• 00:59

    DSMALive 'Rents: diaTribe to Host DOC Meeting with FDA

    in Health

    Kelly and Adam of diaTribe talk with 'Rents about the online DOC conversation hosted by FDA that they will moderate November 3. 


    Kelly L. Close is the president of Close Concerns, Inc., a healthcare information firm focused on diabetes and obesity, and is the editor in chief of diaTribe, a free monthly online newsletter focused on new research and products for people with diabetes (diaTribe.org). A longtime diabetes advocate, Kelly is on the board of directors of the Diabetes Hands Foundation and the Behavioral Diabetes Institute.


    Adam heads technology coverage for Close Concerns. He graduated summa cum laude from the Wharton School at Penn. in 2011where he was a Joseph Wharton and Ben Franklin Scholar.


    Kelly, Adam and colleagues write about 3 million words on diabetes each year.

  • 01:04

    DSMALive 'Rents: Pumping, Pumps and Parenting

    in Health

    'Rents talks stuff, specifically pumps. The pros and cons of pumping and specififc pumps is a fequent question of parents. We will chat about pumping, pumps and parenting. 

  • 01:01

    DSMALive 'Rents: Sandy Struss on Diabetes, Canada and Roses

    in Health

    Sandy Struss joins Lorraine and Bennet to share here experiences, some of the nuances of the Canadian health system and Spare A Rose. 


    Diagnosed as a teen Sandy has brought diabetes along through her life's adventures. Including trying to be normal, education overseas, tough mudders and surfing. 


    Sandy is helping to bring Spare A Rose to wider participation in Canada this year so we chat about Rose too. 

  • 01:03

    DSMALive 'Rents: CGM in the Cloud

    in Health

    John and Laura Costik talk with Lorraine and Bennet about life with diabetes and parenting with CGM in the cloud. We hope to talk about the technology and beyond, how NightScout can be used to enhance kids' freedom and parents confidence.


    Laura Costik, is an Engineering Manager with Ortho-Clinical Diagnostics with degrees in Packaging Science, Industrial Engineering & Business from RIT. Laura is the Advocacy chair for the Rochester (Chapter) JDRF. 


    John Costik, is a Programmer/Analyst with Wegmans Food Markets with a degree in Mathematics & Computer Science from RIT. John authored the original Android Uploader app & Pebble watchface for use with the Dexcom G4.


    Both have dedicated their time and talents to helping their son manage type one diabetes, and sharing & supporting others with similar needs.


    Join the Community on Facebook:


    https://www.facebook.com/groups/cgminthecloud/


    Nightscout info


    http://www.nightscout.info/


    Read more at the Wll Stree Journal online:


    http://online.wsj.com/articles/citizen-hackers-concoct-upgrades-for-medical-devices-1411762843


     


     

  • 01:00

    DSMALive 'Rents: Anna and Pumpkins

    in Health

    As the Manager for Glu Community Outreach at T1D Exchange, a T1D online community, Anna works to provide the type I community with continual resources and ongoing connectivity for people affected by type I diabetes.


    We had a great time talking with Anna about Bionic Pancreas so we bringing her back. 


    We will talk T1D, Glu, You and what to do with old pumpkins. (Hint: Bennet says keep the out of the beer and coffee.)


    Links:


    https://smashdiabetes.org


    Glu:


    https://myglu.org


    Annad Bionic Panceas Adventure:


    http://www.blogtalkradio.com/diabetessocmed/2013/06/18/dsma-live-rents-bionic-pancreas

  • 01:06

    DSMALive 'Rents: Grown Kids with Melinda Vahradian

    in Health

    DSMALive 'Rents talks about being teh 'Rent of Grown Kids with Melinda Vahradian


     


    Melinda is the mother of 3 grown sons: Daniel, 25, getting his MS in Kinesiology at Cal State Fullerton, Michael 22, dxd with Type 1 diabetes on 6/30/97 at age 5, he just finished his BA in Psychology at UCSC in 3.5 years and is currently pursuing his dream of coaching soccer and Dylan, 20, a triple major ( Spanish, Political Science and Philosphy) at the University of Portland.


    She have been married to her husband, Scott, for 27 years. Melinda has been involved in teaching Special Education for the last 30 years.  She also enjoy  watercolor painting, photography, gardening, pets, and collecting sea glass.

  • 01:04

    DSMALive 'Rents: Forming a Local Support Group with Stacy Mitchell

    in Health

    Stacy Mitchell joins Loraine and Bennet to chat about building local, in real life support.


    Stacy is the mom of 5 year old kindergartner Caden James.  Caden James was diagnosed with type 1 diabetes in April 2011, two days after his second birthday.  Completely unaware of the disease or anyone currently living with type 1, Stacy reached out on social media to find other diabetic families. 


