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  • 00:28

    Ehlers-Danlos syndrome with Shannon Rose

    in Health

     
    National spokesperson for Ehlers-Danlos syndrome (EDS), Shannon Rose, is deeply committed to increasing national awareness of EDS because he has bravely fought the disorder his whole life. Shannon Rose is a testament to the tenacity and power of the human spirit when it is driven to survive and he is dedicated to educating the public about the complexity of Ehlers-Danlos syndrome.
     Shannon has battled with this condition from losing his voice for a year to losing the use of his arms to making his home in the hospital.
     Due to the rarity of EDS, May has become the official Awareness Month and one of the main issues with awareness is that many doctors have little to no experience in treating Ehlers-Danlos which can be frustrating to the few who suffer from this uncommon and often life threatening disorder.

  • 01:08

    Learn About Ehlers-Danlos Syndrome with Ellen Smith

    in Health

    Individuals with EDS have a defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein, which acts as a "glue" in the body, adding strength and elasticity to connective tissue.

    Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) hypermobility, skin extensibility and tissue fragility. There are six major types of EDS. The different types of EDS are classified according to their manifestations of signs and symptoms. Each type of EDS is a distinct disorder that "runs true" in a family. This means that an individual with vascular Type EDS will not have a child with Classical Type EDS.
     
    Learn More:  Ehlers-Danlos National Foundation   or  Invisible Project
     
    CALL  IN#:  (347) 324 - 5661 then push 1 if you wish to speak.

  • 00:59

    Lynn Sanders will explain "Ehlers-Danlos Syndrome"

    in Health

    Ehlers Danlos Syndrome (EDS) is a group of heritable connective tissue disorders affecting about 1 in 5,000 – 10,000. It is characterized by (joint) hypermobility, skin extensibility (stretchy skin) and tissue fragility (scaring & bruising).




    It is caused by faulty collagens. Collagens provide structure and strength to connective tissue throughout the body. Type III collagen is mostly found in skin, blood vessels, and internal organs.



    There are six major types of Ehlers-Danlos Syndrome. The different types of EDS are classified according to their manifestations of signs and symptoms.

     

    Many EDS patients have so many signs and symptoms, it makes it hard for a doctor to diagnose this disorder.

     

    There is no cure and no treatments for Ehlers-Danlos Syndrome.

     

    Learn More:  Ehlers-Danlos Syndrome

     

    CALL  IN  NUMBER:  347-324-5661

  • 01:00

    MyNDTALK - The Olivia Pope Syndrome

    in Psychology

    The 'Olivia Pope Syndrome' 


    Psychotherapist Sabrena Barnes-McAllister discusses her personal and professional experiences with what she has termed "The Olivia Pope Syndrome" - why do women knowingly - or perahps unknowingly - fall for unavailable men - and stay in what are ultimately unfulfilling and painful relationships? 

  • 01:09

    Impostor Syndrome

    in Lifestyle

    Impostor syndrome is the feeling that you’re a fraud—that you’re somehow less qualified, less deserving of success. There is the fear that you’ll be “found out," which may lead you to attempt to work longer and harder than others. This can be a source of resentment, exhaustion, and a sense of impending doom. While Impostor Syndrome is not solely the domain of alcoholics, many of us report deep attachments to perfectionism and, it's cousin, Impostor Syndrome. Many of us drank over our feelings of resentment and fear arising from the core belief that we were frauds. Now that we are sober, we can bring these fears into the light of truth. When we think, "I'm a fraud," instead of drinking, we ask, "Is that true?" We connect with our recovery communities and see the truth of our own self-worth reflected back at us in the faces of our sober friends. We learn to discard these old patterns of thinking and replace them with healthier, more balanced ones. In recovery, we find freedom from the tyranny of Impostor Syndrome.

  • 02:01

    The Movement Revisited Stockholm Syndrome

    in Psychology

    This episode of Struggle & Progress was originally broadcast on March 7, 2011

  • 00:32

    vexation, the Naaman Syndrome

    in Christianity

    There are times when we must do certain things in order to acheive specific goals, even though we are not accustom to it...
     

