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In December 2010 life as I knew it changed forever. One day I was a very active 24 year old, riding motor bikes, playing football, fishing and camping, and the next I was a C5/C6 quadriplegic unable to do the things I loved in life. I spent 6 weeks in Intensive Care on a ventilator unable to even breath for myself or move anything below my neck. All up I spent 6 months in hospital trying to regain any function possible. Doctors told me I’d be using a Power Chair for the rest of my life and never be able to look after myself in any way. While in hospital I heard about an intensive training program called “Walk On” which was based off another highly regarded intensive training program in America called “Project Walk”.
Since doing Walk On I am now using a manual chair and have gained enough strength to transfer in and out of my chair and a car with minimal assistance. I have also made the trip to America to attend Project Walk where I gained more strength and motivation, and I’m planning on going back to America in the near future.
After more than 3 and a half years I’m still getting stronger and making progress towards regaining more independence and possibly to at least being able to stand one day. https://m.facebook.com/thereecewallenappeal
The long term consequences for polio survivors of the epidemic of the late 1940"s and 50's, is now termed "post polio syndrome" and late effect symptoms" may include: weakness of the limbs, muscle fatigue or pain. Bulbar symptoms may include: new problems with breathing, swallowing or speech. Current evidence suggests that exercises are often beneficial provided that the exercise program is designed for the individual following a thorough assessment and is supervised initially by knowledgeable health professionals.
Joan Headley, executive director of Post-Polio Health International (PHI)., and editor: Ventilator-Assisted Living,
Dr Barbara Sonies, Board Certified Specialist Swallowing, and former Chief of Speech Language Pathology Section and Oral Motor Function Section, Department of Rehabilitation Medicine at NIH, has conducted research and published on neurologic, neuromotor and systemic conditions that impact on swallowing function.
PHI's mission is to enhance the lives and independence of polio survivors and home ventilator users .www.post-polio.org Contact: email@example.com
Carole Zoom was born in Oak Ridge, TN, and attended the University of Texas. After living in Austin for 10 years, where she worked as a community organizer, Zoom relocated to Eugene, OR, in 1994 to run international leadership exchange programs for people with disabilities from all over the world. In Eugene, Zoom helped found the Downtown Initiative for the Visual Arts (DIVA) and Lane Independent Living Alliance (LILA). Zoom relocated from Eugene to Portland, OR, in 2006. In 2012 Carole Zoom relocated and established a new studio in Kihei, HI with her partner Patrick Carpenter.
As an artist, Zoom produces woodblock prints and photographs that explore the continuum of life, death and disability; adjustments to living with a tracheostomy, using a ventilator, and requiring assistance to do the most basic things in life; and finding loving support around her. Her visual artwork has allowed her to make sense of her experience, reshape her perspective on the world, and return to it with vigor after the completion of her recovery. She chooses not to use a press for her prints, and her work intentionally and artfully reveals her considerable muscle weakness, a result of her muscular dystrophy.
Her prints have been displayed at White Lotus Gallery, Island Park Gallery, LaFollette Gallery, New Zone, Broadway Market Gallery, ImagineStation (PA), NorthBank Gallery and ArtPRN. Portland Mayor Sam Adams bought five pieces by Zoom to present as gifts to dignitaries on a recent diplomatic and trade mission to Japan. Her photography has been published in the Wall Street Journal, Portland Monthly, Country Living Magazine, Oregon Humanities and Eugene Weekly.
For more information on Carole Zoom and Zoomtopia click on the following link: http://zoomtopia.com/
This month, Suzane welcomes special guest, Dr. Eben Alexander III. Dr. Alexander has been an academic neurosurgeon for the last 25 years, including 15 years at the Brigham & Women’s Hospital, the Children’s Hospital and Harvard Medical School in Boston. Over those years he has personally dealt with hundreds of patients suffering from severe alterations in their level of consciousness. In his academic career he has authored or co-authored over 150 chapters and papers in peer reviewed journals, and made over 200 presentations at conferences and medical centers around the world.
