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Brain Injury Movement - Why its failed for decades - with Craig Sicilia
Egos, Pride and Disconnect,
Our movement is has been plagued by big egos where advocates argue about who is better who is more popular, even whose injury is worse. The lack of willingness of our community to work with each other has crippled our movement for decades. As I learn about our moment in the 80' 90s and on I am beginning to understand why we are the silent or hidden epidemic, and why there is so much profit in us.
It seems we will do anything for that moment of fame and judge one another while people using our voice for profit have been speaking for us profiting keeping us in a medical model leaving those who survive brain injury isolated and alone.
Every movement from the beginning of time has been successful because those effected always lead, what is happening now is apouling . They put studies together of experts in living with a brain injury yet at the most there will be a token survivor or two. It would be like the whites leading the civil rights movement or a male Moslem leading the woman movement.
But there we are fighting among our selves stuck in our pride and egos not seeing the big picture. We need to work together everything thinks they created these new ideas all of them have been used before but this is our time to empower each other to lead the path for future survivors what you going to do about fit each other or change our world.,
.Welcome to another episode the Brain Injury Roundtable. I am your host, Constance Miller, brain injury survivor of 32 years; author of the original brain injury owner's manual entitled From The Ashes. This innovative guidebook was featured on Super Bowl XXXIV. Miller is Managing Director of Brain Injury Resource Center, located on the Internet at http://www.headinjury.com. Also joining us will be Tai Campbell, my invaluable contributor who is a tireless community activist, and founder of Taken Back Our Community (TBOC) http://www.tbocnow.org. Also of note he is the survivor of an incredible history of childhood brain injuries. I'd like to thank: all our listeners for bringing our voices, to your home, or your mobile device wherever you are around the world. Additionally, I’d like to give a big thank you to this show’s sponsors: Martha Marcum, mother of a brain injury survivor and author of MARTHA'S FABLES and Gordon Johnson, attorney of http://www.TBILaw.com .
The Brain Injury Roundtable is a place for Ideas, discussion, and recovery for people seeking solutions, to bridge the gap between understanding brain injury and insights on how to change life for the better so be prepared to hear some great information to motivate and inspire us and change the world. The main reason we are tackling this topic this evening is that even a seemingly minor concussion can have life-long, life altering consequences. And that is the topic of tonight's discussion. The plan is to learn from one another and to educate one another about TBI and its aftermath. We know personally just how a traumatic even a concussion can be.
STRAIGHT OUTTA BRAIN INJURY
No one would ever know, how sometimes seemingly small things can set into motion a emotional catastrophic series of events. How we can be emotionally and mentally destabilized in a flash!!
Tonight 3 survivors will share their emotional and physical experiences with you. For name sake we will call this series of Straight OUTTA BRAIN INJURY -
"Stung, Warped & Fried"
We hope you will call in and share your experiences of to much, times where you felt mentally or emotionally in a freefall. we get it. As well we realize with management we can somewhat have control over these freefalls.
Our challenge is to have as few of these as we can, to recognize how to minimize them. Together we can learn to have a life far greater than we can imagine, so let us imagine this life together
"DREAM BIG, LIVE LARGE"
You do not have to be brain injured to be involved in the brain injury community. What you will learn about is how we are each others family in many cirumstances. Because brain injuries don't just involve a traumatic brain injury, a stroke, a person who is mentally handicapped, or someone seen with a walker; there are hundreds of us who are with masters degrees, major accomplishments, happy families, children, marraiges, and careers who are brilliant and well mannored.
So many in the public dont understand who we are. They don't understand this could be them in a moments notice as life events occur at any given time. Survivors and caregivers unite and we build a family of our own! We talk about what we have become and how well we stand together!
What we can do and will do is educate the public! We show individuals life is way too short and need to enjoy every second we have while we are here ALIVE! We do not let people whole us down! We will not allow anyone to talk down to us. We are strong and we are proud we have accomplished so much.
Join us together for a positive approach in life! Whining and complaining about how bad your life is, is just a waste of valuable time!
We Talk About What We Have Become and How Well We Stand Together!
The Layers of Brain Injury – With DJ Asselin
Welcome Back DJ after he finds himself rehabilitating from yet a second brain injury, the hurdles that he has had to go through, the system, the support, the everything. There is so many layers to brain injury and there seems to be no consistency anywhere. And as a survivor and their family or supports go through this, things are usually at their worst. Join Dj as he talks about these layers that will blow your mind. It will leave you thinking.
How do you accept your brain injury without pushing it under the rug to forget it or have it come up in every conversation with others?
It All Starts With You!
After a clinical setting, survivors wondering where they go from here, who understands, and questions comes up. From building confidence, self-esteem, empowerment and optimism; self-help groups help meeting others in the community going through similar circumstances in real life dealing with emotions, struggles, and encouraging stories of those who got past their dilemmas.
