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Children and adults with intellectual or developmental disability may not be able to always tell you that they are experiencing pain, but it’s our responsibility to understand there are many reasons that people with ID/DD are experiencing pain. In this episode of Pain Waves Radio by Pain BC, Dr. Beverley Temple discusses how we can improve the quality of life of those with ID/DD by addressing the issue of chronic pain.
Dr. Temple is an Associate Professor with the University of Manitoba, Faculty of Health Sciences, College of Nursing and a Researcher with the St. Amant Research Centre. Her research focuses on support of people with Intellectual/Developmental Disabilities and Autism and their families.
This episode is generously co-sponsored by the Kootenay Community Council. The Kootenay Community Council, and other Community Councils around the province, work with Community Living BC (CLBC) to ensure accountability to communities, to inform CLBC of local trends and innovation, and to act in an advisory role at the local and regional levels. Community Living BC is the Crown Corporation that provides funding to support adults who are living with developmental disabilities in BC.
You can access the Non-Communicating Adult Pain Checklist mentioned in the episode on Pain BC's website. Find more resources to support you on the St,Amant website and the Surrey Place Centre website.
Please note we are no longer taking calls to Pain Waves Radio by Pain BC.
Did you know that research is currently being done into ways in which new technologies-ranging from virtual reality and robotics to social media-may be used as a technological form of analgesia and pain management. Join us this Wednesday February 13th at 8pm on PAIN WAVES RADIO for "Emerging Technologies in Pain Management" when our guest will be Diane Gromala. Diane is a Canada Research Chair and a Professor in the Simon Fraser University School of Interactive Arts and Technology. Her research works at the intersection of computer science, media art and design, and has focused on "the cultural, visceral, and embodied implications of digital technologies, particularly in the realm of chronic pain". Dr. Gromala's work is currently in use in over 20 hospitals and clinics. BE SURE TO TUNE IN AND CALL IN TOLL FREE WITH YOUR QUESTIONS THIS WEDNESDAY AT 8PM
In this episode of Pain Waves Radio, co-hosted with Dr. Michael Negraeff, we talk to Phillipe Lucas about medical cannabis in Canada and how it can be used to treat chronic pain. We discuss the research that shows how cannabis can work as a safer adjunct to or substitute for pharmaceutical opiates and cover some of the common myths and misconceptions around medical cannabis. We also discuss the societal benefits, possible risks, and specific strains being used to treat chronic pain.
About Our Guest: Philippe Lucas is Vice President of Patient Advocacy at Tilray, a PhD student in the University of Victoria’s Social Dimensions of Health program, and a Graduate Researcher with the Center for Addictions Research of British Columbia. Philippe served as a Victoria City Councillor and Capital Region Director from 2008-2011, and over the years he has received a number of accolades and awards for his research. His scientific research projects and publications include studies on the therapeutic use of cannabis, with a focus on its use in the treatment of trauma and addiction. His publications are available at: www.philippelucas.com.
Please note we're no longer accepting call-ins to Pain Waves Radio.
Severe chronic pain, financial hardships, and intense emotional suffering are just some of the consequences of workplace injuries. In this month's episode, co-hosted by Pain BC founding member Dr.Michael Negraeff, we discuss the serious impact of workplace injuries and the challenges faced by those trying to return to work while experiencing persistent pain and dealing with the Worksafe BC claims process. Our guest, Dr. Cecil Hershler, has been practicing medicine since 1985 and has a special focus on chronic pain and pain management. He recently co-authored a study titled Work injuries, chronic pain and the harmful effects of WorkSafeBC/WCB compensation denial.
Dr. May Caprio and Linda Cundiff will unlock some mysteries and myths around sleep. How can we get better sleep, even if we're living with chronic pain? We'll find out the answers to these questions and more on June 3, 2015 at 3pm.
True or False?
1. The more sleep I get, the healthier I'll be.
2. Waking up at night means that I'll be tired the next day.
3. Snoring is common and totally harmless.
4. It's important to always keep track of how much I sleep.
5. Pain increases the amount of time in Stage 1 light sleep.
Dr. May Caprio is a registrant of the College of Psychologists of British Columbia providing psychological services for the Pain Program at the Royal Jubilee Hospital in Victoria as a member of the interdisciplinary team. She has practiced in the area of pain management, neuropsychology and brain injury. She has been a consultant in private industry, providing psychological assessments, individual psychotherapy and marriage counselling, and has given presentations on sleep, memory enhancement, stress management, and optimal performance.
Linda Cundiff is an Occupational therapist and co-leader in the sleep and pain program working with the RJH Pain Program. She has been an occupational therapist since 1982. It is a privilege to work in a field that is practical, holistic and client focused. Linda has worked with Royal Jubilee Pain Program since its inception 8 years ago and has developed and integrated many programs that clients request, and sleep is definitely one of those. Linda is currently working on the PainBC pain champion program for occupational therapists in the province.
This week’s guest on Life Interrupted Radio is Dr. Peter Osborne, known as the “Gluten Free Warrior” and author of No Grain, No Pain: A 30-Day Diet for Eliminating Chronic Pain — For Life. He will share easy ways to relieve pain and heal in ways most other professionals will never tell you because most don't even know!
