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777 - LUCK OR DESTINY - DOES IT MATTER
7 year itch as they say, with a brain injury do i itch at 7 yearS what do i do, where has the 7 years went, What do i feel, do i feel, Is it just me or are we invisible and some become rich off us, other just take what they want, And services they give us who the hell figures them out, our choice, our lives, our very essence not once do they ask us, I love it when they get a panel of experts on tbi and maybe there will be a survivor but ussually a token or bought through megger paycheck. We are not hidden we are ignored. Why am i so obsesive, who am i anyway, at first everyone couldnt recognize me now i can't. The new me is in a transparent demension watching the things that use to be me. And we get to watch it in slow motion and noone can see us anymore..
These questions and more will we talk about because i truly don't know the answers. Is there a treasure at the end of the rainbow, have i made it better for people with brain injury or is it just part of the blur or nightmare that we call brain injury. Would it have been better that i blend into the crowds of society or do i share my story of hell with the world. Since their ignorance and decades of profiting has made brain injury silent and hidden to the world
The What Ever Show Life is full of challenges, some you can get through quickly and others just linger on, Professionally I am just finishing up a 100 day or so project which in my mind should have been about a 30 day project, as i crash my hosting companies servers they tell me their servers can't do the technology I need. (full details of 3 new processes pantended by the survivor network) full details at the bottom link
. Mean time the rest of the world kept on doing what it does, people dying and sustaining brain injuries, my heart goes out to all of our new brothers and sisters, professionals monetizing us and marketing and fundraising getting lots of money for things that will disappear when the money is gone but mean time build their egos. Politicians and scientists doing studies and grand collaborations with the experts in brain injury, that one makes me laugh they are so interested in building their egos they forgot to include survivors who are the real experts in living brain injury. Wake up Americans with brain injuries, you might have been broke but do you need fixing still, maybe your were left with mental illness caused by a controlling over drugging medical model thats been listening to someone elses voice for years.. Educate families what is happening so they don’t fall apart, teachers so they don’t give up, society so they know it’s not a act,
Click here for full details http://tbisurvivorsnetwork.ning.com/events/whatevershow1013
How we react to change
hosted by Craig Siclia
Life is full of road blocks which are really oppurtunities to create change, change is always easiet for those creating or wanting it. For a survivor change can bring a host of emotions, thoughts and idea's that may not be accurate. Please listen and call in and share how you handle change, how it effects your daily life, and how you best control the change in your life.
The Sand Box Part One - Why there is not unity in the survivor movement
Hosted By Craig Sicilia
There is a reason that brain injury is the hidden or silent epidemic. We try to get into the sand box but in no time at all the box is empty because we through so much sand in each others faces there we are in this sand box all the sand gone just us alone and nothing to do.
It is true that brain injury accesentuates everything including our egos and pride. With or with out a brain injury egos and pride destory organization as badly as gread and bad plans. We see it, we know it. But we continue to do it anyways. Some professionals say survivors should lead groups. Some times their right but over all they are sadly mistaken. Only survivors know the journey and the bulk of the money goes to support organizations who put 90% of that money into support people who are not survivors to serve us.
Survivor leaders can be arogant, self centered, closed minded, prejeduce against each other, gosip, point the finger really quick, competitive whos accident was the worse and more and that was me in the first 10 minutes in the beginning of the journey. Now I truly know the only expertise is the journey i had. I do not have any idea what others need so we share what our expertise is and you take what works for you.
We want equity and peace yet we won't give it, we look dangerous to the outsider, and validate that with our actions. We must stop and be happy with who we are and who our fellow survivors are. We must empower and encourage one another wether we agree or not. let them make their own mistakes and love them anyway. Our journey Part 1
Brain Injury Radio News with Craig Sicilia News - what’s new and happening around this blue and green ball we call earth, our brain injury world, want to learn what’s really going on then you found the right station, and how does this affect those living with brain injury or do you even care, saying to yourself it just don’t matter, join our new
For Us By Us… all survivors all the time With commentaries by,
Craig Sicilia - Community Lessons
Bill Brown Concussion Monthly
Thomas Dixon - Toms Tech Talk
Walter Moryan - Modern Survivor
And 2 special
Guest you will
Have to tune in
Hope you enjoy this new format for the first Monday of each month, have some news you want to share let us know so we can tell the world
RIP Chris - Sand Box #2 throwing sand -
by Craig Sicilia
Tonight we are going to remember Chris Bartlame as I finish up a second memorial of one of our TBI Leaders who has fought the fight before us and has passed on to a better place and some of his challenges promoting the survivor agenda in the 90's and what it was like then.
