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The ability for families to get services for children with developmental disabilities may increase if a new rule proposed under the Affordable Care Act becomes final.
In this "Kids News Extra" segment Dr. T reviews the article, "Proposed Rule Mandates Coverage of Habilitation" from the ASHA Leader about proposed mandate to cover habilitative services.
"Habilitation" is intervention to help a child build skills in which they are delayed or disordered. It's similar to the more familiar term of "rehabilitation" whereby an individual receives intervention to regain skills that are lost second to an accident, a disease, or the like.
The ASHA Leader is a publication of the American Speech-Language and Hearing Association which provides information for the public and governs the professions of speech-language pathology and audiology.
This proposed rule goes beyond speech-language and hearing services and regards global developmental issues. We hope it's helpful.
Send your comments and quesitons to us at info@KidsAtoZ.com
Best,The Kids AtoZ Team
Where do we go in Washington state to get connected when it comes to helping individuals living with autism? What services are accessible from the state? How do we plug in? How do we navigate the often confusing and complex systems maze?
Good information leads to better choices and decisions for people on the autism spectrum or with other developmental disabilities and differences, yet survey data shows many families say they do not get enough information to effectively participate in planning services for their family members.
This is of concern to Autism Empowerment and other advocacy and support organizations that believe clear, concise information from trusted sources is critical to every family’s ability to access resources and care for individuals on the autism spectrum.
Listen in today as Autism Empowerment Radio interviews Eva Rooks, Communication and Planning Manager for the Washington State Developmental Disabilities Council.
We will talk about current priorities for the DDC and we'll learn how to plug into and navigate the WA state Informing Families, Building Trust website, blog and informational outreach.
Sponsored by the Washington State Developmental Disabilities Council, in collaboration with the Division of Developmental Disabilities and others, the IFBT goal is to provide information about issues, services and supports that make a difference in the lives of individuals with developmental disabilities and their families.
Interested in Autism and Developmental Disabilities Advocacy in Washington? So is Autism Empowerment!
Tune in as John interviews Autism Empowerment Executive Director, Karen Krejcha as she talks about her recent weekend in Olympia. As part of a year long Disabilities Leadership Development Program, she traveled to Olympia with other self-advocates, parents and professionals. She had the opportunity to receive training, network with other advocates and no-profits, tour the State Capitol, share lunch with local legislators, learn about the legislative process and practice advocacy skills and testifying before Congress.
We will chat about a variety of topics of interest that came up during the training including Seclusion / Aversion rooms in Washington schools, the No Paid Services Caseload, Respite Care, Companion Homes, Vocational Traning and help for individuals experiencing cultural communication barriers.
Even if you don't live in Washington, you will likely find this show valuable in terms of understanding more about what kind of services our government provides versus what is provided through the private sector.
We are thrilled to welcome Temple Grandin back to our show. Our conversation will focus on what she feels best supported her success in life and the advice she has to offer for parents of children with autism.
Arguably the most famous person in the autism community, Dr. Grandin has been advocating for individuals with autism for more than 30 years. In 2010, Grandin delivered the TED talk “The world needs all kinds of minds.” Grandin’s own experience with autism has informed her numerous books on the subject including My Life in Pictures which was adapted for the award-winning HBO film.
Born on August 29, 1947, in Boston, Massachusetts, Temple Grandin was diagnosed with autism as a child and went on to pursue work in psychology and animal science. She has become a leading advocate for autistic communities and has also written books and provided consultation on the humane treatment of animals.
Grandin has been recognized by the academic community and the general public for her work. In 2009, she was named a fellow of the American Society of Agricultural and Biological Engineers. She is the recipient of several honorary degrees, and has been featured on a range of television and radio programs.
In 2010, HBO released an Emmy Award winning film on Grandin’s life which continues to strike a chord with audiences. Temple’s willingness to honestly share her challenges as well as share her passionate perspective with depth and resonance has made her a very popular (and busy) speaker and presenter.
I have a child with a developmental disability.. where will they live without me?
Rachael has worked with individuals with developmental disabilities for approximately 7 years. Most recently, she was an Assistant Manager for The Center for Disability Services for a group home with 7 adults. Rachael is currently a full time MSW student at SUNY Albany.
When a family has a child with a developmental disability, their future is often uncertain. Individuals with developmental disabilities are often somewhat, if not completely, dependent on their caretakers. Group homes are often an option for families to consider as their child continues to grow and parents become older and less able to care for their child.
Marcia Scheiner is the founder and President of Asperger Syndrome Training & Employment Partnership. Prior to founding ASTEP, Ms. Scheiner spent 25 years in the financial services industry, most recently as CEO of Centrally Managed Businesses for Zurich Financial Services. She has also held management positions at Chase Manhattan Bank and Canadian Imperial Bank of Commerce. Ms. Scheiner is a graduate of Wellesley College and has an MBA from Columbia University’s Graduate School of Business. She is the parent of a young adult son with Asperger Syndrome.
ASTEP creates and supports programs that promote long-term employment for individuals with Asperger Syndrome (AS) and similar autism spectrum profiles through:
Educating employers about the benefits of hiring individuals with AS or similar autism spectrum profiles and the accommodations they may require.
