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Guests: Deborah (Debbie) Dalin Guyer, MA Executive Director of the Greater St. Louis American Parkinson Disease Association (APDA), and Kelly and Pete Gaylord, co-facilitators of an active Parkinson’s disease support group located in Punta Gorda, Florida.
Ms. Guyer has been the Coordinator for the Information & Referral Center of the APDA at Washington University School of Medicine, one of eight APDA Centers for Advanced Parkinson Research, and served previously on the Board of Directors for 10 years, chairing the patient services committee.Her educational background includes a Masters degree in Speech Pathology, and she has been involved in running support groups and advocating for individuals with communication, voice, and swallowing deficits.
Pete Gaylord was diagnosed with Parkinson's disease in 2001 at the age of 46, and he made a key decision to meet the disease head on, doing whatever he could to slow the progression. Pete lives by example, teaching weekly exercise and balance classess to persons with PD.
Pete and his artist wife,Kelly are actively involved in the community, and two years ago began a PD support group that is growing strong.
Please join me and my guests as we discuss the ins and outs of starting and maintaining a PD support group.
Join the discussion by calling in on the toll free number.
Email your confidential question/s to: firstname.lastname@example.org or send a tweet: @voiceaerobics#PDsupportgroup
in Self Help
THIS WEEK: TRICK or TREATing w/a TBI
For some, this is their first Halloween after sustaining a TBI. Some even may have been diagnosed with PTSD in conjuction with their Brain Injury. While Halloween has historically acquired tendencies of pranks and scare tactics, this can create some issues for those of us with Brain Injuries What are some 'tricks' you've learned to help you manage your TBI and what are some of the Treats you've discovered since having a Brain Injury? Join us on tonights LIVE Halloween Special on "WTF?" as we share some Tricks and Treats that both THRIVERS and CarePartners can put to immediate use to get more FUNction out of the day.
Tune in this week to add another perspective to your daily repertoire. If there is something in particular you would like to hear Kevin discuss, join us on Fridays and share in the chat room with the "Marvelous Maggie" (Kevin's 24/7 Partner and Professional Care Assistant)
“Those who fight Parkinson's with knowledge always find solutions- Dr.Rana," Founder, World Parkinson’s Program
The number of persons diagnosed with Parkinson’s disease (PD) is expected to double worldwide by 2030, many persons living with Parkinson’s disease around the world cannot afford:
Consultation with a neurologist or,
Medications for their treatment,
An electric tooth brush and other basic healthcare supplies,
A walker, wheelchair or cane, to reduce fall risk, and
Lack access to educational literature about Parkinson’s and hence are without necessary information about their disease.
The World Parkinson’s Program has a mission to respond to some of these basic needs, and its founder, Dr. Abdul Qayyum Rana is passionate about providing education and services globally. Dr. Rana is a Canadian neurologist specializing in the field of Parkinson's disease and Movement disorders. He is currently the Director of Parkinson's Clinic of Eastern Toronto and Movement Disorders Centre in Toronto, Ontario, Canada. He is the founding editor-in-chief of the Journal of Parkinsonism and Restless Legs Syndrome, and he has published extensively in the field of Neurology. He is founder of World Parkinson's Program, a foundation dedicated to improving the quality of life of persons with Parkinson’s and their carepartners by providing education and other supportive services, at a global level. http://www.pdprogram.org/
Wherever you are in the world, I hope you will join us for an enlightening discussion.
Listen, learn, and join the discussion. Call toll free: (888) 787-5265 or SKYPE
Barry Greenberg -Director of Strategy at Toronto Dementia Research Alliance,Director, Neuroscience Drug Discovery and Development at University Health Network, Toronto
Barry Greenberg has been involved in Alzheimer’s disease research and drug discoverysince 1985.
At UHN, he is currently co-directing the Toronto Dementia Research Alliance as Director of Strategy, a consortium involving academic research and the five memory clinics at hospitals affiliated with the University of Toronto to create a citywide dementia research center. He possesses a significant background in most aspects of the drug discovery process in neurological disease, with externally recognized expertise ranging from target identification and validation through preclinical and clinical development including issues of biomarker-based diagnosis and proof of concept.
Dr Greenberg has a strong international network in the Alzheimer field including industry, academia, government and the voluntary sector, plus previous involvement in multi-sector consortia.
This promises to be a very interesting conversation.
Christopher Wynn will share with us the film he made documenting his journey with his Dad’s and his dementia called "Forgetful, Not Forgotten"as well as discussing the importance of capturing and sharing stories and how family dynamics and secondary caregivers come into play. We will also find out about his upcoming project.
Curran Lake Films 514-439-4748
Please join us! We would love to answer your questions.
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