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Epilepsy effects millions of people world wide and 1 out of 26 people in the U.S. will develop epilepsy during their lifetimes. We will be discussing what epilepsy is and what we can do to help those affected by this many times difficult condition.
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In August 2011, Carolina Barcelos Carneiro de Oliveira Miller passed away tragically as a result of Sudden Unexpected Death in Epilepsy (SUDEP). She was only 25 years of age. Carolina had epilepsy since her teenage years and had taken medication daily to control her already infrequent seizures. However, SUDEP tragically struck. SUDEP is a little known and less understood aspect about epilepsy - affecting 1 in 1000 people with epilepsy who are controlled (i.e. medication) and 1 in 150 people with epilepsy who are uncontrolled (i.e. no medication.). A staggering and alarming fatality rate. Since that time her husband, Eric Miller, has worked tirelessly to raise awareness about epilepsy and SUDEP particularly. Not only to honor Carolina but in the hopes of preventing others from suffering such a tragic loss. Among other things, he's created Candlelight Concerts for Epilepsy Awareness, an online concert series featuring international performers. These intimate house concerts are streamed online for a pay-what-you-can donation. People have been tuning in from around the globe, furthering the message about epilepsy to a broader community. For more on Carolina's story, epilepsy, and this benefit concert series you can visit http://www.CandlelightConcert.org
This show has been modified from an original video presentation that is available on YouTube http://www.youtube.com/watch?v=RXNOW-FHTmU. I wanted to reach as many listeners as possible with my story, the statistics about the disorder, and my ultimate victory over the disorder. I believe you'll find the contents informative, resourceful, educational, and at times, amazing. My goal with the show is to heighten the awareness of a disorder that has been around for centuries, and is as common as breast cancer and takes as many lives. My prayer is that the lives of others will be so impacted by this audio recording and the video that more people are aware of not only the disorder, but also the resources available to those who need it. Ultimately, I’d like to have others understand that there is a God who wants only the BEST for His children.
As we continue Awareness in August on Seize the Day I invite you to chime in at to discuss awareness. In regards to seizure disorders:
What is awareness?
What will awareness accomplish?
What are you ready to do in order to effectively raise awareness?
Join National Seizure Disorders Foundation as we engage in mature discussion on diverse subjects related to seizure disorder.
Call in with your questions and thoughts on awareness
Let’s take this hour and become more in order to move through each day and Seize the Day!
While we wait, let's show some Gratitude to the following:
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Join NSDF every week:
on BlogTalk Radio Wed night 7 PM (CST) to Seize the Day while living with seizure disorder.
on Google + Hang Outs Monday night 7 PM (CST) for NSDF Power Hour& put Power in your Life.
In this episode of Epilepsy.com's Hallway Conversations, Dr. Joseph Sirven, Professor of Neurology at Mayo Clinic Arizona and Editor-in-Chief of Epilepsy.com, interviews Gregory Krauss MD, Professor of Neurology at Johns Hopkins University Medical School about commercial drivers licenses for drivers with epilepsy.
The Federal Motor Carriers Administration recently decided to accept a medical expert panel recommendations on commercial driving. Commercial CVDL licensure can now be considered for drivers who are seizure free whether on or off antiepilepsy medications for 8 years.
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