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Mike and Joyce speak with Dr. Julia Hallisy about The Empowered Patient Coalition: providing healthcare improvement and patient safety tools directly to consumers.
About Dr. Hallisy:
Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since that time, she has been a full-time practicing San Francisco dentist.
Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
Dr. Hallisy began to research the topic of patient safety in 1998. She has lobbied for health care reform in Washington, DC with Consumer’s Union.
Dr. Hallisy is committed to and passionate about the subjects of patient safety, health care reform and medical error reduction. She is the founder and president of The Empowered Patient Coalition.
Dr. Hallisy was born and raised in San Francisco, where she lives with her husband, John Hallisy, and their two sons, Daniel and Kevin. The Hallisy’s ten-year old daughter, Kate, lost her life-long battle with cancer in February 2000.
Father Donald E. Mowery is the retired leader of Youth Services globally. He has had a radio show, Talk it Out with Father Don, on WHBQ radio in Memphis, Tennessee, for the past 45 years. This month Joyce Graff appeared on his show. Joyce and Father Don have a great conversation about Powerful Patient and its mission, and also about Youth Services and its mission, highlighting many parallels. In both cases, they work to empower people to work through the issues they cannot change and tackle constructively the things they can change.
Learn more about Father Don. A new book, Spiritual Networking, by Darrell B. Uselton and David Yawn, recounts the history of Youth Services in Memphis and worldwide.
Come and join the Cautious Patient Communities where patients and families learn how to be informed and involved in their healthcare. This leads to better healthcare outcomes, as well as a sense of no longer being an outsider in your own care!
Take control and be part of the solution to learn more about being responsible and effective advocates for yourselves and your loved ones.
Monday night, November 11, meet Jeff. Learn about how he spoke up and his actions of being informed and getting involved changed the course of his care and maybe even saved his life!
About CPC Blog Talk Radio: Join us as we chat about how we became Cautious Patients. Cautious Patient Communities is a group where patients and families learn how to be informed and involved in their healthcare. This leads to better healthcare outcomes, as well as a sense of no longer being an outsider in your own care!
Now we can share what has worked during this 30 minute Blog Talk Radio show!
Maria Hester, M.D., is a physician in the Washington DC area who is committed to patient empowerment.
Through her corporation Savvier Health, she offers on-site workshops at area corporations to improve employeers' "patient skills."
Led by a practicing physician or nurse practitioner, the workshop aims to coach people to become confident health care consumers empowered to help expedite their own care, slash their own (and their employer's) health care costs, and communicate with medical professionals on an unprecedented level. Participants learn: - Invaluable 'patient skills' that will change their approach to health care forever - How to expedite their own diagnoses - Ways to slash their medical bills - How to get the most out of each and every doctor's appointment - Why many people are admitted to the hospital unnecessarily - How to make each hospitalization safer - How to minimize visits to the doctor - The ABC's of effective patient-doctor communication - How to decrease the risk of a medical error - Valuable tools to help them navigate the medical system - Tips to live longer, healthier lives - The basics of medical decision-making - How to prepare for medical visits in advance
Her blog, "Teachable Moments," is carried in nationally recognized e-Hospitalist News, which is dedicated to teaching other physicians ways to empower their patients. Her book "Your Family Medical Record: An Interactive Guide to Getting the Best Care" was Published by John Wiley & Sons, Inc. in 2000.
Fran Mott has been the Chapter Leader in Michigan for the VHL Family Alliance since 1994. What that means is that she is in charge of taking care of people with von Hippel-Lindau throughout Michigan.
Von Hippel-Lindau (VHL) is a genetic cancer syndrome, caused by one tiny misspelling in one gene, the VHL gene. People who carry this alteration are at increased risk of having one or more tumors in a variety of places in the body. There is currently no magical cure, it's all about watching out for issues, finding them early, and getting the right treatment at the right time.
Fran has worked with physicians at University of Michigan Medical Center and other hospitals throughout the state to become more aware of VHL, diagnose it earlier and more accurately, and help people manage their health. The University of Michigan has created a Clinical Care Center for VHL, part of the CCC program of the VHL Alliance.
Fran is retiring this year after nearly 20 years of volunteer service to her neighbors throughout the state. Joyce speaks with Fran about her experience as a patient herself, a mother, and a volunteer in service to others with this rare disease.
The VHL Alliance will hold its Annual Meeting September 21, 2013, in Ann Arbor, with a dinner September 20 honoring Fran and Dr. James Montie of the U of M.
For information or to register for the meeting, see http://vhl.org/meetings
Medication errors happen at home, in the hospital and in the pharmacy.
We will be interviewing Maria L. Franco PharmD, CGP who will share her expertise on some of the most common errors and how they can be avoided. She will be sharing actual stories of how medication misuse and improper use can change the outcome of patient care.
Learn how medication dependency and abuse may be avoided with a Designated Medication Manager and how errors in the hospitals may be prevented with patient and family participation.
Dave deBronkart has a well-earned reputation as an e-Patient. An internationally recognized speaker, author, and health policy advisor, he has words of strength for patients for sure.
In addition, he works with physicians, hospitals, and pharmaceutical companies to help them Let Patients Help!
When most manufacturers decide to create a new product, they do market research and conduct focus groups to determine in advance what the consumers want.
In medicine, it's mostly about what the doctors want.
But the doctors are not the end-user consumers in medicine, they are talented and experienced personnel, but the end-user consumers are the patients.
Come hear what Dave believes are the many ways that Patients can help improve healthcare.
See also Dave's new book, Let Patients Help! A patient engagement handbook - how doctors, nurses, patients and caregivers can partner for better health care. http://www.epatientdave.com/let-patients-help/
Audio clip credits:
Gimme My DaM Data – Maastricht, 2011
Posted by WellApps, https://www.youtube.com/watch?v=0b4li7N_7Ck
Music Video by the Collaborative Agency Group, 2013
A discussion with the Wife of patient that after complaining of his level of care and the workers in the clinic, he was terminated for what appears to be trumped up reasons. He has since been blackballed from other clinics in his area; with no clinic to go to he has been forced into HOSPICE.
This appears to be an ongoing problem with DCI, Fresenius and Davita. This patient was a Davita patient. Dialysis Advocates went to their Legal Department and Javier Rodriguez the CEO of Davita. It appears that no one cares at the CEO level; we’ve asked him and the Legal Department to help with this patient. Nothing came from our request to CMS to help this patient who had no appeal and is not allowed to face his accuser.
This is happening much too often in too many clinics where complaining about care or workers leads to retaliation. What if any investigation is done at the clinic level is often poorly done and biased in favor of the worker or clinic. Patients are not allowed to see the results of an investigation nor are they allowed to face their accuser. A patient it appears has to go to legal to clean up a record they are not allowed to see.
We are having too many patients with the same situation Nationwide. One even having to strip down naked before getting dialysis.
Call in and ask questions and our website has other cases in the News Portion. www.dialysisadvocates.com
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