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Fran Mott has been the Chapter Leader in Michigan for the VHL Family Alliance since 1994. What that means is that she is in charge of taking care of people with von Hippel-Lindau throughout Michigan.
Von Hippel-Lindau (VHL) is a genetic cancer syndrome, caused by one tiny misspelling in one gene, the VHL gene. People who carry this alteration are at increased risk of having one or more tumors in a variety of places in the body. There is currently no magical cure, it's all about watching out for issues, finding them early, and getting the right treatment at the right time.
Fran has worked with physicians at University of Michigan Medical Center and other hospitals throughout the state to become more aware of VHL, diagnose it earlier and more accurately, and help people manage their health. The University of Michigan has created a Clinical Care Center for VHL, part of the CCC program of the VHL Alliance.
Fran is retiring this year after nearly 20 years of volunteer service to her neighbors throughout the state. Joyce speaks with Fran about her experience as a patient herself, a mother, and a volunteer in service to others with this rare disease.
The VHL Alliance will hold its Annual Meeting September 21, 2013, in Ann Arbor, with a dinner September 20 honoring Fran and Dr. James Montie of the U of M.
For information or to register for the meeting, see http://vhl.org/meetings
Father Donald E. Mowery is the retired leader of Youth Services globally. He has had a radio show, Talk it Out with Father Don, on WHBQ radio in Memphis, Tennessee, for the past 45 years. This month Joyce Graff appeared on his show. Joyce and Father Don have a great conversation about Powerful Patient and its mission, and also about Youth Services and its mission, highlighting many parallels. In both cases, they work to empower people to work through the issues they cannot change and tackle constructively the things they can change.
Learn more about Father Don. A new book, Spiritual Networking, by Darrell B. Uselton and David Yawn, recounts the history of Youth Services in Memphis and worldwide.
Mike and Joyce speak with Dr. Julia Hallisy about The Empowered Patient Coalition: providing healthcare improvement and patient safety tools directly to consumers.
About Dr. Hallisy:
Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since that time, she has been a full-time practicing San Francisco dentist.
Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
Dr. Hallisy began to research the topic of patient safety in 1998. She has lobbied for health care reform in Washington, DC with Consumer’s Union.
Dr. Hallisy is committed to and passionate about the subjects of patient safety, health care reform and medical error reduction. She is the founder and president of The Empowered Patient Coalition.
Dr. Hallisy was born and raised in San Francisco, where she lives with her husband, John Hallisy, and their two sons, Daniel and Kevin. The Hallisy’s ten-year old daughter, Kate, lost her life-long battle with cancer in February 2000.
Early in EMS education we are presented with the idea that "time" is a factor in much of what we do. Golden Hours, Platinum Ten Minutes, Time is Muscle etc.
While some of these can help us with our treatment and transport decisions, have you ever wondered or questioned if they are getting in the way of patient care?
As EMS providers we bring much of the Emergency Department to the patient. Even more so we are expected to provide certain levels of care to our patients prior to delivery to these ED's.
I am sure that you have been questioned or made to feel like less of a provider when you don't provide certain aspects of care. Even when it was due to trying to follow dictated "time" constraints that are expected and may have been in the patients better interest to transport rather than perform a skill prior to arrival at the ED.
So what do you think? Are these time markers valuable to us as providers or helpful?
Do we end up focusing too much on them and not on what is best for the patient?
Join us for this episode as we discuss this and other popular EMS topics. Call in Toll Free or come into the chat room to share your opinion.
Visit Jim at EMSSEO.com
Check out Josh over at WANTYNU.com and be sure to look up his newest EMS Tool - The PALM.
Due to studio difficulties this was rescheduled for October 2, 2014
Cassia Hill started as a dialysis assistant in 2007 and in 2008
was promoted to a dialysis technician. Cassia's number one priority is
making sure that each patient that she has in her care is really handled
professionally in every way and the result is her patients appreciate her
so much. She has created a book called Expert Tips on Becoming A Dialysis
Technician. It is designed to give all those interested in becoming a
dialysis technician tips on how to be a real professional in a dialysis
environment, this book is also good for technicians that desire to brush up
on their skills. Her book explores ways to handle a patient in the best way
possible, do's and don'ts, how to listen to the patient and so much more.
Cassia knows this book will give great insight to dialysis patients and
will inspire new or experienced dialysis technicians to be the best
Jane Cooper is founder, President and CEO of Patient Care, the nation’s leading advocacy company, based in Milwaukee, WI. The company began operations in August, 2001 and helped create the advocacy industry. Patient Care currently provides services for over 1 million members across the country.
Jane is a pioneer in health care reform. Her company equips consumers with information needed to make informed decisions. Her experience indicates when given cost and quality information consumers make better choices saving themselves and us money.
Come and join the Cautious Patient Communities where patients and families learn how to be informed and involved in their healthcare. This leads to better healthcare outcomes, as well as a sense of no longer being an outsider in your own care!
Take control and be part of the solution to learn more about being responsible and effective advocates for yourselves and your loved ones.
In this episode of The Fischer Report, host Tony Fischer, will be covering the different funding options for long term care. Medicare, Medicaid, Veterans Benefits, Medicaid Waiver, Non-Profit, Long Term Care Insurance and Third Party Health care insurance will be covered.
After listening to this general overview you will understand the differences between the funding sources, how to apply and where to get help applying.
Stay connect to The Fischer Report and the Care Radio Network by following us on Facebook and Twitter. @fischerreport @careradio
You can also catch other episodes of The Fischer Report right here on Blog Talk Radio.
We hope you enjoy this audio resource.
Mike and Joyce chat about the adventure of going outside your comfort zone for medical care.
Joyce has been hosting a family from a village on the west coast of Ecuador who are in Boston to get life-saving heart surgery for their son. Not only have they traveled a great distance, but Boston has very different weather than the tropical weather of Ecuador, the food is entirely different, and they don't speak any English.
They also chat about some of the highlights of the shows of 2014, and foreshadow next week's Christmas week show about considering clinical trials, and the resources that are available to assist you in finding and joining clinical trials that might be helpful in your situation.
Many thanks for listening in 2014, we hope you enjoy next week's show, and that you will be with us in 2015, happy and in good health.
Be well, and be a Powerful Patient.
The Affordable Care Act has changed the health care system in a number of ways. One of the changes is the advent of the Accountable Care Organization. This edition of The Fischer Report will focus on Accountable Care Organizations and explain how the changes will affect your health care providers. We will also provide links to online resources to help further your understanding of this this complex system.
We have prepared an online companion to our show highlighting this weeks topic here.
Where words fail, music speaks - Hans Christian Anderson
Today on Conversations In Care we will be exploring the role of Music Thearpy in care and healing. This unique therapy is utilized in many different care settings with patients of all ages. Join us in conversation as we learn more about this unique modality.
Host Tami Neumann, sits down in conversation with Max Lerman, Music Therapist from Peace Hospice and Palliative Care in the Chicagoland area. Max, provides music therapy services for individuals with terminal illnesses.
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