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I have done several shows about Lymphedema and the grassroots efforts to get the Lymphedema Treatment Bill passed. This one came from an original airing of 5/1/10.
"Back in March, we had a show introducting you to the HR 4662 which involves the improvement for health care costs for lymphedema patients. Please join us again today to learn what has been done, what you can do, and what this means to you if you (or someone you know) has lymphedema. We need to get this bill passed in this year's legislation session. We will have Jennifer and Jenny on our show, as well as some other pertinent people that can add more to enlighten about this very important bill." http://www.blogtalkradio.com/oralhistory/2010/05/01/beyond-words-live--understanding-hb-4662
BEYOND WORDS LIVE is designed as a platform for survivors to tell their own stories in their own words.
For more information see http://facebook.com/LymphedemaInTheNews or http://lymphedematreatmentact.org/.
Tiffany Howe was born with Primary Congenital Lymphedema (Milroy’s Disease). After 27 years of struggling with this ailment, she was given a choice of losing her left leg or undergoing the Charles Debulking procedure. The choice was difficult and very challenging to make. She chose the Charles Debulking procedure and could not have guessed the life-changing experiences which would result. Full recovery took a year and included her learning to walk again. For the next five years, Tiffany used her training as a Registered Nurse to research and study any available information about Lymphedema. Research ultimately led me to the conclusion that Lymphedema patients are in need of support for this currently incurable disease. Support includes education and advocacy. I represent Virginia as part of the Lymphedema Advocacy Group, which is a patient-centered group, raising awareness. Our mission is to get passage in Congress for the Lymphedema Treatment Act.
Come hear her story and more!
For more information, too, please refer to the Lymphedema In The News fb page (http://facebook.com/LymphedemaInTheNews).
Dr. Stanley Rockson (of Stanford University Medical School) states that: "Lymphedema is a common disease. Approximately 10 million Americans, for example, have lymphedema secondary to breast and pelvic cancer therapy, recurrent infections, injuries, or vascular surgery." (2010) Imagine, if there were approximately 10 million Americans then, how many more there are now in 2014 (knowing that there is no cure for it as it stands to date)?
For many years, I had key advocates come on my show to discuss various cases and, especially, the aspects of advocating in the legislature. On January 27th, Heather Ferguson (one of those advocates) will come on my show to discuss some updates on those legislative issues being presented.
Today, though, I will open the mic up to patients, advocates, and caregivers especially to tell their stories on how Lymphedema has affected them. We will then share this with legislators to personally hear the many stories typical to illustrate the pervasiveness of this condition.
Please mark your calendars and join us on March 6th at 10a CST to share and/or be better informed about these issues.
Come hear Heather Ferguson provide us with some updates about THE LYMPHEDEMA TREATEMENT ACT via my radio show called BEYOND WORDS LIVE. She'll provide the latest and greatest on what is happening with the Hill on our Bill. Invite all your State Advocates to attend, all Lymphedema patients to attend, your LE physical therapist to attend, as well. We need all the voices that we can get!
For a little insight, Heather passed an email out on January 15th which included this announcement -- LYMPHEDEMA TREATEMENT BILL is now up! She writes "All our hard work and preparation over this past year has come to fruition today! This morning the Lymphedema Treatment Act was introduced into the 113th Congress (bill number HR 3877) by our lead sponsor, Rep. Reichert (R-WA), and co-leads Rep. Lance (R-NJ), Rep. Blumenauer (D-OR), and Rep. Braley (D-IA)."
For more discussions about these issues go to Lympedema In the News on facebook - http://facebook.com/LymphedemaInTheNews - or, see the website - http://www.capwiz.com/lymphedematreatmentact/home/. See also this article - http://reichert.house.gov/press-release/reichert-introduces-critical-legislation-improve-healthcare-lymphedema-patients
Well, the actual awareness day is actually on March 6th; however, the usual show is on Saturdays so we keep with a part of tradition to take a break from domestic violence issues to talk about lymphedema and advocacy for lymphedema patients everywhere, with a special focus on what is happening in the United States with HR 4662 making its way in the houses. Today, we will revisit the issue with as many of the same panel from last year to discuss these and related things to the needs of the lymphedema patient. Many on the panel have lymphedem themselves or have been/or are closely related to someone that is going through this condition that simply doesn't have a cure as of yet, albeit we all remain faithful in that some day we will see skinny limbs and things after they determine what exactly works to de-block the lymphatic system in our bodies.
October 23, 2012: October is National Physical Therapy Month and National Breast Cancer Awareness Month. Although many consumers might not think of physical therapy and breast cancer treatment being related, in this interview Nicole Stout, PT, MPT, CLT-LANA, describes why physical therapy is so important in a breast cancer treatment plan, not just eventually but early on. She also outlines the relationship between breast cancer and lymphedema and provides advice for those who might be at risk.