Support services to build assistance these people into a normal life style to get back on track in a comfortable, safe, caring and optimistic atmosphere to empower them and build their self-esteem. Support groups are equally beneficial when psychotherapy has been established for a client as it builds strength and character for them they can do this on their own. Statistics show how life improvements for clients and those who want to volunteer their own time have made a vast improvement with the ability to help others in a time of need. This helps who is trying to get back into the work force, helps assist others in need, and helps bring friendships and understanding to people who think no one understands.
Listen in tonight with Penny and Kathy as they talk about brain injury and the challenges that it brings along with struggles and pain. They will be talking about ways and strategies to compensate and overcome some of the challenges that is brain injury. In order to live life again after brain injury we need to develop tools that work for us individually. And tonight we shall through some out for you to consider. The more we know and understand the better quality of life we will have. Don’t Miss tonight encore presentation?
For many survivors damage to the brain gets in the way of cognitive learning and adaptations must be made. Accommodations come in many and varied forms. This evening two young women, who both sustained a brain injury, Melissa Cronin and Juliet Madsen, are joining me on a panel to discuss “Learning Accommodations After Brain Injury.”
Every TBI survivor and caregiver has encountered a fork in the road that has diverted his or her life-plan. A car accident, a fall from the roof, doing one more chin-up, an IED blast, or a door literally slamming one in the face are just some causes of traumatic brain injury. College, walking down the aisle in the perfect dress, or the coveted job quickly slips from reality as dreams turn to struggle. These unexpected life-happenings that divert one from his or her chosen path in life can be devastating.
But as Yogi Berra once said, “If you come to a fork in the road, take it.” Life is all about choices!
To learn more about me, please visit my blogs.
Survivng Traumatic Brain Injury Blog: survivingtraumaticbraininjury.com
Donna's Blog: donnaodonnellfigurski.wordpress.com
Brain Injury Radio Network and ASBISG.org Presents: United We Stand
YOU DO NOT TO BE BRAIN INJURED TO BE INVOLVED IN WHAT WE DO TO MAKE CHANGE IN THE COMMUNITY.
We stand together and uplift one another through hard times when we need them.
We advocate for change and support one another when people in our community are treated unfairly.
We help people learn to be strong, take care of themselves, build pride, have fun together, and stand proud to be alive and strong.
We are family members, caregivers, survivors and the public building awareness about brain injuries and neurological impairments.
www.ASBISG.org is our non-profit organization. Be a part. Be involved. Make a difference.
Please call into our show 424-243-9540 August 21st, 2015 5:30pm - 6:50pm (Pacific Time) and 8:30pm-9:50pm (Eastern Time)
How many of us finally found companionship in the brain injury community through friendships, love, loyalty, and communication?
How many are there that still need to?
We understand each other. We have each other. We help each other throught the hard times, share with good times, and guide each other through it all.
Please join us sharing our stories, struggles and accomplishments through the brain injury consequences that has brought us together.
Please invite other friends, families, and the public who don't know our organization exists.
We need to make public awareness to who we are and what we do. You do not need to be brain injured to join in on our calls.
Our calls include caregivers, survivors, companions, family members, motivators who understand neurological impairments don't have to hold anyone down!
*Shows are recorded for later listening and for FCC regulations. *Foul language, Anger, Racism, or Drug Use will not be allowed on the calls
Welcome to another episode the Brain Injury Round Table. I am your host, Constance Miller, brain injury survivor of 32 years and Managing Director of Brain Injury Resource Center, located on the Internet at http://www.headinjury.com I'd like to thank: all our listeners for bringing our voices, to your home, your mobile device wherever you are around the world. Additionally, I’d like to give a big thank you to this show’s sponsors: Martha Marcum, mother of a brain injury survivor and author of MARTHA'S FABLES and Gordon Johnson, attorney of www.TBILaw.com. Also joining us is Tai Campbell, founder of http://www.tbocnow.org, tireless community activist, and survivor of childhood brain injuries .
Have you ever sustained a brain injury have you ever known anyone who had a concussion? These days there is a lot of talk in the media about domestic violence, football players and Post Concussion Syndrome, PCS. However, the general public doesn’t really understand how serious a seemingly minor concussion can be. One of the main reasons we’re tackling this topic this evening is that even a seemingly minor concussion can have life-long, life altering consequences. And that is the topic of tonight's discussion. The plan is to learn from one another and to educate one another about TBI and its aftermath. We know personally just how a traumatic even a concussion can be. Please call in (424) 243-9540 and tell us a little about yourself, your TBI; how it happen and how things are going at this time and we'll put our heads together and offer the benefit of our experiences and hopefully in all of that we'll find solutions that work for you. Tonight's format is "Brainstorm."
Why Medicare Won't Pay For Brain Injury Rehab
Join in as DJ dives into this issue that nobody even thinks about this. But those survivors going through the Medicare system know to well how hard it is to get any rehabilitation services, most get pharmaceuticals to mask symptoms.
Join DJ and his special guests as they discus these issue, what you can do to navigate this complex process and how you can best advocate for yourself.
If you are currently receiving rehabilitation or need to this show is a must
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