• 00:15

    Group Homes for Children with Developmental Disabilities

    in School

    I have a child with a developmental disability.. where will they live without me?


     


    Rachael has worked with individuals with developmental disabilities for approximately 7 years. Most recently, she was an Assistant Manager for The Center for Disability Services for a group home with 7 adults. Rachael is currently a full time MSW student at SUNY Albany. 


     


    When a family has a child with a developmental disability, their future is often uncertain. Individuals with developmental disabilities are often somewhat, if not completely, dependent on their caretakers. Group homes are often an option for families to consider as their child continues to grow and parents become older and less able to care for their child. 

  • 00:31

    Developmental Delays and 5p-

    in Health

    Mike and Joyce speak with Laura Castillo, Executive Director of FivePMinus.org, helping families affected by Cri du Chat (Cat Cry) Syndrome (CdCs).


    Babies born with CdCs are characterized at birth by a high-pitched cry, low birth weight, poor muscle tone, microcephaly, and potential medical complications.  "5p-" is a term used by geneticists to describe a portion of the short arm of chromosome number five that is missing in these individuals.  Some of the facial characteristics include:



    Round "moon shaped" face
    Small upturned nose at birth
    Small or low set chin (micrognathis)
    Low positioned ears
    Downward slanting of the eyes
    Wide spaced eyes
    Extra skin fold at the inner corner of one or both eyes (epicanthal fold)


    These facial features usually elongate as the child enters adulthood.  Children with CdCs are often also diagnosed with autism since many of the developmental issues are similar.


    There is a great deal of good information on this syndrome on their website.  See especially http://www.fivepminus.org/Development


    Laura shares with us the origins of the 5p- Society, the national family support group for individuals with Cri du Chat Syndrome.  They group shares expeerience and provides support to individuals and families affected by CdCs, sharing strategies for managing the syndrome and supporting their children in achieving his or her maximum potential  Children with Cri du Chat Syndrome can lead full and meaningful lives with love and support.

  • 01:25

    Rights and Resources for Children Born with Disabilities

    in Parents

    If a child is born with a disability or disorder the challenges can be great. Many parents are not aware of their rights, the law, or the best steps to take to make sure that their children get the best care for optimal development.


    Today’s “Brains in Toyland” segment addresses steps parents should consider and resources they should know about if their child is born with a developmental challenge.


    Our guests are education attorneys Eileen Libutti and Jennifer Frankola of Lewis Johs Avallone Aviles, LLP who are experts in family advocacy.


    We hope this is informative.


    Email us any time with questions and suggestions info@KidsAtoZ.com.


    Follow us on Facebook or Dr.T on Twitter


    Best, The KidsAtoZ Team.


     

  • 01:01

    Dr. Josie Badger on Transition and Empowerment for Youth with Disabilities

    in Culture

    Join us for a conversation with Dr. Josie Badger, on transition to adulthood, youth empowerment, collaboration and leadership for youth with disabilities - and much more, Friday, February 27 at 12 PM EST. 


    Josie received her Doctorate in Healthcare Ethics from Duquesne University in 2014 and is a Certified Rehabilitation Counselor. She works at PEAL as the Youth Director, assisting youth in transition and leadership development.  Additionally, she is Co-Director of the national RSA- Parent Training and Information Center technical assistance center (RAISE), and chair of the #IWantToWork Campaign, to improve employment of youth with disabilities. Josie is contributing author of two youth transition toolkits, has lead over 200 trainings, and developed a 200 page toolkit to support youth leadership.  In 2012, she was crowned Ms. Wheelchair America, and was named one of Pittsburgh's 40 Under 40 for 2014.


    PA Independent Living Radio Show is brought to you every Friday at 12:00 pm EDT/EST by The Arc of Luzerne County. Please consider a donation in support of our work to help improve the quality of life for people with Intellectual and Developmental Disabilities and their families.


    Read and subscribe to PA Disability News (it's free!) to stay up to date on news and events of interest to the PA disability community. 


    Thanks for listening!

  • 01:01

    Madonna Long - Consumer Advocate for People with Disabilities

    in Culture

    Join us for a conversation with Madonna Long, a respected and established personality in the disability community who works with disability organizations, leaders and businesses around the United States. We'll discuss her passion and work in consumer advocacy and emergency preparedness. 


    Madonna consults to Pride Mobility Products, VETaxi  and former VPG Autos as a Consumer Advocate since 2007.  She is a member of NCIL (National Council for Independent Living) and AAPD (American Association of People with Disabilities), works with disabled groups through Madonna Long Consulting LLC in public relations and marketing through Loops Media Group. She was appointed by Governor Tom Corbett to the Pennsylvania Rehabilitation Council, has received various awards from organizations in the disability community, and holds a Bachelor’s of Science Degree in Homeland Security.


    Follow Madonna on Twitter @MadonnaLong.


    PA Independent Living Radio Show is brought to you every Friday at 12:00 pm EDT/EST by The Arc of Luzerne County. Please consider a donation in support of our work to help improve the quality of life for people with Intellectual and Developmental Disabilities and their families.


    Read and subscribe to PA Disability News (it's free!) to stay up to date on news and events of interest to the PA disability community. 


    Thanks for listening!

  • 00:30

    Blacks Who Persevered in Spite of Disabilities

    in Self Help

    Did you know that Whoopi Goldberg had a learning disorder as a child? Were you aware that Harriet Tubman had epilepsy? These are only two of the many examples of Blacks who became successful despite their disabilities. Some people tend to discourage others with disabilities from achieving their dreams because "it's for their own good"; they want to overprotect them or they just don't understand how a person can accomplish anything despite his/her "limitations." Once you hear these different celebrities' stories, you'll never view people with disabilities the same way again. You will be inspired and encouraged to uplift someone else and even accomplish your own goals!

