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Fran Mott has been the Chapter Leader in Michigan for the VHL Family Alliance since 1994. What that means is that she is in charge of taking care of people with von Hippel-Lindau throughout Michigan.
Von Hippel-Lindau (VHL) is a genetic cancer syndrome, caused by one tiny misspelling in one gene, the VHL gene. People who carry this alteration are at increased risk of having one or more tumors in a variety of places in the body. There is currently no magical cure, it's all about watching out for issues, finding them early, and getting the right treatment at the right time.
Fran has worked with physicians at University of Michigan Medical Center and other hospitals throughout the state to become more aware of VHL, diagnose it earlier and more accurately, and help people manage their health. The University of Michigan has created a Clinical Care Center for VHL, part of the CCC program of the VHL Alliance.
Fran is retiring this year after nearly 20 years of volunteer service to her neighbors throughout the state. Joyce speaks with Fran about her experience as a patient herself, a mother, and a volunteer in service to others with this rare disease.
The VHL Alliance will hold its Annual Meeting September 21, 2013, in Ann Arbor, with a dinner September 20 honoring Fran and Dr. James Montie of the U of M.
For information or to register for the meeting, see http://vhl.org/meetings
Early in EMS education we are presented with the idea that "time" is a factor in much of what we do. Golden Hours, Platinum Ten Minutes, Time is Muscle etc.
While some of these can help us with our treatment and transport decisions, have you ever wondered or questioned if they are getting in the way of patient care?
As EMS providers we bring much of the Emergency Department to the patient. Even more so we are expected to provide certain levels of care to our patients prior to delivery to these ED's.
I am sure that you have been questioned or made to feel like less of a provider when you don't provide certain aspects of care. Even when it was due to trying to follow dictated "time" constraints that are expected and may have been in the patients better interest to transport rather than perform a skill prior to arrival at the ED.
So what do you think? Are these time markers valuable to us as providers or helpful?
Do we end up focusing too much on them and not on what is best for the patient?
Join us for this episode as we discuss this and other popular EMS topics. Call in Toll Free or come into the chat room to share your opinion.
Visit Jim at EMSSEO.com
Check out Josh over at WANTYNU.com and be sure to look up his newest EMS Tool - The PALM.
Jane Cooper is founder, President and CEO of Patient Care, the nation’s leading advocacy company, based in Milwaukee, WI. The company began operations in August, 2001 and helped create the advocacy industry. Patient Care currently provides services for over 1 million members across the country.
Jane is a pioneer in health care reform. Her company equips consumers with information needed to make informed decisions. Her experience indicates when given cost and quality information consumers make better choices saving themselves and us money.
Come and join the Cautious Patient Communities where patients and families learn how to be informed and involved in their healthcare. This leads to better healthcare outcomes, as well as a sense of no longer being an outsider in your own care!
Take control and be part of the solution to learn more about being responsible and effective advocates for yourselves and your loved ones.
Join host Tami Neumann as she sits down in conversation with Carolyn Anderson, Administrator and Co-Founder of Thrive Assisted Living. Carolyn will share with Tami the unique concept of Thrive Assisted Living and why, in regard to Memory Care, Great Things DO Come in Small Packages.
Learn more about Michigan based Thrive Assisted Living.
Cassia started as a dialysis assistant in 2007 and in 2008
was promoted to a dialysis technician. Cassia's number one priority is
making sure that each patient that she has in her care is really handled
professionally in every way and the result is her patients appreciate her
so much. She has created a book called Expert Tips on Becoming A Dialysis
Technician. It is designed to give all those interested in becoming a
dialysis technician tips on how to be a real professional in a dialysis
environment, this book is also good for technicians that desire to brush up
on their skills. Her book explores ways to handle a patient in the best way
possible, do's and don'ts, how to listen to the patient and so much more.
Cassia knows this book will give great insight to dialysis patients and
will inspire new or experienced dialysis technicians to be the best
We focus a lot on response in EMS. Our response allong with our training can effect patient outcomes. But what about when response is the focus without equal attention to training. Getting there is only part of what we do, yet is often the one marker that is looked at when it comes to a patients outcome.
This week we talk about EMS response, call types, training and how they reflect on patient outcomes.
Does the 8-10 minute response have a positive impact or is it better training and equipment?
Join us for this discussion.
Hospice Care has been around for a long time and yet people are shy to talk about the subject. Marilyn Graves is an RN and a long time hospice care provider, she will enlighten us on the many benifts of this gentle and loving philosophy that offers amazing support to patients and their families in a time of their life when it is so desperately needed. Skilled hospice workers can make this most difficult time much easier on the patient and the family.
Shirley Gutkowski will try to find out the misconceptions related to hospice care and also find out the many positives when hospice is done right. Hospice care is a way to add dignity and love at a time when patients and their families are the most vulnerable. Tune in to listen and learn about this very special way to get the most life out of all your days.
http://www.nhpco.org/ National Hospice and Palliative Care Organization
https://www.hpna.org Hospice and Palliative Nurses Association
http://www.dyingwell.org/ about author Dr. Ira Byock, a great advocate for patient and family rights
http://www.npr.org/programs/death/ Exploring Death in America- NPR programs
Host: Shirely Gutkowski
Producer: Laurie Samuels
World Alzheimer's Month unites opinion leaders, people with dementia, their carers and family, medical professionals, researchers and the media from all around the world.
Having a globally coordinated awareness Month and Day sends a strong message to governments and policy makers alerting them of the fact that dementia is a serious health issue which will have serious implications on services and health systems around the world as the world's population grows older. In addition, by focusing on a different message each year, the month can be used to educate and challenge people's misconceptions about dementia.
In observance of World Alzheimer's month I have invited author, Karen Tyrell to talk about the importance of brain health, understanding the warning signs and her book, Cracking The Dementia Code - Creative Solutions to Cope with Changed Behaviours.
Child Care Owners and Directors listen in as Julie Bartkus and Mary Saad share an exciting opportunity to Grow your child care business!
The International Early Childhood Conference 2014 aims to provide early childhood Australia providers, service delivery managers and early childhood professionals with quality subjects and speakers that reflect the current topics that are influencing early childhood today.The conference is designed to address common challenges such as staffing, early years learning, motivation and leadership however, also acts as an opportunity to inspire, advocate and present the different pedagogical approaches to early childhood education.
Join Internationally known, Child Care Business Coach Julie Bartkus in Hawaii!
Here's the link:
Monday night, November 11, meet Jeff. Learn about how he spoke up and his actions of being informed and getting involved changed the course of his care and maybe even saved his life!
About CPC Blog Talk Radio: Join us as we chat about how we became Cautious Patients. Cautious Patient Communities is a group where patients and families learn how to be informed and involved in their healthcare. This leads to better healthcare outcomes, as well as a sense of no longer being an outsider in your own care!
Now we can share what has worked during this 30 minute Blog Talk Radio show!
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