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Mike and Joyce speak with Laura Castillo, Executive Director of FivePMinus.org, helping families affected by Cri du Chat (Cat Cry) Syndrome (CdCs).
Babies born with CdCs are characterized at birth by a high-pitched cry, low birth weight, poor muscle tone, microcephaly, and potential medical complications. "5p-" is a term used by geneticists to describe a portion of the short arm of chromosome number five that is missing in these individuals. Some of the facial characteristics include:
Round "moon shaped" face
Small upturned nose at birth
Small or low set chin (micrognathis)
Low positioned ears
Downward slanting of the eyes
Wide spaced eyes
Extra skin fold at the inner corner of one or both eyes (epicanthal fold)
These facial features usually elongate as the child enters adulthood. Children with CdCs are often also diagnosed with autism since many of the developmental issues are similar.
There is a great deal of good information on this syndrome on their website. See especially http://www.fivepminus.org/Development
Laura shares with us the origins of the 5p- Society, the national family support group for individuals with Cri du Chat Syndrome. They group shares expeerience and provides support to individuals and families affected by CdCs, sharing strategies for managing the syndrome and supporting their children in achieving his or her maximum potential Children with Cri du Chat Syndrome can lead full and meaningful lives with love and support.
Please join Dr Jennifer Daniels on February 24, 2015 at 6pm EDT for the Healing with Dr Daniels Show.
Today's topic is: Patient Autonomy or Something More Sinister?
The FDA has just approved a genetic test for consumers to use at home without a Doctor’s permission. Patients can now freely purchase this genetic test and get the results. Is this an advance in patient autonomy? Or is there something more sinister? Dr Daniels reviews the accuracy of the test, the purpose of the test and how you can sidestep this plan to ensnare you in the Standard of Care. Tune in. Think Happens.
What’s Hot, What’s Not. Tune as Dr Daniels gives her best picks as to the up coming trends in Healing, self - care, health care and healing. You heard it first here. Think Happens.. Listen by phone (914-338-0695 or online click this link or copy this on your browser: Ask questions during the show, by phone call: 914-338-0695 or online go to http://healingwithdrdaniels.chatango.com/
Dori Schatell is Executive Director of the non-profit Medical Education Institute, which conducts research and develops evidence-based educational materials to help people with kidney disease live as fully as possible. She has worked in the renal field for 25 years, during which she has written and edited hundreds of educational pieces for patients and professionals, including the original DOQI anemia guidelines, the Core Curriculum for the Dialysis Technician, Kidney School, and many others, and directed development of the Home Dialysis Central website. She is co-author, with Dr. John Agar, of the book, Help, I Need Dialysis! and worked with Dr. Agar and Beth Witten to develop a decision aid for dialysis called My Life, My Dialysis Choice.
Life is full of challenges and obstacles, but we should rejoice in hope, be patient in tribulation, be constant in prayer for in due season we will reap, if we do not give up.
Join our guest Cincinnati City Councilwoman and Municipal Representative of the Police-Community Task Force Amy Murray, host Robert Jetter, Jr., panelists Activist Cindy Todd, Constitutional scholar Kelly Mordecai, and Dan Gray former columnist of the Washington Times. Call in and you stay on the show. You can Join our Round Table Discussion. Share the Link to the Live Show and Podcast.
Bards Logic Welcomes Cincinnati City Councilwoman and Municipal Representative of the Police-Community Task Force Amy Murray. We will disuss her role and spreading these ideas across America.
After the events across America including Florida, Missouri, and Ohio, police-community relations are almost stretched to its limits. Ohio Governor John Kasich , possible GOP 2016 Presidential Candidate, calls for a Task Force to address the widening schism between communities of color and law enforcement. In January 2015, Gov. Kasich asked Amy to be a part of his Task Force.
Amy is joined on the Task Force by 17 others including: former Ohio Supreme Court justice Eva Stratton, Dr. Ronnie Dunn Cleveland State University associate professor, member of the NAACP Criminal Justice Committee, Rev. George Murry Bishop of the Roman Catholic Diocese of Youngstown, and Chief Michael J. Navarre, member of the Ohio Association of Chiefs of Police.
Amy Murray has an extensive history of political involvement and a passion for diving into the issues when it comes to making her city a better place to live and work. As past President of her Neighborhood Council, she worked closely with residents, business and the city to bring about positive change. As member of city council Amy has been committed to more robust job creation and making a more “business-friendly” city. Fiscal responsibility, holding our leaders accountable and keeping our neighborhoods safe are her key focus areas.
Bards Logic is the Grassroots, We the People Show.
Welcome to Administrative Medicine class five. In order to be successful in this class you will need your required text book and materials.
Upon completion of the class you will need to send your Instructor the attendance flag word to receive proper attendance credits.
If you're a "people pleaser", then people are always taking advantage of you. You're also probably not getting what you want out of life. Stop thinking about what would make others happy and focus on what you need. It's time to shift the focus from others to yourself. After all, it can be difficult to improve your own life when you're too busy accommodating others.
The people worth impressing just want you to be yourself.
In the long run, it’s better to be loathed for who you are than loved for who you are not. In fact, the only relationships that work well in the long run are the ones that make you a better person without changing you into someone other than yourself, and without preventing you from outgrowing the person you used to be.
