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Did you know May is Central Nervous System Vasculitis month?
National Seizure Disorders Foundation has chosen to honor Central Nervous System Vasculitis Awareness Month upon discovering how rare this disease is and how prevelant seizures are among it's survivors. 30% of people living with central nervous system vasculitis live with seizure disorder. This caught the attention of NSDF staff and during this show we bring you quality information to increase your awareness of CNSV. During this episode, National Seizure Disorders Foundation invites survivor and advocate Chelsey Lawrence to discuss her knowledge and experience of CNSV and seizures with you in order to increase your awareness. Brew something delicious to drink, settle into your favorite chair, and join NSDF Presents as our guest shares perspective on surviving, caregiving, and advocacy of Central Nervous System Vasculitis (CNSV)and seizures. We welcome comments and questions. So please feel free to "follow" NSDF Presents here on BlogTalk Radio, comment in the appropriate area & connect with National Seizure Disorders Foundation on FaceBook and NSDF website
Joyce will be talking about: The 2013 Vasculitis Symposium, July 12-14, 2013, in Philadelphia, Pennsylvania and what is the latest greatest with VF with a special message for all who live with and overcome cryoglobulinemia vasculitis!
Show is 9 a.m. PT, 10a.m. MST, 11 a.m. Central time, and 12 noon Eastern time. Diane Dike, Ph.D. SCwSG/CVO
Dr. Klaus-Dieter John grew up in Germany and met and fell in love with his wife, Martina, during his term as high school class president. The two bonded over the strong call they felt to obtain medical degrees in order to serve the medical needs of the poorest of the poor.
Dr. John began medical school in Germany, eventually completing his surgical training at Harvard and Yale in the U.S., as well as in Johannesburg, South Africa. Martina was trained in both Germany and the U.S. and is now a certified pediatrician in both countries.
Their medical missions work took them from Ghana to Ecuador, eventually bringing them to Peru, where they helped found the ministry Diospi Suyana in August of 2002. The main goal of Diospi Suyana was to maintain an interdenominational mission hospital, which was opened in the highlands of Peru in 2005. The ministry also operates a dental clinic, a school and a children’s ministry in Curahuasi, Peru.
For more information about Klaus-Dieter John and the work of the Diospi Suyana Hospital.
Join us today and meet a pioneer with ground breaking news on health and wellness.
Nicole Smith has created solutions for hundreds of companies across the nation in many diverse industries from startup to Fortune 500. An accomplished entrepreneur and marketer, she has worked globally to evolve ideas and grow businesses for the past twenty years.
Nicole's entrepreneurial spirit has catapulted Mary's Medicinals to the forefront as the producer of accurately dosed, cleanly delivered cannabis products. Her experience in research and development has led her to discovering transdermal applications for cannabis including patches, gels, and balms. She pioneered and was first-to-market the useful benefits of THC-a and CBN; discovered harvesting techniques for the isolation of CBC and continues to develop new cutting edge ideas in isolating, manufacturing and marketing cannabis and its medicinal benefits.
Learn today what cannabis can do for you!
Contact Nicole and her team:
Justin Kander is the author of The Comprehensive Report on the Cannabis Extract Movement, an extensive document which integrates the scientific and anecdotal evidence supporting the use of cannabis extracts to treat cancers and other diseases.
He has been speaking with patients and helping people acquire cannabis extracts for over six and a half years. Justin also helps manage the website of Rick Simpson's organization PhoenixTears.ca.
For the past year he has attended several medical conferences to share his report and raise awareness of the full potential of cannabis extracts. To further spread awareness he has written many articles for MedicalJane.com and IllegallyHealed.com.
You can reach: Justin @ 410-967-1832
Please also review: Case Reports in Oncology article which formally proved cannabis extracts could fight leukemia in a human patient.
Enjoy more of Kathy Strong's story and pictures on our website!
Trish Donahue will share her journey of being diagnosed with cryoglobulinemia. "Out of the blue I woke up with legs that were killing me. Diagnosed with cryo 11/12, I'm 70, a retired marathon runner and triathlete, active all my life in sports, was a journalist and writer, now I sell cruises and love to travel but don't know what the future holds with this disease, which they fortunately diagnosed pretty fast. I'm a breast cancer survivor and have MGUS...now peripheral neuropathy too, new with the cryo which is so scary. Have had 2 rituxan infusions and am on high dose of prednisone which has me bloated up so I don't even look like myself. Love to read, decorate, have 2 darling pugs and my neat husband Mike. We live in CA. Always been a positive person so this incurable "thing" is not what I want. Thank goodness for Diane!!" http://www.cryoglobulinemiavasculitis.org/
Please join Health Educator & Life Coach, Erica Haray-Butcher, as she chats with Vicky Hann Corbett about living your best life with chronic illness.
