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October is National Rett Syndrome Awareness month. Rett Syndrome (RS) is a genetic neurological disorder. After a period of early normal development a regression leads to severe multiple handicaps. Rett Syndrome appears to be a classic example of a disorder of chromatin, the highly condensed form in which DNA is stored within the cell. Treatments vary from daily medications to physical therapy. Many focus on assisting the patient in having the best quality of life, but there is no known cure to help reverse the genetic damage.
Meet Alicia Bryant, a native of Kinston North Carolina. She is graduate of Fayetteville State University and holds a BA in Political Science. She continued her education at Lenoir Community College to obtain her Cosmetology License, shortly after opening her own Salon.
She and her husband have a beautiful 8 year old daughter, Jailynn Amani. When Jailynn was 2 she was diagnosed with a condition called Rett Syndrome. Alicia and her husband had no idea what this condition was, however in the process of becoming educated and learning more about the condition, they started a foundation in hopes of raising awareness in the community about the condition. Thanks to all the love and support from her family, Jailynn has beat all odds.
"We thank God for his grace and mercy." ~ Alicia Bryant
Listen to The Keep It Moving Blog Talk Radio Show on Monday 10/13/2014 @8pm to learn about Rett Syndrome and its affects. Hear Alicia's testimony of unconditional love and caring for her daughter Jailynn.
Rosemarie Young and Ducan Miller are activists and advocates with a mission to heal and bring world wide attention to the debilitating disease that strikes young girls and leaves them physically incapacitated with the main means of communication only thru eye movements. The disease is Retts Syndrome and they will share their stories and their passion on this episode of "Upbeat". So tune in for an in depth discussion on what it takes to become a leader and promoter of world wide events. Duncan will be joining us from the UK.
The Topical Hour, Rett Syndrome
Zohar Levitan speaks with James Westgate and Duncan Miller about Rett Syndrome. This syndrome affects about 1 in 10,000 girls in the first 2 years of their lives and requires that the girls receive 24/7 attention in order to be able to function in a minimal amount. Our guests will tell us about the syndrome, how it has affected their lives as a family and what is being done to try and cure this. We will also hear some ways in which the parents are helped treat the syndrome. For more on this topic visit www.curerett.org.uk, facebook.com/curerett, twitter @curerett.
Ben Magno is an Bangor, ME artist and rett syndrome single father. His unique and powerful story about caring and raising his two children, one with debilitating rett syndrome. Join Rosemarie and Tom as they discuss the challenges of parenthood, vocation and living with a fascinating character.
Impostor syndrome is the feeling that you’re a fraud—that you’re somehow less qualified, less deserving of success. There is the fear that you’ll be “found out," which may lead you to attempt to work longer and harder than others. This can be a source of resentment, exhaustion, and a sense of impending doom. While Impostor Syndrome is not solely the domain of alcoholics, many of us report deep attachments to perfectionism and, it's cousin, Impostor Syndrome. Many of us drank over our feelings of resentment and fear arising from the core belief that we were frauds. Now that we are sober, we can bring these fears into the light of truth. When we think, "I'm a fraud," instead of drinking, we ask, "Is that true?" We connect with our recovery communities and see the truth of our own self-worth reflected back at us in the faces of our sober friends. We learn to discard these old patterns of thinking and replace them with healthier, more balanced ones. In recovery, we find freedom from the tyranny of Impostor Syndrome.
The 'Olivia Pope Syndrome'
Psychotherapist Sabrena Barnes-McAllister discusses her personal and professional experiences with what she has termed "The Olivia Pope Syndrome" - why do women knowingly - or perahps unknowingly - fall for unavailable men - and stay in what are ultimately unfulfilling and painful relationships?
Joyce and Mike speak with Georgia Hurst as part of Lynch Syndrome Awareness Week.
