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Is it possible to Unite the Autism Community? Can Autistic and Aspie adults, teens and children respectfully come together with parents, educators, service professionals and nonprofit autism organizations to discuss challenges and work toward the common good?
If so, what would that look like? Who would be seated at the table? Who would facilitate the conversation?
How do we calm the chaos, reduce the infighting and begin to work together for a stronger, more united, autism community that focuses on acceptance, empowerment, optimal outcomes and positive life trajectories? How do we provide individuals and families with support, opportunity and connection?
Join Autism Empowerment Radio as Karen Krejcha discusses these challenges. Diagnosed with Asperger syndrome in her 40s, Karen is mom to two sons (8 and 15) also diagnosed on the autism spectrum. As Executive Director and co-founder of the nonprofit, Autism Empowerment, Karen regularly engages in conversation with autistic teens and adults as well as parents and other family members. She sees and hears the frustration from those on the spectrum who want to be respected and accepted and not seen as a burden upon society. She sees and hears from parents who want to do the best for their children but struggle navigating convoluted and conflicting systems of service that sometimes hurt more than they help.
Is it possible to strengthen the Autism Community? We think so!
Let's talk about it.
This week on Autism Spectrum Radio we discuss a topic that is extremely important to many parents of young kids with autism, social skills and ability. Most parents are familiar with the social challenges faced by our kids on the spectrum but not everyone knows helpful strategies that will support better social function. This week, host Rob Haupt is pleased to welcome Dr. Ann Densmore, Ed.D. CCC SLP/A, certified speech pathologist and audiologist and author of Helping Children with Autism Become More Social: 76 Ways to Use Narrative Play and author of Your Successful Preschooler: Ten Skills Children Need to Become Confident and Socially Engaged.
Dr. Ann Densmore, Ed.D. CCC SLP/A, certified speech pathologist and audiologist and author of Helping Children with Autism Become More Social: 76 Ways to Use Narrative Play and author of Your Successful Preschooler: Ten Skills Children Need to Become Confident and Socially Engaged (Harvard Medical School and Jossey-Bass, 2011). Director of Child Talk in Lexington, MA. Ann Densmore has been a speech and language consultant at public and private schools or more than 30 years. In addition to running a private practice in Lexington, Massachusetts she also consults internationally and has taught seminars for professionals and students at Harvard Medical School. Ann holds an Ed.M. in Human Development and Psychology from Harvard Graduate School of Education and an Ed.D. in Education with a specialization in child discourse from Clark University. She is board-certified in speech and language pathology and audiology. Ann swims Walden Pond every morning (when it’s not iced over) and enjoys long bike rides with her friends. She also loves photography, swimming with Cambridge New England Masters at Harvard University, and taking walks with her Portuguese Water Dog, Map. http://www.child-talk.com/ Twitter: @AnnDensmore
Autism is a major issue which is developing and increasing in the USParents may feel that their is no hope or they cannot understand their child in many ways Having had experienced this development ourselves with our youngest child, we had to work hard for results and we will share some tips and tools in whcih you can utilize for Autism in oyur homeAutism spectrum disorder (ASD) is a range of complex neurodevelopment disorders, characterized by social impairments, communication difficulties, and restricted, repetitive, and stereotyped patterns of behavior. Autistic disorder, sometimes called autism or classical ASD, is the most severe form of ASD, while other conditions along the spectrum include a milder form known as Asperger syndrome, and childhood disintegrative disorder and pervasive developmental disorder not otherwise specified (usually referred to as PDD-NOS). Although ASD varies significantly in character and severity, it occurs in all ethnic and socioeconomic groups and affects every age group. Experts estimate that 1 out of 88 children age 8 will have an ASD (Centers for Disease Control and Prevention: Morbidity and Mortality Weekly Report, March 30, 2012). Males are four times more likely to have an ASD than female
Healing Autism Parents
With all the education, progress, and advancements in the world today, we sometimes forget about problems in front of our faces. We have seen increased divisions, whether it is based on gender, race, or ability, and these divisions create depressing barricades to healthy progress. In this episode we address some of the issues within the autism parents' community, how they prevent progress and how it affects advancement.
Autistic lives matter!
Heads up: This episode has a PG--13 rating.
All parents face daily obstacles, but parents of children with autism experience increased challenges that can result in overwhelming anxiety, depression, self-doubt and sadness. Ultimately, these parents are husbands, wives, sisters, brothers, family and friends who simply wish to experience more fulfilling and satisfying lives with their children.
Dr. Darren Sush is a clinical psychologist and board certified behavior analyst, specializing in therapy for parents of children with autism. Throughout his career, Dr. Sush has recognized that parents of children with autism can significantly benefit from the guidance, comfort and empathy of therapeutic services that support their unique experiences and struggles.
Over the past decade, Dr. Sush has had the privilege of working within agencies that provide intervention and support for children diagnosed with autism. Through his work developing treatment programs, meeting with families and helping children, he has gained exceptional knowledge and understanding of the unique experiences of parents of children with autism.