Both Vicky and Erica have experienced a variety of chronic health issues related to debilitating autoimmune disease, and both have found ways to heal and live their best lives possible. Please tune in to hear their tips and strategies, so you can find your own path to better health and healing.
For more information about Erica, please visit www.CatchGoodHealth.com. And remember- good health is contagious...pass it on!
In this show, Ed Becker talks about how the loss of a family member to a rare vasculitis disease called Polyarteritis Nodosa (PAN) ultimately led to the creation of an international patient advocacy organization called the PAN Support Network (PSN). He will discuss how the group has grown into a 600+ organization that has become instrumental in helping PAN patients get the help they need to deal with the illness. He will be joined by Dr. Kim Carroll who became the PSN Forum moderator in 2012. Dr. Carroll ironically got involved in rheumatology also because of the loss of a family member to PAN. http://www.linkedin.com/in/edwardbecker Show will be 9 a.m. PT, 10a.m. MST, 11 a.m. Central time, and 12 noon Eastern time.
Liz is the amazing, Director at CoRDS. Today we will learn what the Coordination of Rare Diseases at Sanford (CoRDS) is doing to help people with rare disease.Liz will share important information because CoRDS is a registry that stores information on individuals affected by a rare disease to help accelerate research into rare diseases. It was developed because access to information about rare diseases presents a challenge to researchers, physicians, patients and their families.CoRDS provides a better way for researchers conducting research studies or clinical trials to search for individuals who are interested and may be able to participate in their clinical trial. The CoRDS registry also keeps individuals and families aware of the opportunities to participate in research studies or clinical trials.To help us celebrate the launch of the worlds first Cryoglobulinemia Vasculitis Organization (CVO) website Liz is joining us to educate us and help us learn more about important research opportunities.*To clarify: In reference to Mayo Clinic. Diane meant to say the one in MN is the only one of the Mayo clinics that is dealing with Cryo at this time. Not that it's the only clinic dealing with cryo.http://www.cryoglobulinemiavasculitis.org/
The show today will be about living with an exotic ailment called Behcet’s Disease.
Behçet's disease is common in the Middle East, Asia, and Japan. It is rare in the United States. In Middle Eastern and Asian countries, the disease affects more men than women. In the United States, it affects more women than men. Behçet's disease tends to develop in people in their 20's or 30's, but people of all ages can develop this disease.
Behçet's disease is an autoimmune disease that results from damage to blood vessels throughout the body, particularly veins. In an autoimmune disease, the immune system attacks and harms the bodies' own tissues. The exact cause of Behçet's disease is unknown. Most symptoms of the disease are caused by vasculitis (an inflammation of the blood vessels).
Inflammation is a characteristic reaction of the body to injury or disease and is marked by four signs: swelling, redness, heat, and pain. Doctors think that an autoimmune reaction may cause the blood vessels to become inflamed, but they do not know what triggers this reaction.
Marcia Cody,RN will have a conversation with Betty McDaniels Smith, Founder of Multi-Development Services of Spark County, Wellnes Coach, Author and Host of "On Track with Betty Mac" on Canton City Schools TV11 Channel in Canton Ohio, about a frequently misdiagnosed type of headache. Listen in, call in or chat with us about this interesting topic.
Occipital Neuralgia, a distinct type of headache characterized by piercing, throbbing, or electric-shock-like chronic pain in the upper neck, back of the head, and behind the ears, usually on one side of the head. Typically, the pain of occipital neuralgia begins in the neck and then spreads upwards. Some individuals will also experience pain in the scalp, forehead, and behind the eyes. The location of pain is related to the areas supplied by the greater and lesser occipital nerves, which run from the area where the spinal column meets the neck, up to the scalp at the back of the head. The pain is caused by irritation or injury to the nerves, which can be the result of trauma to the back of the head, pinching of the nerves by overly tight neck muscles, compression of the nerve as it leaves the spine due to osteoarthritis, or tumors or other types of lesions in the neck. Localized inflammation or infection, gout, diabetes, blood vessel inflammation (vasculitis), and frequent lengthy periods of keeping the head in a downward and forward position are also associated with occipital neuralgia. In many cases, however, no cause can be found. A positive response (relief from pain) after an anesthetic nerve block will confirm the diagnosis.
Occipital neuralgia is not a life-threatening condition. Recovery is usually complete after the bout of pain has ended and the nerve damage repaired or lessened.
This information was extracted from the National Institute of Neurological Disorders and Stroke (NINDS),National Institutes of Health website.
More info: www.theacpa.org www.headaches.org
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