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After introduction and disclaimer, Dr Synonymous (aka, Dr Jonas) comments on recent events with the death of his father in law. Next he discusses a rare disease: fibrodysplasia ossificans progressiva (FOP). He follows information about it through the IFOP web site/ Facebook site, then to NHGRI and OMIM with in depth comments from those sites. He notes a feature about Behcet's Syndrome on the NHGRI site before speaking of National Rare Disease Day, February 28th. He then r
No joke.... February 28th has actually been designated as "Rare Disease Day". And while the pain and suffering of those with these "unknown" ailments is quite real, we can't ignore the madness of having so many "rare diseases" (7000 are currently listed by the National Institute of Health) that we now require an official day for them! Join Dr. Jeff and Chaim as they explore this relatively new "medical holiday", what's really behind it, and the t
Liz is the amazing, Director at CoRDS. Today we will learn what the Coordination of Rare Diseases at Sanford (CoRDS) is doing to help people with rare disease.Liz will share important information because CoRDS is a registry that stores information on individuals affected by a rare disease to help accelerate research into rare diseases. It was developed because access to information about rare diseases presents a challenge to researchers, physicians, patients and their families.CoRDS provides a
The Business of DisEase is a groundbreaking documentary exploring the vastness of human potential despite the restrictions of programmed beliefs. For the sheer purpose of profit and control illness is marketed to the minds of the unsuspecting masses. The results? A society programmed for sickness and death.
Our own Sharry Edwards is one of the leaders in alternative health that is featured in this film. Join Sharry and Richard as they speak with Sonia Barrett-Producer/Director of the Business of Disease; who is she exposing, what is she exposing. She dared to tell the TRUTH. HEAR it HERE.
Sonia is the author of The Holographic Canvas: The Fusing of Mind and Matter published in September 2008 and her upcoming book . She is also the host of Sovereign Mind Radio and publisher of Sovereign Mind Magazine.
------------------------------------------------------- To join the online meeting (Now from mobile devices!) ------------------------------------------------------- 1. Go to https://soundhealth.webex.com/soundhealth/j.php?ED=215173602&UID=1352048342&PW=NYWE2NGYyYjgx&RT=MiMxMQ%3D%3D 2. If requested, enter your name and email address. 3. If a password is required, enter the meeting password: BTR5192013 4. Click "Join".
For most of us, when we go to the doctor with symptoms, we are diagnosed and treated. Imagine going to the doctor and being told there were no answers as to why the symptoms were occurring. Then imagine, this is your child and all the specialists referred to have no answers. What if you were told this was a rare illness and no one knew how to diagnosis it? What would you do?
This is the story Heather Long is going to talk about on this week's show. One of Heather Long’s three children (Cal) passed away in 2006 at five years old to an undiagnosed disease. Heather was told that her son’s death was likely caused by a very rare metabolic disease, and she has since focused her energies on being an advocate for patients suffering from undiagnosed and rare diseases.
In 2008, Heather co-founded a nonprofit organization, U.R. Our Hope., that assists individuals and families who are on the journey of finding a diagnosis or are navigating through the health care system after a rare diagnosis. In 2011, Heather co-authored H.R. 2671- The CAL Undiagnosed Diseases Research and Collaboration Network Act, which was proposed in the 112th Congress and is scheduled to be re-introduced during the current 113th session. And recently, Heather proudly joined the Global Genes Advocacy Leadership Group.
May 9, 2009 that's when we launched the 3rd EyE Open's Galactic Radio Mothership Since you have supported our dedication to empower the Galaxy. We thank you for the continuous support of our listeners. Call into the party just to shout out or drop a word. By the thousands each month you have checked in as we bring you the most timely topics to breakdown and examine: ObamaCare, Jena 6, mortgage fraud, Relationships, Red Tails, Jim Zorn, Iraq War, Bank bailouts, Ray Charles, Tea Baggers, raising children, Election 2012. Our mission has been to bring U those people on the ground doing what they're talking about, NOT those people talking about what someone else is not doing.(That wasn't 4 errybody, if U got it U got it) Guest Griots include Brian Heat http://www.youtube.com/watch?v=FZtm2VdEQGM . Joe Recca-Comedian BET, Showtime, Nakeesha Harris-Medical Missionary, Judge Ulyses Boykin (Deyroit), Fred Foster-Fmr Nat. Champ from "The U", Teleah Scott-Williams-Playwrite/Director, Willbert Skipper-Mr. EmpowerMeant/Trainer, Gene McBride-Musician/Singer EWF Cover, Bill Hall-CEO Adamshouse International, Willie Brown-Vetriloquist/Entrepreneur, Rev. Val Love- Speaker/Life Coach, David Lewis-Partner Lewis & Mundy Law, Rueben Mundy-Partner Lewis & Mundy Law,Kimberly Hollingsworth-Sports Entrepreneur MLB,Tony Woods-Comedian Def Jam, BET... Phil Ward-Entrepreneur/Race Horse Owner, Janks Mortons-Prod/Dir "DEAR DADDY, Bubba Grimes-TV Host/Author, Tamara Wellons-Vocalist/Performer, Sillk Da Shocker-Rapper/Entrepreneur, Ersky Freeman-PinPoints/Medical Missionary... hosted by Visionary/Creator "DaOne" with NAISA producer/writer Co-Host, Featuring The Human "Encyclo-negro-pedia" C. R. GIBBS Connecting Dots - From Generation to Generation" & a special sports report from 3EO Sportsbeat Writer ANTHONY ADEWUSI
Marie Langlie and Beth Jacobson, hosts of Divine Goddess Radio, will be joined by Paula Quinlan, a Healthy Living Coach, Educator and Speaker. Paula reclaimed her life from chronic lyme disease the natural, healthy way. May is Lyme Disease Awareness Month in Minnesota and Paula will be sharing her knowledge of this disease and educating listeners on prevention and care.
Paula's contact information:
612.719.0228 http://paulaquinlan.com Our contact info: firstname.lastname@example.org
Beth Jacobson 651-900-4136
Marie Langlie 651-303-0555
Our blog: http://divinegoddessradio.wordpress.com/
Were you recently diagnosed with celiac disease? Are you struggling with what to do after you left the doctor's office?
This podcast is for you.
Rebecca covers what to expect after your diagnosis including:
1. Emotions you will feel
2. Tips to get through everything
3. A get started guide on living gluten free
4. Major changes in your life that need to happen for you to be succesful
I will be taking calls live so hopefully you can tune in to listen!
Live at 7pm ET along with a simulcast on WNJC 1360 AM (www.wnjc1360.com) in the Philadelphia radio market. We are talking the latest in the NFL and with the Eagles. Also fielding discussion with the Phillies, Flyers & Sixers. Join Jim Collins, Ray Moffo (Sports Maniacs on WNJC 1360 Tues night at 10pm) & Scott Ciglinsky (phillysportsspace.com)