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This week we’re talking with Dr. Philippe Guillem, top expert on Hidradenitis Suppurativa (Verneuil’s Disease), a ‘rare’ condition that may in fact be very prevalent. Dr. Guillem has spent almost twenty years as a surgeon, and last year received special recognition, together with French non-profit organization ‘Solidarité Verneuil’, for the high-quality care he provides his patients.
Typically developing in stages, Hidradenitis Suppurativa (HS) is a chronic skin condition affecting the apocrine sweat glands, and leads to inflammation, infections, and constant pain in the most sensitive parts of the body. Often misdiagnosed and misunderstood by doctors, HS also leaves sufferers feeling shameful, in part thanks to the common misconception that lack of hygiene or obesity are to blame.
We’ll also be talking about rare diseases in general, the lack of medical attention they receive, and why it’s important for people to be informed and seek out the right care. If you suspect that you or a loved one might have HS, or any other condition you are afraid to speak of, then we hope you’ll join us this Sunday, February 2nd 2014, from 2-4pm EST (8-10pm CET). You are not alone.
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It's good to talk.