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According to Corience: An Independent European Platform on Congenital Heart Defects, " As many as 40–60% of children with congenital heart defects are undernourished.
Healthy babies double their weight in 6 months; however, children with congenital heart defects put on weight more slowly. Their growth is also affected by the heart defect.
Why do children with congenital heart disease not grow as other children do? The answer is because the heart defect makes them need more energy. Their diagnosis might also complicate feeding for several different reasons. Heart failure makes them too tired to feed. Some of them might have trouble keeping down their feeds. Others seem to have difficulty in coordinating breathing and nursing.
This episode will investiage what kinds of equipment might be needed to help a babe with a congenital heart defect if that baby cannot nurse or feed normally. Listen as one mother shares her experience with her baby -- who needed a feeding tube. We'll also talk with a clinical psychologist who specializes in early infancy and childhood as well as eating disorders and tube feeding. She works for the NoTube Limited Liability Corporation, which was founded to help children all over the world to overcome the severe condition of tube dependency. Discover how one mother and a company over six thousand miles apart helped one little boy wean successfully from his feeding tube without ever leaving home!
On this week’s show Joyce and Mike welcome Ricky Safer (CEO) and Joanne Grieme (Board Chair) from PSC Partners Seeking a Cure, a non-profit dedicated to finding a cure for Primary Sclerosing Cholangitis. PSC is a chronic liver disease where the bile ducts become impaired, eventually leading to deterioration of the liver. It is commonly associated with inflammatory bowel disease and ulcerative colitis.
We will discuss the difficulties patients often encounter in getting an accurate diagnosis of this condition. Until it is properly diagnosed, it is not possible to set out a reasonable treatment plan.
People with PSC often need a liver transplant. One young man has had three liver transplants and is doing well. We talk about liver transplants.
As with so many rare diseases, the patient becomes responsible for navigating the medical system, arbitrating among the advice of many specialists, and keeping track of appointments and records. Ricky and Joanne share what they have learned about dealing with the complexity of gastrointestinal complaints.
Stephanie Sugars has been moderating an online discussion group for families deaing with Peutz-Jeghers Syndrome since 2000. Over the years she has seen lots of changes.
Peutz-Jeghers Syndrome is a genetic disease. One tiny change in the STK11 gene, a tumor suppressor gene, removes one level of protection against tumor growth. With this alteration, a person is at increased risk of benign polyps and cancerous tumors of the digestive tract which may cause blockages. It may also lead to tumors of the pancreas, breast, and reproductive tract.
An early sign of the disease can be discolored spots on the iips and mucous membranes.
Its gastric symptoms look a great deal like those of Familial Adenomatous Polyposis (FAP), which is caused by alterations in different genes. The rate of diagnosis varies widely, and depends on the doctor remembering to think about this rare condition. However a careful diagnosis is very important, as it helps the family and the medical team know what to watch out for.
Joyce and Mike speak with Stephanie about her history with Peutz-Jeghers Syndrome.
For more information on Peutz-Jeghers Syndrome, see http://peutz-jeghersnews.blogspot.com/
Peutz-Jeghers Syndrome & Juvenile Polyposis Syndrome Online Support Group:
In this show you’ll learn:
The symptoms of gluten intolerance to determine if that might be the cause of what ails you (Hint: It might not be what you thought).
What gluten is and where you will find it – including your health and beauty aids.
Ideas for how to live a gluten-free life.
Gluten, a protein found in most cereal grains, is perhaps the protein most consumed in greater quantities than any other protein. It has long been known that a small percentage of the population is intolerant to gluten and gastrointestinal upset – including diarrhea, bloating, and flatulence – result from its consumption.
Join Dr. Ritamarie as she discusses how one little protein could result in such widespread symptoms, and what the solution to this widespread problem of gluten intolerance might be. The answer to a myriad of health challenges can indeed be as basic as changing your ideas about the bread you eat.
If you’re ready to explore the exciting world of gluten-free living, sign up for Dr. Ritamarie’s Gluten-Free Survival Kit, which includes a set of e-books and resources that will teach you about what it means to live gluten-free. There are delicious recipes included to help you to start receiving the health benefits of living gluten-free right away.
Also check out Dr. Ritamarie’s VITAL Health Community for additional resources that will give you cutting-edge science combined with the best of natural health wisdom to help you discover unprecedented vitality.