Georgia Hurst is a patient advocate for those with Lynch syndrome. She is the founder of the website and blog: <a href="http://ihavelynchsyndrome.com">ihavelynchsyndrome.com</a>. She frequently writes about the emotional aspects of having Lynch syndrome, and writes for various websites and journals in order to create awareness amongst the global medical community about this hereditary cancer syndrome. Georgia is a wife and mother, and loves espresso, books, and being bossed around by her adorable dog named Sid.
What is Lynch syndrome? We will learn more from Georgia, or you can read about it on her website, or in this article from <a href="http://http://www.curetoday.com/community/georgia-hurst/2015/02/i-have-lynch-syndrome">www.curetoday.com</a>
Georgia noticed that there were several people in her family who had cancer at early ages, and several with the same cancer. This can indicate that there is something genetic predisposing family members to cancer. She delved deeper, got to a diagnosis, and kept asking questions, finding out how to protect herself and others in her family from the worst consequences of this condition.
Hear her remarkable story, the path she followed in doing her own research, and the partnerships she has developed with medical professionals to help her make progress for herself and others.
Tonight on "Living Off The Grid Radio" Mr. Charles Tyler and guess shall be asking the question:
"Do African American Women Suffer From Stockholm Syndrome ?"
The demographic is not limited to black women, but to women across the board.
Stockholm Syndrome (as in relationship to our show tonight) is when an abused woman feels and expresses positive feelings towards the person who abuses them..........even to the point of defending them.
The fact that (some NOT ALL) black women "could" have Stockholm Syndrome explain why many women do not like "nice guys" ?
Now, more than ever before, parents are finding out in utero if their baby will be born with some kind of congenital birth defect. One potentially fatal congenital heart defect is hypoplastic left heart syndrome (or HLHS). According to Texas Children's Hospital, this occurs in about 1 in 6,000 live births when the fetus's left side of the heart does not develop normally. Boston Children's Hospital led the way for babies diagnosed in utero with HLHS by creating an in utero procedure to reduce the severity of HLHS or, in some cases, to prevent the critical congenital heart defect from actually occurring -- allowing the baby's heart to eventually work with four pumping chambers (instead of the 2 chambers so many HLHS babies have). Today's show will feature a couple who traveled to Boston when they discovered their unborn child would have HLHS. How dangerous was the surgery? How many surgeries did their son need? What is their son's prognosis? Listen to this show for answers to these questions and more!
Gregarious Greg shares an eight minute podcast about the boredom syndrome. This segment is meant to be inspirational and motivating. Greg has placed this segment in the M.E.T project format.
There exist pitfalls when trying to evolve your own legacy. In moments of stagnation and confusion, it is important to see the light at the end of the tunnel.
Therefore Greg has shared examples of the boredom syndrome. He reminds his audience that his father was a scientist; this profession involved extensive research. It is with this in mind that Greg decided to place this podcast in the segment dedicated to his father.
We hope to keep you inspired here at " The Heritage & legacy Evolvement Forum " especially at times when discouragement sets in.
Much of the information about PCOS focuses on weight loss, but what if you are a lean woman with PCOS?
Dr. Daniel Dumesic joins the PCOS Challenge radio show to speak about lean women with PCOS. Dr. Dumesic is Professor and Division Chief of Reproductive Endocrinology and Infertility, Department of Obstetrics and Gynecology at the University of California, Los Angeles.
Join other women in the fight against polycystic ovary syndrome at PCOSChallenge.com.
It’s a well-known fact that developed countries suffer from an epidemic of allergies and chronic conditions such as IBS, arthritis, diabetes, cancer and heart disease. What is not so well known is that the majority of these illnesses – according to our guest today – are linked to poor gastrointestinal health, otherwise known as ‘leaky gut syndrome’.
In this inteview we will speak with Douglas Wyatt, Founder and Medical Director for the Center for Nutritional Research and CEO of Sovereign Laboratories is here today to discuss Leaky Gut Syndrome and why it’s such an important health issue today.
Meet top integrative, holistic and wellness-oriented physicians, authors and celebrities at the upcoming NAVEL wellness expo.