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  • 00:45

    International Kidney Cancer Symposium Dublin

    in Health

    Mike Lawing attended the Ninth European Kidney Cancer Symposium in Dublin last April, and has carefully crafted an excellent report to share that meeting with all the patients and family members who wished they could be there.


    As usual, he has done an outstanding job.

    In this interview, Mike and Joyce speak about this conference with Robin Martinez, moderator of the patient support conversation at Smart Patients, the successor to the ACOR "KidneyOnc" list.  See http://www.smartpatients.com  Participants were asked to submit questions in advance to Robin or to Powerful Patient.

    In the conversation you will hear references to the following drugs:

    Interleukin-2 (IL-2)





  • 00:30

    Report from Joyce's Travels

    in Health

    Joyce is traveling to ten cities in September and October.  Mike interviews her about who she saw, what she did, and what she learned.
    Quick summary:
    Sept 20-21, Ann Arbor, Michigan
    Sept 28, London, England
    Oct 5-8, Budapest, Hungary
    Oct 10, Oxford, England
    Oct 12, Cardiff, Wales
    Oct 13-15, Belfast, Northern Ireland
    Oct 17, Dublin, Republic of Ireland
    Oct 23, Nottingham, England
    Oct 24, Birmingham, England
    Oct 27, Manchester, England
    For more details, see http://www.facebook.com/vhlfa/events
    See also Blog Posts at http://www.powerfulpatient.org/blog

  • 00:32

    Living with BHD - Birt-Hogg-Dubé syndrome

    in Health

    Jean S. from Oregon joins Mike and Joyce for a conversation about Birt-Hogg-Dubé syndrome, one of several recently identified genetic causes of kidney cancer. 
    Jean s a volunteer with the VHL Family Alliance, providing support for others with BHD.  VHLFA provides patient support for people with a number of genetic tumor conditions, including VHL, HLRCC, and BHD.
    Jean shares her story of diagnosis -- how she found out the name of the condition that was plaguing her -- and how she has learned to manage her health. 
    Please join us for this conversation.  Jean will be taking calls during the program, or you can contact her later at http://vhl.inspire.com, in the conversation about BHD.

  • 00:32

    Managing Fibroids without Hysterectomy

    in Health

    Dr. Stanley West is a gynecologist and reproductive endocrinologist and a leader in the National Uterine Fibroid Foundation.  He is working hard to reduce the number of hysterectomies performed as a result of uterine fibroids.  Nearly one-half of all hysterectomies are performed as a result of fibroids. 
    Dr. West believes that with earlier diagnosis and with the use of less drastic treatments, it should be possible to avoid hysterectomies in most cases.  His recent book, "The Hysterectomy Hoax," outlines the options available to women with fibroids who want to retain their uterus.  Among them is a myomectomy, or removal of the fibroid itself.
    Dr. West handles some of the most difficult gynecological surgical cases involving uterine fibroids in the U.S. and has probably performed more myomectomies than any surgeon in the world to date.
    Joyce and Julie speak with Dr. West about the fibroids that occur in the general population, as well as those that occur because of a genetic condition, Hereditary Leiomyomatosis and Renal Cell Cancer, HLRCC.

  • 00:59

    Fibroids and skin bumps - what do they have in common?

    in Health

    Many women experience fibroids in the uterus. In some cases, fibroids can be one signal of a set of issues called a "syndrome" that includes additional risks. Joyce speaks with Julie of the of the HLRCC Alliance about syndromes that include fibroids.

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