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  • 00:26

    VictoriaD: Young Carers

    in Current Events

    Under 18s forced to look after their sick parents can face life long consequences. New research seen by this programme show young carers are more likely to get sick, miss school and not get a job. Victoria Derbyshire hears the stories of families where the children look after the parents.

  • 01:21

    Dementia Can It Really Be a Gift?

    in Caregiving

    Alzheimer's Speaks Radio was launched to connect people to wonderful resources, perspectives and support around the world.  Come and join the conversation or just listen in.  All episodes are archived if you can't make the live show.


    Listen to the conversation I have with Maggie La Tourelle, a writer, therapist and teacher who has worked in the field of holistic health care for over thirty years.  Her thoughts and insights after caring for her own mother with dementia are interesting to say the least.  Her book, "The Gift of Alzheimer's - New Insights into the Potential in Alzheimer’s and its Care ," is wonderful and shows a side to the disease many don't think is possible.  Come join the conversation.  I promise it will be interesting and enlightening!  Please note this show is a replay.


    The Gift of Alzheimer's Website


    Maggies general website


    Join an Alzheimer’s disease clinical trial today. No insurance is needed to participate.


    Click Here for more information on Dementia and Caregiving

  • 00:58

    The HD View Ask Dr. Goodman Show

    in Health

    Let's talk about caregiving!  Tune in today as we talk with Dr. Goodman about the challenges of caregiving for our HD and JHD loved ones.  Many of us are dealing with so much loss before the loss and after the loss of our loved ones.  If you are a caregiver you know what I'm talking about. One person states, "On top of the personal stress, there is also the stress of maintaining one's home: replacing broken glass, punched doors, cleaning the furniture, not having friends over as often which lends into losing many people. Many of these "things," which is actually part of one's home community, go to pot so to speak. Even the outside of the home becomes shabby....all this lends to the stress of a caregiver."


    In trying to identify how many of us are caregiving, I found that it's really impossible to know the numbers because of the level of stress that the caregiver is under 24/7.  This stress does not let up; it only intensifies. Those of us who are under this kind of stress don't have time to answer surveys or polls. The question is how can we live like this?  Who will help us?  It's our own community who are so giving and caring and supportive, that's who.  


    Thank you HD Community for all that you do; for your committment to help others. You are amazing!


     

  • 01:21

    Can Dementia Really Be A Gift?

    in Caregiving

    Alzheimer's Speaks Radio was launched to connect people to wonderful resources, perspectives and support around the world.  Come and join the conversation or just listen in.  All episodes are archived if you can't make the live show.


    Listen to the conversation I have with Maggie La Tourelle, a writer, therapist and teacher who has worked in the field of holistic health care for over thirty years.  Her thoughts and insights after caring for her own mother with dementia are interesting to say the least.  Her book, "The Gift of Alzheimer's - New Insights into the Potential in Alzheimer’s and its Care ," is wonderful and shows a side to the disease many don't think is possible.  Come join the conversation.  I promise it will be interesting and enlightening!  Please note this show is a replay.


    The Gift of Alzheimer's Website


    Maggies general website


    Join an Alzheimer’s disease clinical trial today. No insurance is needed to participate.


    Click Here for more information on Dementia and Caregiving

  • 02:57

    Everything w/Kathy B, Tyrone Mitchell, Alison Sheppard, Cheryl Phoenix Henry

    in Entertainment

    Source Nation! Join us tonight for Power Over Tomorrow with our Resident Financial Advisor, Tyrone S. Mitchell, World News with Host Ami Smith and The Great Griot with Host K.LaShea


    At 6, Tyrone discusses-Economic Outcome and Your Income. How global financial markets can influence prices at your local markets.


    At 7:15- It's Lupus Awareness Month so join Ami Smith as she welcomes, Alison Sheppard in to the studio to share with us, All About Lupus.


    At 8:15 Cheryl Phoenix Henry


    The term "school to prison pipeline, was first used in the USA, however it is becoming increasingly used and recgonised in the UK. Many parents and carers are all to aware of what can only be described as the systematic way in which children are being "pushed" out of the education system. When speaking with these children and young people they often say, that they are made to feel less than their peers, they feel picked on and that they are treated differently then other students. There have even been reports on direct & verbal racial abuse, met out by teachers towards black children. It has been well documented that Black children do far better academically in school when they are between the ages of five to eleven years. There is growing concern amongst academics and parents at the large rate in which black children are forced out of school at very important stages of their academic lives. It has also been well documented in the mainstream press that teachers have admitted to "marking down the work of black students", they have admitted to having low expectations of black students, so tend to ignore them in class. When a child reacts to what they often see as being ignored or treated differently they are severly reprimanded, for at times, minor offences which their peers are simply given a warning or in house reprimand for. 

  • 01:20

    The Gift of Alzheimer's - Yes You Read that Right!

    in Caregiving

    Alzheimer's Speaks Radio was launched to connect people to wonderful resources, perspectives and support around the world.  Come and join the conversation or just listen in.  All episodes are archived if you can't make the live show.


    Today we are honored to have with us a Maggie La Tourelle, a writer, therapist and teacher who has worked in the field of holistic health care for over thirty years.  I can't wait to have her share her thoughts after caring for her own mother with dementia.  Her book, "The Gift of Alzheimer's - New Insights into the Potential in Alzheimer’s and its Care ," is wonderful and shows a side to the disease many don't think is possible.  Come join the conversation.  I promise it will be interesting and enlightening!


