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01:01Ehlers-Danlos Syndrome with Ellen Smith
Individuals with EDS have a defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein, which acts as a "glue" in the body, adding strength and elasticity to connective tissue. Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) hyp
Tags: Ehlers Danlos Syndrome EDS Ehlers Danlos National Foundation Invisible Project Drug Sensitivity Testing
by Coach Marla in Health
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00:28Featured
Ehlers-Danlos syndrome with Shannon Rose
National spokesperson for Ehlers-Danlos syndrome (EDS), Shannon Rose, is deeply committed to increasing national awareness of EDS because he has bravely fought the disorder his whole life. Shannon Rose is a testament to the tenacity and power of the human spirit when it is driven to survive and he is dedicated to educating the public about the complexity of Ehlers-Danlos syndrome. Shannon has battled with this condition from losing his voice for a year to losing the use of his arm
Tags: Ehlers-Danlos syndrome Human spirit Shannon Rose living without a cure The American spirit
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01:08
Learn About Ehlers-Danlos Syndrome with Ellen Smith
Individuals with EDS have a defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein, which acts as a "glue" in the body, adding strength and elasticity to connective tissue. Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) hyp
Tags: Ehlers Danlos Syndrome EDS Ehers Danlos National Foundation Invisible Project Faulty Collagen
by Coach Marla in Health
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00:59
Lynn Sanders will explain "Ehlers-Danlos Syndrome"
Ehlers Danlos Syndrome (EDS) is a group of heritable connective tissue disorders affecting about 1 in 5,000 – 10,000. It is characterized by (joint) hypermobility, skin extensibility (stretchy skin) and tissue fragility (scaring & bruising). It is caused by faulty collagens. Collagens provide structure and strength to connective tissue throughout the body. Type III collagen is mostly found in skin, blood vessels, and internal organs. There are six major types of Ehlers-Dan
Tags: Lynn Sanders Ehlers Danlos Syndrome Inherited in genes Abnormal Proteins Tenascin
by Coach Marla in Health
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00:30
THE MARTYR SYNDROME
HAVE YOU HEARD ABOUT THE NEWEST DIS-EASE IN PARENTS? IT IS THE "MARTYR SYNDROME!" MANY TIMES IT CAUSES A PARENT TO LEAVE HER/HIS CHILDREN EMOTIONALLY AND SOMETIMES PHYSICALLY. WE WILL TALK ABOUT THIS TODAY, MONDAY, AT 11, FAVORITE LISTENERS. LOVE, LINNY
Tags: martyr syndrome martyr narcissist leave children selfish
by Healthy Self in Spirituality
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01:10
Noonan Syndrome, RASopathies Foundation
Julie N. Jancius is the mom of Ellie, born with Noonan Syndrome. President/CEO of RASopathies Foundation and Noonan Syndrome Foundation branch. Julie discusses the rollercoaster journey of Noonan Syndrome and the gifts of RASopathies Foundation.
http://www.teamrasopathies.org
http://www.teamnoonan.org
RASopathies Foundation (803)522-3110
Tags: Noonan Syndrome RASopathies Foundation volunteers Nissenfundoplication surgery non-profit
by child care fusion in Family
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00:48
Angelman Syndrome: the genetics of it
Amanda Williams is a wife, mom, hairstylist, advocate for their son, Jayden, who has Angelman Syndrome, and resident of Ponchatoula, LA.
http://www.angelman.org Angleman Syndrome Foundation, Inc.
http://cureangelman.org Foundation for Angelman Syndrome Therapeutics
http://angelmanbehaviors.org Angelman Syndrome Foundation
Tags: Angelman Syndrome genetics chromosones symptoms diagnosis
by child care fusion in Family
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01:21
Asperger's Syndrome and Sex
Asperger's Syndrome or Asperger's Disorder is an Autism Spectrum Disorder (ASD) that is distinguished by patterns of symptoms as opposed to a single symptom. Characteristics of Asperger's can include restrictive patterning in behavior, activities and interests. It can also include preoccupation of narrow subjects, abnormalities in speech such as abrupt transitions, literal interpretations and mis-comprehension of nuance. But what we're going to focus on in this episode are the challenges that come from the unusually sensitive or insensitivity to sound, light and touch.
