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Under 18s forced to look after their sick parents can face life long consequences. New research seen by this programme show young carers are more likely to get sick, miss school and not get a job. Victoria Derbyshire hears the stories of families where the children look after the parents.
Let's talk about caregiving! Tune in today as we talk with Dr. Goodman about the challenges of caregiving for our HD and JHD loved ones. Many of us are dealing with so much loss before the loss and after the loss of our loved ones. If you are a caregiver you know what I'm talking about. One person states, "On top of the personal stress, there is also the stress of maintaining one's home: replacing broken glass, punched doors, cleaning the furniture, not having friends over as often which lends into losing many people. Many of these "things," which is actually part of one's home community, go to pot so to speak. Even the outside of the home becomes shabby....all this lends to the stress of a caregiver."
In trying to identify how many of us are caregiving, I found that it's really impossible to know the numbers because of the level of stress that the caregiver is under 24/7. This stress does not let up; it only intensifies. Those of us who are under this kind of stress don't have time to answer surveys or polls. The question is how can we live like this? Who will help us? It's our own community who are so giving and caring and supportive, that's who.
Thank you HD Community for all that you do; for your committment to help others. You are amazing!
Join Alzheimer's Speaks Radio today for a conversation about a new product coming to market called "Droplet." Sohan Japa, Co-founder and leader of business development and operations will be with us, along with Joshua Newth, Co-founder and leading engineering and product development. This is an exciting new product with a variety of uses for everybody. You can learn more about Droplet by watching this 2 minute video
Sohan Japa can be reached by email
Joshua Newth can be reached by email
We will also discuss the city of Roseville, MN an their kickoff event to become dementia aware and friendly. If you are aware of other dementia friendly programs and services please call in and tell us about them.
Join an Alzheimer’s disease clinical trial today. No insurance is needed to participate.
Go to AlzheimersSpeaks.com for more information on dementia and caregiving.
Tuesday, April 14 - 3:30 pm
The amazing, incredible, fantastic Jimmy Pollard is going to be with us tonight. Jimmy has quite a speaking schedule these days and is on a mission to educate about clinical trials, namely Enroll HD (http://www.enroll-hd.org/), which is a worldwide observational study for Huntington’s disease families. This study will monitor how the disease appears and changes over time in different people, and is open to people who either have HD or are at-risk. Monitoring people over time in a real-world setting contributes to scientific knowledge. The study is designed to accelerate the discovery and development of new therapeutics for HD.
Jimmy says, "No volunteers for studies, no more advances in the quest for a cure!" Enroll-HD
Also find Jimmy's book on Lulu: "Hurry Up and Wait: A Cognitive Care Companion" (http://bit.ly/1DCUJmO)
This book will give you a set of exercises to simulate the cognitive difficulties faced by those with HD, a collection of tips to accommodate them in your home or care home, a strategy to develop new approaches to solving care problems and commentary on common problems faced by family carers and those they love.
Tune in and let's catch up with our most favorite man on the stand, Jimmy Pollard!
Alzheimer's Speaks is sadden with the loss of one of it's experts living with dementia. On April 1st, 2015, Dena Dotson planned to leave this world in hopes of a better life. Although everyone may not agree with her decision, it is important for us to honor her work and advocacy to improve the lives of others living with dementia. We will not judge her decision but accept the fact that none of us can really know what decision we would make if to walk in her shoes.
Today Dena no longer suffers from the symptoms of dementia which made her life unbearable. Today we will celebrate the gifts she gave us while here and grieve her loss together as a community.
If you are unable to join the conversation live, but would like a statement read please email Lori La Bey.
Everyone is welcome to join the conversation.
There is one rule for this show:
Everyone is to be respectful to Dena and her family. There will be no tolerance for anything less. We can and will debate the issue of life and death choice with dementia at a more appropriate time.
For more information on dementia and caregiving Click Here
Welcome to Alzheimer's Speaks Radio where all voices are welcomed to join the conversation. We love hearing from people around the world. Everyone from those diagnosed, family and friends caring for loved ones, professionals providing services, products or tools, researchers, authors, directors, producers, musicians, advocates for dementia and those that just want to learn more about the disease.