    Within a month of Caden James' diagnosis, Stacy became active with the Juvenile Diabetes Research Foundation (JDRF) Alabama chapter and worked to create a local outreach group called the Bolusers of Birmingham.  The Bolusers of Birmingham now have over 140 families affected by type 1 diabetes.  Caden James wears an Animas Ping insulin pump and a Dexcom G4 continuous glucose meter.  Nightscout, the CGM in The Cloud initiative, is also part of Caden James' apparatus.   Stacy and her family reside in Birmingham, Alabama.  

  • 01:04

    DSMALive 'Rents: Successful Teens, Natalie and Jim from CWD

    in Health

    Working with T1D teen. Natalie and Jim from CWD. 


    During the show chatting on Twitter at #DSMA


    Natalie Bellini, BSN, RN, CDE, has had type 1 diabetes since she was a young child. Within a year of finishing nursing school, she started to care for people with diabetes, focusing first on diabetes in pregnancy then pediatrics and insulin requiring adults. She has worked on the medical side of camps for children and teens in Maryland, Delaware and Pennsylvania. She has spoken nationally and internationally as an expert in both working with teens and their parents with diabetes as well as infusion set choice, usage and maintenance. Her fundamental goal when developing the teenage curriculum for Children with Diabetes conferences is that each and every teen that attends finds a passion in life and pursues it.


    Jim Vail was diagnosed with type 1 diabetes in 1986 at age 19 while he was a sophomore at the State University of New York at Fredonia. Jim graduated with a degree in Media Communications and was a producer for CNBC Business news in Washington, D.C., for 9 years all the while wrestling with the unpredictability of short and intermediate acting insulin. After finally going on a pump in October of 2001 and 'getting his life back,' Jim began volunteering at CWD in the teen program where he quickly became one of the Program Coordinators. He's worn, tested or personally used virtually every product represented in the Exhibit Hall. Jim has recently accepted the position of Director of Development and Communications for CWD.

  • 00:16

    DSMALive ‘Rents: Kerri's Book

    in Health

    DSMA Live Parents Talk with Kerri Sparling.


    Her new book is available on Amazon and other fine book outlets. 


    Balancing Diabetes: Conversations About Finding Happiness and Living Well


    When a person receives a diagnosis of diabetes, he or she starts a process of adjusting and making sense of the new normal living with a chronic disease. A large part of that adjustment is figuring out how to balance diabetes with all the intricacies of a life outside of diabetes care. In Balancing Diabetes, diabetes online community blogger Kerri Sparling compiles strategies used by people with diabetes and their caregivers to bring that elusive balance into their lives. Whether adult or child, type 1 or type 2, spouse or caregiver, male or female, people in the diabetes world will find themselves in this book and be inspired by the commonality of that continuing search for balance.

  • 01:00

    DSMALive 'Rents: A Mile in My Shoes - Joe Solowiejczyk

    in Health

    Joe Solowiejczyk is a healthcare professional who has lived with Type 1 diabetes for over 40 years.  Joe is President and founder of A Mile in My Shoes, a company that publishes books & produces videos on patient self-management and psychological coping as well as providing counseling and training to patients, families and health care professionals.


    Having worked in the field of diabetes for over 35 years, and a person living with Type 1 diabetes for 52 years, his work focuses on translating his personal & professional experiences into unique patient care programs. As a nurse, diabetes educator and family therapist, he specializes in assessing how family dynamics impact the management of diabetes and designs interventions that result in more effective coping and optimal metabolic control.


    Joe works extensively with both patients and professionals on the Family-Approach to Diabetes Management. He works with pediatric patients and their families in hospital clinics and private physicians’ offices, and conducts workshops nationally and abroad for parents to help them cope with their child’s diagnosis and daily challenge of living with diabetes. He designs educational and counseling programs for both children and adults with diabetes, as well as seminars for health care professionals on integrating family therapy into clinical practice.  


    He is a faculty member of the Johnson & Johnson Diabetes Institute and Children with Diabetes. As President of A Mile In My Shoes, Joe provides consulting expertise to pharmaceutical companies and health care marketing firms in the development of unique and positive partnerships among healthcare professionals, patients and products.  


    Joe has appeared in San Francisco/Bay Area newspapers, local and national television and radio, as well as NPR's “All Things Considered”.


     

  • 01:02

    DSMA Live: 'Rents | Katy from "Bigfoot Child Have Diabetes"

    in Health

    Katy Killilea, who writes at "Bigfoot Child Have Diabetes" joins us to talk about diabetes, LADA, TrialNet, celiac and more. 


    Katy started writing the blog Bigfoot Child Have Diabetes from her son Briggs's hospital room the day he was diagnosed with Type 1 diabetes in 2011. Since that day, her older son has become a test subject in a drug trial to prevent Type 1 diabetes, she has been diagnosed with Type 1 diabetes herself, and her younger son has been diagnosed with celiac disease. The boys are now eleven and thirteen years old.  

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