If you suffer from unexplained pain or know someone who does you have to listen to this episode of Life Interrupted Radio, Dr. Osborne will share:
Why foods you’ve always been told were ‘healthy’ may actually be making you sick.
What is “Leaky Gut” and why your doctor may dismiss it
How painkillers and other drugs deplete your body of vitamins and minerals vital to healing, actually aggravating the root cause of pain.
Why just because you don’t test positive for celiac disease doesn’t mean you aren’t sensitive to gluten.
Why removing all grains (and certain other foods) can eliminate chronic pain once and for all.
Dr. Peter Osborne founded Gluten Free Society in 2010 to help educate patients and physicians on the far reaching effects of gluten sensitivity. He is the author of Glutenology, a series of books designed to help educate the world about gluten. His latest book No Grain, No Pain: A 30-Day Diet for Eliminating Chronic Pain — For Life. He has helped thousands of patients recover from mysterious medical illnesses. Learn more about Dr. Osborne and “No Grain, No Pain” at www.NoGrainNoPainBook.com
The last thing you want to think about at the end of a long day is what you’ll be making for dinner, and your family doesn’t need another meal from a bag or a box.
In this episode, you will learn 4 ways a crockpot can be your very best friend.
For more, check out - https://paindoctor.com/every-chronic-pain-patient-crockpot/
Elizabeth M. Christy lives in Northern Virginia with her husband James, son Jimmy (5), and daughter Lucy (newborn). She is the best-selling author of the children’s book "Why Does Mommy Hurt? Helping Children Cope with having a Caregiver with Chronic Pain, Fibromyalgia, or Autoimmune Disease," and blogs on parentswithpain.com and potomacfallsmama.blogspot.ca. Additionally, she works as a Systems Integrator for TASC. In addition to basic survival, Elizabeth enjoys writing, sewing (especially in straight lines!), and reading good memoirs.
“Why Does Mommy Hurt?” is a great resource to talk to children about chronic pain and illness. On this episode, we'll discuss the guilt and shame many parents suffering from chronic pain feel about their parenting. The fact is that parents with chronic pain or illness can be just as awesome as “normal” parents when it comes to raising kids, and if you love your kids, that’s all that matters. We may not be able to walk a mile to the playground, cook a 7-course organic meal from scratch, or volunteer on a field trip to the amusement park, but that’s not what really matters. If you love your kids, you will find your own way, and your kids will know it. Also, many parents in this situation feel very alone, especially when first diagnosed. There are millions of families out there in the same situation, you are not alone, and you have support out there waiting for you!
This is I.T. (Inconvenient Truth)!!! – Intimacy and Chronic Pain Part 3
This is part 3 of a subject many want to talk about but feel it to be taboo. It is difficult to discuss with others the problem one may have on a daily basis in dealing with pain but as we have discussed before people with Chronic Pain find it more difficult to discuss the issue of being intimate while also dealing with their pain. So join us as we explore deeper into the thoughts of those who are open about their pain along with being open about their sexual thoughts.
in Self Help
This is I.T. (Inconvenient Truth)!!! – Gracie Gean Advocating for Chronic Pain
‘We All Matter in fighting for a cure!!!” Gracie Gean began this journey in the gym while kickboxing. She injured both wrists and required a series of surgeries. One of those surgeries resulted in the onset of Complex Regional Pain Syndrome, also known as Reflex Sympathetic Dystrophy, in her right hand, wrist, and forearm. CRPS is rated the most painful chronic pain disease known to modern medicine. She also discovered that she has underlying Lyme Disease and is now battling that disease as well.
Gracie Gean set out on a mission to learn as much as possible about these diseases and began creating virtual support groups along the way. During her six year journey through these complex diseases, she has gained a large network of peer patients all around the world. She has tried many cutting edge treatments and publicly shared her experiences. Gracie Gean has participated in public speaking events in the Midwest.
This is I.T. (Inconvenient Truth)!!! – Intimacy and Chronic Pain
Can you be sexually active while suffering from chronic pain? Many people find it hard to being intimate or having sex while suffering from chronic pain. We all have heard people say “I have a headache,” “The pain is too much for me to enjoy sex,” or “It hurts to be touched.” No matter the reason for the pain many rather not talk about it or be a part of the act while in pain. Tonight we will talk about some of the problem, feelings, and hopefully some solutions to the problem of being intimate or having sex.
Sharon Sayler welcomes author Toni Bernhard to Life Interrupted Radio’s special Autoimmune Series for a fascinating interview from someone who is living well with a chronic illness while helping others to live well too regardless of their diagnosis.
Looking back over her 14-years since her diagnosis, Toni will reveal what she has discovered about living life to its fullest and how you can uncover your whole new life. Just some of what Sharon and Toni will share is:
- How thinking small leads to a bigger, fuller life
- How to move out or your stories into possibilities and opportunities
- How to practice mindfulness without the meditation
- How to welcome the “blues” and painful emotions and what to do next….
Toni Bernhard is the author of three critically-acclaimed books, How to Be Sick, How to Wake Up, and the just-released How to Live Well with Chronic Pain and Illness. In this conversational interview Toni shares practical tips she has learned from her 14 years of living well even with a chronic illness. She also writes for Psychology Today online where her popular blog is titled, “Turning Straw Into Gold.” You can learn more about Toni and her books at her website www. tonibernhard.com.
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