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Tonight our special guests are Dr. Samuel Frank - Associate Professor of Neurology and co-Director of Neurology Resident Education at Boston University and is involved with many HSG studies and trials, and Dr. David Stamler - Chief Medical Officer at Auspex Pharmaceuticals.
Tonight we will be discussing First-HD, which is is a Phase III clinical research trial of an investigational drug called SD-809 Extended Release (ER) in persons who have a diagnosis of Huntington disease (HD). First-HD will be enrolling participants across North America (United States and Canada) who have been diagnosed with HD and who have never taken tetrabenazine (Xenazine ®, Nitoman ®). Participants will be involved in this trial for approximately 4 months.
Stay tuned and we look forward to having an awesome show tonight!
Dr. Mary Edmondson, MD, Psychiatry from Duke University HD Clinic and HD Reach is back with us tonight. HD Reach is a non-profit organization dedicated to providing access to care, education, and social assistance to patients and families affected by Huntington’s disease in North Carolina. She will be hosting a symposium in November titled: “Neurodegenerative Disorders: The example of Huntington’s disease”. We will be speaking with her about some very important insights to care and clinical trials and her Pilot Project to increase awareness of Huntington’s disease. She has developed a very comprehensive multi-disciplinary system to foster an approach for living well with Huntington’s disease.
Tuesday, September 15, 2013
It's time for The HD View Ask Dr. Goodman Show! Tonight we are going to be talking about substance abuse in Huntington's disease. Dr Goodman writes articles each month for Help 4 HD - The HD View to discuss on the Ask Dr. Goodman Show.
Find Dr. Goomans new article: http://bit.ly/1hR4zTp
Tuesday, September 3, 2013
Tonight we will be discussing obsessive compulsive behaviors in Huntington's disease.
Read the article: Obsessive Compulsive Behaviors and Huntington's Disease http://hddrugworks.org/index.php?option=com_content&task=view&id=325&Itemid=30
Obsessive compulsive behaviors (OCBs) occur frequently in Huntington's disease (HD) and can cause great distress. These behavior symptoms are often hard for patients and families to describe, and doctors often do not routinely ask about or treat them. It is important for you to recognize OCB symptoms and learn about treatment, because, though it is estimated that as many as 50% of HD patients experience these symptoms, a study of European HD specialty centers found that fewer than 2% were prescribed OCB-specific medications. This is unfortunate because OCB treatment can make a big difference in the quality of life for both HD individuals and care-partners.
Though there has been little research done on this symptom in HD, there is much you can learn from the experts…
"Help4HD - The HD View: Celebrating the Advocates"
Tuesday, October 22, 2013 is the premier of our new component of Help4HD Programming - "Help4HD - The HD View: Celebrating the Advocates." It is so important that we take the time to acknowledge and celebrate individuals within our community who advocate for Huntington's disease!
We are proud to have Kris Coasthunter King from Sheffield, England with us! Kris is an amazing advocate for Huntington's disease and is here tonight to share his story and connection with HD. Kris is an incredible athlete and in July 2014 has a plan to push his body to the limit, all to raise awareness and money for Huntington's disease.
Stay tuned for a great show!
Rene Latosa is an Escrima instructor with over 30 years of experience.He started his training at the first Escrima Academy established by Angel Cabales and Maximo Sarmiento in his hometown of Stockton, CA. He had the rare opportunity to not only learn from such greats as Angel and Max but world-renowned instructors such as Leo Giron and Dentoy Revilar. He later studied intensively from his own Father, (who had kept his knowledge secret from his son until he felt was ready to learn), several unique and effective Filipino combat fighting systems.
Today, Latosa travels throughout the US and Europe giving seminars, still multi-tasking, Rene holds a full time job as a Deputy Administrator for Management Services at the SF Housing Authority, this is after his retirement from the Federal Government as Director of Contracting. He is married and has three daughters. More information is at his website at:
Tuesday, October 1, 2013
Dr. Peg Nopoulos, professor in Psychiatry, Pediatrics and Neurology at the University of Iowa Hospitals and Clinics will be our incredible special guest tonight. She will be talking about Kids HD and Kids JHD and why the two studies are different. She will have returned from World Congress for HD with some very interesting information for us. Tune in for a very special update from our amazing, incredible Dr. Peg Nopoulos.
Sandi Anderson has been an active Autism Tree Project Foundation volunteer since its inception 9 years ago. She and her husband, Jeff have two adult sons on the autism spectrum. Her many years of experience advocating, homeschooling, and special needs trainings in academics; health and life skills enable her to encourage others in their journey with a vast resource of connections and creative solutions. Sandi is a founding member/chairman for Jeremiah's Ranch, a group home community being established in Fallbrook, CA.
Together with her son Joel, Sandi enjoys many ATPF projects including resource fairs, public speaking at schools, art shows, golf tournaments, television and radio shows, fundraising, and Parent Mentor programs.
Their all time favorite accomplishment has been founding the ATPF & University of San Diego Football Mentor Program in 2009, where football players volunteer to be matched up with a child of any age with autism to have fun throughout the football season and special events. All these experiences have provided Sandi and Joel to now travel internationally sharing autism awareness and acceptance.
Grayson’s Live2Love is an almost perfectly paced conceptualized look at the American pop scene from Aretha Franklin to Sade and from Hall & Oates to Maroon 5. Far more than an above average coverage artist, toss in some wildly creative originals including the first radio single “Afterthoughts” highlighting a prolific ability on soprano sax not to mention the ability to bring the long lost vocal art of scatting back to the modern audience. Who does that? While some of her contemporaries struggle with vocals that are “passable” at best, Grayson is a solid vocalist and uses her ability as flavor and texture without ever seemingly pushing the envelope in search of the elusive crossover hit despite the fact this release contains roughly a half dozen.
Now firmly settled and established in the Washington, D.C.-Baltimore scene, Bach has by way of a dedicated fan base and an ever-growing list of corporate and reputable clients honed a craft worthy of recognition. As recipient of two Gold Records and winner of the 2004 Maryland State Art Council Performance Award, he has tasted the fruit of his efforts firsthand. His band, The David Bach Consort, was the winner of the Jazz Discovery Showcase on BET, has performed at Jazzmatazz with B.B. King, and has played at the Kennedy Center.
Special Guest Andrea from KnitCrate joins Marly Bird to talk about her fantastic company. Listen Live for chance to win great prizes!
Like this podcast? Be sure to leave a comment/review on iTunes to let other know about it! Stay up to date with the Yarn Thing podcast with the App available on iTunes and for Droid. Find our more about Marly at www.MarlyBird.com or follow her on facebook at www.facebook.com/marlybird This podcast is sponsored by: Knitter's Magazine, Craftsy.com, Fiesta Yarns, Indian Lake Artisans, Decade by Drew Emborsky, Love of Knitting, Love of Crochet and Bijou Basin Ranch.
Kristin Omdahl joins Marly to talk about her newest book Knitting Outside the Swatch! Find our more about Marly at www.MarlyBird.com or follow her on facebook at www.facebook.com/marlybird Like this podcast? Be sure to leave a comment/review on iTunes to let other know about it! Stay up to date with the Yarn Thing podcast with the App available on iTunes and for Droid. This podcast is sponsored by: Knitter's Magazine, Craftsy.com, Indian Lake Artisans, Fiesta Yarns, Kollage Yarns, Decade by Drew Emborsky, Love of Knitting, Love of Crochet and Bijou Basin Ranch.