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  • 00:31

    Lymphedema Voices: Sheryl #Project10000000Voices Lymphedema Is No Joke (Part 2)

    in Family

    The system hiccupped a bit and we didn't get to talk for the full time; however, we are back on this day with the rest of the story.

    First time I talked to Sherly, she told me that she had once been a teacher but hasn't been able to work FT in decades.  She has had Lymphedema since in the early 90s.  She has difficulty fulfilling her life, difficulty in transportation.  She has no way of getting a compression garment (which can cost $500) without having to choose between a garment or paying rent because her income is just that stressed already.  Complicated by tumors (one removed and another that needs to removed).  She has written her Represenative but hasn't had a response just yet.  Hopefully, he'll get on board with the Lymphedema Treatment Act which will authorize Medicare to pay for the garment that helps to keep the lymphedema from getting worse, which causes so many other dominoing issues (like mobility, possible MS, and other diseases that stem from the damaged lymphatic systerm.  

    In Texas, we have 4 co-sponsors for the Lymphedema Treatment Act in Texas, and we have many more to go.  There are 4 bipartisan leads and 104 co-sponsors of the Lymphedemat Treatment Act across the United States.  We really need about 200 co-sponsors for this bill to be passed in the House.  We need your support to help the many Sheryl's out there with similar stories.  Please go to the http://lymphedematreatmentact.org website to sign up being a Team Member in your State and go to the "How You Can Help" and send your legislators personalize letters.

    Listen to the show that we had on November 20th as well for some other call to actions that you can do to help.


    #LymphedemaTreatmentAct #LymphedemaStory #Project1000000Voice

  • 01:08

    Lymphedema Voice & Activist: Leigh Elke

    in Health

    Leigh comes forth today talking about what brought her into the passion for the activism for lymphedema rights, what she has done with that time frame, and what her hopes are for the future.

    Leigh was diagnosed at 21 years old with lymphedema/lipedema, PCOS, fibromaylgia, Chronic fatigue syndrome high blood pressure, hypothyroidsm all on the same day. She had gained 230 pounds in one year. After reaching 500 pounds she had gastric bypass surgery, successfully losing 340 pounds in one year. After consulting with Dr Herbst in June 2014 for a "formal" diagnosis of stage 3 lipoedema she has undergone 3 surgeries for lipedema, all reimbursed by BCBS PPO. Additionally she has authorization for 6 total surgeries and 1 tummy apron removal. She is a disabled stay at home mother of 3, hoping to help others in the same situation with a non profit organization and insurance questions/answers.

    To learn more about the activism and lymphedema issues:


    Lymphedema Treatment Act http://lymphedematreatmentact.org



    and remember to keep #SharingYourVoice

  • 00:56

    REPEAT SHOW - Lymphedema Awareness HR4662

    in Legal

    I have done several shows about Lymphedema and the grassroots efforts to get the Lymphedema Treatment Bill passed.  This one came from an original airing of 5/1/10.  

    "Back in March, we had a show introducting you to the HR 4662 which involves the improvement for health care costs for lymphedema patients. Please join us again today to learn what has been done, what you can do, and what this means to you if you (or someone you know) has lymphedema. We need to get this bill passed in this year's legislation session. We will have Jennifer and Jenny on our show, as well as some other pertinent people that can add more to enlighten about this very important bill."   http://www.blogtalkradio.com/oralhistory/2010/05/01/beyond-words-live--understanding-hb-4662

    BEYOND WORDS LIVE is designed as a platform for survivors to tell their own stories in their own words.

    For more information see http://facebook.com/LymphedemaInTheNews or http://lymphedematreatmentact.org/.  


  • 01:06

    Lympedema Voices #Project1000000Voices Lymphedema Treatment Act 2014 Reflection

    in US Government

    In September 2014, a group of lymphedema advocates converged upon the Capitol Hill to talk to the US House of Represenatives and Senators about the Lymphedema Treatment Act, as well as had a Congressional Hearing to empasize the importance that it means to many lymphedema patients, caregivers, physicians, and more.  As a result, we ended up with 4 bipartisan lead sponsors from the House of Represenatives, and 91 cosponsors from many of the States.  We really need about 200 cosponsors to help ensure that this Bill passes the House.  

