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Dave deBronkart has a well-earned reputation as an e-Patient. An internationally recognized speaker, author, and health policy advisor, he has words of strength for patients for sure.
In addition, he works with physicians, hospitals, and pharmaceutical companies to help them Let Patients Help!
When most manufacturers decide to create a new product, they do market research and conduct focus groups to determine in advance what the consumers want.
In medicine, it's mostly about what the doctors want.
But the doctors are not the end-user consumers in medicine, they are talented and experienced personnel, but the end-user consumers are the patients.
Come hear what Dave believes are the many ways that Patients can help improve healthcare.
See also Dave's new book, Let Patients Help! A patient engagement handbook - how doctors, nurses, patients and caregivers can partner for better health care. http://www.epatientdave.com/let-patients-help/
Audio clip credits:
Gimme My DaM Data – Maastricht, 2011
Posted by WellApps, https://www.youtube.com/watch?v=0b4li7N_7Ck
Music Video by the Collaborative Agency Group, 2013
Come and join the Cautious Patient Communities where patients and families learn how to be informed and involved in their healthcare. This leads to better healthcare outcomes, as well as a sense of no longer being an outsider in your own care!
Take control and be part of the solution to learn more about being responsible and effective advocates for yourselves and your loved ones.
Monday night, November 11, meet Jeff. Learn about how he spoke up and his actions of being informed and getting involved changed the course of his care and maybe even saved his life!
About CPC Blog Talk Radio: Join us as we chat about how we became Cautious Patients. Cautious Patient Communities is a group where patients and families learn how to be informed and involved in their healthcare. This leads to better healthcare outcomes, as well as a sense of no longer being an outsider in your own care!
Now we can share what has worked during this 30 minute Blog Talk Radio show!
Medication errors happen at home, in the hospital and in the pharmacy.
We will be interviewing Maria L. Franco PharmD, CGP who will share her expertise on some of the most common errors and how they can be avoided. She will be sharing actual stories of how medication misuse and improper use can change the outcome of patient care.
Learn how medication dependency and abuse may be avoided with a Designated Medication Manager and how errors in the hospitals may be prevented with patient and family participation.
Join us as we talk with Paul Szablowski, the Senior Vice President of Communications and Image at Texas Health Resources, about “Creating a Fascinating Patient Experience.” Paul contends that treating patients should not be limited to prescribing medication and ordering tests. Instead, hospitals should re-examine the entire patient environment starting from the minute patients walk through the door, including lighting in the building and the type of questions that are asked. All these items are important as healthcare organizations find new and exciting ways to engage patients and shift towards value-based, holistic care.
Maria Hester, M.D., is a physician in the Washington DC area who is committed to patient empowerment.
Through her corporation Savvier Health, she offers on-site workshops at area corporations to improve employeers' "patient skills."
Led by a practicing physician or nurse practitioner, the workshop aims to coach people to become confident health care consumers empowered to help expedite their own care, slash their own (and their employer's) health care costs, and communicate with medical professionals on an unprecedented level. Participants learn: - Invaluable 'patient skills' that will change their approach to health care forever - How to expedite their own diagnoses - Ways to slash their medical bills - How to get the most out of each and every doctor's appointment - Why many people are admitted to the hospital unnecessarily - How to make each hospitalization safer - How to minimize visits to the doctor - The ABC's of effective patient-doctor communication - How to decrease the risk of a medical error - Valuable tools to help them navigate the medical system - Tips to live longer, healthier lives - The basics of medical decision-making - How to prepare for medical visits in advance
Her blog, "Teachable Moments," is carried in nationally recognized e-Hospitalist News, which is dedicated to teaching other physicians ways to empower their patients. Her book "Your Family Medical Record: An Interactive Guide to Getting the Best Care" was Published by John Wiley & Sons, Inc. in 2000.
Fran Mott has been the Chapter Leader in Michigan for the VHL Family Alliance since 1994. What that means is that she is in charge of taking care of people with von Hippel-Lindau throughout Michigan.
Von Hippel-Lindau (VHL) is a genetic cancer syndrome, caused by one tiny misspelling in one gene, the VHL gene. People who carry this alteration are at increased risk of having one or more tumors in a variety of places in the body. There is currently no magical cure, it's all about watching out for issues, finding them early, and getting the right treatment at the right time.