We will transition to our sand box (tbi world) today and the struggles that the brain injury has, why we can't unify as a community. Why like so many other disabilities we are not able to stand up with one voice and change this stereo type that the word brain injury sets into people minds good and bad. Why our disability is discounted by society as significant and causing brain injury to stay hidden into the corners of society leaving survivors isolated, alone and very much afraid. We are the silent epidemic because of these issues and it is time.
It is time for all of us around the country and world to stand up and say - World Here we are, Loud and Proud- I am great just as i am, I am a survivor and I am my own best expert and stop talking for me.
Please contribute to this show if you are a survivor and have advise for other survivors how to make a difference, How to join together to have a bigger voice. But mostly how to love the life we live and not let depression set in on us because of what others might believe or think.
as well going to share some music that got me boos and not ready for prime time ruff and raw
Why we do the things we do,
hosted by Craig Siclia and special co host Kim Chapman of the Joe Niekro Foundation.
People don't start organization because everything is just great they ussually start them out of need, and or as in my case desperation to find answers. For decades organizations have been run by people that it is just a business, TBI Survivors Netowrk and Brain Injury Radio and many other survivor ran organization are leading the world in answers for people.
Its not about medical doctors can stich us up and have us looking as good as new maybe better. But we change inside and I believe this can be a good positive change if you know the answers from the beginning. Unfurtunatly the answers still are hard to come by. Lots of many being made in our name. And the hope for a better tomorrow seems to be based in who we were not who we are.
I have not met or talked with Kim but I am guessing her new show is going to be pretty similar in creating hope and answers for people. And just a guess they did not start their foundation because everything was so great. We will have several other guests as well who are changing the world as we know it.
The What Ever Show - hosted by Craig Sicilia Screw those who won't understand and love those who do.
Our 4TH edition what ever show, this is your chance to have the show about what ever you have to send me a personal email to firstname.lastname@example.org - and we will have your story stuff featured, we are going to talk about expansion of the radio show, as well as the peer line,and some crazy stuff happening good and bad, or yet to be seen. The brain injury world is changing right before our eyes people are starting to get it for those who don't all i have to say is what ever.
Share what is going on in your part of the world, as well I will share some of the great new programing coming your way, it is some awesome stuff. Be the first to find out
Open Line Tonight! Call 646-716-4490.
Faith Secrets that the enemy has tried to keep from you are discussed in detail. This is a show you MUST HEAR! Pastor Dean returns to BTR with high fiveable Holy Spirit discussions on Christianity, Miracles, Healing, Prosperity and more. Some of the topics on tonight's program: DON'T ALL RELIGIONS TEACH BASICALLY THE SAME THING? IS IT TRUE? THE ONLY WAY TO GOD AND HEAVEN IS THROUGH JESUS? Life can be a battle, and we are here to discuss how God and His Word can produce miracles TONIGHT!! CALL EARLY, JOIN THE CHATROOM AND STAY LATE! TWO HOURS OF TOP RATE TALK!
Open Line Tonight! Call 646-716-4490.
Pastor Dean returns to BTR with high fiveable Holy Spirit discussions on Christianity, Miracles, Healing, Prosperity and more. Some of the topics on tonight's program: DON'T ALL RELIGIONS TEACH BASICALLY THE SAME THING? IS IT TRUE? THE ONLY WAY TO GOD AND HEAVEN IS THROUGH JESUS? Life can be a battle, and we are here to discuss how God and His Word can produce miracles TONIGHT!! CALL EARLY, JOIN THE CHATROOM AND STAY LATE! TWO HOURS OF TOP RATE TALK!
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