Our Terms of Use and Privacy Policy have changed. We think you'll like them better this way.

  • 00:30

    Should I go to Patient Support conference?

    in Health

    What happens at a patient support conference? Is it worthwhile to go, or will it be stressful? 


    Carla talks with Robin and Joyce about her own recent experience. 


    Carla applied to the New England Regional Genetics Group (http://www.nergg.org) for an A. Merrill Henderson scholarship to attend a patient support conference.  This grant enabled her to attend and learn. 


     

  • 00:32

    Patient Information - new info for VHL

    in Health

    There are many challenges common to all rare diseases:


    1. How to get a correct diagnosis?


    2. How to find doctors who understand the condition and can provide therapeutic help.


    3. How to manage day to day, making choices and getting medical help to moderate the symptoms and maximize one's quality of life.


    The VHL Alliance assembled its first collection of guidelines for patients and their general doctors in 1993, and has been evolving it regularly since then as new information has emerged.  This is now one of the best established Handbooks for a rare disease -- now in its 5th edition, and translated into 15 languages.


    Joyce and Robin speak with Suzanne Nylander, O.D., editor of the 5th edition, about what's new in the Handbook, how the Handbook helps both patients and doctors, and what they have learned about the power of sharing information -- among patients and among physicians and healthcare systems worldwide.


    Hard copies are available for purchase from the Alliance or from Amazon.com.  You can download the text for free at http://vhl.org/handbook.

  • 00:24

    Patient Access and Intake and You

    in Health

    As more and more hospitals, clinics, and doctors merge and integrate into large health systems. It can become confusing for patients to know where and how to receive care. Coordinating efforts to improve patient access and intake takes serious strategy and planning across the entire enterprise. Singola is here to help.

  • 00:31

    e-Patient Dave says "Let Patients Help!"

    in Health

    Dave deBronkart has a well-earned reputation as an e-Patient.  An internationally recognized speaker, author, and health policy advisor, he has words of strength for patients for sure.  


    In addition, he works with physicians, hospitals, and pharmaceutical companies to help them Let Patients Help!


    When most manufacturers decide to create a new product, they do market research and conduct focus groups to determine in advance what the consumers want.


    In medicine, it's mostly about what the doctors want.


    But the doctors are not the end-user consumers in medicine, they are talented and experienced personnel, but the end-user consumers are the patients.


    Come hear what Dave believes are the many ways that Patients can help improve healthcare.


    See also Dave's new book, Let Patients Help! A patient engagement handbook - how doctors, nurses, patients and caregivers can partner for better health care.  http://www.epatientdave.com/let-patients-help/


    Audio clip credits:


    Gimme My DaM Data – Maastricht, 2011


    Posted by WellApps, https://www.youtube.com/watch?v=0b4li7N_7Ck


    Music Video by the Collaborative Agency Group, 2013


    https://www.youtube.com/watch?v=iqJKTWYHf4s

  • 01:00

    Author Robin Farmanfarmaian on The Patient as CEO

    in Health

    How can we understand the current medical revolution that is driven by accelerating technologies and thus be empowered? Join us as bestselling author Robin Farmanfarmaian talks about how medical technology can empower the consumer.


    Robin Farmanfarmaian is an entrepreneur, founder, speaker and best selling author working in cutting edge technology and medicine. Currently Farmanfarmaian is the COO and SVP of Arc Fusion Programs, working on the fusion of medicine, science and IT, and a VP at INVICTA Medical, a device company for sleep apnea. A life long philanthropist and mentor, she is the Co-Founder and on the Board of Directors (formally Executive Director) for the Organ Preservation Alliance, catalyzing breakthroughs in organ banking for transplants and tissue engineering, and President for the Innovation for Jobs Summit, finding solutions to disrupt unemployment.  Robin is on the advisory board of many startups and conferences, and mentors female entrepreneurs. Previous work includes being one of the founders of Morfit, the Exponential Medicine conference, and a VP at Singularity University. Her book, “The Patient as CEO: How Technology Empowers the Healthcare Consumer”, is a #1 Best Seller on Amazon.

  • 01:11

    Johnny and Tom-E Show

    in Comedy

    On today's show Tommy and Johnny talk Super Bowl Tommy finishes up the quiz that he is losing at. Walt calls in with the Wicked Women of the week Brian calls in with his super bowl predictions!!! yes predictions. Join in for the fun!


     

  • 02:16

    L*I*V*E On Air Readings

    in Lifestyle

    L*I*V*E On Air Readings with popular Firefly Willows L*I*V*E host, HiC Luttmers ((r)Evolution and The Amethyst Oracle).


    Skype in or call 646.716.5510 during the show to receive a reading L*I*V*E on the air.


    • Tarot • Intuitive Coaching • Runes • Animal Medicine • Shamanic Coaching • Psychic Messages • I-Ching •


    Call 646.716.5510 or Skype in during the L*I*V*E show and receive a free reading.


    Got a question? Got a problem? Need some guidance?


    • Relationships • Money • Love • Career • Life Path •


    Bring a question, and we'll look at what guidance Spirit has to offer you.

  • 01:01

    Powerful Patient meets Youth Services

    in Health

    Father Donald E. Mowery is the retired leader of Youth Services globally.  He has had a radio show, Talk it Out with Father Don, on WHBQ radio in Memphis, Tennessee, for the past 45 years.  This month Joyce Graff appeared on his show.  Joyce and Father Don have a great conversation about Powerful Patient and its mission, and also about Youth Services and its mission, highlighting many parallels.  In both cases, they work to empower people to work through the issues they cannot change and tackle constructively the things they can change.


    Learn more about Father Don.  A new book, Spiritual Networking, by Darrell B. Uselton and David Yawn, recounts the history of Youth Services in Memphis and worldwide.

  • 00:31

    Empowered Patient Coalition

    in Health

    Mike and Joyce speak with Dr. Julia Hallisy about The Empowered Patient Coalition: providing healthcare improvement and patient safety tools directly to consumers.


    http://empoweredpatientcoalition.org


    About Dr. Hallisy:


    Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since that time, she has been a full-time practicing San Francisco dentist.

    Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
      
    Dr. Hallisy began to research the topic of patient safety in 1998. She has lobbied for health care reform in Washington, DC with Consumer’s Union.

    Dr. Hallisy is committed to and passionate about the subjects of patient safety, health care reform and medical error reduction. She is the founder and president of The Empowered Patient Coalition.

    Dr. Hallisy was born and raised in San Francisco, where she lives with her husband, John Hallisy, and their two sons, Daniel and Kevin. The Hallisy’s ten-year old daughter, Kate, lost her life-long battle with cancer in February 2000.

  • 00:35

    E Badu Radio

    in Music

    Non-stop Ghanaian hot dance music.


    Inc:


    Shatta Wale, Sarkodie, Castro, Stonebwoy, etc.

  • 00:51

    E-Block Radio : HAS THE INTERNET MADE US SMARTER OR LAZIER?

    in Culture

    With the internet giving us access to more information than we can hardly handle, has it made us smarter or has it just made us lazy? Call in thisThursday at 7pm EST to comment on the HOT TOPIC - "HAS THE INTERNET MADE US SMARTER OR LAZIER?" Call 760.283.4647 or click www.eblockradio.com to catch the show LIVE at 7pm EST.  Hosted by Hood Howard Stern and Monk Money.  Produced by Hood Howard Stern.


     


    FLIPSIDE INK LLC.