Fran has worked with physicians at University of Michigan Medical Center and other hospitals throughout the state to become more aware of VHL, diagnose it earlier and more accurately, and help people manage their health. The University of Michigan has created a Clinical Care Center for VHL, part of the CCC program of the VHL Alliance.
Fran is retiring this year after nearly 20 years of volunteer service to her neighbors throughout the state. Joyce speaks with Fran about her experience as a patient herself, a mother, and a volunteer in service to others with this rare disease.
The VHL Alliance will hold its Annual Meeting September 21, 2013, in Ann Arbor, with a dinner September 20 honoring Fran and Dr. James Montie of the U of M.
For information or to register for the meeting, see http://vhl.org/meetings
The Powerful Patient has recently been granted full membership in the International Alliance of Patients' Organizations (IAPO), an organization of organizations worldwide,
IAPO is a unique global alliance representing patients of all nationalities across all disease areas and promoting patient-centred healthcare around the world.
IAPO members are patients' organizations working at the international, regional, national and local levels to represent and support patients, their families and carers. A patient is a person with any chronic disease, illness, syndrome, impairment or disability.
Joyce and Mike speak with Rachel Seal-Jones,Senior Policy Officer of IAPO, about the organization's activities. IAPO has recently been granted special consultative status with the United Nations Economic and Social Council (ECOSOC).
IAPO will now actively engage with ECOSOC and its subsidiary bodies, the United Nations Secretariat, programmes, funds and agencies in a number of ways. This includes:
Attendance at meetings and access to the United Nations
Submission of formal statements and oral presentations to the Council and other UN bodies on relevant topics
Taking part in consultations with ECOSOC and other UN bodies
For additional informaion, please see http://www.patientsorganizations.org
Jane Cooper is founder, President and CEO of Patient Care, the nation’s leading advocacy company, based in Milwaukee, WI. The company began operations in August, 2001 and helped create the advocacy industry. Patient Care currently provides services for over 1 million members across the country.
Jane is a pioneer in health care reform. Her company equips consumers with information needed to make informed decisions. Her experience indicates when given cost and quality information consumers make better choices saving themselves and us money.
Mike and Joyce speak with Casey Quinlan of Mighty Casey Media, author and blogger about patients’ rights and the value of patient input in medical research.
Some medical institutions are beginning to “get” that the patients need to be involved from the beginning in all aspects of medical process and procedure. The patients are the “customers” and are the essential “stakeholders” in designing buildings, clinical trials, and indeed the business workflow surrounding all interactions between doctor and patient.
Come hear Casey’s thoughts on how patients can and should be involved.
“While some [doctors'] offices are looking at increasing their front desk staff, we should be looking at what banks have done. Limit services to those focusing on new patients and special needs. The days of having your name called out in a crowded doctor’s waiting room should be over – that is, unless you really like being asked at the front desk what you are there for (while a long line of patients eagerly await your answer). It’s time to reinvent your practice’s workflow, and it begins by being creative and tapping into your patient’s experience.” — Pete Rivera, Hayes Management Consultant, HIMSS Health Information Systems
“I have this dream. It’s about how, when I make an appointment to see my doctor – my primary care physician – the process is easy, honors my time as much as it does my doctor’s, and winds up running smoothly for both parties.” — Casey Quinlan – See more at: http://www.disruptivewomen.net/2010/12/24/all-i-want-for-christmas-is-customer-service-at-my-doctor%E2%80%99s-office/#sthash.SGi2n6pa.dpuf
Dr. Julia Hallisy is a practicing dentist in San Francisco, California. In 1989, Dr. Hallisy’s late daughter, Katherine, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with Kate’s life-threatening diagnosis marked the beginning of a 20-year involvement in our healthcare system. The combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
The many lessons she learned during Kate’s life became the foundation for her book, The Empowered Patient: Hundreds of life-saving facts, action steps and strategies you need to know. Dr. Hallisy works at The Empowered Patient Coalition non-profit organization and has worked with the California Nurses Association, the IOM Initiative on the Future of Nursing and is a member of the leadership council for the California Regional Coalition working to implement the IOM recommendations.
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