He offers direct knowledge and guidance to the various questions that arise regarding children with autism’s behavior, skill building, treatment, funding and school placement, and helps families live their best lives possible.
This week on Autism Spectrum Radio we are are talking with some of the best experts when it comes to life with autism...parents and self advocates. Our host Rob Haupt is excited to welcome three of the authors of The Thinking Person’s Guide to Autism. Join us for a lively and informative discussion about the importance of good treatment and how to choose it, as well as valuable insights on advocacy.
Shannon Des Roches Rosa writes about autism, parenting, evidence-based approaches, iPads, vaccines, and geekery at www.Squidalicious.com, as BlogHer.com's contributing editor for parenting kids with special needs, and as a co-founder and editor of TPGA.
Jennifer Byde Myers is an editor and co-founder of TPGA. She writes at www.jennyalice.com, chronicling her family’s journey from diagnosis to daily living with her son’s special needs.
Carol Greenburg, executive director of Brooklyn Special Needs Consulting, is a special education consultant and lay advocate in private practice. Her unique perspective as an adult with Aspergers Syndrome and as the mother of a severely language-delayed autistic child, informs all of her work. • http://www.thinkingautism.com • twitter @thinkingautism • Facebook www.facebook.com/thinkingpersonsguidetoautism
Tonight Jesse interviews Maria Rickert Hong board member for the non-profit organization Epidemic Answers which focuses on helping parents recover their children from chronic illnesses like Autism, ADHD, SPD, allergies, asthma, acid reflux, chronic ear infections, OCD, Lupus, Type 2 Diabetes, Autoimmune Disorders. Maria is also the Media Director for Documenting Hope and has authored the book "Almost Autism" which focuses on recovering from Autism. We will look at her work with Autism, and her organization Documenting Hope. You can reach Maria through her website at www.mariarickerthong.com
Clare Hedin: www.clarehedin.com
Mindee Pinto currently teaches early childhood special education, specializing with children diagnosed on the autism spectrum, in Palatine Illinois. Mrs. Pinto holds a bachelors degree in speech/language pathology and masters degree in early childhood special education. She lives with her husband Michael in Deerfield Illinois, with a their beautiful daughter Jillian.
Judy Cohen has been employed by the Milwaukee Public School system in special education for over 25 years. She began her career as a special education classroom teacher and for the last 17 years has been a diagnostic teacher in the school system. Mrs. Cohen also owns Lakeside Educational Services in Milwaukee. LES specializes in academic coaching/tutoring, as well as teaching and reinforcing organizational/study skills. Mrs. Cohen lives with her husband Jeff of 37 years and has two grown children.
The book, Mikey explains how a young child with autism sees, hears, and feels the world around him in his school environment. Mikey is not just intended for educators; although, all teachers should read it to their classes. It is intended to educate adults as well as young children to increase their awareness and understanding of the child with autism. This book, and others to follow, was inspired by my vast experiences as a teacher working with children with autism.
This week on Autism Spectrum Radio we will discuss a question that concerns all parents and caregiver at some point: What are the challenges and opportunities as children with autism become adolescents and adults? The specific nature of how to manage these changes and the best way to prepare for the future will be the focus of this episode. Join us as we explore the different facets of how families and society need to prepare for a maturing community of individuals with autism. We are extremely excited to welcome a special guest to the show, Dr. Peter Gerhardt. Dr. Gerhardt is an expert on the use of ABA therapy in support of adolescents and adults with autism spectrum disorders.
Dr. Gerhardt has more than 30 years’ experience utilizing the principles of Applied Behavior Analysis in support of adolescents and adults with autism spectrum disorders in educational, employment, residential and community-based settings. He has authored and co-authored articles and book chapters on the needs of adolescents and adults with ASD and has presented nationally and internationally on this topic. He serves as Chairman of the Scientific Council for the Organization for Autism Research, is on the Editorial Board of Behavior Analysis in Practice and on numerous professional advisory boards, including the Autism Society of America. Dr. Gerhardt received his doctorate from Rutgers, The State University of New Jersey’s Graduate School of Education.
Trish Kane, Director of Programs, provides support and resources through research, field work and personal experience. Trish develops the PFA workshop series by identifying and coordinating partners, topics and speakers. She also organizes family fun events throughout Maryland to bring enjoyment and social opportunities for families. In addition to her work with Pathfinders, Trish is on the Board of Directors for The Abilities Network, a local Maryland community and vocational support organization.
Shelly McLaughlin is responsible for the research and management of information on Autism across the lifespan, including the creation of an Autism By Age navigation tool. Shelly uses her collaborations with experts, research, or personal experiences to pen a monthly Parent Tips article that offers practical solutions to everyday autism challenges. Shelly also serves as an appointed member on the Governor's Interagency Transition Council for Youth with Disabilities.
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