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November is Epilepsy Awareness Month and this week we are joined by Mary Loughlin, Northeast Resource Coordinator, and Daniel Dougherty, Patient Educator, with Epilepsy Foundation of Eastern Pennsylvania (EFEPA). We'll talk about living with epilepsy, available services, and the work of EFEPA.
Mary Loughlin started to volunteer for the Epilepsy Foundation Eastern PA in 2000 while actively looking for help & resources for her son, Michael, who had just been diagnosed with epilepsy. Retiring after 32 years with Verizon as a Technician she stepped up her volunteer time and eventually became the Wyoming Valley Coordinator in 2004.
Dan Dougherty resides in Glenside, and is a graduate of Cheltenham High School in Wyncote. He has lived with epilepsy for more than 30 years. Dan is a volunteer Epilepsy Advocate with the Epilepsy Foundation of Eastern PA. Dan has honed his public speaking skills through being an active member of Toastmasters, and was recognized as a Paul Harris Fellow in 2014, by the Glenside Rotary for his work in epilepsy awareness.
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A webinar dedicated to Epilepsy Awareness Month.
Tom Stanton is the Executive Director of the Danny Did Foundation, an organization inspired by his own nephew Danny who was lost shortly before his fifth birthday to Sudden and Unexpected Death in Epilepsy (SUDEP). The Danny Did Foundation works to advance public awareness of SUDEP, enhance the SUDEP communication model between medical professionals and families affected by epilepsy, and mainstream seizure detection and prevention devices that may assist in preventing seizure-related deaths.
Glenna Steele is the current president of the Glut1 Deficiency Foundation, a family organization dedicated to people living with epilepsy caused by Glut1 deficiency. The Glut1 Deficiency Foundation educates others about Glut1 Deficiency and its primary treatment (ketogenic diet), increasing awareness and advocacy for this condition, and supporting research that is working toward a cure.
Epilepsy effects millions of people world wide and 1 out of 26 people in the U.S. will develop epilepsy during their lifetimes. We will be discussing what epilepsy is and what we can do to help those affected by this many times difficult condition.
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Joining us once again, speaker, and health coach, and author of several books about natural health and wellness, Stacey Chillemi, will be back this time to talk about Epilepsy, in honor of Epilepsy Awareness Month.
We will also be talking with singer songwriter Lauren Corzine on her way to Nashville.
In August 2011, Carolina Barcelos Carneiro de Oliveira Miller passed away tragically as a result of Sudden Unexpected Death in Epilepsy (SUDEP). She was only 25 years of age. Carolina had epilepsy since her teenage years and had taken medication daily to control her already infrequent seizures. However, SUDEP tragically struck. SUDEP is a little known and less understood aspect about epilepsy - affecting 1 in 1000 people with epilepsy who are controlled (i.e. medication) and 1 in 150 people with epilepsy who are uncontrolled (i.e. no medication.). A staggering and alarming fatality rate. Since that time her husband, Eric Miller, has worked tirelessly to raise awareness about epilepsy and SUDEP particularly. Not only to honor Carolina but in the hopes of preventing others from suffering such a tragic loss. Among other things, he's created Candlelight Concerts for Epilepsy Awareness, an online concert series featuring international performers. These intimate house concerts are streamed online for a pay-what-you-can donation. People have been tuning in from around the globe, furthering the message about epilepsy to a broader community. For more on Carolina's story, epilepsy, and this benefit concert series you can visit http://www.CandlelightConcert.org
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