at the Vanderbilt University research center for HD. Doug will be riding a bicycle 3,500 miles from Los Angeles to New York to raise awareness and money for this very important cause. Trey will be following Doug in the chase vehicle and at times he will be riding along.


    Tune in on Thursday to hear all about this amazing fundraising campaign for Huntington's disease awareness.


    CAMPAIGN LINK
    http://igg.me/at/HuntingtonsDisease


    FACEBOOK
    www.facebook.com/HuntingtonsDiseaseBikeforaCure


     

  • 00:02

    TEST HD STUDIO

    in Business

    ANOTHER TEST

  • 00:55

    Help 4 HD News Update with Louise Vetter CEO HDSA

    in Health

    Help 4 HD News Channel has been in contact with Louise Vetter CEO and has offered HDSA a forum to give our community an update on its progress on programs, research initiatives, Centers of Excellence, Diplomat Program and more.  


    We will be discussing the following information:


    I.             HDSA Overall



    Implementation of Strategic Plan

    guides everything we do with clear goals and practices to support our mission


    The result: new advocacy, education and research programs to support HD families


    II.           Research



    HD Human Biology Project
    HDSA Research Webinars
    Don King Fellowships


    III.          Education & Community Support



    National Social Worker to staff Helpline
    Partnership with HDYO
    Resources regarding Caregiving, Longterm Care and Genetic testing
    New HDSA Center of Excellence grant program


    IV.          Advocacy



    HD Parity Act
    Social Security Administration
    US Food & Drug Administration


    V.           Importance of Community Engagement



    More HDSA Chapters & Affiliates
    More Team Hope Walks
    More visibility: Family is Everything as a new way of building awareness of HD to new audiences
    More participation in science:  Endorsement of Enroll-HD


    VI.          Closing thoughts



    The entire HD community shares a common goal – to end HD.  Together we are stronger!

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