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Brain Injury Movement - Why its failed for decades - with Craig Sicilia
Egos, Pride and Disconnect,
Our movement is has been plagued by big egos where advocates argue about who is better who is more popular, even whose injury is worse. The lack of willingness of our community to work with each other has crippled our movement for decades. As I learn about our moment in the 80' 90s and on I am beginning to understand why we are the silent or hidden epidemic, and why there is so much profit in us.
It seems we will do anything for that moment of fame and judge one another while people using our voice for profit have been speaking for us profiting keeping us in a medical model leaving those who survive brain injury isolated and alone.
Every movement from the beginning of time has been successful because those effected always lead, what is happening now is apouling . They put studies together of experts in living with a brain injury yet at the most there will be a token survivor or two. It would be like the whites leading the civil rights movement or a male Moslem leading the woman movement.
But there we are fighting among our selves stuck in our pride and egos not seeing the big picture. We need to work together everything thinks they created these new ideas all of them have been used before but this is our time to empower each other to lead the path for future survivors what you going to do about fit each other or change our world.,
Welcome to another episode the Brain Injury Round Table. I am your host, Constance Miller, brain injury survivor of 32 years and Managing Director of Brain Injury Resource Center, located on the Internet at http://www.headinjury.com I'd like to thank: all our listeners for bringing our voices, to your home, your mobile device wherever you are around the world. Additionally, I’d like to give a big thank you to this show’s sponsors: Martha Marcum, mother of a brain injury survivor and author of MARTHA'S FABLES and Gordon Johnson, attorney of www.TBILaw.com. Also joining us is Tai Campbell, founder of http://www.tbocnow.org, tireless community activist, and survivor of childhood brain injuries .
Have you ever sustained a brain injury have you ever known anyone who had a concussion? These days there is a lot of talk in the media about domestic violence, football players and Post Concussion Syndrome, PCS. However, the general public doesn’t really understand how serious a seemingly minor concussion can be. One of the main reasons we’re tackling this topic this evening is that even a seemingly minor concussion can have life-long, life altering consequences. And that is the topic of tonight's discussion. The plan is to learn from one another and to educate one another about TBI and its aftermath. We know personally just how a traumatic even a concussion can be. Please call in (424) 243-9540 and tell us a little about yourself, your TBI; how it happen and how things are going at this time and we'll put our heads together and offer the benefit of our experiences and hopefully in all of that we'll find solutions that work for you. Tonight's format is "Brainstorm."
I HAD A DREAM
M.L.K. is the master of advocacy a advocacy that changes hearts and minds knowing it takes generations of advocacy and hard work he began a journey that was not popular in the minds of those who stood to lose the most and those they influenced. It was a fight started a hundred years before him and will be going on a hundred years after. But the king taught man to stand up for what they believe, to not accept how things are. He as well paid the ultimate price for his believes. Until Dr. King we humans did not know what it was to stand up for something greater than ourselves To stand up to change what people think and how they treat another person. We will Honor Dr. King and talk about his history as it relates to our future.
So many of us who are living in the aftermath of a brain injury understand this. And as people, our communities and society in general are largely clueless what brain injury means. Hell it takes us survivors who live with it everyday years to even begin to understand. We asking people to understand and accept something they cannot see. And in many cases something we can’t explain or cope with. And most of the time by the time we can begin to explain or understand it, there is no one left to share it with. And like most movements those who feel so deeply and step up to bring change will never see the change in people’s hearts and minds. You can have all the laws and acts and everything else but none of it means a thing until it is in people’s hearts and minds.
How do we change hearts and minds, how do we find each other. Reach out find someone don’t be alone, then together find others. Find that voice that we have in common and change the world.
After a TBI, where Deb Palmer lost consciousness over asphalt, resulting in a subdural hematoma and subarachnoid hemorrhage, she was diagnosed with a seizure disorder and major depression. She knew she fell and hit her head, that something was wrong, but didn’t know what. She kept thinking it would go away with more sleep. Nobody referred her to any resources for help or support. Doctors obviously weren’t trained on how to address the long-term sequelae of brain injury or how to help someone who has had one. Deb didn’t want what happened to her to happen to others.
Deb decided to turn anger into something constructive; and, with the help of other survivors and some professionals, published five free newsletters to educate about brain injury. The demand for the publication was greater than expected so she decided to form a nonprofit organization. Thus, the Brain Injury Connection (BIC) was born. www.braininjuryconnection.org
This show is a gathering place for anyone seeking recovery from the challenges of life on life's terms. I introduce topics, and survivor's share their experience, strength and hope. We discuss useful tools that have helped us lighten the load, of our journey through recovery.
More will be revealed! Tune in, stop in and call in. This is a "we" recovery program, because it is in the "we," that we find the new "me."
We focus on the four A's of Recovery: Awareness, Acceptance, Action and Adaptation. This is a place for survivor's striving to become thrivers.
Front half of show is a featured guest. to join us in the discussion. The second part of the show is Open Mic and some great Indy Music, sure to inspire!
Host is Kim Justus, author of In a Flash: Miracles Here and Beyond found at www.inaflash.org & "Like" at www.facebook.com/inaflash.org
Please join Julie Kintz in welcoming Dr. Ana Durand, Rehabilitation Physician, Professor and Researcher from one of the Top Brain Injury research centers, Indiana University Medical School. We get a bonus for this show, Dr. Crystal Massie, Occupational Therapist, Assistant Professor and Researcher at Indiana University Medical School will also be joining us! Tune in, call in and together we can make a difference in the lives of so many.
