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Tuesday, April 14 - 3:30 pm
The amazing, incredible, fantastic Jimmy Pollard is going to be with us tonight. Jimmy has quite a speaking schedule these days and is on a mission to educate about clinical trials, namely Enroll HD (http://www.enroll-hd.org/), which is a worldwide observational study for Huntington’s disease families. This study will monitor how the disease appears and changes over time in different people, and is open to people who either have HD or are at-risk. Monitoring people over time in a real-world setting contributes to scientific knowledge. The study is designed to accelerate the discovery and development of new therapeutics for HD.
Jimmy says, "No volunteers for studies, no more advances in the quest for a cure!" Enroll-HD
Also find Jimmy's book on Lulu: "Hurry Up and Wait: A Cognitive Care Companion" (http://bit.ly/1DCUJmO)
This book will give you a set of exercises to simulate the cognitive difficulties faced by those with HD, a collection of tips to accommodate them in your home or care home, a strategy to develop new approaches to solving care problems and commentary on common problems faced by family carers and those they love.
Tune in and let's catch up with our most favorite man on the stand, Jimmy Pollard!
TUESDAY, OCTOBER 27, 2015 - 3:30PM PST/6:30 PM EST
Death with Dignity Law is the topic of our show today. This is not an easy topic to talk about, unless, you are facing an ultimately fatal condition with debilitating pain and suffering which has no hope of improvement or cure. Some say this is a choice that we as humans should have, others say it’s playing God. Today’s discussion is going to take you on a journey to explore your own thoughts about what is right, wrong and what is humane and ultimately if this is something you would even consider. Many states now are signing Death with Dignity Law.
Our incredible special guest today is Mr. Alan A. Pfeffer, Esq. who has been lobbying our government to change the criteria for the right to die which is modeled on the Oregon model. Alan says, “I am advocating to get the pending legislation in NY on death with dignity modified so as to permit people with HD to take advantage of the mercy that the legislation is intended to provide. In all the bills throughout the country including what was just passed in California, people with H D are left out.” What? How are people with the worst disease known to man being left out of this law? Well tonight we are going to find out…
Help 4 HD International does not advocate for or against the Death with Dignity Law. Only that everyone should be informed about the subject matter presented in order to educate themselves. We thank Mr. Pfeffer for his courage to talk openly about this very sensitive topic.
TUESDAY, SEPTEMBER 15 - 3:30 pm PST/6:30 pm EST
Happy Tuesday everyone! This is Melissa Biliardi, your host. Our call in numbers are 310-982-4227 or 877-497-4103. When you call in press “1” and we will cue you into the show. Thank you 95 thousand listeners for tuning in to Help4HD Radio. Five years ago I never dreamed that we would be closing in on 100 thousand listeners and 220 episodes. I am so proud and happy to be able to introduce amazing guests to you on each show that we do. Tonight is no exception. We have an incredible, intelligent and brilliant research scientist with us Dr. Kyle Fink, who is working with Dr. Jan Nolta in her Lab at the UC Davis IRC. He is working on research to prepare the very first ever Juvenile Huntington’s Disease Research Initiative with stem cell.
Tonight we get to meet Dr. Fink and learn all about his work in Jan’s Lab. All of our hopes and fears lie with getting research funded through all the phases of clinical trials and to the market for our loved one who are suffering from this horrendous disease. Help4HD is taking a stand to support JHD research. Our very own President Katie Jackson held our first Help4JHD Kids Walk in June which was amazing. We were able to raise a small amount of money for Dr. Fink’ research. We know that without research and clinical trials, none of us will have a chance to help our HD community with treatments, therapies or the cure, so I hope there is someone listening out there who can help us too.
Tune in to a very eduational,and inspirational show!
Tuesday, June 30, 2015 3:30 pm PST/6:30 pm EST
HDSA's Senior Director, Mission and Scientific Affairs, Dr. George Yohrling will be with us to share information about HDSA's newly launched HDTrialFinder.org site. Together with HD Drug Works, HD Buzz, HSG, Huntington Society of Canada, and CHDI, Help 4 HD International is proud to partner in this effort to bring education about clinical trials together in one place. It provides precise and strategic information to our HD community about clinical trials that they may qualify for in their area.
This collaborative effort is a first to bring all the clinical trial information together on one site, a database where information may be called up according to the inquirer's specific location and criteria. Go to: http://hdtrialfinder.org/ and register.
Other topics of discussion:
HDSA's 30th Convention
FDA PDUFA Meeting in September
Tune in for a very special show with Dr. George Yohrling!
#WhoYouGOT LP vs NY+ Young Kannon+ HD Ice Da Rapper Chaos and Ronnie G with THE THINK TANK 6 Predictions and a live ON AIR Hate Report with Lee Hustle, L. BOOGIE and Nina Brown
Monday, November 23, 2015, begins much like last Monday did: Terror, politics, divisiveness, disagreement, confusion and consternation, for beginners. But, as Joe DiSano with DiSano Strategies and Chris Savage with Eclectablog.com also realize there is much more going on that you need to know about, so stay tuned. We'll also explore the race to get your health coverage through the Affordable Care Act, what your options are, and how to best make sure you have exactly what you need and the least expensive way to get it. Erin Knott with Enroll America is back to begin a series to be sure you get all you have coming to take care of yourself and your family.
Join us on-air by calling 347-308-8392 or e-mail Tony at email@example.com. You can like us on Facebook at Tony Trupiano or at The Voice of the People and on Twitter @tonytrupiano and @ VOTPTony.