  • 00:28

    The Observation Deck - 2/10/15 Overcoming Disabilities

    in Lifestyle

    In this episode, The Observation Deck talks with Ryan Martin, founder of the Ryan Martin Foundation. The foundation's mission is to help youth and adult athletes with disabilities live independent, impassioned, productive and full lives through sports training, mentoring and education. We'll talk about overcoming challenges, dealing with disabilities and how these chaleenges can be overcome.


    We'll discuss the founding of the organization, its onghoing mission and how people can work towards overcoming the obstacles put in front of us every day.

  • 01:01

    PA Rep. Mark B. Cohen - Office for People with Disabilities Act

    in Culture

    Join us for a conversation with Rep. Mark Cohen, of the 202nd Legislative District (Philadelphia). We will discuss the importance of his sponsorship and upcoming reintroduction of HB 1183, known as the Office for People with Disabilities Act. The Act would establish The Office for People with Disabilities within the Office of the Governor, instead of its current location under the Department of Human Services. We will also discuss how to work with legislators to suggest and support the passage of bills to improve the quality of life for residents of Pennsylvania.  


    Rep. Cohen is the “Dean” of the Pennsylvania General Assembly -- the longest serving member in either the House or the Senate, Democratic Chair of the House State Government Committee, and past Democratic Chair of the House Human Services Committee. Rep. Cohen received his Bachelor of Arts degree from the University of Pennsylvania, a Juris Doctorate from the Widener University School of Law and a Master of Business Administration from Lebanon Valley College. 


    PA Independent Living Radio Show is brought to you every Friday at 12:00 pm EDT/EST by The Arc of Luzerne County. Please consider a donation in support of our work to help improve the quality of life for people with Intellectual and Developmental Disabilities and their families.


    Read and subscribe to PA Disability News (it's free!) to stay up to date on news and events of interest to the PA disability community. 


    Thanks for listening!

  • Dr. Marlene Chait - Health and Wellness of Women with Disabilities

    in Culture

    Join us for a conversation with Dr. Marlene Chait, Disability Studies Educator / Consultant / Grant Development / Researcher, on topics of particular interest to women with disabilities. We'll discuss women as sexual beings, the overwhelming amount of physical, emotional, mental and covert abuse, isolation and other struggles they face, and the urgent need to meet the inclusion of seniors. We'll also discuss Marlene's work with women who became disabled during military service, and the need for community based supports and further study.


    Marlene authored a dissertation entitled "An Exploratory Study About Women With Physical Disabilities: A Survey of Their Views on Personal Care Assistance Services (PAS), Sexuality Education, and Sexual Expression". She holds Doctorate in Education, Disability Studies/Transition Special Ed, from The George Washington University.


    PA Independent Living Radio Show is brought to you by The Arc of Luzerne County, Fridays at 12:00 PM EST/EDT. Please consider a donation in support of our work to help improve the quality of life for people with Intellectual and Developmental Disabilities and their families. For more news and events of interest to the PA disability community, visit PA Disability News.


    Thanks for listening!

  • 01:00

    Zarifa Roberson, CEO of i.d.e.a.l. Magazine for Urban Youth with Disabilities

    in Culture

    Join us for a conversation with Zarifa Roberson, CEO of i.d.e.a.l. Magazine, the exclusive quarterly magazine for Urban Young People with Disabilities (i.d.e.a.l. is an acronym for Individuals with Disabilities Express About Life). The magazine focuses on disability lifestyles, culture and political issues facing the disability community, and features fashion, beauty, health & fitness, entertainment, sports, and editorial sections. We'll discuss i.d.e.a.l. Magazine's efforts to climb to the forefront of voicing concerns in the disability community, and Roberson's goals to be the next Oprah for the disability community and to make the magazine a global household name.


    Roberson is a 35 year old from Philadelphia, PA, born with Arthrogryposis Multiplex Congentia (AMC). She holds a B.S. in Speech Communication with a minor in African American Studies from Millersville University, and M.Ed in Rehabilitation Counseling from Coppin State University.


    PA Independent Living Radio Show is brought to you every Friday at 12:00 pm EDT/EST by The Arc of Luzerne County. Please consider a donation in support of our work to help improve the quality of life for people with Intellectual and Developmental Disabilities and their families.


    Read and subscribe to PA Disability News to stay up to date on news and events of interest to the PA disability community.


    Thanks for listening!

  • 00:47

    WA State Developmental Disabilities Resources - Eva Rooks

    in Family

    Where do we go in Washington state to get connected when it comes to helping individuals living with autism? What services are accessible from the state? How do we plug in? How do we navigate the often confusing and complex systems maze?
    Good information leads to better choices and decisions for people on the autism spectrum or with other developmental disabilities and differences, yet survey data shows many families say they do not get enough information to effectively participate in planning services for their family members. 
    This is of concern to Autism Empowerment and other advocacy and support organizations that believe clear, concise information from trusted sources is critical to every family’s ability to access resources and care for individuals on the autism spectrum.
    Listen in today as Autism Empowerment Radio interviews Eva Rooks, Communication and Planning Manager for the Washington State Developmental Disabilities Council. 
    We will talk about current priorities for the DDC and we'll learn how to plug into and navigate the WA state Informing Families, Building Trust website, blog and informational outreach.
    Sponsored by the Washington State Developmental Disabilities Council, in collaboration with the Division of Developmental Disabilities and others, the IFBT goal is to provide information about issues, services and supports that make a difference in the lives of individuals with developmental disabilities and their families.
    Website: https://fortress.wa.gov/com/csddcinformingfamilies//Default.aspx
    Facebook: https://www.facebook.com/InformingFamilies

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