Subscribe to Move Forward Radio podcasts on iTunes.
To learn more about physical therapy, visit MoveForwardPT.com.
Kevin A. Baptists, was born in Boston, Mass. His family is from Trinidad and Tobago. he went to St. Peter Marian and went to ITS TECH for computer aided design. He is 37 year's old. He is a farmer and speaker. He also is an advocate for lymphedema. he was born with it. Lymphedema is the swelling of body limbs due to a blockage in the lymphatic system or due loss of lymph nodes due to surgery or drama.
ThruOurEyes - 8-9pm LIVE! Joe will interview Sharla Glass, industry relations, and Amanda Tolson, pharmacy relations, from EnVision America. Highlighting EnVision America's history, best practices for labeling prescriptions, methods to obtain labeling at local pharmacies, and the next steps to have labeling for the blind
IBC Fact And Fallacies - 9-10pm LIVE! Josh Levin from LympheDIVAs will discuss lymphedema and show us medically correct and fashionable compression apparel for the savvy and stylish breast cancer survivor which will inspire her to feel beautiful, strong, and confident.
Join me for a chat with..
Comedienne Queenie TT The Curves N Cupcake Comedy Tour
Tickets are currently on sale for $15 and may be purchased at http://punchlinecomedyclub.com/event/1C004B90F88E65F2
Discount Tickets $7.50 (limited availability): http://www.goldstar.com/events/san-francisco-ca/curves-and-cupcakes
National Lymphedema Network http://www.lymphnet.org/
Ben Yennie http://www.meetup.com/producer-foundry
Aguilar Legal www.agslaw.com
Off the Grid www.offthegridsf.com
Shelia Simon https://sheliasimon.myrandf.biz
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Aspyr Communications PR aspyrcommunications.com
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Sullivan & Botello Events http://sullivanbotelloevents.com/
Small Business Forum Magazine https://www.eventbrite.com/e/small-business-forum-magazine-buy-3-get-3-by-12214-and-well-double-your-order-tickets-10176812119
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Dr. Magnant will be talking about Sciatica Or Vein Disease on this episode. Pain and cramping in the legs can be caused by either sciatica or vein disease. How do you tell the difference and what can be done to relieve the pain and cramping when it is associated with vein disease.
Varicose veins and venous insufficiency may cause symptoms less obvious than the commonly noted spider veins, bulging lumps, bleeding veins or leg ulcers. Other symptoms may include swollen achy legs, a feeling of heaviness or fatigue of the legs, or itchy and discolored legs. Patients usually complain of increased swelling and aching toward the end of the day and often note improvement with elevation of the legs or after a night of sleep. Other patients may be under treatment for conditions thought to be related to the heart (congestive heart failure), kidneys (renal failure or diabetic kidney disease), excess salt intake, lymphedema (swelling after leg incisions) or for neurologic conditions such as neuropathy or restless leg syndrome (RLS). Restless leg syndrome has been strongly correlated with venous insufficiency, so patients who have been diagnosed with RLS are encouraged to seek further vein evaluation.
Join Dr. Weizer as he discusses Occupational Therapy in oncology with Amy Kay. Amy is an Occupational Therapist that has been serving cancer patients for 13 years. Amy explains the role of occupational therapy in oncology is “to facilitate and enable an individual patient to achieve maximum functional performance, both physically and psychologically, in everyday living skills”. Dr. Weizer and Amy also discuss the role an OT plays in the mind, body and heart along with the needs of the physical body.
The National Lymphedema Network recently sent out their latest publication announcing that March 6th is the date recognized as the National Lymphedema Awareness Day. Lymphedema can, and does affect people of all ages. Many are born with it and/or have genetic dispositions towards it occurring; some have their limbs swelling as a result of chemotherapy or surgery; some may have a trauma that occurs that triggers it (like a car accident). Generally, we know that you have lymphedema in either the arms or legs (usually not both types of limbs), but it may affect other areas of the body as well.
Jenny will be here to tell her story, as well as explain more about her efforts to make others aware of Lymphedema issues. Hopefully, we will have other speakers online too to help explain various treatments that are available today.
Today, while Jenny maintains her own issues with her own embattlement with Lymphedema, she has become an advocate to help others understand what Lymphedema is.
Host Kathryn Krastin is here to provide a resource for survivors to tell their stories in their own words – not some contrived form that fits typical media agenda and/or demographics.
Connect with Kathryn on www.RealLifeRadioNetwork.com