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Have you ever wondered what Eisenmenger's Syndrome is? Who gets it? What are the symptoms? How does it affect a person's body from childhood to adulthood? What changes occur with the aging survivor?
Carolyn Robinson, a long-time Eisenmenger Syndrome Survivor will answer these questions and more as she details her life story of being diagnosed with this condition and surviving long enough to become a grandmother! Carolyn is a published author. She wrote an essay entitled "Leading the Troops" for The Heart of a Mother, which was an anthology of stories by women affected by congenital heart defects. Carolyn's essay was in the Mothers with Congenital Heart Defects chapter and detailed her efforts to become a mother.
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Thanks to advances in medical science, 90% of the babies born today with a congenital heart defect or CHD will live to adulthood. That means 90% of today’s babies will someday be teenagers. For the first time ever, there are more adults alive with congenital heart defects than babies. What does this mean for our aging CHD population?
Each of our Guests today was born with a critical CHD (CCHD). About 25% of CHDs are considered CCHDs. Children with CCHDs need surgery or other procedures within the first year of life. They are at risk for death or disability if their heart defect is not detected soon after birth. Some people with treated CCHD have few related health problems later in life. However, long-term effects of CCHD can include delayed development and reduced stamina during exercise.
Today we’ll meet three adults CCHDs survivors: Monica Mossey, Tara McFadden and Jeni Busta. These ladies will share with us what their triumphs and challenges have been during their teenage years.
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