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  • 00:31

    Helping Prevent Alzheimer's Through Clinical Trials

    in Caregiving

    Dr. Marc E. Agronin, Vice President, Behavioral Health and Clinical Research, Miami Jewish Health Systems, will join us to share about the importance of clinical trials in the fight to prevent Alzheimer's disease. He will share how to find a clinical trial and how to know if a clinical trial is right for your family member and you.

    In addition, Dr. Agronin will talk about the importance of early diagnosis and what we can do to promote our own brain healthy lifestyle.

    About Dr. Agronin

    Dr. Marc Agronin is Vice President, Behavioral Health and Clinical Research, Miami Jewish Health Systems. Dr. Agronin is also Affiliate Associate Professor of Psychiatry and Neurology, University of Miami Miller School of Medicine and author of "How We Age: A Doctor's Journey into the Heart of Growing Old." You can learn more by visiting his website, www.marcagronin.com

  • 01:02

    The HD View with Dr. George Yohrling

    in Science

    Tuesday, June 30, 2015 3:30 pm PST/6:30 pm EST

    HDSA's Senior Director, Mission and Scientific Affairs, Dr. George Yohrling will be with us to share information about HDSA's  newly launched HDTrialFinder.org site. Together with HD Drug Works, HD Buzz, HSG, Huntington Society of Canada, and CHDI, Help 4 HD International is proud to partner in this effort to bring education about clinical trials together in one place. It provides precise and strategic information to our HD community about clinical trials that they may qualify for in their area.

    This collaborative effort is a first to bring all the clinical trial information together on one site, a database where information may be called up according to the inquirer's specific location and criteria. Go to: http://hdtrialfinder.org/ and register.

    Other topics of discussion:

    HDSA's 30th Convention
    FDA PDUFA Meeting in September

    Tune in for a very special show with Dr. George Yohrling!

  • 00:50

    The HD View with Jimmy Pollard

    in Education

    Tuesday, April 14 - 3:30 pm

    The amazing, incredible, fantastic Jimmy Pollard is going to be with us tonight.  Jimmy has quite a speaking schedule these days and is on a mission to educate about clinical trials, namely Enroll HD (http://www.enroll-hd.org/), which is a worldwide observational study for Huntington’s disease families. This study will monitor how the disease appears and changes over time in different people, and is open to people who either have HD or are at-risk. Monitoring people over time in a real-world setting contributes to scientific knowledge. The study is designed to accelerate the discovery and development of new therapeutics for HD.

    Jimmy says, "No volunteers for studies, no more advances in the quest for a cure!" Enroll-HD

    Also find Jimmy's book on Lulu: "Hurry Up and Wait: A Cognitive Care Companion" (http://bit.ly/1DCUJmO)
    This book will give you a set of exercises to simulate the cognitive difficulties faced by those with HD, a collection of tips to accommodate them in your home or care home, a strategy to develop new approaches to solving care problems and commentary on common problems faced by family carers and those they love.

    Tune in and let's catch up with our most favorite man on the stand, Jimmy Pollard!

  • 01:59

    Personalized Puzzles For Reminiscing, Plus Clinical Trials For Dementia

    in Caregiving

    Today we will talk with Mindy and Missy Dalgarn who created Pieces of the Past in collaboration with Portrait Puzzles in May of 2014.  It is their intent to spread the word about the power of puzzles as a reminiscence activity/ Email Mindy

    The second half, we will have Dr Neelum Aggarwal from Rush University Medical Center, who will be discussing dementia and clinical trials.

    Check out  DontForgetAlzheimers     AlzheimersChicago

    For more information on dementia and caregiving

  • 00:02

    Show 1: Test Show

    in Motivation

    John Stanko and Stephanie Thomas hook up for the first Life Trials show. We hope we learn.

  • 01:10

    The HD View with Mr. Alan A. Pfeffer, Esq.

    in Health

    TUESDAY, OCTOBER 27, 2015 - 3:30PM PST/6:30 PM EST

    Death with Dignity Law is the topic of our show today. This is not an easy topic to talk about, unless, you are facing an ultimately fatal condition with debilitating pain and suffering which has no hope of improvement or cure. Some say this is a choice that we as humans should have, others say it’s playing God. Today’s discussion is going to take you on a journey to explore your own thoughts about what is right, wrong and what is humane and ultimately if this is something you would even consider. Many states now are signing Death with Dignity Law.

    Our incredible special guest today is Mr. Alan A. Pfeffer, Esq. who has been lobbying our government to change the criteria for the right to die which is modeled on the Oregon model. Alan says, “I am advocating to get the pending legislation in NY on death with dignity modified so as to permit people with HD to take advantage of the mercy that the legislation is intended to provide. In all the bills throughout the country including what was just passed in California, people with H D are left out.” What? How are people with the worst disease known to man being left out of this law? Well tonight we are going to find out…

    Help 4 HD International does not advocate for or against the Death with Dignity Law. Only that everyone should be informed about the subject matter presented in order to educate themselves. We thank Mr. Pfeffer for his courage to talk openly about this very sensitive topic.

  • 00:20

    Testing HD

    in Technology

    Testing HD


    in Health

    September is Prostate Cancer Awareness month and we are talking to patient advocates to get a better insight into their roles in major clinical trial groups. Mike Scott is talking to Tony Crispino, patient advocate to the Genitourinary Cancer Section of the Southwest Oncology Group (SWOG) and a long time prostate cancer advocate on his role as an advocate, and address matters like training available, learning about evidence-based medicine, and funding of clinical trials. Tony will also explore the role of SWOG in recent major trials (like the CHAARTED trial and pivotal trials for enzalutamide, radium-223, abiraterone acetate, etc.) Mike Scott is joined by patient advocates Paul Carpenter, Jan Manarite, and Allen Edel.



  • 00:01

    Hospital vs Clinical Burnout: Mayo Clinic Radio Health Minute

    in Health

    Practicing medicine can be a high stress job, but is there a difference between working in a hospital as opposed to a clinical setting?  In this Mayo Clinic Radio Health Minute, Dr. Daniel Roberts comments on a study which looked at that question. To listen, click the link below. Hospital vs Clinical Burnout

  • 00:47

    Joy Despite Trials

    in Christianity

    Today on My Gospel Soul with Pastor J.

    James 1:2-5 New International Version (NIV)

    Trials and Temptations

    2 Consider it pure joy, my brothers and sisters,[a] whenever you face trials of many kinds, 3 because you know that the testing of your faith produces perseverance. 4 Let perseverance finish its work so that you may be mature and complete, not lacking anything. 5 If any of you lacks wisdom, you should ask God, who gives generously to all without finding fault, and it will be given to you.

  • 01:28

    The Trials of Patience: I need God's Help

    in The Bible

    When everything is going my way, patience is easy to demonstrate.  Me and the Lord are "cool" when He is letting me take it easy in comfort. But during the trials of "Storms" come my way, that is when my love for Him is tested. 

    As a  Christian I have to run the race in trials patiently. That is extremely hard to do sometimes. God commands that we persevere through difficulties until the promise /breaktrought is fulfilled.

    This week on "Christ Voice of Thunder", we are going continue our study on patience and learn how to endure through our stormes of life with the Word of God.

    I hope you can join us.