  • 02:08

    Do African American Women Have Stockholm Syndrome ? (347-855-8802)

    in Social Networking

    Tonight on "Living Off The Grid Radio" Mr. Charles Tyler and guess shall be asking the question:


    "Do African American Women Suffer From Stockholm Syndrome ?"


    The demographic is not limited to black women, but to women across the board.


    Stockholm Syndrome (as in relationship to our show tonight) is when an abused woman feels and expresses positive feelings  towards the person who abuses them..........even to the point of defending them. 


    The fact that (some NOT ALL) black women "could" have Stockholm Syndrome explain why many women do not like "nice guys" ?

  • 00:56

    Women in Leadership. What Works, What Doesn’t and Where We Need to Go from Here

    in Business

    From biases to skill, from mentoring to sponsorship, Vickie Panhuise will talk to us about her journey to the top as President of Airborne Systems, a Division of HDT.  Vickie Panhuise will talk to us about her journey to the top and Her Successful Transition to Leading Her Own Practice, Walking Her Talk, and Self-Funding a Scholarship Program for Young Women.

  • 00:31

    Cancer in Families - Lynch Syndrome

    in Health

    Joyce and Mike speak with Georgia Hurst as part of Lynch Syndrome Awareness Week.


    Georgia Hurst is a patient advocate for those with Lynch syndrome. She is the founder of the website and blog: <a href="http://ihavelynchsyndrome.com">ihavelynchsyndrome.com</a>. She frequently writes about the emotional aspects of having Lynch syndrome, and writes for various websites and journals in order to create awareness amongst the global medical community about this hereditary cancer syndrome. Georgia is a wife and mother, and loves espresso, books, and being bossed around by her adorable dog named Sid.


    What is Lynch syndrome?  We will learn more from Georgia, or you can read about it on her website, or in this article from <a href="http://http://www.curetoday.com/community/georgia-hurst/2015/02/i-have-lynch-syndrome">www.curetoday.com</a>


    Georgia noticed that there were several people in her family who had cancer at early ages, and several with the same cancer.  This can indicate that there is something genetic predisposing family members to cancer.  She delved deeper, got to a diagnosis, and kept asking questions, finding out how to protect herself and others in her family from the worst consequences of this condition.


    Hear her remarkable story, the path she followed in doing her own research, and the partnerships she has developed with medical professionals to help her make progress for herself and others.


     

  • 01:23

    Max's Story. Hope from Hoplessness

    in Health

    Imagine being told that your child has a genetic disease or abnormality and there is no possibility of a normal life, what would you do? Go along with the expected course as written in the medical journals or look for alternatives to give him the best quality of life? As your host for many years-I KNOW what you will do!


    On Monday , May 18, 2015 at 8pm eastern,  we have the pleasure of interviewing Melissa who is the mother of Max who was diagnosed with the chromosomal disorder known as PTLS (Potocki-Lupski Syndrome). The expected features of the syndrome include mental retardation, autism spectrum disorder, infantile hypotonia, sleep apnea, structural cardiovascular anomalies, cognitive deficits, abnormal social behaviors, learning disabilities, ADD, OCD, short stature and failure to thrive.


    Max's mom, through diligent research, has improved Max's condition beyond all expectations.. This is a heartwarming story but carries a very heavy message. Different from at the genetic polymorphisms, children with chromosomal abnormalities are not expected to thrive or do well. Please join us and listen to how Melissa overcame her fears, challenge the medical establishment's expectations and gave Max fighting chance for normal living. The story will surprise you, warm your heart and (I hope) spur you to action for these children were not being given the proper opportunity to live.


    Because of the time difference (the family lives in the southern hemisphere) I recorded the interview and will play it during our regular show on 5/18/15 at 8 PM Eastern time.


    See you then Dr. Jess :-)