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November is Epilepsy Awareness Month and this week we are joined by Mary Loughlin, Northeast Resource Coordinator, and Daniel Dougherty, Patient Educator, with Epilepsy Foundation of Eastern Pennsylvania (EFEPA). We'll talk about living with epilepsy, available services, and the work of EFEPA.
Mary Loughlin started to volunteer for the Epilepsy Foundation Eastern PA in 2000 while actively looking for help & resources for her son, Michael, who had just been diagnosed with epilepsy. Retiring after 32 years with Verizon as a Technician she stepped up her volunteer time and eventually became the Wyoming Valley Coordinator in 2004.
Dan Dougherty resides in Glenside, and is a graduate of Cheltenham High School in Wyncote. He has lived with epilepsy for more than 30 years. Dan is a volunteer Epilepsy Advocate with the Epilepsy Foundation of Eastern PA. Dan has honed his public speaking skills through being an active member of Toastmasters, and was recognized as a Paul Harris Fellow in 2014, by the Glenside Rotary for his work in epilepsy awareness.
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A webinar dedicated to Epilepsy Awareness Month.
Tom Stanton is the Executive Director of the Danny Did Foundation, an organization inspired by his own nephew Danny who was lost shortly before his fifth birthday to Sudden and Unexpected Death in Epilepsy (SUDEP). The Danny Did Foundation works to advance public awareness of SUDEP, enhance the SUDEP communication model between medical professionals and families affected by epilepsy, and mainstream seizure detection and prevention devices that may assist in preventing seizure-related deaths.
Glenna Steele is the current president of the Glut1 Deficiency Foundation, a family organization dedicated to people living with epilepsy caused by Glut1 deficiency. The Glut1 Deficiency Foundation educates others about Glut1 Deficiency and its primary treatment (ketogenic diet), increasing awareness and advocacy for this condition, and supporting research that is working toward a cure.
Epilepsy.com Editor-In-Chief Dr. Joseph Sirven interviews Orrin Devinsky MD and Daniel Friedman MD about the current state of the use of medical marijuana for epilepsy. Drs. Devinsky and Friedman recently released an article entitled "Cannabinoids in the Treatment of Epilepsy," which was published in the September 10 issue of The New England Journal of Medicine.
In this episode of Epilepsy.com's Hallway Conversations, William Theodore MD, PhD from the National Institute of Neurological Disorders and Stroke interviews Jacqueline French MD from the Epilepsy Foundation's Scientific Advisory Board about epilepsy surgery. Dr. French presented on the changing landscape of epilepsy surgery as part of the 2013 AES Presidential Symposium.
RAISING AWARENESS BLOG TALK WILL BE DISCUSSING COMMUNITY ACTION WITH GUEST SPEAKER BROTHER ARNETT WOODALL
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