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Have you ever wondered what Eisenmenger's Syndrome is? Who gets it? What are the symptoms? How does it affect a person's body from childhood to adulthood? What changes occur with the aging survivor?
Carolyn Robinson, a long-time Eisenmenger Syndrome Survivor will answer these questions and more as she details her life story of being diagnosed with this condition and surviving long enough to become a grandmother! Carolyn is a published author. She wrote an essay entitled "Leading the Troops" for The Heart of a Mother, which was an anthology of stories by women affected by congenital heart defects. Carolyn's essay was in the Mothers with Congenital Heart Defects chapter and detailed her efforts to become a mother.
Down syndrome is the most common genetic disorder which occurs in 1 out of every 691 babies born in the United States. Dial 347-850-8486 at 8p ET Wednesday, October 22nd as we explore the root cause of Down Syndrome and provide solutions for families affected by it and other learning challenges.
Root Cause Radio contributes to Down Syndrome Awareness Month with this solution filled podcast. Tonight's health panel includes:
Therapeutic scientist Dr. Charlie Abbott, OMD, LAc, LSym of Symptometry of North Carolina, LLC & Director of Administration at the AMERICAN SCHOOL OF SYMPTOMETRY
Special needs teacher & advocate Brandi Blaylock of North Carolina
Pharmacist and Symptometry health coach Dr. Chekesha Patrick of Georgia
Root Cause Radio - Sharing the Secrets of Optimal Health - www.RootCauseRadio.com
With Featured Guest: Shandra Lumsden-Umazar, Proud parent of a college graduate with Down Syndrome
"It's hard to get motivated when you can't see the light at the end of the tunnel. That was how I felt when my daughter was born 30+ years ago. . Yes, I focused on things that she could do, but I also mixed them up with all the things that she couldn't do at that moment and all the things she wouldn't be able to do in the future such as having friends, dating and going to the prom, graduating and going to college."
Join us as Shandra shares parts of her journey, and principles of successfully parenting a child with "differ-abilities" in the areas of social skills, family integration, and education.
Listen Live Online
October is National Rett Syndrome Awareness month. Rett Syndrome (RS) is a genetic neurological disorder. After a period of early normal development a regression leads to severe multiple handicaps. Rett Syndrome appears to be a classic example of a disorder of chromatin, the highly condensed form in which DNA is stored within the cell. Treatments vary from daily medications to physical therapy. Many focus on assisting the patient in having the best quality of life, but there is no known cure to help reverse the genetic damage.
Meet Alicia Bryant, a native of Kinston North Carolina. She is graduate of Fayetteville State University and holds a BA in Political Science. She continued her education at Lenoir Community College to obtain her Cosmetology License, shortly after opening her own Salon.
She and her husband have a beautiful 8 year old daughter, Jailynn Amani. When Jailynn was 2 she was diagnosed with a condition called Rett Syndrome. Alicia and her husband had no idea what this condition was, however in the process of becoming educated and learning more about the condition, they started a foundation in hopes of raising awareness in the community about the condition. Thanks to all the love and support from her family, Jailynn has beat all odds.
"We thank God for his grace and mercy." ~ Alicia Bryant
Listen to The Keep It Moving Blog Talk Radio Show on Monday 10/13/2014 @8pm to learn about Rett Syndrome and its affects. Hear Alicia's testimony of unconditional love and caring for her daughter Jailynn.
Irlen Syndrome (also referred to at times as Meares-Irlen Syndrome, Scotopic Sensitivity Syndrome, and Visual Stress) is a problem with the brain’s ability to process visual information. This problem tends to run in families and is not currently identified by other standardized educational or medical tests. This largely unknown and undiagnosed disorder affects approximately 15% of the general population, 50% of individuals with reading and learning difficulties, 30% of individuals with ADHD and autism, and a significant portion of individuals with brain injury, chronic headaches, and migraines. SIgns of Irlen Syndrome include light sensitivity (bright lights, sunlight, fluorescent lights); headaches or migraines; difficulty or discomfort when reading or doing other visually intensive activities; eye strain; or the print or environment looks different than it should.
