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Father Donald E. Mowery is the retired leader of Youth Services globally. He has had a radio show, Talk it Out with Father Don, on WHBQ radio in Memphis, Tennessee, for the past 45 years. This month Joyce Graff appeared on his show. Joyce and Father Don have a great conversation about Powerful Patient and its mission, and also about Youth Services and its mission, highlighting many parallels. In both cases, they work to empower people to work through the issues they cannot change and tackle constructively the things they can change.
Learn more about Father Don. A new book, Spiritual Networking, by Darrell B. Uselton and David Yawn, recounts the history of Youth Services in Memphis and worldwide.
Mike and Joyce speak with Dr. Julia Hallisy about The Empowered Patient Coalition: providing healthcare improvement and patient safety tools directly to consumers.
About Dr. Hallisy:
Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since that time, she has been a full-time practicing San Francisco dentist.
Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
Dr. Hallisy began to research the topic of patient safety in 1998. She has lobbied for health care reform in Washington, DC with Consumer’s Union.
Dr. Hallisy is committed to and passionate about the subjects of patient safety, health care reform and medical error reduction. She is the founder and president of The Empowered Patient Coalition.
Dr. Hallisy was born and raised in San Francisco, where she lives with her husband, John Hallisy, and their two sons, Daniel and Kevin. The Hallisy’s ten-year old daughter, Kate, lost her life-long battle with cancer in February 2000.
Input, Solutions, Culture
Pharmaguy interviews Anne C. Beal, MD, MPH, Chief Patient Officer, Sanofi, and Melva T. Covington, MPH, MBA., PhD, Project Leader, Research and Develooment, Sanofi. They talk about their roles in bringing the patient perspective into Sanofi's work to advance Sanofi's ability to deliver health care solutions that matter most to patients and those who care for them.
Questions/Topics of Discussion
How do you define "Patient-Centricity?"
Tell us more about the three pillars of Sanofi's Patient-Centric Strategy. How do you get patients' input? Do you have any patient advocates on your team who are not physicians but who have worked extensively with patients?
Are we talking only about patient-centricity in the context of research & development? What about corporate and marketing communications?
What's the most difficult hurdle for pharma to overcome to be truly patient-centric?
Why did Sanofi create the role of "Chief Patient Officer?" How is it different from "Chief Medical Officer?" What do you do as Sanofi's Chief Patient Officer? Can you relate a case study which demonstrates how you implemented your strategy?
What other pharmaceutical companies have Chief Patient Officers? Do they all have similar roles? Will all pharma companies follow?
Join Margaret Sisson and me as we discuss the two perspectives of what it is like when a daughter/son is placed in a psych hospital from the parent and patient angle.
Stigma is so rampant when it comes to hospitilization and the emotional effects can be lasting and devastating on the individual and the families.
Let's break down some stigma and get to the root of the issues!
Sunday 05/17/15 4pm ET/3pm CTRL/2pm MTN/1pm Pac Call in at 1-347-934-0379 or listen online during and after the program at:
This week's topic "Christ In Us & Us in Christ Romans Chapters 13-16"
The Hen's Pen is hosted by Wendy Tucker, Sunshine Gal, Anne Marie, Dan Hall and Ray Aldridge from the United Kingdom.
Check out their facebook page at:
Joyce speaks with Ellen Matloff, geneticist, about her newest venture, MyGeneCounsel.
Ellen Matloff, MS, CGC is the President and CEO of My Gene Counsel. Ellen is the founder and former director of the Cancer Genetic Counseling Program at Yale School of Medicine and a lead plaintiff in the 2013 United States Supreme Court gene patent case. Ellen has authored more than 50 scientific publications in the field, is an established educator, lecturer and media spokesperson and has received national awards for her ongoing patient advocacy efforts.
She was the 2013 honoree of ArtBra New Haven for her work with hereditary breast cancer, and particularly for helping to challenge the validity of patenting the genes for breast cancer.
Ellen’s area of special interest is BRCA I and BRCA II mutations, which vastly increase the probability of a carrier developing breast and/or ovarian cancer. For the past 18 years, she has been dedicated to patient and provider issues in cancer genetic counseling, and the impact of genetic patents on patients and clinical practice.