We will be joined by a former guest Steve from the episode Seduction by Sole who has Asperger's and can tell us first hand how Asperger's effects his sex and fetish life. This is an especially important episode for those of you in the sex and BDSM world who may encounter someone with Asperger's and how they can make their sexual experience even better and how to avoid pitfalls that can come with these intense sensitivities.
**Please Note** If you see a differing date in the url of this program, this is a BTR glitch for shows that start after a certain time of day. This show is definitely Tues Apr 30, 2013 at 10 PM ET. Although all our shows say that they are 2 hrs in length we try to keep it as close to 1 hr as possible so get those calls in EARLY!
Tags: aspergers syndrome aspergers sex fetish coping with aspergers
by In Bed with Dr Sue in Health
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00:34
Understanding Down Syndrome
On This Episode of The Beautiful Butterfly Show we will be Discussing " Understanding Down Syndrome". When it comes to Down Syndrome alot of people are often left clueless and to what it entails, how does it happen???... what its like for a child?? and what a parent goes through raising a child with Down Syndrome. Today Ms Teri The Advocate will be Joining us and sharing her personal story as she is raising a daughter with Down Syndrome!
***Down syndrome (DS), also called Trisomy 21, is a condition in which extra genetic material causes delays in the way a child develops, both mentally and physically. It affects about 1 in every 800 babies born in the United States.
Though Down syndrome can't be prevented, it can be detected before a child is born. The health problems that may go along with DS can be treated, and many resources are available to help kids and their families who areTags: Beautiful Butterfly Down Syndrome Awareness Education Children
by Beautiful Butterfly in Life
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00:46
Cohen Syndrome: A Different Time
Carrie Champeau, resides in Victoria, Minnesota. She is a wife, a SAHM and a mother of 4 adult children. 2 of the adult (ages: 26 and 22 years old) children were diagnosed with Cohen Syndrome approximately 6 months ago. Carrie lovingly tells the joys and difficulties of raising 2 chilldren with Cohen Syndrome.
Tags: cohen syndrome parents testing genetics joy
by child care fusion in Family
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03:03
Live chat about Cerebral Palsy and Cri-du-Chat syndrome
Sharon Byfield. The mother of Joey. I'm a loving mother of four. I love children and love working with them and helping them. I've been a foster mother for over 20 years and I've worked with pregnant teens, Medical Fragile babies, and Special Needs children. We have four children in which we love so dearly. Joey Byfield is a 12 year old boy who has Cru-de-Chat, Cerebral Palsy, and is also fed by a G-Tube. He doesn't walk or talk. But he's a loving boy and his spirit is as joyous as can be. He loves soft music, but he's a fan of Bob Marley. He will move those legs of his to jam to Bob Marley all day if he could. Joey is in need of a medical fragile bed that is very expensive, that will prevent him from falling out of bed, due to the fact that he can not break his falls. Joey has two sisters, an older brother; in which the youngest sister is medical fragile too. Joey wants to be where all the fun is and lives life to the fullest, omitting his situation.We hope this beautiful celebration can help him continue his life in a fulfilling way.
Cri du chat syndrome, also known as chromosome 5p deletion syndrome, 5p minus syndrome or Lejeune’s syndrome, is a rare genetic disorder due to a missing part of chromosome 5. Its name is a French term (cat-cry or call of the cat) referring to the characteristic cat-like cry of affected children. It was first described by Jérôme Lejeune in 1963. The condition affects an estimated 1 in 50,000 live births, strikes all ethnicities, and is more common in females by a 4:3 ratio
Tags: Cru-de-Chat syndrome Cerebral Palsy Live chat births genetic disorder
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00:29
Heartline: Aspergers Syndrome
Heartline with Rita Schulte
For more info on Rita please visit her web site at www.ritaschulte.com
Checking the Pulse on your heart by taking a look at some of the cutting edge issues that are affecting you and the people around you. And have you consider...
How in the world is all this mess called life affecting your heart?
Today's Show:
Autism is hot topic surrounded by a lot of controversy. So today, We’re gonna get some expert advice on a form of autism called Aspergers Syndrome with my guest Stephanie Holmes. She’s a Certified Autism Specialist and a Christian Counselor. This is a really personal topic for Stephanie because her oldest daughter was diagnosed with Asperger’s Syndrome in 2004. Stephanie has a burden to help special needs students and families deal with the frustrations and challenges
Tags: christian women Rita Schulte daily issues Counseling real life
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