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Fran Mott has been the Chapter Leader in Michigan for the VHL Family Alliance since 1994. What that means is that she is in charge of taking care of people with von Hippel-Lindau throughout Michigan.
Von Hippel-Lindau (VHL) is a genetic cancer syndrome, caused by one tiny misspelling in one gene, the VHL gene. People who carry this alteration are at increased risk of having one or more tumors in a variety of places in the body. There is currently no magical cure, it's all about watching out for issues, finding them early, and getting the right treatment at the right time.
Fran has worked with physicians at University of Michigan Medical Center and other hospitals throughout the state to become more aware of VHL, diagnose it earlier and more accurately, and help people manage their health. The University of Michigan has created a Clinical Care Center for VHL, part of the CCC program of the VHL Alliance.
Fran is retiring this year after nearly 20 years of volunteer service to her neighbors throughout the state. Joyce speaks with Fran about her experience as a patient herself, a mother, and a volunteer in service to others with this rare disease.
The VHL Alliance will hold its Annual Meeting September 21, 2013, in Ann Arbor, with a dinner September 20 honoring Fran and Dr. James Montie of the U of M.
For information or to register for the meeting, see http://vhl.org/meetings
Father Donald E. Mowery is the retired leader of Youth Services globally. He has had a radio show, Talk it Out with Father Don, on WHBQ radio in Memphis, Tennessee, for the past 45 years. This month Joyce Graff appeared on his show. Joyce and Father Don have a great conversation about Powerful Patient and its mission, and also about Youth Services and its mission, highlighting many parallels. In both cases, they work to empower people to work through the issues they cannot change and tackle constructively the things they can change.
Learn more about Father Don. A new book, Spiritual Networking, by Darrell B. Uselton and David Yawn, recounts the history of Youth Services in Memphis and worldwide.
Mike and Joyce speak with Dr. Julia Hallisy about The Empowered Patient Coalition: providing healthcare improvement and patient safety tools directly to consumers.
About Dr. Hallisy:
Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since that time, she has been a full-time practicing San Francisco dentist.
Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
Dr. Hallisy began to research the topic of patient safety in 1998. She has lobbied for health care reform in Washington, DC with Consumer’s Union.
Dr. Hallisy is committed to and passionate about the subjects of patient safety, health care reform and medical error reduction. She is the founder and president of The Empowered Patient Coalition.
Dr. Hallisy was born and raised in San Francisco, where she lives with her husband, John Hallisy, and their two sons, Daniel and Kevin. The Hallisy’s ten-year old daughter, Kate, lost her life-long battle with cancer in February 2000.
Early in EMS education we are presented with the idea that "time" is a factor in much of what we do. Golden Hours, Platinum Ten Minutes, Time is Muscle etc.
While some of these can help us with our treatment and transport decisions, have you ever wondered or questioned if they are getting in the way of patient care?
As EMS providers we bring much of the Emergency Department to the patient. Even more so we are expected to provide certain levels of care to our patients prior to delivery to these ED's.
I am sure that you have been questioned or made to feel like less of a provider when you don't provide certain aspects of care. Even when it was due to trying to follow dictated "time" constraints that are expected and may have been in the patients better interest to transport rather than perform a skill prior to arrival at the ED.
So what do you think? Are these time markers valuable to us as providers or helpful?
Do we end up focusing too much on them and not on what is best for the patient?
Join us for this episode as we discuss this and other popular EMS topics. Call in Toll Free or come into the chat room to share your opinion.
Visit Jim at EMSSEO.com
Check out Josh over at WANTYNU.com and be sure to look up his newest EMS Tool - The PALM.
Due to studio difficulties this was rescheduled for October 2, 2014
Cassia Hill started as a dialysis assistant in 2007 and in 2008
was promoted to a dialysis technician. Cassia's number one priority is
making sure that each patient that she has in her care is really handled
professionally in every way and the result is her patients appreciate her
so much. She has created a book called Expert Tips on Becoming A Dialysis
Technician. It is designed to give all those interested in becoming a
dialysis technician tips on how to be a real professional in a dialysis
environment, this book is also good for technicians that desire to brush up
on their skills. Her book explores ways to handle a patient in the best way
possible, do's and don'ts, how to listen to the patient and so much more.