Developing partnerships between Employers and Vocational Rehabilitation professionals to create a successful workplace environment.
Providing Managers and colleagues of AS/similar autism spectrum profiles employees with an understanding of the behavioral differences perhaps seen in their autism spectrum co-workers.
This year, a total of 238 teams (15 women’s), as many as 150 officials and lots of broadcasters showed up to support Autism Awareness Weekend in college basketball. Throughout the weekend, coaches, officials and broadcasters raised autism awareness by donning the blue Autism Speaks puzzle piece pin during college basketball games. In all, more than 3,000 coaches, staff, administrators, and officials were wearing pins and spreading the word.
Spearheaded by NCAA basketball coaches Pat Skerry and Tom Herrion, the program provides coaches, their teams, schools and fans with opportunities to raise awareness, fundraise and advocate for the needs of people affected by autism.
Pat Skerry has completely revitalized the Towson men's basketball program and brought the Tigers back into the national spotlight. Skerry, who took over a program that had endured 15 straight losing seasons, wasted little time in righting the ship.
Skerry, a 21-year coaching veteran, has succeeded in changing the culture of the Towson men's basketball program. During his first semester as head coach, his players posted the highest GPA for a Towson men's basketball team in over a decade.
A native of Medford, Mass., Skerry played collegiately at Tufts from 1989-92 where he was a two-time team captain and garnered All-New England honors. As a point guard, he recorded a school-record 650 assists during his career - a mark that still ranks as the 17th best in NCAA Division III history. His 198 assists in 1990-91 is a Tufts single-season record. He also is fifth on the school's career steals list with 95.
Pat and his wife, Kristen, have two sons, Ryan and Owen.
Please join us for tonights show we are having a very special night of prayer our guest will be pastor Sam Mitchell from ggcc atlantic city please join us he will be talking about the autism healing service june 17 he will also be taking your calls for prayer requests, questions, and comments
Please join us for tonights show, our host will be Jacy, our special guest will be Bobby @gazda_theboss and Debbie @cuppycake70, we will be discussing the important benefits of special diets and vitamins, and how to take your child off the spectrum, we will also be featuring some very special cameo appearances from a few boys who are going to give their testimonies about their journey to recovery from autism
Tonights special guest will be Christina Adams, MFA, is the author of A Real Boy: A True Story of Autism, Early Intervention and Recovery and camel milk advocate. She is the first known person to get federal government permission to import camel milk for autism, She will be sharing her story about her son, as well as other aspects of her journey into helping her autisic child recover. Please join us she will be taking your calls for comments and questions, press 1 to request to speak to us live
"Oxalate is an antinutrient that is present at higher levels in some plant foods like spinach, nuts, and chocolate, but it is also a mitochondrial toxin and neurotoxin, and impairs calcium and iron regulation, all biotin-dependent enzymes, and many other enzymes." — Susan Costen Owens
Susan Costen Owens has lectured widely, both nationally and internationally. This graduate of Vanderbilt University with a masters degree in Interdisciplinary Studies from the University of Texas in Dallas has fifteen years of experience in autism research. She realized six years ago that the gut inflammation and leaky gut in autism and other developmental disorders would lead to increased absorption of oxalate from the diet with unknown consequences.
Through her project at the Autism Research Institute, this diet has led to the loss of the autism diagnosis in some children and improvements in pain, cognition, growth, motor skills, gastrointestinal function, and social interaction in countless others. Her internet group, Trying Low Oxalates has grown to more than 3000 people, including those with celiac disease, cystic fibrosis, myotonic dystrophy, Rett syndrome, MHE, bariatric surgery, short bowel syndrome, chronic pain syndromes like fibromyalgia, vulvodynia and bone pain, chronic fatigue, autoimmune conditions, and many other conditions, taking the study of oxalate’s relationship to disease far beyond the familiar turf of kidney stone disease.
Mike and Joyce speak with Laura Castillo, Executive Director of FivePMinus.org, helping families affected by Cri du Chat (Cat Cry) Syndrome (CdCs).
Babies born with CdCs are characterized at birth by a high-pitched cry, low birth weight, poor muscle tone, microcephaly, and potential medical complications. "5p-" is a term used by geneticists to describe a portion of the short arm of chromosome number five that is missing in these individuals. Some of the facial characteristics include:
Round "moon shaped" face
Small upturned nose at birth
Small or low set chin (micrognathis)
Low positioned ears
Downward slanting of the eyes
Wide spaced eyes
Extra skin fold at the inner corner of one or both eyes (epicanthal fold)
These facial features usually elongate as the child enters adulthood. Children with CdCs are often also diagnosed with autism since many of the developmental issues are similar.
There is a great deal of good information on this syndrome on their website. See especially http://www.fivepminus.org/Development
Laura shares with us the origins of the 5p- Society, the national family support group for individuals with Cri du Chat Syndrome. They group shares expeerience and provides support to individuals and families affected by CdCs, sharing strategies for managing the syndrome and supporting their children in achieving his or her maximum potential Children with Cri du Chat Syndrome can lead full and meaningful lives with love and support.
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