SORT BY Relevancy
TUESDAY, MARCH 17, 2015 3:30 pm PST/5:30 pm CST
Tonight our incredible special guests are Dr. Peg Nopoulos, Sonia Slevinski and Jane Kerr from the University of Iowa. We will be talking about the clinical study called Kids-HD/Kids-JHD. This study is sponsored by CHDI and is an ongoing study to help determine what is the best care protocol for the care and assessment of JHD children. Tune in and bring your questions. Call into the show on these two numbers: 310-982-4227 or 877-497-4103.
Talk to you soon!
For more informationn about Kids-HD/Kids- JHD visit their website:
PRE-RECORDED... December 2010, hosted by BJ Viau
Robert Pacifici was the Site Director and Chief Scientific Officer at the Research Triangle Park Laboratories of Eli Lilly and Company. There he oversaw the company's global screening and quantitative-biology efforts. Prior to joining Lilly, Robert was Vice President of Discovery Technologies at Xencor, a privately held biotechnology company that applied rational design principles to the development of protein therapeutics. At Amgen for nearly ten years, Pacifici’s responsibilities increased. He led their automation, high throughput screening, and information technologies groups. In addition, he was instrumental in forging Amgen's relationships with Caliper Technologies and The Automation Partnership as well as the acquisition of Kinetix Pharmaceuticals. Robert received a BS in Biochemistry from the University of Massachusetts, Amherst, and a PhD in Biochemistry from the University of Southern California. He holds an adjunct appointment at the University of Southern California's Department of Molecular Pharmacology and Toxicology. He is also Chair of the Spinal Muscular Atrophy Project's Scientific Steering Committee, which is part of the National Institute on Neurological Disorders and Stroke (NINDS). He currently sits on several additional external boards and advisory committees, including the Cooperative International Neuromuscular Research Group, SMA Foundation, and TREAT ALS Steering Committee. He joined CHDI in 2004.
Tuesday, December 2, 2014 - 3:30 pm PST/6:30 pm EST
Tonight we will be discussing Dr. Goodman's latest article "2014: A Yin-Yang year for HD".
She writes: "Particularly during this past year, living with Huntington's disease (HD) has been full of its ups and downs. First there was the hope in ongoing clinical trials of both coenzyme-Q-10 and creatine. Then there was sadness and fear that came with their failures. And now hope is springing again for new drugs coming to clinical trials now that will take a few years to complete. No doubt this Yin-Yang cycle will continue for HD, just as it does for other diseases."
"However, there may be reason to believe in the chance of greater success this next time around."
Read her article: www.HDDrugworks.org
Tune in at 3:30 pm PST/6:30 pm EST
Dr. Robert Pacifici, Chief Scientific Officer from CHDI Foundation will be our special guest on the show. Dr. Pacifici will talk to us about who is CHDI, what their goals are as a foundation, the future outlook in HD research and how HD families can help them achieve their goals.
Our incredible special gues this afternoon is Kenneth P. Serbin, Ph.D., professor and chair in the USD College of Arts and Sciences,Department of History, served as vice president, president, and immediate past president of the Brazilian Studies Association (2004-2010). He also was the co-chair of the Brazil Section of the Latin American Studies Association from 2003-2006.
Kenneth Serbin’s mother died of Huntington’s disease in 2006 after a 20-year battle against the disease. Serbin tested positive for HD in 1999. His daughter Bianca tested negative for HD in the womb and is today a healthy 13-year-old eighth grader. Since 1998, Serbin has served as a volunteer advocate for the Huntington’s Disease Society of America (HDSA). Adopting the pseudonym “Gene Veritas,” in January 2005 he started the blog “At Risk for Huntington’s Disease” (www.curehd.blogspot.com), where he has posted more than 160 articles. Starting in 2007, he initiated the effort in California to obtain funding for HD research from the state’s world-leading stem cell institute. In 2011, Serbin went public about his gene-positive status by keynoting the 6th annual HD Therapeutics Conference of the CHDI Foundation, Inc. That year he was also named the HDSA Person of the Year. Serbin lives with his wife Regina and Bianca in San Diego. He teaches history at the University of San Diego.
Tuesday, September 27, 2011 - Our incredible special guest is Joe Giuliano, Director of Clinical Operations at CHDI Foundation, Inc. He received his degrees in Chemistry and Nursing at the Catholic University of America in Washington, DC and trained in the Six Sigma and Lean Six Sigma methodologies. He applies these skills to develop more efficient clinical trial management processes. He joined CHDI in 2008.
Joe has 12 years of experience in academic and pharmaceutical research and development. This experience included working with Contract Research Organizations (CROs) and covered a broad range of therapeutic areas including CNS and imaging diagnostics.
At GE Healthcare, Joe was the Head of Clinical Project Management globally and where he led the Clinical Operations Team in North America. While at GE Healthcare, he successfully led a team that recruited and set up a global PET Investigator Network and was instrumental in formulating strategy for the development of the next generation of PET/SPECT imaging ligands for CNS and oncology.
Visit CHDI Foundation, Inc: www.chdifoundation.org
Visit COHORT: www.huntington-study-group.org
Email Joe at: Joseph.Giuliano@CHDIFoundation.org
Join Host Live Chats
- Sharry Edwards (16 chatters)
- Enlightenment Transformation (15 chatters)
- churchfolk (11 chatters)
- PID Radio Network (10 chatters)
- IWS Radio (9 chatters)
- Mind Right Radio (9 chatters)
- BelvaspataHealing (5 chatters)
- Feldman World Group (4 chatters)
- WGAG Radio (4 chatters)
- SharonQuinn (2 chatters)
- Sport City Chefs (1 chatters)
- The Magic Happens (1 chatters)
- Frat House Sports (1 chatters)
- HisWordHisWay (1 chatters)
- Afrikan Truth (0 chatters)