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Karen Ball, CEO of the Sturge-Weber Foundation, speaks with Joyce about Sturge-Weber syndrome (SWS) and the challenges faced by people with this condition. The Sturge-Weber Foundation provides support and services for individuals with Sturge-Weber syndrome, Port Wine Stain Birthmarks, and Klippel-Trenaunay syndrome.
Sturge-Weber Syndrome (encephelotrigeminal angiomatosis) is a congenital, non-familial disorder of unknown incidence and cause. It is characterized by a congenital facial birthmark and neurological abnormalities. Other symptoms associated with Sturge-Weber can include eye and internal organ irregularities. Each case of Sturge-Weber Syndrome is unique and exhibits the characterizing findings to varying degrees.
Because of the physical differences that people with SWS often have, they are frequently the object of rude or bullying behaviors. Sturge-Weber Foundation has taken up this challenge on behalf of all those with differences in their BullyBeGone Challenge.
Come chat with Karen and Joyce.
This week's guest is Fred Weber.
Fred began his professional life on an academic track. With a Ph.D. in philosophy from Northwestern, he joined the faculty of the University of Hawaii at Hilo. Involvement in a public program in the humanities, however, led him to the state-based program of the National Endowment for the Humanities, in Providence, RI. When federal funding for the arts and humanities grew scarce, a newly acquired MBA helped get him back to his native Chicago in a marketing position with Follett Corporation. The fit was excellent, and Fred stayed with Follett for nearly 30 years, retiring 3 years ago as SVP of Wholesale and Distribution Services. But, this year he returned to the college store industry as CEO of the ICBA, a retail cooperative of over 150 institutionally owned college stores. Business Life Transitions is a radio show that talks about you and your business. It will help you understand how to re-invent yourself, your business, and your life.
Join Brian Basilico & Jan Marino every Monday Morning at 9am CST.
His best selling book, “It’s Not About You, It’s About Bacon! Relationship Marketing in a Social Media World!” simplifies the way social networking can help you grow your business.
Recognized as one of the Top 40+ Digital Strategists in Marketing for 2014.
YOU are the product. YOU are valuable. YOU are on a mission and Jan can help guide you become even more successful. She's the manager of the Linkedin Chicago group (87,000 members) and a business owner-High Gain Companies, Inc.
Sabine Weber is a certified nutrtionist and consultant who looks at nutrtion with a holistic eye. Find out what Integrative and Functional Nutrition is - Come listen in!
Sabine will be joining Dr Karen Kan, Cathy Hohmeyer, and Marie McMahon as feature presenters at the Holistic Health Weekend May 15-17, 2015 at the Lake Clear Lodge. There will be fun, music, good food and bonus presenters as well.
All at a cost you can't afford not to take advanage of!! Great info will be happening here - please share with friends and family.
Stay for the Saturday for only $35, or come for the weekend and get 50% off your lodging when you stay a minumim of 2 nights.
See Sabine's website
Sign up for the Holistic Helath Retreat / Conference here and check out the Lake Clear Lodge
We are members of the Adirondack Wellness Network
Today on The Boochcast, Booch talks about fixing the technical problems with the last two shows, Connor "The Crusher" Michalek recieving the Warrior Award, Sting's Awkard Promo, The Bella's Flinstones Promo, interviews Jason Weber from Occupy HLN, and What Every State In The U.S. Is Worst At.
This Week on "TheMusicBox" with National Recording Artist Tanya Dallas-Lewis! Meet Celebrity Bass Player Mark A. Walker!!!
This well respected live/session bassist and founder of MPM Productions, has played for the likes of super celebrity recording artists and producers all over the world [including Lalah Hathaway, Will Downing, Yolanda Adams, Gerald Albright, and so many more] is gracing "The Music Box!" and I can't wait! Yes--a LIVE radio interview! Is that totalleee awe-sum or WHAT? I love musicians [mostly because I am one!], especially ones who respect and cherish the artform and recognize the Giver of their gifts! Wait until you meet MARK A. WALKER!!
Plus, [as always--like, FOR REAL-FOR REAL!] the BEST in gospel music by artists that you ACTUALLY know [wowsa!], news, interviews, updates, how-to's and so much more!
I'm going to be eating some LEFT OVER EASTER CANDY [yep--still got some left! Not sharing, either!!!] and sipping on a frozen lemonade fruit smoothie! ;0) Meet me at 8pm...OR ELSE!!! lolololol
-Tanya, Stellar/Dove Nominated Recording Artist
EPISODE SPONSORS: POPW INC., BAPMINISTRIESRADIO.COM, AGAPE MULTIMEDIA INC., PO'MAN MEALS, HGS RADIO
A weekly 90 minute journey down the Rabbit Hole exploring Astrology, Metaphysics, World events, Conspiracy, Relationships,
Crypto's, Aliens,Sports,Symbolism and Esoteric knowledge with host Mark Metheny. Join Mark every Friday Morning at 11 a.m. to explore the secret world around us.
Mark Metheny has been a student of Astrology since 1991 and is a researcher into all things hidden from Astrology to Symbolism to Missing people to Cryptozoology.
My guest this week is KC Matronia http://www.universal-harmony.com/
Very happy to have Mark Inkrott on today! This fine young man once a player in the NFL is now working in Agriculture, bring with him the leadership skills learned in the NFL to agriculture leading the way in helping tell the story of farming.
This will be a very interesting show one you will be very happy to hear.
Please join Mat Sorensen and Mark Kohler for another amazing show with weekly tax and legal tips helping you succeed in YOUR American Dream. We are also excited to welcome author of the book Propel: Five Ways to Amp Up Your Marketing and Accelerate Business, Whitney Keyes! Over the past 20 years, Whitney has worked as a senior Microsoft manager, strategic adviser for American Express and a marketing consultant to thousands of individuals and organizations around the world. She is the winner of the Small Business Administration’s 2013 Women in Business Champion of the Year Award for Washington State and has been helping business owners around the company increase sales with proven techniques. Don't miss this episode of the Mark Kohler Show!! Tuesday, April 21st, at 11am PST / 2 EST. You can call in and listen LIVE on the road at 646-200-4285, or listen in here from your computer.