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Father Donald E. Mowery is the retired leader of Youth Services globally. He has had a radio show, Talk it Out with Father Don, on WHBQ radio in Memphis, Tennessee, for the past 45 years. This month Joyce Graff appeared on his show. Joyce and Father Don have a great conversation about Powerful Patient and its mission, and also about Youth Services and its mission, highlighting many parallels. In both cases, they work to empower people to work through the issues they cannot change and tackle constructively the things they can change.
Learn more about Father Don. A new book, Spiritual Networking, by Darrell B. Uselton and David Yawn, recounts the history of Youth Services in Memphis and worldwide.
Mike and Joyce speak with Dr. Julia Hallisy about The Empowered Patient Coalition: providing healthcare improvement and patient safety tools directly to consumers.
About Dr. Hallisy:
Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since that time, she has been a full-time practicing San Francisco dentist.
Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
Dr. Hallisy began to research the topic of patient safety in 1998. She has lobbied for health care reform in Washington, DC with Consumer’s Union.
Dr. Hallisy is committed to and passionate about the subjects of patient safety, health care reform and medical error reduction. She is the founder and president of The Empowered Patient Coalition.
Dr. Hallisy was born and raised in San Francisco, where she lives with her husband, John Hallisy, and their two sons, Daniel and Kevin. The Hallisy’s ten-year old daughter, Kate, lost her life-long battle with cancer in February 2000.
Input, Solutions, Culture
Pharmaguy interviews Anne C. Beal, MD, MPH, Chief Patient Officer, Sanofi, and Melva T. Covington, MPH, MBA., PhD, Project Leader, Research and Develooment, Sanofi. They talk about their roles in bringing the patient perspective into Sanofi's work to advance Sanofi's ability to deliver health care solutions that matter most to patients and those who care for them.
Questions/Topics of Discussion
How do you define "Patient-Centricity?"
Tell us more about the three pillars of Sanofi's Patient-Centric Strategy. How do you get patients' input? Do you have any patient advocates on your team who are not physicians but who have worked extensively with patients?
Are we talking only about patient-centricity in the context of research & development? What about corporate and marketing communications?
What's the most difficult hurdle for pharma to overcome to be truly patient-centric?
Why did Sanofi create the role of "Chief Patient Officer?" How is it different from "Chief Medical Officer?" What do you do as Sanofi's Chief Patient Officer? Can you relate a case study which demonstrates how you implemented your strategy?
What other pharmaceutical companies have Chief Patient Officers? Do they all have similar roles? Will all pharma companies follow?
Joyce and Mike speak with Georgia Hurst as part of Lynch Syndrome Awareness Week.
Georgia Hurst is a patient advocate for those with Lynch syndrome. She is the founder of the website and blog: <a href="http://ihavelynchsyndrome.com">ihavelynchsyndrome.com</a>. She frequently writes about the emotional aspects of having Lynch syndrome, and writes for various websites and journals in order to create awareness amongst the global medical community about this hereditary cancer syndrome. Georgia is a wife and mother, and loves espresso, books, and being bossed around by her adorable dog named Sid.
What is Lynch syndrome? We will learn more from Georgia, or you can read about it on her website, or in this article from <a href="http://http://www.curetoday.com/community/georgia-hurst/2015/02/i-have-lynch-syndrome">www.curetoday.com</a>
Georgia noticed that there were several people in her family who had cancer at early ages, and several with the same cancer. This can indicate that there is something genetic predisposing family members to cancer. She delved deeper, got to a diagnosis, and kept asking questions, finding out how to protect herself and others in her family from the worst consequences of this condition.
Hear her remarkable story, the path she followed in doing her own research, and the partnerships she has developed with medical professionals to help her make progress for herself and others.
Please join Dr Jennifer Daniels on February 24, 2015 at 6pm EDT for the Healing with Dr Daniels Show.
Today's topic is: Patient Autonomy or Something More Sinister?
The FDA has just approved a genetic test for consumers to use at home without a Doctor’s permission. Patients can now freely purchase this genetic test and get the results. Is this an advance in patient autonomy? Or is there something more sinister? Dr Daniels reviews the accuracy of the test, the purpose of the test and how you can sidestep this plan to ensnare you in the Standard of Care. Tune in. Think Happens.