Have you ever heard of FODMAPs? Or the FODMAP diet? There is recent research about these carbohydrates that may help people with many different digestive issues, including irritable bowel syndrome (IBS), bloating, gassiness, and similar gastrointestinal disorders. This week on our nutrition-focused show, listen to Dr Pauline & Catherine explain this acronym and talk about the health implications of this relatively new discovery.
UPCOMING EVENTS (www.dunamascenter.com):
August 9th Discerning Childbirth seminar
Dr Pauline will be in the Phoenix, AZ area week of August 11th
August 22nd Counselor Training in Colorado Springs
Dr. Jillian Teta -- author of Natural Solutions for Digestive Health -- visits the podcast to discuss how you can heal your gut, naturally.
Topics will include:
* Why prescription drugs may be the most overlooked cause of digestive problems.
* The 7 "Big Bully" foods destroying your gut.
* 3 "gastrointestinal all-stars" to add to your diet.
* What happens when you hold your poop!
Click here to order Natural Solutions for Digestive Health!
Hosted by Sean Croxton of Underground Wellness.
This show is part of the Leukemia & Lymphoma Society Patient Education Series.
Our special guest is Dr. Christopher Yasenchak from Compass Oncology in Portland, Oregon. Dr. Yasenchak received his M.D. from Pennsylvania State University. He continued his training at the Mayo Clinic College of Medicine and is board certified in hematology, medical oncology and internal medicine. His clinical focus is multiple myeloma, lymphoma, stem cell transplantation, gastrointestinal malignancies and clinical trials.
Join me for an interview with Dr Jess Armine,
Dr Jess Armine holds licenses as a Doctor of Chiropractic and a Registered Nurse. He is trained in Chiropractic, Methylation, Genetic Research, Neuro-Endo-Immunology, Functional Medicine, Nutrigenomics, Applied Kinesiology, Cranial Manipulation, and Nutritional Counseling. He has been a health care provider for over 38 years.
Via his experience and eclectic training, he has a broad based knowledge of traditional and alternative/complementary health care. He has treated many clients with Chronic Illnesses, Multiple Chemical Sensivities, MTHFR issues, PANDAS, Chronic Fatigue, Chronic Pain, Gastrointestinal Imbalances (Leaky Gut), Autistic Spectrum Disorders, and more!
Dr. Armine is also a R.N. with extensive experience in Emergency and Critical Care.
Dr. Jess has published several papers in peer- reviewed scientific journals. In Addition, he held Diplomats in Forensic Examination and Forensic Medicine from the American College of Forensic Examiners and is a Fellow of the American College of Forensic Examiners International.
He is the co-creator of the Bio-Individualized Medicine™ paradigm that is being utilized around the world to improve health outcomes in complex conditions when traditional diagnosis and treatment have failed.
The topics we will cover include neurotransmitter, amino acids, addictions and ADD/ADHD. This is must-know info. Don't miss it!
Host Mike Williams interviews Stefano Vitale.
Stefano Vitale (aka Harigopal, Dancing Bear), RRT, L. Ac. M.S., M.A. D.O.M.(NM) is a New York, North Carolina and New Mexico Licensed Acupuncturist, a Registered Respiratory Therapist (an AMA approved specialty) as well as a Certified Acupuncturist and Herbologist with the National Association for the Certification of Acupuncturists. He holds a Diploma in Acupuncture and Herbology, as well as the title, Doctor of Oriental Medicine (DOM) from the state of New Mexico, which adds the specialty of Homeopathy.
He received his western training at New York University - Bellevue in Respiratory Therapy (1982) and graduated from Tri State College of Acupuncture with honors (1984). Dr. Vitale has been practicing yoga, martial arts, and pranic healing techniques for over 25 years. Vitale is also an ordained minister in the Universal Life Church.
His office is in Wilmington, NC. He works with a variety of patients finding great success in allergies, gynecology, gastrointestinal syndromes, thyroid, pain, emotional disorder, sport related issues, among other maladies using a variety of techniques.
Have you ever had that uneasy feeling where there is a burning sensation traveling from your stomach to your chest or throat? How about that bitter or sour taste of acid surfacing up to your mouth? What are the symptoms of acid reflux/heartburn? Is it harmful? Can it be cured? What are the treatment therapies?
Join us as we explore the topic of the gastroinstestinal system and the complications that may occur if untreated. Your health and wellness depends on you. Be informed!
Invite your family, friends and social network contacts to listen as we work to improve on our health and wellness.
Do you know the protein molecules your body is missing? Tune in Live as Dr. Cherilyn Lee and guest Dr. Victoria Bowman as they discuss cleansing, detoxification, digestive and gastro-intestinal (GI) health.
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