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Dave deBronkart has a well-earned reputation as an e-Patient. An internationally recognized speaker, author, and health policy advisor, he has words of strength for patients for sure.
In addition, he works with physicians, hospitals, and pharmaceutical companies to help them Let Patients Help!
When most manufacturers decide to create a new product, they do market research and conduct focus groups to determine in advance what the consumers want.
In medicine, it's mostly about what the doctors want.
But the doctors are not the end-user consumers in medicine, they are talented and experienced personnel, but the end-user consumers are the patients.
Come hear what Dave believes are the many ways that Patients can help improve healthcare.
See also Dave's new book, Let Patients Help! A patient engagement handbook - how doctors, nurses, patients and caregivers can partner for better health care. http://www.epatientdave.com/let-patients-help/
Audio clip credits:
Gimme My DaM Data – Maastricht, 2011
Posted by WellApps, https://www.youtube.com/watch?v=0b4li7N_7Ck
Music Video by the Collaborative Agency Group, 2013
Father Donald E. Mowery is the retired leader of Youth Services globally. He has had a radio show, Talk it Out with Father Don, on WHBQ radio in Memphis, Tennessee, for the past 45 years. This month Joyce Graff appeared on his show. Joyce and Father Don have a great conversation about Powerful Patient and its mission, and also about Youth Services and its mission, highlighting many parallels. In both cases, they work to empower people to work through the issues they cannot change and tackle constructively the things they can change.
Learn more about Father Don. A new book, Spiritual Networking, by Darrell B. Uselton and David Yawn, recounts the history of Youth Services in Memphis and worldwide.
Mike and Joyce speak with Dr. Julia Hallisy about The Empowered Patient Coalition: providing healthcare improvement and patient safety tools directly to consumers.
About Dr. Hallisy:
Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since that time, she has been a full-time practicing San Francisco dentist.
Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
Dr. Hallisy began to research the topic of patient safety in 1998. She has lobbied for health care reform in Washington, DC with Consumer’s Union.
Dr. Hallisy is committed to and passionate about the subjects of patient safety, health care reform and medical error reduction. She is the founder and president of The Empowered Patient Coalition.
Dr. Hallisy was born and raised in San Francisco, where she lives with her husband, John Hallisy, and their two sons, Daniel and Kevin. The Hallisy’s ten-year old daughter, Kate, lost her life-long battle with cancer in February 2000.
September is Prostate Cancer Awareness month and we are talking to patient advocates to get a better insight into their roles in major clinical trial groups. Mike Scott is talking to Tony Crispino, patient advocate to the Genitourinary Cancer Section of the Southwest Oncology Group (SWOG) and a long time prostate cancer advocate on his role as an advocate, and address matters like training available, learning about evidence-based medicine, and funding of clinical trials. Tony will also explore the role of SWOG in recent major trials (like the CHAARTED trial and pivotal trials for enzalutamide, radium-223, abiraterone acetate, etc.) Mike Scott is joined by patient advocates Paul Carpenter, Jan Manarite, and Allen Edel.
Hosted by Marti Oakley & Debbie Dahmer
My father, Keith Blair, went into the hospital in July of 2009 for diagnosis of back pain. Without our knowledge or consent, he was given a cocktail of Risperdal, Haldol, Ativan, Tylenol with codeine, and Morphine. When I asked the doctor about this, he said it was just "hospital delirium," Sent to a nursing home, my father was given more antipsychotic drugs, along with double doses of AmbienCR, the long acting version of the drug. He ended up with the bad side effects of these black box drugs such as heart trouble, severe dehydration and kidney trouble, and sudden diabetes. He also contracted a MRSA eye infection which spread to his lungs, fell 7 times in 12 days and developed a bedsore. (He was only in the nursing home 18 days.) He ended up a second hospital due to heart and kidney problems, where the same nursing home doctor treated him.) At the second hospital, he was given daily Risperdal, and we were told to prepare for his death. When I went through the records later, I discovered that a cardiologist said he was improving and that he could be released to the nursing home in a few days.
2. How to get ALL the records.
3. Your rights in a hospital or nursing home as a patient or family member. Know the codes in your state so you can use them. if needed, if facilities try to violate these rights.
3. Dealing with the health department for complaints. Your rights in a complaint. The complaint in my father's case resulted in a new policy from the health department, AFL 1108. It mandates that nursing homes must verify that patients on antipsychotic drugs being transferred from hospitals have informed consent forms in their records, and if not, that informed consent must be obtained before the drugs can be given.
4. Dealing with the medical board for complaints.
L*I*V*E On Air Readings with popular Firefly Willows L*I*V*E host, HiC Luttmers ((r)Evolution and The Amethyst Oracle). Skype in or call 646.716.5510 during the show to receive a reading L*I*V*E on the air.
• Tarot • Intuitive Coaching • Runes • Animal Medicine • Shamanic Coaching • Psychic Messages • I-Ching •
Call or Skype in during the L*I*V*E show and receive a free reading. Got a question? Got a problem? Need some guidance?
• Relationships • Money • Love • Career • Life Path •
Bring a question, and we'll look at what guidance Spirit has to offer you.
Population health has arrived on the healthcare scene, and if we’re smart, we’ll make sure it’s here to stay. Susan Marks from Amati Health will talk with Singola Consulting about why it’s smart to move towards population health, what an effective strategy looks like, and how it benefits both healthcare organizations and the patient experience.
Dr. Nancy Finn has written a sequel to her book, ePatients Live Longer. Joyce and Mike speak with her about the new edition, and what she has learned since the writing of her earlier book. How does it help a patient to do some research, get engaged, and advocate for him or herself?
See Nancy's website at http://healthcarebasicsinfo.com/
Deb Maskens was diagnosed at the age of 14 with papillary renal cell carcinoma. Now with adult children of her own, she has been living most of her life on one clinical trial or another, working to control the growth of tumors and to maintain her quality of life. She helped to form Kidney Cancer Canada, and the International Kidney Cancer Coalition (IKCC), sharing her experience and knowledge with other kidney cancer patients around the world.
In September 2015 she attended the European Society for Clinical Oncology (ESCO) meeting in Vienna and filed this report, which Joyce and Robin will be discussing with her.
In addition, she is part of a team at the International Kidney Cancer Coalition which has recently opened an informational website on Immuno-Oncology. Hopes are high for this new angle on controlling cancer, but how much of the hype is yet real?
Listen to the conversation and check out http://www.10forIO.info
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