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  • 00:58

    The HD View Ask Dr. Goodman & Guests

    in Health

    TUESDAY JUNE 2, 2015 - 3:30 pm PST


    Tonight we have a special show with two of Dr. Goodman’s incredible friends who are working directly with the homeless community in Washington State.  As many of you know Huntington’s disease sufferers sometimes end up in homeless situations.  Well, tonight we are going to meet Rev. Jim Bridges who does amazing work to help the homeless and we also get to hear from our super incredible Elizabeth Valenzuela again.  You may remember when she was on the show a year and a half ago when we talked about how she found a man struggling with HD and living in very sad conditions.  We have lots to talk about tonight! Let's get your questions ready for the experts on the state of homlessness.

  • 00:35

    The HD View Ask Dr. Goodman Show

    in Health

    What is Laqunimod?  Laquinimod is an experimental drug from TEVA Pharmaceuticals that has already been tested in previous clinical trials in several diseases including Multiple Sclerosis (MS).  This drug is thought to affect (or modulate) immune activity by shifting an injurious inflammatory situation to one that is more protective and anti-inflammatory. There is also evidence from various clinical trials that laquinimod may delay progression of disability in MS, and that it reduces brain atrophy as measured by MRI brain scans.  By reducing brain atrophy, this drug may have neuroprotective effects [Varrin-Doyer 2014]. This drug can trigger  protective neuron factors like BDNF (as measured in blood of MS clinical trial participants) that supports the health of neurons.  


    We will be talking about LEGATO-HD clinical research trial that will test the safety of Laquinimod.

  • 00:08

    Testing of HD

    in Baseball

    This is a test of the HD system

  • 00:51

    The HD View Ask Dr. Goodman Show

    in Science

    ON HELP4HD RADIO Tuesday, March 3, 3:30 pm PST/6:30 pm EST


    Dr. Goodman writes about the Pride-HD (Pridopidine) study in her recent article...


    "PRIDE-HD: Why We Should Bother"


    Recruitment is not going well for PRIDE-HD, an important clinical trial now enrolling for Huntington's disease (HD). Why is this?  Some think "why bother", particularly when testing a drug they may perceive as a failure in earlier trials. For some others, the trials may seem to too hard, too long, or not permit other drugs they are taking.  Still others are waiting for the gene therapy magic bullet they believe is just around the corner...


    Help4HD says, "Because we don't know until we try."


    Tune in to the show and let's talk about it!

  • 01:10

    Statement HD

    in Television

    Statement HD is an entertainment hub where unsigned and underground artists can come to showcase their work and gain notoriety. Our focus is promotion and networking, bringing creators together in a place where they can learn, thrive, and succeed. 

  • 00:58

    The HD View Ask Dr. Goodman Show

    in Health

    Let's talk about caregiving!  Tune in today as we talk with Dr. Goodman about the challenges of caregiving for our HD and JHD loved ones.  Many of us are dealing with so much loss before the loss and after the loss of our loved ones.  If you are a caregiver you know what I'm talking about. One person states, "On top of the personal stress, there is also the stress of maintaining one's home: replacing broken glass, punched doors, cleaning the furniture, not having friends over as often which lends into losing many people. Many of these "things," which is actually part of one's home community, go to pot so to speak. Even the outside of the home becomes shabby....all this lends to the stress of a caregiver."


    In trying to identify how many of us are caregiving, I found that it's really impossible to know the numbers because of the level of stress that the caregiver is under 24/7.  This stress does not let up; it only intensifies. Those of us who are under this kind of stress don't have time to answer surveys or polls. The question is how can we live like this?  Who will help us?  It's our own community who are so giving and caring and supportive, that's who.  


    Thank you HD Community for all that you do; for your committment to help others. You are amazing!


     

  • 00:03

    Testing HD Safari

    in Technology

    Testing HD Safari  - Who gets dialed

  • 00:05

    Alexis HD test 01

    in Automotive

    Alexis HD test 01

  • 00:04

    Testing HD CB-FS-02

    in Technology

    Testing HD CB-FS-02

  • 00:04

    2 hours of BTR HD Fun

    in Technology

    2 hours of BTR HD Fun

  • 01:01

    The HD View Celebrates the JHD/HD Advocates

    in Moms and Family

    Tuesday, December 16, we are celebrating all of our amazing JHD/HD advocates who give of their time and energy so willingly and freely to make a difference for their loved ones and for our community members who are suffering from Juvenile Huntington's disease and Huntington's disease. Tonight we will be speaking with four incredible special guests: Stacey Sargent, Roberta Brink, Sharon Thomason, and Vicki Owen. We are so excited to be able to show our appreciation for all that they do AND for all that you all do for bringing awareness and advocacy to JHD and HD. Tune in for an incrediblly special program.