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The ability for families to get services for children with developmental disabilities may increase if a new rule proposed under the Affordable Care Act becomes final.
In this "Kids News Extra" segment Dr. T reviews the article, "Proposed Rule Mandates Coverage of Habilitation" from the ASHA Leader about proposed mandate to cover habilitative services.
"Habilitation" is intervention to help a child build skills in which they are delayed or disordered. It's similar to the more familiar term of "rehabilitation" whereby an individual receives intervention to regain skills that are lost second to an accident, a disease, or the like.
The ASHA Leader is a publication of the American Speech-Language and Hearing Association which provides information for the public and governs the professions of speech-language pathology and audiology.
This proposed rule goes beyond speech-language and hearing services and regards global developmental issues. We hope it's helpful.
Send your comments and quesitons to us at info@KidsAtoZ.com
Best,The Kids AtoZ Team
I have a child with a developmental disability.. where will they live without me?
Rachael has worked with individuals with developmental disabilities for approximately 7 years. Most recently, she was an Assistant Manager for The Center for Disability Services for a group home with 7 adults. Rachael is currently a full time MSW student at SUNY Albany.
When a family has a child with a developmental disability, their future is often uncertain. Individuals with developmental disabilities are often somewhat, if not completely, dependent on their caretakers. Group homes are often an option for families to consider as their child continues to grow and parents become older and less able to care for their child.
Where do we go in Washington state to get connected when it comes to helping individuals living with autism? What services are accessible from the state? How do we plug in? How do we navigate the often confusing and complex systems maze?
Good information leads to better choices and decisions for people on the autism spectrum or with other developmental disabilities and differences, yet survey data shows many families say they do not get enough information to effectively participate in planning services for their family members.
This is of concern to Autism Empowerment and other advocacy and support organizations that believe clear, concise information from trusted sources is critical to every family’s ability to access resources and care for individuals on the autism spectrum.
Listen in today as Autism Empowerment Radio interviews Eva Rooks, Communication and Planning Manager for the Washington State Developmental Disabilities Council.
We will talk about current priorities for the DDC and we'll learn how to plug into and navigate the WA state Informing Families, Building Trust website, blog and informational outreach.
Sponsored by the Washington State Developmental Disabilities Council, in collaboration with the Division of Developmental Disabilities and others, the IFBT goal is to provide information about issues, services and supports that make a difference in the lives of individuals with developmental disabilities and their families.
Interested in Autism and Developmental Disabilities Advocacy in Washington? So is Autism Empowerment!
Tune in as John interviews Autism Empowerment Executive Director, Karen Krejcha as she talks about her recent weekend in Olympia. As part of a year long Disabilities Leadership Development Program, she traveled to Olympia with other self-advocates, parents and professionals. She had the opportunity to receive training, network with other advocates and no-profits, tour the State Capitol, share lunch with local legislators, learn about the legislative process and practice advocacy skills and testifying before Congress.
We will chat about a variety of topics of interest that came up during the training including Seclusion / Aversion rooms in Washington schools, the No Paid Services Caseload, Respite Care, Companion Homes, Vocational Traning and help for individuals experiencing cultural communication barriers.
Even if you don't live in Washington, you will likely find this show valuable in terms of understanding more about what kind of services our government provides versus what is provided through the private sector.
Vicki Windman will be discussing iPad Apps that she has found useful for students with Developmental Disabilities.
If a child is born with a disability or disorder the challenges can be great. Many parents are not aware of their rights, the law, or the best steps to take to make sure that their children get the best care for optimal development.
Today’s “Brains in Toyland” segment addresses steps parents should consider and resources they should know about if their child is born with a developmental challenge.
Our guests are education attorneys Eileen Libutti and Jennifer Frankola of Lewis Johs Avallone Aviles, LLP who are experts in family advocacy.
We hope this is informative.
Email us any time with questions and suggestions info@KidsAtoZ.com.
Follow us on Facebook or Dr.T on Twitter
Best, The KidsAtoZ Team.
Join us for a conversation with Madonna Long, a respected and established personality in the disability community who works with disability organizations, leaders and businesses around the United States. We'll discuss her passion and work in consumer advocacy and emergency preparedness.
Madonna consults to Pride Mobility Products, VETaxi and former VPG Autos as a Consumer Advocate since 2007. She is a member of NCIL (National Council for Independent Living) and AAPD (American Association of People with Disabilities), works with disabled groups through Madonna Long Consulting LLC in public relations and marketing through Loops Media Group. She was appointed by Governor Tom Corbett to the Pennsylvania Rehabilitation Council, has received various awards from organizations in the disability community, and holds a Bachelor’s of Science Degree in Homeland Security.
Follow Madonna on Twitter @MadonnaLong.
PA Independent Living Radio Show is brought to you every Friday at 12:00 pm EDT/EST by The Arc of Luzerne County. Please consider a donation in support of our work to help improve the quality of life for people with Intellectual and Developmental Disabilities and their families.
Read and subscribe to PA Disability News (it's free!) to stay up to date on news and events of interest to the PA disability community.
Thanks for listening!
Mike and Joyce speak with Laura Castillo, Executive Director of FivePMinus.org, helping families affected by Cri du Chat (Cat Cry) Syndrome (CdCs).
Babies born with CdCs are characterized at birth by a high-pitched cry, low birth weight, poor muscle tone, microcephaly, and potential medical complications. "5p-" is a term used by geneticists to describe a portion of the short arm of chromosome number five that is missing in these individuals. Some of the facial characteristics include:
Round "moon shaped" face
Small upturned nose at birth
Small or low set chin (micrognathis)
Low positioned ears
Downward slanting of the eyes
Wide spaced eyes
Extra skin fold at the inner corner of one or both eyes (epicanthal fold)
These facial features usually elongate as the child enters adulthood. Children with CdCs are often also diagnosed with autism since many of the developmental issues are similar.
There is a great deal of good information on this syndrome on their website. See especially http://www.fivepminus.org/Development
Laura shares with us the origins of the 5p- Society, the national family support group for individuals with Cri du Chat Syndrome. They group shares expeerience and provides support to individuals and families affected by CdCs, sharing strategies for managing the syndrome and supporting their children in achieving his or her maximum potential Children with Cri du Chat Syndrome can lead full and meaningful lives with love and support.
Wes Schneider and Rene Stiles -- a senior in high school and a recent graduate -- will host important discussions centered around youth with disabilities, music, and more. You will also hear from other youth with disabilities, as guests, who will share their stories, interests, and disability awareness topics.
Do you want to listen in? Hell's to the Ya you do!
in Self Help
3pm ET / 2pm CT / 1pm MT / 12pm PT
(Outside US: Dial 00 + 1 + 646-727-1711)
Viki Winterton interviews Dr. Sundardas Annamalay!
Dr. Sundardas D. Annamalay is the leading Naturopathic Physician practicing for the last 25 years in Singapore. His clinical interests include children's learning disabilities (ADD/ADHD, Autism, Infections), Allergies, Women's Health Concerns, Musculoskeletal Pain and Healthy Aging.
He is currently Professor of Naturopathic Medicine to the Youngson Institute of Natural Science (Australia) and runs a busy practice in Singapore.