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The ability for families to get services for children with developmental disabilities may increase if a new rule proposed under the Affordable Care Act becomes final.
In this "Kids News Extra" segment Dr. T reviews the article, "Proposed Rule Mandates Coverage of Habilitation" from the ASHA Leader about proposed mandate to cover habilitative services.
"Habilitation" is intervention to help a child build skills in which they are delayed or disordered. It's similar to the more familiar term of "rehabilitation" whereby an individual receives intervention to regain skills that are lost second to an accident, a disease, or the like.
The ASHA Leader is a publication of the American Speech-Language and Hearing Association which provides information for the public and governs the professions of speech-language pathology and audiology.
This proposed rule goes beyond speech-language and hearing services and regards global developmental issues. We hope it's helpful.
Send your comments and quesitons to us at info@KidsAtoZ.com
Best,The Kids AtoZ Team
I have a child with a developmental disability.. where will they live without me?
Rachael has worked with individuals with developmental disabilities for approximately 7 years. Most recently, she was an Assistant Manager for The Center for Disability Services for a group home with 7 adults. Rachael is currently a full time MSW student at SUNY Albany.
When a family has a child with a developmental disability, their future is often uncertain. Individuals with developmental disabilities are often somewhat, if not completely, dependent on their caretakers. Group homes are often an option for families to consider as their child continues to grow and parents become older and less able to care for their child.
Where do we go in Washington state to get connected when it comes to helping individuals living with autism? What services are accessible from the state? How do we plug in? How do we navigate the often confusing and complex systems maze?
Good information leads to better choices and decisions for people on the autism spectrum or with other developmental disabilities and differences, yet survey data shows many families say they do not get enough information to effectively participate in planning services for their family members.
This is of concern to Autism Empowerment and other advocacy and support organizations that believe clear, concise information from trusted sources is critical to every family’s ability to access resources and care for individuals on the autism spectrum.
Listen in today as Autism Empowerment Radio interviews Eva Rooks, Communication and Planning Manager for the Washington State Developmental Disabilities Council.
We will talk about current priorities for the DDC and we'll learn how to plug into and navigate the WA state Informing Families, Building Trust website, blog and informational outreach.
Sponsored by the Washington State Developmental Disabilities Council, in collaboration with the Division of Developmental Disabilities and others, the IFBT goal is to provide information about issues, services and supports that make a difference in the lives of individuals with developmental disabilities and their families.
Interested in Autism and Developmental Disabilities Advocacy in Washington? So is Autism Empowerment!
Tune in as John interviews Autism Empowerment Executive Director, Karen Krejcha as she talks about her recent weekend in Olympia. As part of a year long Disabilities Leadership Development Program, she traveled to Olympia with other self-advocates, parents and professionals. She had the opportunity to receive training, network with other advocates and no-profits, tour the State Capitol, share lunch with local legislators, learn about the legislative process and practice advocacy skills and testifying before Congress.
We will chat about a variety of topics of interest that came up during the training including Seclusion / Aversion rooms in Washington schools, the No Paid Services Caseload, Respite Care, Companion Homes, Vocational Traning and help for individuals experiencing cultural communication barriers.
Even if you don't live in Washington, you will likely find this show valuable in terms of understanding more about what kind of services our government provides versus what is provided through the private sector.
Vicki Windman will be discussing iPad Apps that she has found useful for students with Developmental Disabilities.
"Oxalate is an antinutrient that is present at higher levels in some plant foods like spinach, nuts, and chocolate, but it is also a mitochondrial toxin and neurotoxin, and impairs calcium and iron regulation, all biotin-dependent enzymes, and many other enzymes." — Susan Costen Owens
Susan Costen Owens has lectured widely, both nationally and internationally. This graduate of Vanderbilt University with a masters degree in Interdisciplinary Studies from the University of Texas in Dallas has fifteen years of experience in autism research. She realized six years ago that the gut inflammation and leaky gut in autism and other developmental disorders would lead to increased absorption of oxalate from the diet with unknown consequences.
Through her project at the Autism Research Institute, this diet has led to the loss of the autism diagnosis in some children and improvements in pain, cognition, growth, motor skills, gastrointestinal function, and social interaction in countless others. Her internet group, Trying Low Oxalates has grown to more than 3000 people, including those with celiac disease, cystic fibrosis, myotonic dystrophy, Rett syndrome, MHE, bariatric surgery, short bowel syndrome, chronic pain syndromes like fibromyalgia, vulvodynia and bone pain, chronic fatigue, autoimmune conditions, and many other conditions, taking the study of oxalate’s relationship to disease far beyond the familiar turf of kidney stone disease.
Join us for a conversation on groups and coalitions for family members of individuals with disabilities. Well discuss why they are important, and the types of activities, resources, advocacy, information, services and support they coordinate and provide. We'll also talk about how to organize a vibrant group in your community that gains support and members, and makes a positive impact!
Our guests are from the southeastern region of Pennsylvania. Joining us will be:
Sara Crimm of Families CCAN, a group of families of adults with disabilities who are working to find innovative solutions for employment, housing and community living for their adult family members.
Tara Horowitz of AutismGuards, a parent and guardian resource/networking group facilitating educational information and recreational resources for adolescents with ASD.
Jim Wurster of New Avenue Foundation, whose mission is is to create more meaningful lives for people with disabilities and autism, and to reduce dependence on the government programs that now support these individuals.
PA Independent Living Radio Show is brought to you Fridays at 12:00 pm EST by The Arc of Luzerne County. Please consider a donation in support of our work to help improve the quality of life for people with Intellectual and Developmental Disabilities and their families.
Visit PA Disability News to stay up to date on news and events of interest to the PA disability community. Thanks for listening!
The first part of the show this week will take you back several decades to the time of hotrods, muscle cars, choppers, poodle skirts & Beehive Hairdos, blue jeans & white t shirts. The second part is about an event to benefit a wonderful charity that helps children with developmental disabilities achieve their highest level of independence.
Joining us will be the organizers for the May 30th Retro Rally in the College Hill District of Rock Island, IL to give you all the details of this family friendly FREE event featuring Vintage Cars & Bikes, Pinup Contest, Music, Vendors, Arts and Crafts, Food & Drink and all things RETRO and COOL.
Up next will be Dan Kost with the Quad Cities Motorcycle Rally and City Tour at the Hillcrest Event Center in Orion, IL on May 23. This FREE event to benefit the Children’s Therapy Center of the Quad Cities features a Pancake Breakfast, Exhibits, Bike Show, Vendors, Food, Local Fun Run (Free) Door Prizes, Biker Rodeo & More.
Dan stepped up and took the reins of what had been the largest Bi-State Motorcycle Awareness Ride in the Country. This was a free riding event to not just raise motorcycle awareness but to help out the Children’s Therapy Center of the Quad Cities until the local cities started to charge huge sums of money for the police escort. Having to cover the additional expense by charging riders was a deathblow for them. Fortunately Dan had gotten involved a couple of years ago and was there to keep it from going away for good. In order to keep this Motorcycle Awareness Ride going there would have to be some changes. The parade style continuous ride was changed to a continuous ride made up of small groups, thus avoiding the high cost of the police escort. The features and amenities the Hillcrest Event Center offers made expanding the ride into a motorcycle rally an easy decision.
Career Development - How NOT To Be the High Maint. Employee