Today’s show will feature the authors of “Creative Connections™ in Dementia Care: Engaging Activities to Enhance Communication. Jennifer Brush has been working for over 20 years to change the face of dementia care in hospitals, assisted living communities, nursing homes and home care. Rev. Katie Norris is a Unitarian Universalist community minister and co-founder, with her father, of the Carolyn L. Farrell Foundation for Brain Health.
You can reach Jennifer and Katie below:
For more information on Caregiving and Dementia go to Alzheimer’s Speaks Resource Website with multiple platforms of information.
Alzheimer's Speaks loves hearing everyone's opinions and insights to living with dementia. Today we all have the great honor to speak with Rev, Mary Kay Baum who is not only diagnosed with dementia, but who is doing amazing work to improve lives. In fact, I personally got the chance to meet her and interview her the other week at the Wisconsin Assisted Living Association 1/2 intensive preconference on building Dementia Friendly Communities and Businesses.
I promise this will be a wonderful conversation and you will walk away some brilliant new insights on how to live with the disease gracefully.
Check out Mary Kay Baum's website
Call her at (608)935-5834 or send her an email.
For more information on Dementia and Caregiving go Alzheimer's Speaks Resource Website.
Welcome to Alzheimer's Speaks Radio where we believe it's critical to raise everyones voice who is dealing with or interested in all types of dementia. We love when our audience joins the conversation, so please feel free to use the chat box and or call in live to talk to us.
Today we are lucky to have Tryn Rose Seley, founder of Caregiver Heart with us to review the Latest Films & Documentaries About Alzheimer's and Caregiving
Come and join the conversation. We would love to hear your thoughts. Her is the list of films we plan on talking about.
"The Genius of Marian"
"I Remember Better When I Paint"
Do you know of other great films? If so please share with us.
Contact Tryn Rose Seley
website Email Facebook Page
Check out her book "15 Minutes of Fame: One Photo Does Wonders"
The book is available on her website, on amazon.com for Kindle, Barnes & Noble for Nook, and printed copies at
For more information on Dementia and Caregiving go to Alzheimer's Speaks Resource Website
Alzheimer’s Speaks Radio™ believes in giving voice to those afflicted with the cognitive impairment and their care partners while empowering them to live purpose filled lives. Our goal is to raise awareness, give hope, and share the real everyday life of living with dementia. We look forward to you joining us for great conversation, learning, and laughter as we maneuver this roller coaster called memory loss.
Today will will hear about a Dementia Friendly Initiative, from Memory Matters which is a community-based, non-profit organization which strives to be a center of excellence for persons with Alzheimer's and all forms of dementia and their families. They provide daycare programs, support services and education in a compassionate and dignified manner.
For more information on Dementia and Caregiving visit Alzheimers Speaks Resource Website..
Alzheimer's Speaks Radio wants all voices to join together in the conversation to share knowledge, research and insights from all angles. There is no better way to raise awareness than being inclusive. Let's join forces and win this battle together!
Today, we will have a two hour feature show on Frontotemporal Dementia (FTD). Our guests will include Howard Glick who is diagnosed with FTD, Lisa Griffin a Care Partner for her husband, Sharon S. Denny, Program Director at Association for Frontotemporal Degeneration (AFTD), Dr. Holm with Bethesda Hospital and Heidi LaMeyer- Prelude Wellness Director and Judy Berry with Dementia Specialist Consulting who is a consultant for Prelude Memory Care.
We encourage anyone who is dealing with or interested in dementia to join the conversation by calling in live at (714) 364-4757 or using the chat box!
For additional resource and information check our Alzheimer's Speaks Resource Website
Alzheimer's Speaks Radio raises the voice of all who have an interest in dementia and providing great care to those in need. The show launched in 2010, because it's founder Lori La Bey, felt a strong need to help individuals, organizations and communities connect to the vast resources available around the world. During her personal 30 year journey with her own mother, she saw so many people struggling with this disease. Alzheimer's Speaks provides a variety of platforms to nurture the soul, educate the public and build community. Check out Alzheimer's Speaks website.
Our guest today will be Mike Good the founder of Together in This an online community helping family members caring for someone with Alzheimer’s. Through short, informative articles and easy-to-use tools, such as the Introductory Guide to Alzheimer’s, he helps them take control and have peace-of-mind they are doing the right things. Join us today to hear Mike's interesting journey into the world of dementia and what got him here; along with why he does what he does and how it can help you or someone you know.
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