In the predawn hours of November 10, 2008, Dr. Alexander was driven into coma by a rare and mysterious bacterial meningitis-encephalitis of unknown cause. He spent a week in coma on a ventilator, his prospects for survival diminishing rapidly. On the seventh day, to the surprise of everyone, he started to awaken. Memories of his life had been completely deleted inside of the coma, yet he awoke with memories of a fantastic odyssey deep into another realm – more real than this earthly one! His older son advised him to write down everything he could remember about his journey, before he read anything about near-death experiences, physics or cosmology. Six weeks later, he completed his initial recording of his remarkable journey, totaling over 20,000 words in length. Then he started reading, and was astonished by the insights his journey brought to the world’s literature on near-death experiences, and to all phenomena of extended consciousness. His experience clearly revealed that we are conscious in spite of our brain – that, in fact, consciousness is at the root of all existence.
He shares his most powerful, life-changing story in his book, Proof of Heaven: A Neurosurgeon’s Journey into the Afterlife. His story offers a crucial key to the understanding of reality and human consciousness.
Join me as I interview Dr. David Lewis as he shares his life experience in the health care system as a Family Doctor, Patient and Caregiver.
David Lewis FRCSEd, MRCGP David Lewis is a family doctor in United Kingdom. David completed medical training at Monash University and Alfred Hospital in Melbourne. Postgraduate training in United Kingdom in general surgery then family medicine followed. In 1990, David was diagnosed with advanced Hodgkins Lymphoma. This was the same year his father died from lung cancer, and he married Danielle. Danielle was pregnant with their first child at the time of diagnosis. Anxious to have further children, David delayed essential treatment for the lymphoma to store sperm. This action has been vindicated because twins were born in 1994 with help of IVF; the children are among first 5000 IVF babies in UK. In 2007, David suffered a heart attack requiring emergency intervention, followed by quadruple bypass surgery. The heart surgery was successful, but a complication developed requiring further surgery in January 2008. Sadly, this operation was complicated by respiratory arrest and subsequent 5 weeks on a ventilator. Today, David works full time in National Health Service General Practice with three Partners. The practice also serves as a site for the University College London Medical School “Medicine in Community” program. The practice is in a suburban area and looks after over 6,600 people from cradle to grave. In the last couple of years David has developed an interest in promoting the use of information technology for professional development and peer support
David on Twitter
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Writing is a way to put your thoughts into words. Writing can be used as a coping mechanism of life’s trials and tribulations.
In 1988 I was given a beautiful 3 lb. baby girl who when she entered this world was not breathing. The doctors immediately hooked up to oxygen and IV’s and she stayed that way for 3 months. I had to bring her home on oxygen and a ventilator, but I also was told that in order for me to keep her alive I would have to take different size tubings and place them through her nose down into her esophagus to keep it dilated so she would continue to breathe. I had to do that for one year. She was sent home with a g-tube because she could not be fed by mouth, and it would leak stomach acid and burn her skin. I made the doctors remove it and I used a syringe to feed her with to teach my daughter how to suck since she didn’t know how because of being intubated so long. Jocelyn ended up having 125 surgeries and she survived, but there were times where she stopped breathing. This was a hard pill to swallow especially since that was my first child. What did I do so wrong I asked the Lord? I know that I wasn’t as bad as some people? And the Lord answered saying “MY GRACE IS SUFFICIENT”
I asked God to remove the thorn, but instead he gave me a vision. Through that suffering I wrote a book called “Can I Just Have a Little Bit?” All I wanted was a little peace, a little grace and mercy. What do you want?
There are others out there just like me who have so much pain and don’t know what to do with it. Kim Wuertz did the same thing I did, but her pain in to writing. When you do that it takes your focus off your issues and begin to find solutions to your problems.
Join us this Thursday at 5:00 PM (CST)
Joan Headley visits Dancing On Our Disabilities.
Joan comes to the table with a wealth of information that can answer many doubts and questions of polio survivors and their families. Post-Polio Health International's mission is to enhance the lives and independence of polio survivors and home ventilator users through education, advocacy, research and networking.
This show will discuss what ARDS is and how it can affect you and your family. It will discuss some terminolgy and what you should expect.