Cassia knows this book will give great insight to dialysis patients and
will inspire new or experienced dialysis technicians to be the best
Welcome to our NEW Time and Format
Giving us more time for conversation I have extended Conversations In Care to an hour and will be introducing you to Tony Fischer and The Fischer Report. Join us in conversation!
This Week on Conversations In Care
Let's welcome Aishling Dalton - Kelly. Aishling is going to help us understand how to find the best Home Care Team for your family and loved ones. She will help us to understand what to look for and the best questions to ask, to know that you have found a great fit.
Leran more about Aishling
Aishling Dalton-Kelly was born and raised in Ireland and is the youngest of ten daughters. She committed to helping those who are aging after her father was diagnosed with a terminal illness and she watched her mother develop dementia.
Aishling worked closely with her nine sisters to make decisions to care for her mother and father; keeping them home, healthy and happy for as long as they possibly could. It was through this hands-on and very personal experience that the idea of AishlingCompanion Home Care was born. The goal in this work is to provide the same level of care for your family's loved ones asAishling was able to provide for her own aging parents.
Aishling is a dedicated mother of four and business woman. All of her work building Aishling Companion Home Care is dedicated to her mother and father for the wonderful childhood and life of beautiful traditions and memories that were created for her and her sisters.
Jane Cooper is founder, President and CEO of Patient Care, the nation’s leading advocacy company, based in Milwaukee, WI. The company began operations in August, 2001 and helped create the advocacy industry. Patient Care currently provides services for over 1 million members across the country.
Jane is a pioneer in health care reform. Her company equips consumers with information needed to make informed decisions. Her experience indicates when given cost and quality information consumers make better choices saving themselves and us money.
In 2006 Courtney White, lost her father due to cancer. During this turbulent time she remembers, family, friends and neighbors providing meals for her family. The meals gave her family one less thing to worry about, but also gave them nourishment and hope.
Through this experience Courtney founded Culinary Care.
Join me as I sit down in conversation with Courtney White to learn more about Culinary Care and how they help families in the Chicagoland area.
Come and join the Cautious Patient Communities where patients and families learn how to be informed and involved in their healthcare. This leads to better healthcare outcomes, as well as a sense of no longer being an outsider in your own care!
Take control and be part of the solution to learn more about being responsible and effective advocates for yourselves and your loved ones.
Input, Solutions, Culture
Pharmaguy interviews Anne C. Beal, MD, MPH, Chief Patient Officer, Sanofi, and Melva T. Covington, MPH, MBA., PhD, Project Leader, Research and Develooment, Sanofi. They talk about their roles in bringing the patient perspective into Sanofi's work to advance Sanofi's ability to deliver health care solutions that matter most to patients and those who care for them.
Questions/Topics of Discussion
How do you define "Patient-Centricity?"
Tell us more about the three pillars of Sanofi's Patient-Centric Strategy. How do you get patients' input? Do you have any patient advocates on your team who are not physicians but who have worked extensively with patients?
Are we talking only about patient-centricity in the context of research & development? What about corporate and marketing communications?
What's the most difficult hurdle for pharma to overcome to be truly patient-centric?
Why did Sanofi create the role of "Chief Patient Officer?" How is it different from "Chief Medical Officer?" What do you do as Sanofi's Chief Patient Officer? Can you relate a case study which demonstrates how you implemented your strategy?
What other pharmaceutical companies have Chief Patient Officers? Do they all have similar roles? Will all pharma companies follow?
Richard Wexler of Points of Life joins me in conversation about Senior Advocate Accreditation.
The Fischer Report is back and Tony will share some the hot stories in Health Care.
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