    Guidance was provided by the Lymphedema Advocacy Group, National Lymphedema Network, and many other supporters of the Bill.

    Join us on our Lymphedema Journey and Advocacy for a discussion on a reflection of those this year's journey at Capitol Hill (DC) and a call of action that we would like for you to do as soon as possible.

    For many more details about the Lymphedema Treatment Act, please check out the website http://lymphedematreatmentact.org.

    Also check out the Lymphedema In The News fb page http://facebook.com/lymphedemainthenews for additonaly information about Lymphedema, as well as other events/call to actions happening, especially in Texas.

    If you wish to share your story, please submit your request at http://goo.gl/forms/rqo8jg28j1

    Sponsors and Co-Sponsors of the Lymphedema Treatment Bill --- 

  • 01:29

    Meet Tiffany Howe - Lymphedema Warrior & Advocate

    in Caregiving

    Tiffany Howe was born with Primary Congenital Lymphedema (Milroy’s Disease). After 27 years of struggling with this ailment, she was given a choice of losing her left leg or undergoing the Charles Debulking procedure. The choice was difficult and very challenging to make. She chose the Charles Debulking procedure and could not have guessed the life-changing experiences which would result. Full recovery took a year and included her learning to walk again.  For the next five years, Tiffany used her training as a Registered Nurse to research and study any available information about Lymphedema. Research ultimately led me to the conclusion that Lymphedema patients are in need of support for this currently incurable disease. Support includes education and advocacy. I represent Virginia as part of the Lymphedema Advocacy Group, which is a patient-centered group, raising awareness. Our mission is to get passage in Congress for the Lymphedema Treatment Act. 

    Come hear her story and more!


    For more information, too, please refer to the Lymphedema In The News fb page (http://facebook.com/LymphedemaInTheNews).


  • 01:58

    International/National Lymphedema Awareness Day - Open Mic Day

    in Health

    Dr. Stanley Rockson (of Stanford University Medical School) states that:  "Lymphedema is a common disease.  Approximately 10 million Americans, for example, have lymphedema secondary to breast and pelvic cancer therapy, recurrent infections, injuries, or vascular surgery." (2010)  Imagine, if there were approximately 10 million Americans then, how many more there are now in 2014 (knowing that there is no cure for it as it stands to date)?

    For many years, I had key advocates come on my show to discuss various cases and, especially, the aspects of advocating in the legislature.  On January 27th, Heather Ferguson (one of those advocates) will come on my show to discuss some updates on those legislative issues being presented.  

    Today, though, I will open the mic up to patients, advocates, and caregivers especially to tell their stories on how Lymphedema has affected them.  We will then share this with legislators to personally hear the many stories typical to illustrate the pervasiveness of this condition.  

    Please mark your calendars and join us on March 6th at 10a CST to share and/or be better informed about these issues.

  • 01:07


    in Health

    Come hear Heather Ferguson provide us with some updates about THE LYMPHEDEMA TREATEMENT ACT via my radio show called BEYOND WORDS LIVE. She'll provide the latest and greatest on what is happening with the Hill on our Bill. Invite all your State Advocates to attend, all Lymphedema patients to attend, your LE physical therapist to attend, as well. We need all the voices that we can get!

    For a little insight, Heather passed an email out on January 15th which included this announcement -- LYMPHEDEMA TREATEMENT BILL is now up! She writes "All our hard work and preparation over this past year has come to fruition today! This morning the Lymphedema Treatment Act was introduced into the 113th Congress (bill number HR 3877) by our lead sponsor, Rep. Reichert (R-WA), and co-leads Rep. Lance (R-NJ), Rep. Blumenauer (D-OR), and Rep. Braley (D-IA)."  

