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October is National Rett Syndrome Awareness month. Rett Syndrome (RS) is a genetic neurological disorder. After a period of early normal development a regression leads to severe multiple handicaps. Rett Syndrome appears to be a classic example of a disorder of chromatin, the highly condensed form in which DNA is stored within the cell. Treatments vary from daily medications to physical therapy. Many focus on assisting the patient in having the best quality of life, but there is no known cure to help reverse the genetic damage.
Meet Alicia Bryant, a native of Kinston North Carolina. She is graduate of Fayetteville State University and holds a BA in Political Science. She continued her education at Lenoir Community College to obtain her Cosmetology License, shortly after opening her own Salon.
She and her husband have a beautiful 8 year old daughter, Jailynn Amani. When Jailynn was 2 she was diagnosed with a condition called Rett Syndrome. Alicia and her husband had no idea what this condition was, however in the process of becoming educated and learning more about the condition, they started a foundation in hopes of raising awareness in the community about the condition. Thanks to all the love and support from her family, Jailynn has beat all odds.
"We thank God for his grace and mercy." ~ Alicia Bryant
Listen to The Keep It Moving Blog Talk Radio Show on Monday 10/13/2014 @8pm to learn about Rett Syndrome and its affects. Hear Alicia's testimony of unconditional love and caring for her daughter Jailynn.
The Topical Hour, Rett Syndrome
Zohar Levitan speaks with James Westgate and Duncan Miller about Rett Syndrome. This syndrome affects about 1 in 10,000 girls in the first 2 years of their lives and requires that the girls receive 24/7 attention in order to be able to function in a minimal amount. Our guests will tell us about the syndrome, how it has affected their lives as a family and what is being done to try and cure this. We will also hear some ways in which the parents are helped treat the syndrome. For more on this topic visit www.curerett.org.uk, facebook.com/curerett, twitter @curerett.
Shelley Bowen is the Director of Family Services and Awareness for the Barth Syndrome Foundation (BSF).
BSF works to increase awareness on a global level among the medical community, academic community, the medical research community and the lay population about Barth Syndrome. There are better strategies today than ever before for living with Barth Syndrome. Nonetheless, it often shortens the lifespan of people, especially children.
Shelley speaks with Mike and Joyce about life with Barth Syndrome, and how families cope when life ends.
For more information about Barth Syndrome, see https://www.barthsyndrome.org
Karen Ball, CEO of the Sturge-Weber Foundation, speaks with Joyce about Sturge-Weber syndrome (SWS) and the challenges faced by people with this condition. The Sturge-Weber Foundation provides support and services for individuals with Sturge-Weber syndrome, Port Wine Stain Birthmarks, and Klippel-Trenaunay syndrome.
Sturge-Weber Syndrome (encephelotrigeminal angiomatosis) is a congenital, non-familial disorder of unknown incidence and cause. It is characterized by a congenital facial birthmark and neurological abnormalities. Other symptoms associated with Sturge-Weber can include eye and internal organ irregularities. Each case of Sturge-Weber Syndrome is unique and exhibits the characterizing findings to varying degrees.
Because of the physical differences that people with SWS often have, they are frequently the object of rude or bullying behaviors. Sturge-Weber Foundation has taken up this challenge on behalf of all those with differences in their BullyBeGone Challenge.
Come chat with Karen and Joyce.
In recognition of Rare Disease Day February 28, 2011 Tara welcomes guest Syndi Ridenour Knowlton and Paige Nues, Director of Family Support for the International Rett Syndrome Foundation.
In an effort to bring awareness to the rare disease please tune in and learn about Rett Syndrome and the work that the foundations is doing.
JOIN ME AND CO-HOST: GENESIS BLU FOR OUR 2ND EPISODE! "THE CIRCUS SYNDROME"..PLUS GUEST: ROZIER..
are you or do you have experience with dealing with someone who has the out to get me syndrome? if so this is the show for you. or maybe you would like to know what this means whatever the case you will have to tune in to find out what im talking about dial 347)945-6212 in to listen in or press 1 to share your opionion
in Self Help
"Ooooh, gurrrl, he got that good hair!" "Dang, she fine with those green eyes and light skin." "What's up, my n***a?" "That's my ride or die b****!" These are only a few examples of the things we say to each other and unfortunately, these phrases have been passed down to generation to generation. Some people who use these phrases may think they're taking a negative term and making it positive, but in reality, they're negatively impacting themselves and those around them. How can you possibly love yourself, love others, and accomplish your dreams if you use negative terms to refer to yourselves and other people? It's time to remove those shackles and stop placing limitations on yourselves.
Growing and Sustaining Your Wealth is a topic that as women can be very uncomfortable to talk about. Historically, we haven't been included in these issues and as a result are not well versed in the ins and outs. Join Kate Seastone, CEO of Simplicit Financial as she explains why we need to stop building a budget and start building a spending plan.
in Self Help
Today Bec Campbell talks to our very first LAD if the light Gido Schimanski about the Imposter Sydrome. Gido is a transformational coach who helps high acheivers in creative industries to let go of the fear of not being good enough so they can shine their light big and bright.
Connect with Gido: www.gidoschimanski.com Connect with Rebecca: www.rebeccacampbell.me
Justin Sigler is a clean comedian from Southern California, who was mentored by Nazareth, a professional Christian comedian. Since July 2011, he has performed at comedy clubs and church youth groups, making audiences laugh with his visual and verbal humor. In his act, Justin makes observations on life that the audience can relate to. Having Asperger Syndrome offers him the opportunity to infuse his material with a unique comedic perspective. Justin is a formerly homeschooled student, a 4th Degree Black Belt and head instructor at Journey Martial Arts, a musician, and a college student majoring in Communications.
Learn how to successfully Secure the Funding You Need!
Are you looking to expand your reach as an entrepreneur and business owner but unsure how to secure the necessary funding to take you to the next level? Do you find the world of financing and small business loans to be overwhelming, confusing or otherwise difficult to understand? If so, you won’t want to miss our guest Mary Holman, Senior Vice President and Manager of the Retail Lending
Department for National Bank of Arizona, as she simplifies this process, debunks the myths and prepares you to secure the necessary funding that will catapult your business.