Ellen was one of the lead plaintiffs in Association of Molecular Pathology v. Myriad Genetics, the landmark case before the U.S. Supreme Court, which challenged the validity of patenting naturally-occurring substances from the human body. Myriad Genetics had patented the BRCA I and II genes, and held the monopoly on testing. This effectively froze research, and made necessary testing unaffordable for many patients, leaving them to make huge decisions about their treatment without vital information. Ellen worked tirelessly for the interests of breast cancer patients and their families.
Please join Dr Jennifer Daniels on February 24, 2015 at 6pm EDT for the Healing with Dr Daniels Show.
Today's topic is: Patient Autonomy or Something More Sinister?
The FDA has just approved a genetic test for consumers to use at home without a Doctor’s permission. Patients can now freely purchase this genetic test and get the results. Is this an advance in patient autonomy? Or is there something more sinister? Dr Daniels reviews the accuracy of the test, the purpose of the test and how you can sidestep this plan to ensnare you in the Standard of Care. Tune in. Think Happens.
What’s Hot, What’s Not. Tune as Dr Daniels gives her best picks as to the up coming trends in Healing, self - care, health care and healing. You heard it first here. Think Happens.. Listen by phone (914-338-0695 or online click this link or copy this on your browser: Ask questions during the show, by phone call: 914-338-0695 or online go to http://healingwithdrdaniels.chatango.com/
Give Me Five "Charity- 1st Cor 13"
Scripture reading and reflections by Host, Chad Chandler Sr.
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In the past, in even the best of doctor-patient relationships, it was usually the doctor who made the final decision about treatment. Now that's changing. On this week's program, we explore "participatory medicine" with patient-engagement advocate Dave deBronkhart, Jr., better known to his blog followers as e-Patient Dave. Also on the program, Mayo Clinic ophthalmologist Dr. Raymond Iezzi, Jr., talks about the bionic eye, […]
TUESDAY, MARCH 31 - 1:00 PM PST
Tonight our incredible special guest is Patricia Ortiz, Vice President of Patient Liaison at Rare Diseases Patients First! a nonprofit organization that focuses on educating patients with rare diseases about the clinical trial and drug development processes.
Patricia Ortiz began her professional career working at the National Metrology Institute in Germany and has expertise in many different engineering disciplines including precision engineering, nuclear physics, and quantum optics. Later she shifted her focus to Biomedical Engineering. Upon completing her Master’s Degree in Biomedical Engineering at the University of Applied Science in Luebeck, Germany she has worked for large medical device and biotech companies as well as small startups, leading cross functional team in medical software and diagnostic instrument development within the US and overseas.
Rare Diseases Patients First! is a nonprofit organization that was founded by Dr. Lorna Speid in 2014 and focused on educating patients with rare diseases about the clinical trial process and drug development.
Visit their Facebook page: https://www.facebook.com/rarediseasesPF
Visit their Twitter page: https://twitter.com/rarediseasesPF
SHABBAT SHALOM FAMILY AND LOST SHEEP OF THE HOUSE OF ISRAEL...
JOIN US TONIGHT AS WE TAKE A LOOK AT ROMANS 13 AND IT'S APPLICATIONS IN THIS GENERATION.
NOTE: THIS LESSON IS SUBJECT TO CHANGE DATES (BE RESCHEDULED) DUE TO ILLNESS.
BLESSINGS TO ALL THOSE WHO SEEK OUR FATHER IN SPIRIT AND TRUTH
Joyce and Mike speak with Georgia Hurst as part of Lynch Syndrome Awareness Week.
Georgia Hurst is a patient advocate for those with Lynch syndrome. She is the founder of the website and blog: <a href="http://ihavelynchsyndrome.com">ihavelynchsyndrome.com</a>. She frequently writes about the emotional aspects of having Lynch syndrome, and writes for various websites and journals in order to create awareness amongst the global medical community about this hereditary cancer syndrome. Georgia is a wife and mother, and loves espresso, books, and being bossed around by her adorable dog named Sid.
What is Lynch syndrome? We will learn more from Georgia, or you can read about it on her website, or in this article from <a href="http://http://www.curetoday.com/community/georgia-hurst/2015/02/i-have-lynch-syndrome">www.curetoday.com</a>
Georgia noticed that there were several people in her family who had cancer at early ages, and several with the same cancer. This can indicate that there is something genetic predisposing family members to cancer. She delved deeper, got to a diagnosis, and kept asking questions, finding out how to protect herself and others in her family from the worst consequences of this condition.
Hear her remarkable story, the path she followed in doing her own research, and the partnerships she has developed with medical professionals to help her make progress for herself and others.
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