"Embrace technology. It can be a vital tool to improving the quality - and sometimes the length - of your life!" ~ Peg Ball
Peg Ball has a significant disability that affects her mobility and her breathing. She is currently providing coaching services at the MOH-Club and you can view her profile here: www.MyOptimalHealthClub.org.
She can be reached at firstname.lastname@example.org
Are you seeking answers for breathing challenges?
Are concerned about the possibility of respiratory problems in your future?
Join us in discussing the challenges of living with significant respiratory limitations. Peg Ball, a Health/Life Coach who has Spinal Muscular Atrophy, uses a power wheelchair and ventilator, will share how respiratory technology has impacted her life and how to access it to benefit YOUR breathing!
I'm so touched and honoured to welcome the amazing Jeni Stepanek to the show! She is a true hero of mine and if you need some inspiration, you won't be disappointed! For those of you who don't know, here's why...
Jeni Stepanek, an award-winning speaker and writer, is a noted advocate for children’s, patients’, and families’ needs and rights in health and education, and the author of the NY Times Bestseller, Messenger: The Legacy of Mattie J.T. Stepanek and Heartsongs. She earned her Ph.D. and M.Ed. in Early Childhood Special Education from the University of Maryland, and her B.A. in psychology and journalism from The Catholic University of America. Jeni’s inspirational message about disability, hospice, family support, parenting, writing, motivation, and spirituality has been carried by all media outlets. Like her son, the late bestselling poet and peace advocate, Mattie J.T. Stepanek, Jeni has a rare neuromuscular disease, and relies on a ventilator and wheelchair for breathing and mobility. A noted guest on The Oprah Winfrey Show, Good Morning America, Larry King Live, and The MDA Labor Day Telethon, Mattie created poetry and essays from age 3 until he passed away in 2004 at age 13, and published seven books that reached the NY Times bestseller list. Jeni works as an inspirational speaker and as a research and editorial consultantfor the University of Maryland Department of Special Education. She also serves as the Executive Director of the Mattie J.T. Stepanek Foundation, and volunteers as a National Vice President for the Muscular Dystrophy Association. She lives in Rockville, MD near the Mattie J.T. Stepanek Park, with their service dog, Micah. For more information visit www.mattieonline.com.
"You can make it happen, you just gotta figure out how." ~ Peg
Peg Ball is a Health and Life Coach who motivates her clients to set and achieve goals that bring them vibrant health and joy. She has worked for justice for people with disabilities and Lesbian/Gay/Bisexual/Transgendered persons for over 30 years.
As a bisexual woman with a significant disability, Peg has become an expert in effective relationships and creative problem-solving for many of life's challenges. Her love for nature and sensitivity for respiratory health issues has cultivated a commitment to advocate for a toxin-free environment.
Join us for a discussion with Peg about the barriers she encountered when recently moving to a new apartment. Hear how having Spinal Muscular Atrophy, using a power wheelchair and a ventilator has impacted her experience of many local and two cross-country moves.
What you might rightly ask is a long-term acute care hospital? the name sounds very confusing. When we think of long-term, we think of weeks, months or even years. Acute means sudden onset. The answer is that it is a combination of an acute illness or injury that requires several weeks before the patient is ready to move on to rehabilitation.
When you have an accident, suffer a stroke or need surgery, the first place you go is the hospital. There, the doctors and nurses fix your injuries, perform your surgery and stabilize your condition. Many times, after being stabilized at a hospital, patients are too medically fragile to go home or to a rehabilitation facility. Perhaps they have an underlying chronic disease, like diabetes or heart disease, which delays the healing process. That’s where a long-term acute care hospital (LTACH) comes in. Patients come to an LTACH for several weeks until they are well enough to move on to the next level of their recovery.
Join Michele Brockbank, LPN, Clinical Liaison for Colorado Acute Long Term Hospital and I as we discuss what kind of treatment is received in a Long-term acute hospital and what kind of clients benefit from a stay in this specialized hospital.
This show is hosted by: Http://www.HeartsAndHomesForSeniors.com; Your personalized assisted living guide.
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