Welcome to another episode the Brain Injury Round Table. I am your host, Constance Miller, brain injury survivor of 32 years; author of the original brain injury owner's manual entitled From The Ashes. This innovative guidebook was featured on Super Bowl XXXIV. Miller is Managing Director of Brain Injury Resource Center, located on the Internet at http://www.headinjury.com. Also joining us will be Tai Campbell, my invaluable contributor who is a tireless community activist, and founder of Taken Back Our Community (TBOC) http://www.tbocnow.org. Also of note he is the survivor of an incredible history of childhood brain injuries. I'd like to thank: all our listeners for bringing our voices, to your home, or your mobile device wherever you are around the world. Additionally, I’d like to give a big thank you to this show’s sponsors: Martha Marcum, mother of a brain injury survivor and author of MARTHA'S FABLES and Gordon Johnson, attorney of http://www.TBILaw.com
The Brain Injury Round Table is a place for Ideas, discussion, and recovery for people seeking solutions, to bridge the gap between understanding brain injury and insights on how to change live for the better so be prepared to hear some great information to motivate and inspire us and change the World. The main reason we are tackling this topic this evening is that even a seemingly minor concussion can have life-long, life altering consequences. And that is the topic of tonight's discussion. The plan is to learn from one another and to educate one another about TBI and its aftermath. We know personally just how a traumatic even a concussion can be.
Rise Up After Brain Injury Hosted by Craig Sicilia
Being Aware - Creating Awareness - What are people aware of
Sherry Johnson of TBI Awareness sharing their passion of bringing awareness and spreading the word, about what it means to live with a brain injury as a mother of a child with a brain injury trying to get the word out to who ever she can.
as Well ( DJ (Dave) Asselin of Team Hi Level with a update on rehab in America from the gut of the system, a system that is confusing even for those with out a brain injury. Our topic how to get your questions answered which is something DJ is not getting as he sits in a Florida rehab center trying to figure out whats going on.
Do you have something you need to share tonight come on in and join our show for interactive conversation.
Please join me in welcoming Dr. Ana Durand, Professor and clinical practitioner at Indiana University Medical School. Her current research is on motor functioning after injury to the brain. This will be a very informative show that you will not want to miss!
We have a brain injury radio show to broadcast tonight, January 2nd at 8pm-9:30pm Eastern Time (*5:00pm-6:30pm Pacific Time). How many of you can come up with New Years Resolutions associated with brain injury- caregiving or surviving one? That's what the topic will revolve around. Anyone can call in! Call in and speak with us! GUEST CALL-IN (424) 243-9540
Many people have an issue with anger, frustration, lack of time and are always wrapped up in their own lives to make time for others. Two worlds collide with this aspect for the brain injured: 1. Communication with others to understand what survivors go through. 2. Caregivers, friends, and loved ones need to listen with an open mind.
PATIENCE IS NEEDED TO MOVE FORWARD.
Listening skills are something most people in our lives need to improve. Strategies are there for learning how to improve these communication barriers. Individuals with brain injuries may not be noticeable to the naked eye but if a common trait by people to stop, listen and ask open ended questions; the frustation and anxiety easily subsides for caring and empathy.
Whether you're an artist or not, life with a brain injury takes a ton of creativity. I left my career as a rehabilitation clinician and became an artist after a TBI in 2010. The arts saved me by giving me a community and a way to explain my situation in a way other people could get it.
Making art can be adapted to any and all disabilities, and there are as many types of art or ways of expression as there are people. How do you use art? Personal expression, therapy, rehabilitation, political statement, or community building?
Whether you do drawing, photography, music, decorating, writing, sculpting, painting, sewing, movies, graffiti or any type of art, let's chat! You can introduce listeners to your art form and share with us the ways you adapt your art to work for a person living with a brain injury.
Welcome to another episode of Brain Injury Round Table. I am your host, Constance Miller, brain injury survivor of more than 30 years and Managing Director of Brain Injury Resource Center, located on the Internet at http://www.headinjury.com. At the suggestion of Mr Tai Campbell, of Taken Back Our Communities Now, http://www.tbocn.org, tonight’s show will look into the development of heightened feeling states following brain injury. Some such heightened feelings take the form of disturbances in the autonomic nervous system. The resulting condition is known as “hyper-arousal” and describes the effect of injury on things such as heart rate and respiration. Another aspect of heightened feeling states is sometimes seen as psychic or extra sensory abilities and in many instances is seen as a gift. Others in this category might feel undone by the sudden onset of such strange reveries and might find themselves pre-occupied by feelings of uncertainty and anxiety.
It is seldom addressed by members of the profession called upon to make us whole, to take us from the point of being "patients" to being people again. Therefore, tonight we’re going to take matters into our own hands. We’ll kick it around, swap stories and delve into another of those taboo topics associated with brain injury.
Join us for another exciting and informative episode of Disability Roundtable. thanks to all our listeners for bringing our voices, to your home, your mobile device wherever you are all around the world. Additionally, I’d like to give a big thank you to this show’s sponsors: Martha Marcum, mother of a brain injury survivor and author of MARTHA'S FABLES and Gordon Johnson, attorney of TBI Law.com. Additionally, we look forward to welcoming another sponsor Mia Marcum McCoy, brain injury survivor and author of a brain injury book that she will speak with us about on a future episode.
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