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Mike and Joyce speak with Laura Castillo, Executive Director of FivePMinus.org, helping families affected by Cri du Chat (Cat Cry) Syndrome (CdCs).
Babies born with CdCs are characterized at birth by a high-pitched cry, low birth weight, poor muscle tone, microcephaly, and potential medical complications. "5p-" is a term used by geneticists to describe a portion of the short arm of chromosome number five that is missing in these individuals. Some of the facial characteristics include:
Round "moon shaped" face
Small upturned nose at birth
Small or low set chin (micrognathis)
Low positioned ears
Downward slanting of the eyes
Wide spaced eyes
Extra skin fold at the inner corner of one or both eyes (epicanthal fold)
These facial features usually elongate as the child enters adulthood. Children with CdCs are often also diagnosed with autism since many of the developmental issues are similar.
There is a great deal of good information on this syndrome on their website. See especially http://www.fivepminus.org/Development
Laura shares with us the origins of the 5p- Society, the national family support group for individuals with Cri du Chat Syndrome. They group shares expeerience and provides support to individuals and families affected by CdCs, sharing strategies for managing the syndrome and supporting their children in achieving his or her maximum potential Children with Cri du Chat Syndrome can lead full and meaningful lives with love and support.
Andy Fleming, CEO & Founding Principal at Way to Grow, Inc. joins the show this month to tell us about Deliberately Developmental Organizations. We'll learn what they are, and why you'd want your organization to be one, and how to go about implementing it in your organization.
The ability for families to get services for children with developmental disabilities may increase if a new rule proposed under the Affordable Care Act becomes final.
In this "Kids News Extra" segment Dr. T reviews the article, "Proposed Rule Mandates Coverage of Habilitation" from the ASHA Leader about proposed mandate to cover habilitative services.
"Habilitation" is intervention to help a child build skills in which they are delayed or disordered. It's similar to the more familiar term of "rehabilitation" whereby an individual receives intervention to regain skills that are lost second to an accident, a disease, or the like.
The ASHA Leader is a publication of the American Speech-Language and Hearing Association which provides information for the public and governs the professions of speech-language pathology and audiology.
This proposed rule goes beyond speech-language and hearing services and regards global developmental issues. We hope it's helpful.
Send your comments and quesitons to us at info@KidsAtoZ.com
Best,The Kids AtoZ Team
Nick and Erik are back for another Motivatonal Monday! This week on NickandErikNtheMonin The two will be discussing a topic that everyone can relate to, LIFE. Motivational speaker Nick Christian and Intellectual Erik Terrell will be bring forth a different mindset. This one is going to be good! Tune In #HeatingU
Learn how to properly brand and position your business or ideas. Learn how to establish leadership within your organization which allows for motivation to spread like wild fire and allow your orgaization to grow with or without you be present in everyday activities.
Thinking Forward Inc. presents the Hump Day motivational call. This weeks topic will be about motivation throughout the year. During my career, I've strived to stay consistent about consistency. Even the best business plans will fail without a dedication to consistency. If I say I'm going to do something, I do it. If I say I'm going to be somewhere, I'm there. If I initiate a new business process or initiative, I follow through. In my experience, consistency is a must as you build and grow your business. Tune into this informative show tonight!
Join us for this short intimate conversation with the Motivational King talk about his personal Peaks and Valleys in 2014- to present. Will blow your socks off with this juicy perspective of my life and the life that others may be experiencing right now. Always felt like my vision was always bigger than the bigger picture. It's crazy how you have wait until it's dark out to see who's really with you.Life happens to us all but we must be honest with ourselves in order to overcome failure and disappointments that awaits behind the door
Thinking Forward Inc. presents the Hump Day motivational call. This weeks topic will be about motivation through Thanksgiving.This is a hard time of the year for some. So what are you most thankful for during these times of family and food. Well you may be having fun with family and friends, but there are people who are not having such a good time. What are you going to do to assist these people in pain? What is your next Thanksgiving move.
Motivational Monday We gave Praise in God's House on Yesterday, Sunday so today we Turn the Praise UP! for a Motivational Monday on Breaking Chains with Young Adult Talk. Let's come together for the Uplifting of the Kingdom of God and His People. Every Monday it's Live with your host Apostle Kieron D. Buford, Pastor/Founder of New Antioch Christian Fellowship of Stafford Virginia! Join us live at 858-357-9137! SeeYou There!
Tired of waking up stressed? It seems like you aren't a morning person when getting up for work? Steve Harvey told Nick and Erik why you aren't a morning person and they are relaying the message to you! Tune in! Nick and Erik have been i for fire lately and Steve Harvey brought the gasoline. #ItsHeatingU
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