Helen Irlen, MA, BCPC, LMFT is a pioneer and global leader in the area of visual processing problems and internationally recognized educator, researcher, and scholar. Ms. Irlen has been in the field of education for over 40 years. Her background includes School Psychologist, Licensed Child and Family Therapist, Educational Therapist, Board Certified Professional Counselor, founder and Director of the Adult Learning Disabilities Program at California State University/Long Beach. She is founder and Executive Director of the Irlen Institute, which has over 174 affiliated Irlen Centers worldwide, and over 7,000 educators have been trained to become certified Irlen screeners. Her method for treating visual processing deficits is used in 54 countries. She is the author of Reading By The Colors and The Irlen Revolution: A Guide to Changing Your Perception and Your Life; How a Simple Method Can Change the Lives of Children and Adults with LD, AD/HD, TBI, Dyslexia, Autism, Headaches, Medical Conditions, and Much More.
Do you have a loved one in your life with Down Syndrome? Did you know October is Down Syndrome Awareness Month?
Join author, blogger, writer and Writestream founder Dariaanne for Writestream Tuesday on October 14 at 1 p.m. Eastern when she'll discuss Down Syndrome Awareness and a very special family member named Ralph. She'll talk about her article A Little Down Syndrome, along with some sobering statistics regarding Down Syndrome and abortion. During the live show, she welcomes callers to contact her at (347) 945-7246 to share their stories of family members and friends with Down Syndrome who have enriched their lives.
In the second half of the broadcast, stay tuned for some public service satire with the Right Wing Riot featuring the Luminaries of Liberty - Scary Smart, Ms. Always Right, and The Prince of Whitebread.
Allie Guard is 25 years old and has her own business! She creates beautiful art with colored pencils and bright colors. The pieces are then either framed, turned into wearable art, or stationary items. She has her own web store and Facebook page!
We've been following Allie's works since we found her for our List.ly list of Businesses by adults who have Down syndrome. Allie and her Dad wrote a recent blog post to give us an introduction - now we get to talk to her LIVE!
Join us as we talk to Allie and her Mom, Sharon, about her life, business, and creativity!
Ooooh look! Shiny! I want this! Oh this looks good! Oooh ooooh, money over here. Money over there. Come see this! Fanatastic deal here. Are you overwhelmed yet? If not, you eventually will be. Too many entrepreneurs seem to have money ADHD.
How can entrepreneurs stay focused on their business and avoid time sucking, life wasting activities that end up being like dark clouds without rain?
In this show I will discuss the Shiny Object Syndrome, why many of us have it, and how to avoid it.
"Chronic Fatigue Syndrome & Fibromyalgia: removing obstacles to heal and finding the root cause to heal"
Chronic Fatigue and Fibromyalgia symptoms are becoming more and more evident in the U.S. Dr. Hayman will discuss how many obstacles to heal in our daily life may be exacerbating these symptoms. She will give a checklist of issues that can be addressed in your home and lifestyle that could be an obstacle to heal.
Katie is the owner and inventor of the Handana® wrist sweatband, and also a survivor of the Stevens-Johnson Syndrome- an inflammatory disorder that can be triggered by certain prescription medication. Inflammation of the skin can become so harmful that a person with SJS can actually develop 3rd degree burns externally while causing internal damage as well. In fact, Katie’s experience was so critical that she spent approximately 3 weeks in the Burn Unit at a hospital from her reaction.
Well, thankfully Katie recovered from her reaction and began to pursue an idea for a wristband that would benefit those with SJS as well as many athletes. Being a marathon runner herself, Katie was always practicing and training for various marathons. While running, her eyes were constantly irritated from the burning sensation whenever sweat would drip into her eyes. For a fairly common occurrence, Katie was determined to find a better solution to help create something better than your typical cotton sweatband.
Today we will be speaking with Katie about her motivation behind the Handana® and how she was able to pursue her idea, and turn it into a successful reality. We hope that this gives fellow nurses advice for pursuing any inventions or ideas that they may have.
To learn more or order your own Handana® you can visit the Handana® website by clicking here
Also visit the Steven-Johnson Foundation website for more information about SJS
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