Ignore the comparisons and expectations knocking at your door. The only person you should try to be better than is the person you were yesterday. Prove yourself to yourself, not others. The RIGHT people for you will love you for doing so, and they will appreciate all the things about you that the WRONG people are intimidated by. Bottom line: Don’t change so people will like you; be patient, keep being your amazing self, and pretty soon the RIGHT people will love the REAL you. No one else really knows what’s best for YOU. Don’t lose yourself in your search for acceptance by others. Walk your path confidently and don’t expect anyone else to understand your journey, especially if they have not been exactly where you are going. You have to take the stepsthat are right for you; no one else walks in your shoes.
On the February 25th 2015 broadcast at 11:30 AM Pacific/ 2:30PM Eastern our special guest is Robert Wachter, MD who is:
'Professor and Associate Chair of the Department of Medicine at the University of California, San Francisco, where he directs the 60-physician Division of Hospital Medicine. Author of 250 articles and 6 books, he coined the term “hospitalist” in 1996 and is generally considered the “father” of the hospitalist field, the fastest growing specialty in the history of modern medicine.
He is past president of the Society of Hospital Medicine (1999-2000) and past chair of the American Board of Internal Medicine (2012-13). In 2004, he received the John M. Eisenberg Award, the nation’s top honor in patient safety.
For the past seven years, Modern Healthcare magazine has named him one of the 50 most influential physician-executives in the U.S., the only academic physician to receive this recognition. In 2014, the same publication also recognized him as one of the 100 most influential people in healthcare. His new book, The Digital Doctor: Hope, Hype and Harm at the Dawn of Medicine’s Computer Age, will be published in April, 2015.'
Join us for an informative chat with a leader in the emerging digital health economy!
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Scott Cluthe talks with Dr. Angelo Volandes, author of The Conversation, about the most difficult one spouses and/or family members will ever have to have: End of Life issues.
Dr. Angelo Volandes is a practicing internal medicine physician in the MGH Department of Medicine and a junior faculty member at Harvard Medical School. He is a Harvard College and Yale Medical School graduate.
Angelo continues his work surrounding Advance Care Planning (ACP), the process by which patients plan for future medical care under circumstances of impaired decision-making.
His study compared the preferences of patients after seeing a video depiction of a patient with advanced stage dementia, to those who received a verbal description of that health state.
There is an unspoken dark side of American medicine-keeping patients alive at any price. Two thirds of Americans die in healthcare institutions tethered to machines and tubes at bankrupting costs, even though research shows that most prefer to die at home in comfort, surrounded by loved ones.
Dr. Angelo E. Volandes believes that a life well lived deserves a good ending. Through the stories of seven patients and seven very different end-of-life experiences, he demonstrates that what people with a serious illness, who are approaching the end of their lives, need most is not new technologies but one simple thing: The Conversation. He argues for a radical re-envisioning of the patient-doctor relationship and offers ways for patients and their families to talk about this difficult issue.
Life Changing Insights with Dr. Alan Simberg and his guest Dr. Robert Brown:
Native Californian born in Oakland. Majored in Physiology at UC Berkeley going on to UC San Francisco Medical Center to receive a DDS. Began practice in Walnut Creek, CA in 1964 practicing Orthodontia. Northern California Rotarian of the year in 1975. President of Danville Rotary 1978-79. Continued my studies in physiology and medicine beginning the practice of treatment of TMD dysfunction in 1975. Began treatment of obstructive sleep apnea in 2002.
Due to a serious accident I had to retire from Orhtodontics and go full time into
TMJ and Sleep apnea. My advanced studies into alternative medicine led me into a rather unique, holistic, approach to TMJ treatment not treating symptoms with drugs but finding the cause and working with the patient to correct that.
Marilyn Redmond was born in Seattle, WA and graduated from Western Washington University. She has three years of graduate work including the University of Washington. And is a retired school teacher. She is a candidate for a doctorate degree. She was ordained as a spiritual minister to do spiritual counseling along with instruction in healing, regression, past life therapy, and other related spiritual training. She continues to actively participate in courses and researches cutting edge information to help her clients. Currently, she is channeling Ascended Masters, Archangels, and your family member that have past over to the other side.
Everyday somewhere on this planet one of these two directives are give by an ill patient or person directed to act on his/her behalf. His past weekend I My wife and I celebrated our anniversary in the Big Apple aka New York CIty. As it tends to happen, I got into discusssions with a perfect stranger who brought up the topics of PAS and DNR.
Join me "In the Pickle Barrel" Tuesday morning, February 24 at 8AM-9AM EST, as we take a look at these two directives that can cause so much fear, sadness, religious concerns and yes, peace.
You can join in the conversation live by calling in at 855-236-2486 or thru the online Chat Room.
God created marriage to be good. Have you ever thought about God having a sense of humor as He shares His great plans, ideas and commands? You may recognize a few of them when He told husbands and wives to come together on whatever day they chose with all their "stuff and real-life experiences" and become one with all their family and friends witnessing and celebrating their grand moment. Oh yea, and how could you possibly forget these characteristics of being completely humble and gentle; being patient, bearing with one another in love. All things are possible with God as we invite the Holy Spirit to be in the center from the beginning to the end of our lives, courtships and marriages. Join the various conversations on our new Monday evening segments on SHIFT TODAY "God's Marriage Plan, Purpose and Position for The MRS." with Host Nina Roach and other wives offering support, hope, encouragement and prayer as they share God's word, their real-time life and marriage experiences, laughter and love. There's hope for you and your marriage! Connect weekly Mondays from 7:00 P.M. - 8:00 P.M. PST. online at www.blogtalkradio.com/shifttoday or by phone 424.220.1862. Prepare with Notetaking materials, Bible, Sacred Influence Book by Gary Thomas and an Open Heart.
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