    The Gift of Alzheimer's Website


    Maggies general website


    Join an Alzheimer’s disease clinical trial today. No insurance is needed to participate.


    Click Here for more information on Dementia and Caregiving


     


     

  • 01:02

    Dementia Friendly Products and Collaborations

    in Caregiving

    Join Alzheimer's Speaks Radio today for a conversation about a new product coming to market called "Droplet." Sohan Japa, Co-founder and leader of business development and operations will be with us, along with Joshua Newth, Co-founder and leading engineering and product development.  This is an exciting new product with a variety of uses for everybody.  You can learn more about Droplet by watching this 2 minute video


    Website


    Sohan Japa can be reached by email


    Joshua Newth can be reached by email


    We will also discuss the city of Roseville, MN an their kickoff event to become dementia aware and friendly.  If you are aware of other dementia friendly programs and services please call in and tell us about them.


    Join an Alzheimer’s disease clinical trial today. No insurance is needed to participate.


    Go to AlzheimersSpeaks.com for more information on dementia and caregiving.

  • 00:31

    Patients Included Charter

    in Business

    A Roadmap for Patient-Centric Conferences


    Pharmaguy interviews Casey Quinlan, Co-Founder at Patients for Clinical Research, journalist, author, ePatient and patient advocate, about Patients Included: A Charter for Conferences and how the pharmaceutical industry can help ensure more patients are able to attend and participate in patient-relevant healthcare conferences.


    "Patient centricity" is all the rage these days among pharmaceutical industry conference attendees and speakers. It is even becoming more common for actual patients to be part of the faculty/speakers and/or attendees of these conferences. 


    Questions/Topics of Discussion


    The discussion focused on the following Charter clauses copied from the patientsincluded.org site:



    Patients or caregivers with experience relevant to the conference's central theme actively participate in the design and planning of the event, including the selection of themes, topics and speakers.
    Patients or caregivers with experience of the issues addressed by the event participate in its delivery, and appear in its physical audience.
    Travel and accommodation expenses for patients or carers participating in the advertised programme are paid in full, in advance.
    Scholarships are provided by the conference organisers to allow patients or carers affected by the relevant issues to attend as delegates.
    The disability requirements of participants are accommodated. All applicable sessions, breakouts, ancillary meetings, and other programme elements are open to patient delegates.
    Access for virtual participants is facilitated, with free streaming video provided online wherever possible.

  • 00:50

    The HD View with Jimmy Pollard

    in Education

    Tuesday, April 14 - 3:30 pm


    The amazing, incredible, fantastic Jimmy Pollard is going to be with us tonight.  Jimmy has quite a speaking schedule these days and is on a mission to educate about clinical trials, namely Enroll HD (http://www.enroll-hd.org/), which is a worldwide observational study for Huntington’s disease families. This study will monitor how the disease appears and changes over time in different people, and is open to people who either have HD or are at-risk. Monitoring people over time in a real-world setting contributes to scientific knowledge. The study is designed to accelerate the discovery and development of new therapeutics for HD.


    Jimmy says, "No volunteers for studies, no more advances in the quest for a cure!" Enroll-HD


    Also find Jimmy's book on Lulu: "Hurry Up and Wait: A Cognitive Care Companion" (http://bit.ly/1DCUJmO)
    This book will give you a set of exercises to simulate the cognitive difficulties faced by those with HD, a collection of tips to accommodate them in your home or care home, a strategy to develop new approaches to solving care problems and commentary on common problems faced by family carers and those they love.


    Tune in and let's catch up with our most favorite man on the stand, Jimmy Pollard!

  • 01:32

    A Tribute To Advocate Dena Dotson's Life

    in Caregiving

    Alzheimer's Speaks is sadden with the loss of one of it's experts living with dementia.  On April 1st, 2015, Dena Dotson planned to leave this world in hopes of a better life.  Although everyone may not agree with her decision, it is important for us to honor her work and advocacy to improve the lives of others living with dementia. We will not judge her decision but accept the fact that none of us can really know what decision we would make if to walk in her shoes. 


    Today Dena no longer suffers from the symptoms of dementia which made her life unbearable. Today we will celebrate the gifts she gave us while here and grieve her loss together as a community.


    If you are unable to join the conversation live, but would like a statement read please email Lori La Bey.


    Everyone is welcome to join the conversation. 


    There is one rule for this show:


    Everyone is to be respectful to Dena and her family.  There will be no tolerance for anything less.  We can and will debate the issue of life and death choice with dementia at a more appropriate time.


    For more information on dementia and caregiving Click Here

  • 01:06

    “Creative Connections™ in Dementia Care

    in Caregiving

    Welcome to Alzheimer's Speaks Radio where all voices are welcomed to join the conversation.  We love hearing from people around the world.  Everyone from those diagnosed, family and friends caring for loved ones, professionals providing services, products or tools, researchers, authors, directors, producers, musicians, advocates for dementia and those that just want to learn more about the disease.


    Today’s show will feature the authors of “Creative Connections™ in Dementia Care: Engaging Activities to Enhance Communication. Jennifer Brush has been working for over 20 years to change the face of dementia care in hospitals, assisted living communities, nursing homes and home care.  Rev. Katie Norris is a Unitarian Universalist community minister and co-founder, with her father, of the Carolyn L. Farrell Foundation for Brain Health.


    You can reach Jennifer and Katie below:


    Katie: www.RevKatieNorris.com


    Jennifer: http://www.brushdevelopment.com


    For more information on Caregiving and Dementia go to Alzheimer’s Speaks Resource Website with multiple platforms of information.