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00:46HELP 4 HD ~ What is Enroll-HD with Joe Giuliano
Tuesday, September 27, 2011 - Our incredible special guest is Joe Giuliano, Director of Clinical Operations at CHDI Foundation, Inc. He received his degrees in Chemistry and Nursing at the Catholic University of America in Washington, DC and trained in the Six Sigma and Lean Six Sigma methodologies. He applies these skills to develop more efficient clinical trial management processes. He joined CHDI in 2008. Joe has 12 years of experience in academic and pharmaceutical research and development
Tags: CHDI Clinical Trials Huntingtons Disease COHORT ENROLL HD
by HD Support Groups in Science
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01:25
The HD View with Jimmy Pollard
Monday, February 11, 20133:30 pm PT/6:30 pm ETTonight our dear friend Jimmy Pollard is back on the show with us. We will get to catch up with what he’s been up to in the last year. He is very involved in the history, culture, lore and folklore of Huntington’s disease working with the Woody Guthrie archives. We will get to hear about his latest project working in the archives. Interesting and poignant stuff! Stay tuned and welcome to The HD View…
Tags: The Guthrie Center Huntingtons disease Folklore Hurry Up and Wait Enroll HD
by HD Support Groups in Family
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01:02
The HD Veiw Ask Dr. Goodman Show
MONDAY, MARCH 4, 2013 3:30 PM PT/6:30 PM ETDr. Goodman will be talking about:Anosognosia is the medical term for lack of self awareness of one's own disability or disease symptom. This condition, which is different from denial, occurs in many brain diseases including Huntington's disease (HD). Anosognosia is caused by nerve circuit damage to brain structures that interpret and organize information. Lack of awareness in HD creates problems that can range from refusal of therapy: "I don't need t
Tags: Huntingtons disease HD Drug Works Anosognosia Neurology The Brain
by HD Support Groups in Health
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00:53
The HD View ~ Ask Dr. Goodman
MONDAY, JULY 2 , 2012 Dr. LaVonne Goodman will be here this week to talk about her new article "Enroll-HD and the Cystic Fibrosis Model for Quality Care". Read more... www.HDDugWorks.org
Tags: Huntingtons disease Hddrugworks Enroll-HD Clinical Study CHDI
by HD Support Groups in Health
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00:48
Help 4 HD News Channel Update with Dr. Goodman
MONDAY FEBRUARY 18, 2013Happy Monday everyone and thank you for tuning in to Help 4 HD News Channel! This is your host, Melissa Biliardi. Please tell all your colleagues, friends and family about Help 4 HD Radio and click “Follow” on our Show Page to get email reminders of upcoming episodes. I want to thank our 50,350 listeners for tuning in!Help 4 HD News Channel Update is proud to bring the latest news to the community. We aim to address your questions and comments about current topics and tre
Tags: Off Label Drugs Huntingtons disease Parkinsons disease HD Drug Works Dr LaVonne Goodman
by HD Support Groups in Health
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01:00
The HD View Ask Dr. Goodman Show
MONDAY, April 1, 2013 3:30 pm PT/6:30 pm ET
It's time to ask Dr. Goodman "your" questions about the care and treatment of Huntington's disease...
Tonight the topic is "What's empathy got to do with it?" Read her article, ask Dr. Goodman "your" questions and listen to the show. Please tell all your colleagues, friends and family about Help 4 HD Radio and click follow on our show page to get email reminders of upcoming episodes.
Dr. Goodman's listeners have grown to more than 10,000 strong and every month you will get to have direct contact with one of the leading physicians who does care with empathy for our H'Dears and JH'Dears.
Thanks for tuning in. Talk to you soon!
Tags: empathy Huntingtons disease Juvenile Huntingtons disease neuron system Huntingtons care
by HD Support Groups in Health
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01:03
The HD View with Prana Biotechnology, Ltd.
MONDAY, March 18, 2013 Topics that will be focused on are: Our therapeutic strategy ‘MPAC’ technology, what are these compounds like PBT2? Brief historical background as to where our HD program came from. A bit of science (although without AV this will be brief indeed) Why we are hopeful that the mechanism of action may provide patient benefit. In particular our previous work with PBT2 in AD. Outline of Reach2HD, status.
Tags: Therapeutics Biotechnology Clinical trials MPAC Reach2HD
by HD Support Groups in Science
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00:58
The HD View ~ Ask Dr. Goodman Show
Tuesday... new show time!
Dr. Goodman will be with us tonight to talk about CHDI foundation and their role as the "collaborative enabler" with financial clout in drug development for Huntington's disease.
Tune in for a very informative show.
Tags: LaVonne Goodman MD CHDI Huntingtons disease drug development clinical trials
by HD Support Groups in Science
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00:55
The HD View ~ Ask Dr. Goodman New Season Premiere
MONDAY, JANUARY 7, 2013 3:30 pm PST/6:30 pm EST Tonight our incredible Dr. LaVonne Goodman is back for a new season of the "Ask Dr. Goodman Show". Her knowledge and experience in treating Huntington's disease is a valuable and viable asset to our community. We are so blessed to have her return for a new season of continuing education and care for our beloved HD families. Tonight we will hear about "A Clinical Research Workshop" Symposium presented by the Huntingto
Tags: HD Drug Works Huntingtons disease HD Research HD Clinical Trials Huntingtons Study Group
by HD Support Groups in Science
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01:02
The HD View with Danny Cahill
Monday, April 8, 2013 3:30 pm PT/6:30 pm ET - Super special incredible guest tonight will be Danny Cahill, winner of the hit TV series, season 8 of The Biggest Loser. Danny lost 239 pounds in 7 months! Amazing story about how his life was literally turned around by his wife Darci and a prayer. Of course, The Biggest Loser is really the biggest winner. His life has been changed forever. Tune in for an uplifting and inspirational show!
Tags: The Biggest Loser Danny Cahill Darci Cahill Weight Loss Ministry
by HD Support Groups in Health
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00:53
Help 4 HD ~ 411 with James Valvano
PRE-RECORDED - April 2011
Our incredible special guest today is the amazing James Valvano whom we all know and love as a true HD warrior. He has invited us into his psyche with his book One With The Blue and brought us out of the proverbial closet with his films, The Faceless Faces of Huntington's Disease and The Faces of Huntington’s Disease: I Am No Longer a Faceless Face, by igniting the HD community all over the world on Facebook Vimeo and Youtube.
James is so pasTags: Huntingtons disease HD Advocacy HD Awareness HD Parity Act Disability
by HD Support Groups in Education
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01:10
The HD View with Dr. Neal Hermanowicz
MONDAY, March 25, 2013
Our incredible special guest tonight is Dr. Neal Hermanowicz, Director of the Movement Disorders Program at the University of California at Irvine.
Dr. Hermanowicz is engaged foremost in patient care. He is a member of the Parkinson’s Study Group, The Huntington’s Study Group, the Dystonia Study Group, and the Multiple Systems Atrophy Study Group. Dr. Hermanowicz has been involved in numerous clinical trials and research in the area of movement disorders.
UC Irvine Medical Center’s Movement Disorders Services is a multidisciplinary practice that includes neurology, neurosurgery, nursing, physical therapy and nutritional counseling. Dr. Neal Hermanowicz, director, emphasizes that UC Irvine’s movement disorders specialists take a case management approach, which promotes communication among all the members of the team. This has a lot of benefits for patients with complex disorders like Parkinson’s disease, Hermanowicz says.
Tags: Huntingtons disease Parkinsons disease UC Irvine Movement disorders HSG
by HD Support Groups in Health
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