What’s Hot, What’s Not. Tune as Dr Daniels gives her best picks as to the up coming trends in Healing, self - care, health care and healing. You heard it first here. Think Happens.. Listen by phone (914-338-0695 or online click this link or copy this on your browser: Ask questions during the show, by phone call: 914-338-0695 or online go to http://healingwithdrdaniels.chatango.com/
Mike Lawing and Andy Derr have been living with kidney cancer for years. Both of them have learned not to knuckle under to a difficult diagnosis, but to challenge themselves to live WITH it, maintain their quality of life, and keep the nastiest effects of cancer at bay.
It's not easy. But today there are better tools for challenging kidney cancer than ever before. Working closely with their doctors, they have discovered strategies -- medical, mental, and spiritual -- that have helped them keep their heads high and their spirits strong and at the same time keeping cancer in the background of their lives.
Mike, Andy, and Joyce all attended the Kidney Cancer Symposium sponsored by the Kidney Cancer association in October 2014, and prepared a report in patient-approachable language to share with other patients and their families the amazing progress reported at the symposium. Mike did the bulk of the work -- the concept, the layout, and pictures, the editing -- and Andy and Joyce contributed articles.
You will want to hear this conversation!
Diagnosed with cancer in 2005, Susan Gonzalez, R.N., BSN, had a unique perspective on the disease, being a nurse in the patient’s role. She took that knowledge and her passion for finding natural cures to fight disease and started writing a blog for those who wanted to make simple changes for healthy living with an emphasis on avoiding cancer.
Her blog, The Savvy Sister, provides useful information and simple changes you can make today to live a healthier, happier life. https://sisterearthorganics.wordpress.com/
Susan is the Co-Author of 100 Perks of Having Cancer (Plus 100 Health Tips for Surviving It)
Susan and Mike will talk about 100 Perks, Susan's passion for empowering patients with knowledge, and an upcoming Wellness Retreat: Exploring the Healing Power of “Yin” which will be held in Atlanta, GA on April 18, 2015
Resilience: The capacity to adapt and thrive in the face of a challenge.
A discussion with the Wife of patient that after complaining of his level of care and the workers in the clinic, he was terminated for what appears to be trumped up reasons. He has since been blackballed from other clinics in his area; with no clinic to go to he has been forced into HOSPICE.
This appears to be an ongoing problem with DCI, Fresenius and Davita. This patient was a Davita patient. Dialysis Advocates went to their Legal Department and Javier Rodriguez the CEO of Davita. It appears that no one cares at the CEO level; we’ve asked him and the Legal Department to help with this patient. Nothing came from our request to CMS to help this patient who had no appeal and is not allowed to face his accuser.
This is happening much too often in too many clinics where complaining about care or workers leads to retaliation. What if any investigation is done at the clinic level is often poorly done and biased in favor of the worker or clinic. Patients are not allowed to see the results of an investigation nor are they allowed to face their accuser. A patient it appears has to go to legal to clean up a record they are not allowed to see.
We are having too many patients with the same situation Nationwide. One even having to strip down naked before getting dialysis.
Call in and ask questions and our website has other cases in the News Portion. www.dialysisadvocates.com
Join us this coming Tuesday March 17 at 7:00 PM as we come together to praise and seek the face of our benevolent God and Father who encourages His children to be hopeful, patient and persistent in prayer (Romans 12:12).
E-mail us your PRAYER REQUEST in advance at email@example.com if you want us to read your petitions/needs on the air to have others intercede on your behalf.
Please tell other likeminded saints to join us in prayer and praise this Tuesday night. Let us join our Savior Christ Jesus in prayer for at least one hour (Matthew 26:40).
Seer Prophetess Kimberly Hargraves and special co-host discuss patience while waiting for the promises of God to manifest in your life. Join in for divine tips and prayer!To give to this ministry go to paypal acct:firstname.lastname@example.org. To purchase oils go to www.rejoiceessentialoils.com. For more inspiration go to www.kimberlyhargravesministries.com. Join me for prayer on Saturday @ 6 am MST/8 am EST 712-775-7031 Access Code:163-234-356. For additional encouragement go to my youtube channel. To help fund book publishing: gofundme.com/pfo6q0
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