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I have done several shows about Lymphedema and the grassroots efforts to get the Lymphedema Treatment Bill passed. This one came from an original airing of 5/1/10.
"Back in March, we had a show introducting you to the HR 4662 which involves the improvement for health care costs for lymphedema patients. Please join us again today to learn what has been done, what you can do, and what this means to you if you (or someone you know) has lymphedema. We need to get this bill passed in this year's legislation session. We will have Jennifer and Jenny on our show, as well as some other pertinent people that can add more to enlighten about this very important bill." http://www.blogtalkradio.com/oralhistory/2010/05/01/beyond-words-live--understanding-hb-4662
BEYOND WORDS LIVE is designed as a platform for survivors to tell their own stories in their own words.
For more information see http://facebook.com/LymphedemaInTheNews or http://lymphedematreatmentact.org/.
Tiffany Howe was born with Primary Congenital Lymphedema (Milroy’s Disease). After 27 years of struggling with this ailment, she was given a choice of losing her left leg or undergoing the Charles Debulking procedure. The choice was difficult and very challenging to make. She chose the Charles Debulking procedure and could not have guessed the life-changing experiences which would result. Full recovery took a year and included her learning to walk again. For the next five years, Tiffany used her training as a Registered Nurse to research and study any available information about Lymphedema. Research ultimately led me to the conclusion that Lymphedema patients are in need of support for this currently incurable disease. Support includes education and advocacy. I represent Virginia as part of the Lymphedema Advocacy Group, which is a patient-centered group, raising awareness. Our mission is to get passage in Congress for the Lymphedema Treatment Act.
Come hear her story and more!
For more information, too, please refer to the Lymphedema In The News fb page (http://facebook.com/LymphedemaInTheNews).
Dr. Stanley Rockson (of Stanford University Medical School) states that: "Lymphedema is a common disease. Approximately 10 million Americans, for example, have lymphedema secondary to breast and pelvic cancer therapy, recurrent infections, injuries, or vascular surgery." (2010) Imagine, if there were approximately 10 million Americans then, how many more there are now in 2014 (knowing that there is no cure for it as it stands to date)? For many years, I had key
Come hear Heather Ferguson provide us with some updates about THE LYMPHEDEMA TREATEMENT ACT via my radio show called BEYOND WORDS LIVE. She'll provide the latest and greatest on what is happening with the Hill on our Bill. Invite all your State Advocates to attend, all Lymphedema patients to attend, your LE physical therapist to attend, as well. We need all the voices that we can get! For a little insight, Heather passed an email out on January 15th which included this announcement --
October 23, 2012: October is National Physical Therapy Month and National Breast Cancer Awareness Month. Although many consumers might not think of physical therapy and breast cancer treatment being related, in this interview Nicole Stout, PT, MPT, CLT-LANA, describes why physical therapy is so important in a breast cancer treatment plan, not just eventually but early on. She also outlines the relationship between breast cancer and lymphedema and provides advice for those who might be at risk.
Well, the actual awareness day is actually on March 6th; however, the usual show is on Saturdays so we keep with a part of tradition to take a break from domestic violence issues to talk about lymphedema and advocacy for lymphedema patients everywhere, with a special focus on what is happening in the United States with HR 4662 making its way in the houses. Today, we will revisit the issue with as many of the same panel from last year to discuss these and related things to the needs of the lymph
Kevin A. Baptists, was born in Boston, Mass. His family is from Trinidad and Tobago. he went to St. Peter Marian and went to ITS TECH for computer aided design. He is 37 year's old. He is a farmer and speaker. He also is an advocate for lymphedema. he was born with it. Lymphedema is the swelling of body limbs due to a blockage in the lymphatic system or due loss of lymph nodes due to surgery or drama.
ThruOurEyes - 8-9pm LIVE! Joe will interview Sharla Glass, industry relations, and Amanda Tolson, pharmacy relations, from EnVision America. Highlighting EnVision America's history, best practices for labeling prescriptions, methods to obtain labeling at local pharmacies, and the next steps to have labeling for the blind
IBC Fact And Fallacies - 9-10pm LIVE! Josh Levin from LympheDIVAs will discuss lymphedema and show us medically correct and fashionable compression apparel for the savvy and stylish breast cancer survivor which will inspire her to feel beautiful, strong, and confident.
Join me for a chat with..
Comedienne Queenie TT The Curves N Cupcake Comedy Tour
Tickets are currently on sale for $15 and may be purchased at http://punchlinecomedyclub.com/event/1C004B90F88E65F2
Discount Tickets $7.50 (limited availability): http://www.goldstar.com/events/san-francisco-ca/curves-and-cupcakes
National Lymphedema Network http://www.lymphnet.org/
Ben Yennie http://www.meetup.com/producer-foundry
Aguilar Legal www.agslaw.com
Off the Grid www.offthegridsf.com
Shelia Simon https://sheliasimon.myrandf.biz
Amba Johnson- http://donatetodreamcatchers.org/about-us/
Aspyr Communications PR aspyrcommunications.com
Shields Interiors shieldsinteriors.com
Papi Chulo Salsa papichulosalsa.com/
Bethany Webster Inc bethanywebster.com/
Sullivan & Botello Events http://sullivanbotelloevents.com/
Small Business Forum Magazine https://www.eventbrite.com/e/small-business-forum-magazine-buy-3-get-3-by-12214-and-well-double-your-order-tickets-10176812119
Re-Inventing Success Worksop https://www.eventbrite.com/e/re-inventing-success-series-positioning-yourself-for-greater-profitability-6-months-free-advertising-tickets-9503624597
Small Business Forum Magazine http://joom.ag/OmuX
Join Dr. Weizer as he discusses Occupational Therapy in oncology with Amy Kay. Amy is an Occupational Therapist that has been serving cancer patients for 13 years. Amy explains the role of occupational therapy in oncology is “to facilitate and enable an individual patient to achieve maximum functional performance, both physically and psychologically, in everyday living skills”. Dr. Weizer and Amy also discuss the role an OT plays in the mind, body and heart along with the needs
Leslie Bonner has been in the Holistic health field for over 30 years. Starting as a massage Therapist in Florida in 1982. She went on to earn her Naturopathic Doctors degree in 1993. Continuing with a 2 year internship with Dr Marika von Viczay ND, PHDLater to practice Lymphatic Enhancement Therapy in Asheville ,NC. She uses Lymph Star Pro fusion equipment, to assist in lymphedema, laser facials, and treatments for fibroids. The work is amazing and has helped me quite a lot.
is also a plus size model with an incredible attitude, self love and self image, which, in my humble opinion, we can all use a good dose of.She lives in Black Mountain with her Husband and 2 cats.
The National Lymphedema Network recently sent out their latest publication announcing that March 6th is the date recognized as the National Lymphedema Awareness Day. Lymphedema can, and does affect people of all ages. Many are born with it and/or have genetic dispositions towards it occurring; some have their limbs swelling as a result of chemotherapy or surgery; some may have a trauma that occurs that triggers it (like a car accident). Generally, we know that you have lymphedema in either the arms or legs (usually not both types of limbs), but it may affect other areas of the body as well.
Jenny will be here to tell her story, as well as explain more about her efforts to make others aware of Lymphedema issues. Hopefully, we will have other speakers online too to help explain various treatments that are available today.
Today, while Jenny maintains her own issues with her own embattlement with Lymphedema, she has become an advocate to help others understand what Lymphedema is.
Host Kathryn Krastin is here to provide a resource for survivors to tell their stories in their own words – not some contrived form that fits typical media agenda and/or demographics.
Connect with Kathryn on www.RealLifeRadioNetwork.com
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