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Mike and Joyce speak with Dr. Julia Hallisy about The Empowered Patient Coalition: providing healthcare improvement and patient safety tools directly to consumers.
About Dr. Hallisy:
Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since that time, she has been a full-time practicing San Francisco dentist.
Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
Dr. Hallisy began to research the topic of patient safety in 1998. She has lobbied for health care reform in Washington, DC with Consumer’s Union.
Dr. Hallisy is committed to and passionate about the subjects of patient safety, health care reform and medical error reduction. She is the founder and president of The Empowered Patient Coalition.
Dr. Hallisy was born and raised in San Francisco, where she lives with her husband, John Hallisy, and their two sons, Daniel and Kevin. The Hallisy’s ten-year old daughter, Kate, lost her life-long battle with cancer in February 2000.
Join us as we share with you of what's going on at Men-empowered for the Month of Feb 2016. Upcoming New Shows and some guest that will be with us in the up-coming Months. Events in and around Hattiesburg, MS; New Orleans, LA; Dallas, TX; New York, NY; and Tri-State Area and the rest of North America
Robin and Joyce speak with Lesley Bennett, state coordinator for the National Organization for Rare Disorders (NORD) in Connecticut, about the importance of the voice of the "consumer" in healthcare as in retail or other "marketing" relationships.
Joyce and Lesley recently attended the annual meeting of the New England Regional Genetics Group (NERGG) in Portsmouth, New Hampshire. What role should consumers play in a professional organization? NERGG has included consumers in its governance for the past 38 years, and yet they are still struggling to define a clear role for consumers in the workings of the organization.
What do consumers want? How can organizations work with them to include them in constructive ways?
Who is Listening to the Patient Voice?
Patients and the regulatory process - appraisal, approval, access issues
Patient involvement in clinical trials - design, recruitment and retention
Patient involvement in the design of hospital cancer services
The patient voice in kidney cancer guidelines/pathways
What happens at a patient support conference? Is it worthwhile to go, or will it be stressful?
Carla talks with Robin and Joyce about her own recent experience.
Carla applied to the New England Regional Genetics Group (http://www.nergg.org) for an A. Merrill Henderson scholarship to attend a patient support conference. This grant enabled her to attend and learn.
There are many challenges common to all rare diseases:
1. How to get a correct diagnosis?
2. How to find doctors who understand the condition and can provide therapeutic help.
3. How to manage day to day, making choices and getting medical help to moderate the symptoms and maximize one's quality of life.
The VHL Alliance assembled its first collection of guidelines for patients and their general doctors in 1993, and has been evolving it regularly since then as new information has emerged. This is now one of the best established Handbooks for a rare disease -- now in its 5th edition, and translated into 15 languages.
Joyce and Robin speak with Suzanne Nylander, O.D., editor of the 5th edition, about what's new in the Handbook, how the Handbook helps both patients and doctors, and what they have learned about the power of sharing information -- among patients and among physicians and healthcare systems worldwide.
Hard copies are available for purchase from the Alliance or from Amazon.com. You can download the text for free at http://vhl.org/handbook.
As more and more hospitals, clinics, and doctors merge and integrate into large health systems. It can become confusing for patients to know where and how to receive care. Coordinating efforts to improve patient access and intake takes serious strategy and planning across the entire enterprise. Singola is here to help.
How can we understand the current medical revolution that is driven by accelerating technologies and thus be empowered? Join us as bestselling author Robin Farmanfarmaian talks about how medical technology can empower the consumer.
Robin Farmanfarmaian is an entrepreneur, founder, speaker and best selling author working in cutting edge technology and medicine. Currently Farmanfarmaian is the COO and SVP of Arc Fusion Programs, working on the fusion of medicine, science and IT, and a VP at INVICTA Medical, a device company for sleep apnea. A life long philanthropist and mentor, she is the Co-Founder and on the Board of Directors (formally Executive Director) for the Organ Preservation Alliance, catalyzing breakthroughs in organ banking for transplants and tissue engineering, and President for the Innovation for Jobs Summit, finding solutions to disrupt unemployment. Robin is on the advisory board of many startups and conferences, and mentors female entrepreneurs. Previous work includes being one of the founders of Morfit, the Exponential Medicine conference, and a VP at Singularity University. Her book, “The Patient as CEO: How Technology Empowers the Healthcare Consumer”, is a #1 Best Seller on Amazon.
in Self Help
Thanks for tuning into our next show.
Today I want to talk to you about being open to receive.
Did you ask the Universe for some help?
Are you afraid to make changes in your life, even though you might be ready?
Learn how to step into your greatness.
Let go of the past that is interfering with your present.
Let your present intentions create a ripple effect for your future self.
copyright 2015 Jodie Baudek All Rights Reserved
I want to talk to you guys about something that is really important today. That something is you. I want you to choose you. You can get lost in the shuffle, you get put on the back burner because you are doing everything you ‘get’ to do everyday. You get to take care of your life, you get to work, you get to do a lot of things. And when I say ‘get’, that is what I mean, you really ‘get’ the chance to do all those things. Often I hear people say,”Oh, well I gotta I do this, and I gotta to do that.”
No, you get to. You get to do all those things. You woke up this morning and that means this world is not done with you.
You have a gift and you get to share your gift.
That gift is… you.
Father Donald E. Mowery is the retired leader of Youth Services globally. He has had a radio show, Talk it Out with Father Don, on WHBQ radio in Memphis, Tennessee, for the past 45 years. This month Joyce Graff appeared on his show. Joyce and Father Don have a great conversation about Powerful Patient and its mission, and also about Youth Services and its mission, highlighting many parallels. In both cases, they work to empower people to work through the issues they cannot change and tackle constructively the things they can change.
Learn more about Father Don. A new book, Spiritual Networking, by Darrell B. Uselton and David Yawn, recounts the history of Youth Services in Memphis and worldwide.
Depending on what season you are in, whether it be a season of your life, or the holidays, or wherever you are.
We have a tendency of putting so many expectations on ourselves. I want you to switch that thought in your mind and think …
“I get to” not “I have to”
It’s all comes down to you and how you think about things. If you just take a step back to take it all in, you get to see how happy you are in your own life. Flip you perspective and look at it this way. You get to do all of these things thanks to a healthy body, you get to pick out a new outfit, you getto eat amazing food, and you get the opportunity to spend time with people you may not see that often.
Everything is an opportunity. When you get to do all of these things, you get to live in a place of gratitude.
Living in a state of gratitude changes your quality of life.
Do you judge a book by the cover?
What is your journey?
The past is not to be used for blame. Change your story, in your mind. You learned, and you grew. There is something you took away from every single experience in your life. You are learning about yourself. You get to choose how you spend your time and what you do with your mind.
Is there something in your mind that takes over without you even knowing? You can stop it from growing and getting out of control.
Tell yourself that you are worthy and deserve all the blessings the world has to offer you.
Take yourself to a place of gratitude and watch what happens.
Make your story incredible. You choose your words, you choose your thoughts.
What happens when you start living from a place of gratitude?
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