    For more discussions about these issues go to Lympedema In the News on facebook - http://facebook.com/LymphedemaInTheNews - or, see the website - http://www.capwiz.com/lymphedematreatmentact/home/.  See also this article - http://reichert.house.gov/press-release/reichert-introduces-critical-legislation-improve-healthcare-lymphedema-patients

  • 01:10


    in Family

    Well, the actual awareness day is actually on March 6th; however, the usual show is on Saturdays so we keep with a part of tradition to take a break from domestic violence issues to talk about lymphedema and advocacy for lymphedema patients everywhere, with a special focus on what is happening in the United States with HR 4662 making its way in the houses. Today, we will revisit the issue with as many of the same panel from last year to discuss these and related things to the needs of the lymphedema patient. Many on the panel have lymphedem themselves or have been/or are closely related to someone that is going through this condition that simply doesn't have a cure as of yet, albeit we all remain faithful in that some day we will see skinny limbs and things after they determine what exactly works to de-block the lymphatic system in our bodies.

  • 00:33

    Breast Cancer, Lymphedema and the Role of Physical Therapy

    in Health

    October 23, 2012: October is National Physical Therapy Month and National Breast Cancer Awareness Month. Although many consumers might not think of physical therapy and breast cancer treatment being related, in this interview Nicole Stout, PT, MPT, CLT-LANA, describes why physical therapy is so important in a breast cancer treatment plan, not just eventually but early on. She also outlines the relationship between breast cancer and lymphedema and provides advice for those who might be at risk.
     Subscribe to Move Forward Radio podcasts on iTunes.
    To learn more about physical therapy, visit MoveForwardPT.com.

  • 01:01

    An Interview with Author and Cancer Survivor Tari Prinster: YOGA for CANCER

    in Health

    This December, veteran yoga teacher and cancer survivor, Tari Prinster released her book, Yoga for Cancer, a natural follow up to her 15 year career in the yoga community. In this easy-to-follow illustrated guide, Tari merges modern science and her years of yoga experience to provide a tool for all cancer survivors and patients to support their own path to survivorship.


    “Cancer took my breath. Yoga gave it back,” says Tari 15 years post diagnoses. “I found that through yoga I was able to empower myself physically and mentally. It gave me a resilience that manifested into long-term survivorship.  And now my mission is to provide this powerful tool to the 14.5 millions of survivors in the US today. ”


    The creator of Yoga4Cancer, a unique brand of yoga, has taught thousands of survivors and yoga teachers throughout the country, Tari is an authority on the topic. If you are a cancer survivor and or currently seeking alternative therapies, then you will want to listen to Aging Younger Radio interview Tari and you will learn  how yoga can be used to manage treatment side effects, strengthen the immune system, avoid lymphedema, decrease anxiety, reduce pain, and help the body repair damage caused by the cancer and conventional treatments.  

  • 01:01

    Fully Persuaded About Love, Blessings & Sisterhood w/ Angelia Menchan

    in Motivation


    Angelia Vernon Menchan is an author, publisher and public speaker who owns two publishing companies, MAMM Productions and Honorable Menchan Media. Mrs. Menchan is also a Budget Officer and former Job Corps Counselor. To date she has published 26 full length books of her own work, both fiction and non-fiction and more than 80 ebook novellas on amazon.com. You can access her bibliography on www.amazon.com search words: Angelia Vernon Menchan

    Menchan has also published the work of several other authors to date, including children's book, Little Wing by biologist, Erin Gawera, Honorable Menchan Poetry 2013 by Dictator and Genesis,  a breast cancer memoir, Goodbye Breast, Hello Faith by Lena Jordan, My Grace is Sufficient: Living With Lymphedema by Patricia Richardson, The Prayer Journey by Nadine Singleton, F. O. C. U. S. A Crime Family Novel by Darnetta Frazier and the upcoming thriller, Dictator by Malik Vernon Menchan.

    She is becoming a sought after speaker for young women audiences because she speaks honestly, straight and open to the issues that plague them such as teen pregnancy, the importance of education and making life impacting choices.