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October is National Rett Syndrome Awareness month. Rett Syndrome (RS) is a genetic neurological disorder. After a period of early normal development a regression leads to severe multiple handicaps. Rett Syndrome appears to be a classic example of a disorder of chromatin, the highly condensed form in which DNA is stored within the cell. Treatments vary from daily medications to physical therapy. Many focus on assisting the patient in having the best quality of life, but there is no known cure to help reverse the genetic damage.
Meet Alicia Bryant, a native of Kinston North Carolina. She is graduate of Fayetteville State University and holds a BA in Political Science. She continued her education at Lenoir Community College to obtain her Cosmetology License, shortly after opening her own Salon.
She and her husband have a beautiful 8 year old daughter, Jailynn Amani. When Jailynn was 2 she was diagnosed with a condition called Rett Syndrome. Alicia and her husband had no idea what this condition was, however in the process of becoming educated and learning more about the condition, they started a foundation in hopes of raising awareness in the community about the condition. Thanks to all the love and support from her family, Jailynn has beat all odds.
"We thank God for his grace and mercy." ~ Alicia Bryant
Listen to The Keep It Moving Blog Talk Radio Show on Monday 10/13/2014 @8pm to learn about Rett Syndrome and its affects. Hear Alicia's testimony of unconditional love and caring for her daughter Jailynn.
Rosemarie Young and Ducan Miller are activists and advocates with a mission to heal and bring world wide attention to the debilitating disease that strikes young girls and leaves them physically incapacitated with the main means of communication only thru eye movements. The disease is Retts Syndrome and they will share their stories and their passion on this episode of "Upbeat". So tune in for an in depth discussion on what it takes to become a leader and promoter of world wide events. Duncan will be joining us from the UK.
The Topical Hour, Rett Syndrome
Zohar Levitan speaks with James Westgate and Duncan Miller about Rett Syndrome. This syndrome affects about 1 in 10,000 girls in the first 2 years of their lives and requires that the girls receive 24/7 attention in order to be able to function in a minimal amount. Our guests will tell us about the syndrome, how it has affected their lives as a family and what is being done to try and cure this. We will also hear some ways in which the parents are helped treat the syndrome. For more on this topic visit www.curerett.org.uk, facebook.com/curerett, twitter @curerett.
Joyce and Mike speak with Georgia Hurst as part of Lynch Syndrome Awareness Week.
Georgia Hurst is a patient advocate for those with Lynch syndrome. She is the founder of the website and blog: <a href="http://ihavelynchsyndrome.com">ihavelynchsyndrome.com</a>. She frequently writes about the emotional aspects of having Lynch syndrome, and writes for various websites and journals in order to create awareness amongst the global medical community about this hereditary cancer syndrome. Georgia is a wife and mother, and loves espresso, books, and being bossed around by her adorable dog named Sid.
What is Lynch syndrome? We will learn more from Georgia, or you can read about it on her website, or in this article from <a href="http://http://www.curetoday.com/community/georgia-hurst/2015/02/i-have-lynch-syndrome">www.curetoday.com</a>
Georgia noticed that there were several people in her family who had cancer at early ages, and several with the same cancer. This can indicate that there is something genetic predisposing family members to cancer. She delved deeper, got to a diagnosis, and kept asking questions, finding out how to protect herself and others in her family from the worst consequences of this condition.
Hear her remarkable story, the path she followed in doing her own research, and the partnerships she has developed with medical professionals to help her make progress for herself and others.
Gregarious Greg shares an eight minute podcast about the boredom syndrome. This segment is meant to be inspirational and motivating. Greg has placed this segment in the M.E.T project format.
There exist pitfalls when trying to evolve your own legacy. In moments of stagnation and confusion, it is important to see the light at the end of the tunnel.
Therefore Greg has shared examples of the boredom syndrome. He reminds his audience that his father was a scientist; this profession involved extensive research. It is with this in mind that Greg decided to place this podcast in the segment dedicated to his father.
We hope to keep you inspired here at " The Heritage & legacy Evolvement Forum " especially at times when discouragement sets in.
Much of the information about PCOS focuses on weight loss, but what if you are a lean woman with PCOS?
Dr. Daniel Dumesic joins the PCOS Challenge radio show to speak about lean women with PCOS. Dr. Dumesic is Professor and Division Chief of Reproductive Endocrinology and Infertility, Department of Obstetrics and Gynecology at the University of California, Los Angeles.
Join other women in the fight against polycystic ovary syndrome at PCOSChallenge.com.
It’s a well-known fact that developed countries suffer from an epidemic of allergies and chronic conditions such as IBS, arthritis, diabetes, cancer and heart disease. What is not so well known is that the majority of these illnesses – according to our guest today – are linked to poor gastrointestinal health, otherwise known as ‘leaky gut syndrome’.
In this inteview we will speak with Douglas Wyatt, Founder and Medical Director for the Center for Nutritional Research and CEO of Sovereign Laboratories is here today to discuss Leaky Gut Syndrome and why it’s such an important health issue today.
Meet top integrative, holistic and wellness-oriented physicians, authors and celebrities at the upcoming NAVEL wellness expo.
In recognition of Rare Disease Day February 28, 2011 Tara welcomes guest Syndi Ridenour Knowlton and Paige Nues, Director of Family Support for the International Rett Syndrome Foundation.
In an effort to bring awareness to the rare disease please tune in and learn about Rett Syndrome and the work that the foundations is doing.
Shelley Bowen is the Director of Family Services and Awareness for the Barth Syndrome Foundation (BSF).
BSF works to increase awareness on a global level among the medical community, academic community, the medical research community and the lay population about Barth Syndrome. There are better strategies today than ever before for living with Barth Syndrome. Nonetheless, it often shortens the lifespan of people, especially children.
Shelley speaks with Mike and Joyce about life with Barth Syndrome, and how families cope when life ends.
For more information about Barth Syndrome, see https://www.barthsyndrome.org
Karen Ball, CEO of the Sturge-Weber Foundation, speaks with Joyce about Sturge-Weber syndrome (SWS) and the challenges faced by people with this condition. The Sturge-Weber Foundation provides support and services for individuals with Sturge-Weber syndrome, Port Wine Stain Birthmarks, and Klippel-Trenaunay syndrome.
Sturge-Weber Syndrome (encephelotrigeminal angiomatosis) is a congenital, non-familial disorder of unknown incidence and cause. It is characterized by a congenital facial birthmark and neurological abnormalities. Other symptoms associated with Sturge-Weber can include eye and internal organ irregularities. Each case of Sturge-Weber Syndrome is unique and exhibits the characterizing findings to varying degrees.
Because of the physical differences that people with SWS often have, they are frequently the object of rude or bullying behaviors. Sturge-Weber Foundation has taken up this challenge on behalf of all those with differences in their BullyBeGone Challenge.
Come chat with Karen and Joyce.
in Self Help
Join our guest tonight Moses Chism License Professional Counselor and Life Coach as we discuss the Angry Black Women syndrome. Media and print portray Black women as rude, loud, malicious, stubborn, and overbearing is this a perpetuated stereotype or Black women the modern day Sapphire.
JOIN ME AND CO-HOST: GENESIS BLU FOR OUR 2ND EPISODE! "THE CIRCUS SYNDROME"..PLUS GUEST: ROZIER..
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